Re: Hello!-Patti- Pump

[Guest guest]

Patti,

How is the medication placed into your pump. I'm just nosey.

Ken

Pati Beck wrote:

>

>

> Hi Margaret, Thank you for asking about me. On August 6th I go back to

> my doctor and will ask him then if morphine can be mixed with

> Baclofen. My pump is completely internal and the dosage is set by a

> computer. It's sorta like go through the check out lane in the

> supermarket. He places a scanner over my pump, then all the info comes

> up on the computer scan. He can adjust my doses, know how much

> medicine is left and tell the condition of the pump. As far as the

> stimulator, that will be all internal, however everyone I spoken to

> about it on the list mentions external wires. Also all the talk is

> about the stimulator in the back, where mine will be put in my

> cervical region. I will be talking with my neurosurgeon this week. I

> use a morphine patch. How does yours work for you? Sorry to hear about

> all your medical problems...Pati

>

> ---Margaret Doll wrote:

> >

> >

> >

> > Hi Everyone,

> >

> > I've been sitting in the shadows since last Saturday, reading all

> the mail

> > but not contributing. We all seem to be in " flare-ups " of our

> conditions to

> > some degree. That is what has kept me out of the fray, I have been

> at

> > " Club Med " ( hospital ) for yet another stay, came home on Saturday

> to 150

> > email messages. Getting through all of those was a daunting task.

> I had an

> > abdominal ischemia with resulting paralysis to the right lower

> quadrant of

> > my small intestine, and an acute pancreatitis.

> >

> > It's good to be back home and once again pumping Vital HN full

> strength at

> > my maximum allowed rate of 100ml/hr. Patti, I hope you hear soon

> regarding

> > the surgery date to implant the stimulator. I pray that when you

> get it you

> > will finally have relief. In the meantime has your doctor okayed

> putting

> > morphine in your pump? I saw my GP on Thursday and she had just

> received

> > the letter from Pharmacare approving my use of the morphine patch.

> She gave

> > me a script for injectible morphine again as she said she had to do

> the math

> > in order to find out what dose the patch should be, right now I take

> 20mg

> > morphine every 4 hrs. Said the liquid morphine wouldn't go to waste

> as I

> > would need it for break through pain while she plays with dosages

> for the

> > patch.

> >

> > Also, on Wednesday I saw the surgeon who did the repair to my

> intestine and

> > bladder in May. He told me in the OR he was faced with having to

> make a

> > decision because the surgery was going to be far more extensive than

> > expected, and then explained what he had had to do. He said he was

> very

> > sorry. Anatomically intimacy as we know it is now not possible.

> Here I was

> > not long ago asking for advice on intimacy from you when having to

> deal with

> > pain and morphine. Little did I know what was awaiting me.

> >

> > I am still dealing with the emotional aspects of it. Ren is very

> > supportive and I know with time we will work through it. The last 3

> > nights I have had very little sleep, 2 to 3 hrs a night. I can fall

> asleep

> > but can't stay asleep so I am getting exhausted. Right now I can

> hardly

> > keep my eyes open to type, but once in bed I'll just toss and turn.

> >

> > Marg )

> > mesenteric vascular insufficiency, chronic pancreatitis, severe

> > malabsorption, paralytic ilius, non eater, g-tube

> > doll@...

> >

> >

> >

> ------------------------------------------------------------------------

> >