Re: I've spent almost half of my life with PSSD

[Guest guest]

Sorry but I refuse to accept I have a "disability." That is an incredibly beta thing to say. I don't understand why you come here to bring this negativity.

[Guest guest]

Thanks for posting that, I'm sure it was difficult to write that.

I have only come off Paxyil four months ago. I cam off the dug to quick and my

erectile dysfunction that I had while on the drug has since then worsened. I do

not respond well to Viagara, Levitra, etc. I am getting semi-erection from a

new ED pil called Saxtyen.

So, here is my question:

What do you tell people (friends, co-workers, aquaintances) why you have not or

are not in a relationship?

I am going through a divorce right now but, what will I tell people after a

while as to why I am not in a relationship?

thanks

-M

---- zant808 wrote:

> I've spent almost half of my life with PSSD. To date, there still hasn't been

any lawsuits or any significant recognition that PSSD really exists. I haven't

read anything from this group or about psychiatry for a while. I hope that

there have been some recovery stories. My best advice is that although PSSD is

completely unfair, you have to treat it as a disability. The only way I've been

able to survive is to completely consume myself with activities that I enjoy. I

recommend that if you are caught up with being angry at having PSSD that you try

and accept that you have a disability and that you just do whatever you can to

make you feel happy. It's easier said than done and it certainly took me a long

time. I got PSSD in my teens and now I'm already in my 30s. Take care.

>

[Guest guest]

No. PSSD is an acronym for " Post SSRI Sexual Dysfunction " . I have never taken

SSRIs. I acquired genital anesthesia after being forcefully injected with

Haldol, a neuroleptic, or so-called " antipsychotic " , used for schizophrenia,

almost 29 years ago. If I could do research, I would probably call what I have

PNSD, or " Post Neuroleptic Sexual Dysfunction " .

Back then I was sent home after three days in the hospital with bottles of

Haldol and Cogentin, which I immediately flushed down the toilet and never took

again. The change was very noticable. It felt like someone had applied ice to

my saddle area. It still feels that way.

If you would like to read my story in a nutshell, you can visit my YouTube

channel. However, because the channel design was changed, whether we wanted it

or not, now you will have to click on " more " on the right side of my " featured "

page to read about me in addition to playing the text video I made.

http://www.youtube.com/user/Kay1948

In 2006 I learned to use the computer. Before that I had no idea how many

people were being affected in this way from psychiatric drugs. I have been

following this group for years and it seems that at least some of the people on

this forum may have permanent disability after taking, and then discontinuing,

SSRIs. I've never been able to find a group like this one exclusively for those

who have been given neuroleptics, although some people have told me that they

have had genital anesthesia while on them.

~ Kay

> >>

> >> Sorry but I refuse to accept I have a " disability. " That is an incredibly

beta thing to say. I don't understand why you come here to bring this

negativity. 

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