Re: from Antony - Jack's urinary toxicity test results

[Guest guest]

: After trying all the bio-medical routes, there are some

children who do need prescription medications to make gains. In consulting

with Dr. Amen re SPECT exams on autistic children, he notes certain patterns

their brains show. This is what he recommended for one of my patients who is

also pretty much a non-responder to everything (except diet):

1st) A trial with an amino-acid mix; he likes a compound called

Teen-Link, obtainable by internet from Pain and Stress Center. (Since I

already have my patients on lots of amino acids, I often go right to the

2nd.)

2nd) A trial with an anti-convulsant; I recommend Neurontin (gabapentin)

as it is non-toxic and does not systemically react with any other medication

your child is taking. I suggest GABA prior to this to get ready for it, and

some kids quiet down and get better with GABA alone. I have had some

notable responses with neurontin, and some notable lack of responses - few

negative responses.

3rd) A trial with very low dose SSRI's - I like starting out with 1/4 ml

of Lexapro and working up very gradually. Prozac is the only SSRI that is

recommended for children, but it takes so long to start having its effect (3

weeks) that unless a child has already shown that this helps (from another

therapist in the past) I usually go to one of the faster acting ones. I

must stress the importance of starting with tiny doses and working up

slowly. If neurontin has shown some benefit but not enough, I continue

these simultaneously.

4th) If still no benefit, or even negative reactions, Risperdal

(risperidone) in low doses does calm down the " ring of fire " that many of

these kids show on their SPECT exams, and they are able to listen and focus

better. The side effect is strong hunger and weight gain, and in an attempt

to move away from these side effects, some parents go to Geodon or Abilify,

with varying results.

Obviously you have to have a willing doctor to work with you on all these,

though they are all pretty safe medications except for the carbohydrate

metabolism problem with all the anti-psychotics. The suicidal risk lately

touted about the SSRI's I believe applies to NT or very high-functioning

kids who are depressed and get activated enough by the SSRI that they figure

out how to kill themselves. With the degree of supervision that our kids

have I don't think they are dangerous drugs in this regard. Some cause some

weight gain in some people, but not like Risperdal.

As to TD-DMPS chelation, I cannot offer any more than I already have until

after the Think Tank at the DAN! coming up very soon. 10 rounds of

chelation is not enough to judge yet. If you are going to follow Andy's

chelation protocol, you should be addressing your questions about chelation

to him. I cannot be more specific than this without a formal consultation.

Dr. JM

from Antony - Jack's urinary toxicity test results

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[Guest guest]

They are completely different medications. Strattera is in a class all by

itself, and doesn't cause weight gain, helps some kids, makes some kids too

sleepy, and most show nothing with it. I consider it a pretty benign

medicine. I consider a child lucky if they are helped by Strattera. Most

ASD children do not do well on Ritalin or Adderall, but a few higher

functioning kids seem to benefit. Dr. JM

from Antony - Jack's urinary toxicity test results

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> Many frequently asked questions and answers can be found at

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[Guest guest]

Is Lexapro comparable to Strattera? Our daughter can't take Strattera because

it's metabolized in the 2D6 pathway but Lexapro is metabolized in the 2C19 which

is good for her. Strattera helped her focus and retain memory, but she simply

couldn't metabolize it.

Thank you,

Shari

from Antony - Jack's urinary toxicity test results

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> > > Dear

> > > please see attached results

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Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

[Guest guest]

Thanks. We have had our daughter off of Ritalin since May and she's holding her

own. Ritalin was a very remarkable drug for her when it was in her body as far

as focusing. When the Ritalin wore off so did all of the benefits. We're trying

to get her back on track with Play Attention and other behavioral therapies.

However, she's doing great with four of the five " quintet therapies " - but I

have always thought that our daughter could do so much if she could just

concentrate better. Thanks for the information. Any ideas on supplements that

help concentration? I noticed the ADD e-mails. We have a prescription amino acid

for our daughter but it makes her SO HYPER.

Shari

Shari

from Antony - Jack's urinary toxicity test results

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> Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

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[Guest guest]

Dear Dr McCandless,

I was most surprised and upset to see your response to my mail as I had not

checked out your recomendations at all with Andy, but had merely responded

to an email he had written suggesting that indeed there were other signs

other than on an EEG which might indicate the benefit of using an

anti-convulsant. I asked him what those signs were in order to see if Jack

fitted this mould as you had suggested I might try one.

I am only trying to assess the best way forward for Jack who is not

progressing at all, and I have never double checked your recommendations

against anyone else, indeed being in the UK where we have no good physicians

in this field we and other parents are eternally grateful for yours, Andy's

and others support in trying to help us with our children and I hope that

you feel that you can continue to do so. We continue to follow many of your

recommendations from our initial consult, the only difference being that we

are chelating following Andy's protocol. We have reached a point where we

need to make some decisions around the possible use of some prescriptive

medication and are just trying to find out more about the suggestions you

have made. My biggest concern is how we convince a UK G.P to prescribe as

they are very conservative over here, hence my question about a further

consult as we are keen to trial some with him.

With my very best wishes

from Antony - Jack's urinary toxicity test results

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> > > Many frequently asked questions and answers can be found at

> > <http://forums.autism-rxguidebook.com/default.aspx>

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[Guest guest]

: I had been given incorrect information and have already apologized

to Andy. He is my friend but we have been battling for years over his

constant need to put DAN! doctors down, and I had a knee jerk reaction when

I was told what apparently another poster had said about the use of

anticonvulsants. None of us like to use medications on our kids but the

clinical reality is that sometimes it is necessary, and your son (and my

granddaughter, after fighting it for years - so it is an emotional

touch-point for me) may be one of those.

Though Andy and I agree on many things, we do have some distinct

differences around chelation. In spite of my having had notable successes

with the use of DMSA (as that was all we really had for a long time) the

pathogen overgrowth issue is a serious one, and other agents/routes/doses

are being investigated at DAN! and elsewhere. At the moment I am exploring

TD-DMPS, and the Think Tank where we have invited Dr. Buttar will be next

Wednesday and Thursday, after which I will know more and will post it here.

Since I am extremely busy until after the conference, physician training,

and clinics that follow each DAN!, I would prefer to discuss consultation re

the meds by personal e-mail after the 6th. At that time, I will know more

and can help better. Dr. JM from Antony - Jack's urinary toxicity test

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[Guest guest]

: I'm still for some mysterious reason not getting the personal

e-mails from you. Since I receive about 400 a day from all over the world,

I sure don't understand it. Please send it to my dh Jack

(jmzimmerman@...) who is in the next room and he can forward it to me.

Thanks! Dr. JM

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[Guest guest]

Thanks Dr M I look forward to discussing a way forward post the 6th and hope

the think tank is a big success for all !! I am ccing this to your private

email too so can you just let me know if you get it as otherwise I've still

got the same problem with mailing you privately!!!

Many thanks

from Antony - Jack's urinary toxicity test

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> > > > > Many frequently asked questions and answers can be found at

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