Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Hello and Welcome to our group! My name is Kristy Colvin and I am the president of International Mosaic Down Syndrome Association. (IMDSA) I am so glad that you found us! I think that we have another parent living in your area! I will check it out and let you know. Please check out our web sites for more information. At http://www.mosaicdownsyndrome.com you can read personal stories from other parents experiencing the same things you experience! Please add your own personal story. It means so much to everyone! Also, you will discover links to doctors knowledgeable in MDS. You can speak with these doctors through email and you can request the MDS research book done by Dr. -Cook. Please fill out the information sheet there. This way, we can have a record of you and your wonderful family! At http://www.imdsa.com you will find lots of information on IMDSA! Here you can become a member of our growing organization. By becoming a member, you will receive our quarterly newsletter " Mosaic World " , our parent packet full of MDS information, and great discounts to IMDSA functions! We are currently planning our first MDS awareness convention to be held in November,2003 in Orlando, Florida. You can learn how to register for the convention on our web site as well. Please consider purchasing a calendar from IMDSA. The link is under " promotions " on the site. Our IMDSA 2003 calendar is filled with some of our beautiful children with MDS. All countries holidays are listed on this calendar, so that no one is left out! Your tax deductible donation of $10.00 USD will go towards helping IMDSA reach more people touched by Mosaic Down syndrome. If there is any way I can be of assistance, please do not hesitate to ask! Sincerely, Kristy Colvin President IMDSA Mom to Arron 21, 18, Tim 16(MDS), Stevan 16, and Garrett 7 The only handicap a person has are the people around them! (unknown) Hello, everyone! I am very excited to have found this great resource! My name is and I have a 2 and 1/2 year old, , with MDS. My husband and I also have a 15 month old typical child, . I am also a stepmother to my husband's 2 children..ages 15 and 11. Ok, now that all that is out of the way..I am excited to get to know you all! We live in Cincinnati, Ohio and don't really know anyone yet that has a child with MDS. We plan on going to the MDS convention in October, but need to get more details first. I look forward to hearing from you, and am excited to be part of this group! Take care. Quote Link to comment Share on other sites More sharing options...
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