Re: Pain Plus Flu then Asthma ...11 July

[Guest guest]

Hi Ken,

> You are the most expert on your own situation & pain

> condition, and I

> suspect much more.

I have tried to tell the Docs a lot. I rarely find one who will listen.

> material (which might not show on tests, even possibly MRIs).

I have the fibrous lumps literally all over me. Some are painful and some

are not.

The docs who have considered them just call them lipomas and rule them out.

But they are uncomfortable, and at one point I had three removed on

" psychological grounds " , viz., that they were harmless, but because I was

distressed by them, they removed them. One doc even queried how I found one

lump deep in the groin area ... it was painful as hell and affected walking

and all she could say was " how did you it when it was so deep " ... And some

people query my lack of trust in Docs.

> where I was operated on *because of the surgical wound*!

I don't know what changes are occurring as life goes on. I guess I am trying

to focus on the positive so much that I miss some key clues.

> Whatever happened to your spine in the accident might possibly have

> triggered further body processes that are contributing to your problems,

> and could be of a substance type that would only show up during actual

> surgery *into* the interior spine. Of course this is all supposition on my

> part, but I know you have had virtually no understanding of your problems'

> origins from the medical work that has been done.

Some Chinese Doctors have said effectively this. They have wanted to treat

me, but at this point I don't have the cash and because the Insurance agency

called the TAC which looks after all these things pays no credence to the

Chinese docs, I can't yet move in that direction.

Regards

.

******************************************

Milton |santeri@... |

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http://www.eisa.net.au/~santeri

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[Guest guest]

Hi Mike !! :-)

> screws up my night totally. Our body are meant to regenerate themselves at

> night. After all that's why we sleep.

I must admit I don't really understand my own sleep patterns other than

after the accident in 1991, my entire metabolism went crazy, and one effect

was insomnia. Right now, my job is stressing me out a lot, and I get very

tired because of long public transport trips. But this last week, from

Wednesday to Friday I just got heaps of better ( not really good ) news and

this made the job go better. Plus, the senior network exec wants me to do

Remote Moves and changes as the Help Desk expands and conquers

telecommunications in Australia. Anyway, I have made up my mind to leave,

and my last offer was a provisional offer of an interview with FOXTEL, and

the access to high tech toys looks nice, so I am going to give that a go.

Hopefully less stress.

> it wasn't voluntary but it was a tough sell.) Next time you go to the doc,

> why don't you ask about this or phone a plastic surgeon and find out. The

> effect last about 3 months and you have to get it done again but

> that may be

> a better way to cope.

The injections of potentially lethal bacteria is known about here but not

sanctioned. The biggest publicity came when a famous Female singer or

actress was announced as having regular injections of potentially lethal

bacteria so that it would stop wrinkles. Anyway, the medical reaction was

pretty negative.

>

> > Apart from cognitive deficits, and slowing down in activities

> > like playing guitar, I don't know what happened.

>

> Hey, don't knock it. You can play slow songs better than anyone

> else ! <gr>

> There's a good side to everything !

A musician friend said that I am a melodic solo player anyway, and he

reminded me that Clapton has a nickname relating to his slower speed in

playing. Anyway, it works well with bass guitar playing, but I get told a

lot that on bass I sound like a lead guitarist playing bass, but since 1991

that has considerably lessened :-)

At least it will come in handy for teaching guitar :-)

>

> >But

> > if I am too tired, then I have a severe limp.

>

> If you read the posts a couple weeks ago, " limp " was discussed profusely

> under the topic " intimacy " . Seems a lot of us tend to limp in one form or

> other !

I must have missed that. I did mean walking though.

> just refuse to go that way. I figure the credit company was good enough to

> trust me so I try to repay everything. Takes a long time but...hey, it's

> better than nothing.

Same way I feel. I am struggling to meet committments that were " depression

purchases " , but the finance companies are getting pretty savage, but I am

not stressed about it. My intention is to pay, and if push comes to shove

then what happens will happen.

> carrying heavy objects, doing our lawn, etc. It's a toss up

> between feeling

> good about having friends and despising them for not letting me do for

> myself.

Most of the best things I can do usually get better with a Pain edge.

Extremes in emotions usually give the Arts I like some extra colour.

I learn a lot when I talk with people who have had similar, common

experiences; that is a time when I like the common element, but more often

than not, one of us will feel ill when reliving some elements of the

problems, so the conversation has to stop.

However, the unwanted uncomprehending sympathy is just not needed; if

someone has a temporary experience and tries to relate it to mine in

sympathy or empathy, then it is really not that fun. I only bite back with

my vivid description of the pain if I am extremely on edge ... I just

explain that my headache feels like 6 inch rotating nails on my right side

of my head near my temple and in the direct back of my skull, and that

mostly usually shuts them up.

Sometimes though, I have met a few people who see I am not well, and they

ask me if they can help or what I would like; and I just say that I would

love a chat at a certain time, and the rare few do take time to do that.

If you have seen the material on the ANGEL DUST list then you will know what

passionate compassion is.

> I can only repeat myself, you MUST get a confirmed diagnosis on this. I

> can't count how many times I've felt poorly and just attributed it to my

> chronic conditions and then finding out it was something entirely

> different.

> When you spend your life feeling like s__t, you accept a lot of things you

> would not normally accept.

The chest thing eased off then has kicked back this afternoon here.

>

> > Thanks for writing.

> > I feel like junior Joe in the Pain stakes here, but I guess all

> > is relative.

>

> Yeah, my relatives are a pain too !

Mmmm, I better get GI Joe in the Pain stakes to chat to then :-)

>

> > I have a lot to be thankful for, and a few major things right now to be

> > heavily pissed off about.

>

> You know what they say: It's better to be pissed off than pissed on.

Mmmm, first time I have heard that. Sounds neat. :-)

Regards

.

******************************************

Milton |santeri@... |

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http://www.eisa.net.au/~santeri

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[Guest guest]

,

The medical electronic device I was thinking about is an Alpha Stim, which

costs $600. US. My insurance did actually pay for it. I don't use it all the

time. There are so many pills & things to do that I tend to forget about it

untill I run into a bad stretch & start looking for reasons not to kill myself.

Then I generally remember it.

The AlphaStim is designed by an MD who used to design TENS units & is one of

the few peoplewho has devoted a lot of time to the electrophysiology of the

body.It's about the size of a walkman & has clips to your earlobes & electrodes

for any other part of the body you like. Can be used several different ways, but

primarily designed to pass a current through your whole body that puts out a

sequence of the typical healthy alpha waves people have without pain. The

results are (if it works for you) that you feel comfortable & in better mood.

Lasts for a few hours to several days, and can be used just for a few minutes or

long periods/continuously, with a pretty good result.

His company sells it witha full refund trial period. When I have my computer

back up I'll scan some of the info & email it. The company can be reached at

1.800.FOR.PAIN.Even though you're jammed financially, its something to look

forward to trying out Needs to be prescribed by a medical practitioner (not

necesssarily a doctor)..

By the way, I did get pretty good relief from accupuncture ($$$), and this

is comparable & in some ways better. I can get the units for less from the

manufacturer, bought 2 or more at a time, but then u wouldn't have their free

trial.

Have had mine for 4 1/2 years, and the quality of the material is so high

that I only had to buy a new set of pads once! ($15. US)

I know this is not the time for this for you, but it is something worth

planning to try.

One needs hope.

Ken