Re: Hello!-Patti- Pump/ To Ken

[Guest guest]

Hi Ken, The doctor places this clear plastic thing over my pump that

shows him where the resovoir hole is. He then fills the syringe up

with Baclofen and injects it through my skin into the pump. Since I

have no feeling I don't feel the needle but it's a big one...... Pati

--- Turbin wrote:

>

>

>

> Patti,

> How is the medication placed into your pump. I'm just nosey.

> Ken

> Pati Beck wrote:

>

> >

> >

> > Hi Margaret, Thank you for asking about me. On August 6th I go

back to

> > my doctor and will ask him then if morphine can be mixed with

> > Baclofen. My pump is completely internal and the dosage is set by a

> > computer. It's sorta like go through the check out lane in the

> > supermarket. He places a scanner over my pump, then all the info

comes

> > up on the computer scan. He can adjust my doses, know how much

> > medicine is left and tell the condition of the pump. As far as the

> > stimulator, that will be all internal, however everyone I spoken to

> > about it on the list mentions external wires. Also all the talk is

> > about the stimulator in the back, where mine will be put in my

> > cervical region. I will be talking with my neurosurgeon this week. I

> > use a morphine patch. How does yours work for you? Sorry to hear

about

> > all your medical problems...Pati

> >

> > ---Margaret Doll wrote:

> > >

> > >

> > >

> > > Hi Everyone,

> > >

> > > I've been sitting in the shadows since last Saturday, reading all

> > the mail

> > > but not contributing. We all seem to be in " flare-ups " of our

> > conditions to

> > > some degree. That is what has kept me out of the fray, I have

been

> > at

> > > " Club Med " ( hospital ) for yet another stay, came home on

Saturday

> > to 150

> > > email messages. Getting through all of those was a daunting task.

> > I had an

> > > abdominal ischemia with resulting paralysis to the right lower

> > quadrant of

> > > my small intestine, and an acute pancreatitis.

> > >

> > > It's good to be back home and once again pumping Vital HN full

> > strength at

> > > my maximum allowed rate of 100ml/hr. Patti, I hope you hear soon

> > regarding

> > > the surgery date to implant the stimulator. I pray that when you

> > get it you

> > > will finally have relief. In the meantime has your doctor okayed

> > putting

> > > morphine in your pump? I saw my GP on Thursday and she had just

> > received

> > > the letter from Pharmacare approving my use of the morphine patch.

> > She gave

> > > me a script for injectible morphine again as she said she had to

do

> > the math

> > > in order to find out what dose the patch should be, right now I

take

> > 20mg

> > > morphine every 4 hrs. Said the liquid morphine wouldn't go to

waste

> > as I

> > > would need it for break through pain while she plays with dosages

> > for the

> > > patch.

> > >

> > > Also, on Wednesday I saw the surgeon who did the repair to my

> > intestine and

> > > bladder in May. He told me in the OR he was faced with having to

> > make a

> > > decision because the surgery was going to be far more extensive

than

> > > expected, and then explained what he had had to do. He said he

was

> > very

> > > sorry. Anatomically intimacy as we know it is now not possible.

> > Here I was

> > > not long ago asking for advice on intimacy from you when having to

> > deal with

> > > pain and morphine. Little did I know what was awaiting me.

> > >

> > > I am still dealing with the emotional aspects of it. Ren is very

> > > supportive and I know with time we will work through it. The

last 3

> > > nights I have had very little sleep, 2 to 3 hrs a night. I can

fall

> > asleep

> > > but can't stay asleep so I am getting exhausted. Right now I can

> > hardly

> > > keep my eyes open to type, but once in bed I'll just toss and

turn.

> > >

> > > Marg )

> > > mesenteric vascular insufficiency, chronic pancreatitis, severe

> > > malabsorption, paralytic ilius, non eater, g-tube

> > > doll@...

> > >

> > >

> > >

> >

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> > >