med

[Guest guest]

Just wondering if anyone on the list has had any experience with or

knows of someone who has had any experience with the newer forms of

Growth Hormones for treating FMS or CFS. I am curious to know if any

doctors are willing to at least try this for a period of time to see

what the results are. Most of us do test positive for a deficiency in

this area but doctors are afraid in general to tamper with the delicate

hormonal system. I have pulled up numerous articles off medline where

research shows how there are many people who do suffer with this and

once treated appropriately, have a tremendous decrease in symptoms, are

finally able to loose weight, especially around the mid-line or torso

area and that it decreases chances of cardiac problems developing and

helps with cognitive functioning as well as lifting symptoms of

depression and other similar mood disorders. WOW!

It has already been proven that we are deficient in most all hormones

including this one, so I just don't understand the resistance to at

least trying this treatment at a safe dose for the time frame that

research has shown to give the best benefits, which may be anywhere

between 3 months to 18 months if my memory serves me correctly, and that

was of course dependent on the case. Also, it is now available in a

synthetic form that appears to work just as well. It does have some

possible serious side effects to consider, especially if you don't need

it or have other medical conditions that may contraindicate the use of

this hormone, but that is true for just about anything we put in our

mouths. Just like the pain meds, seems like we should be at least given

the opportunity to see if this may be a treatment option that could be

helpful for us,or just like so many other of the meds or treatments

being used on a trial basis.

I have pretty much developed a good sense as to what is going on in my

body, sort of an intuitive thing I guess. Of course I used to be a

practicing nurse and I continue to try to keep up with things that

especially relate to my illness or those that are related. There has

been more than one instance when I have told my doctor that I felt I

needed certain things, or that I felt I was low in certain hormones and

he did not really take me seriously, but when my lab results come back,

sure enough, there it was! But he just says that he doesn't belive that

the growth hormone has anything of value to offer and it would be a

waste of time.

So, like I said above, I would like to know if anyone has gone this

route and what their experiences were. That little voice inside just

keeps bugging me to check into this. My hypothalamus may be all messed

up, but it seems that when I augment my glands with hormones, such as

low dose cortisol, thyroid, etc, I feel so much better. Like my body

says, aahhh! Thank you for the help, I needed that. So if my pituitary

needs some help getting back on track then I say go for it. It is almost

like the whole body is so out of balance, and it you can just find a

good balanced mix of meds and hormone supplementation to help jump start

everything back up and help the body to get back into balance (the

hormonal/immune system), and then the body may just be able to

eventually remember how to work properly once all the batteries have

been recharged and then gradually wean the body off the strong hormones

if possible to maybe more natural forms and herbs that help to maintain

normal function. I am of course postulating about all of this but I

would just like to find someone who believes in treating the body as a

whole and is willing to aggresively work at trying to get the HPA axis

back into balance and I just do not think this is possible to do by

trying one thing at a time

.. It's like if you have 5 things broken on your computer and you just

fix one, you can't expect that it is going to work properly. Not until

all 5 things have been repaired at the same time can you then expect it

to hopefully work properly. Of course, invaribaly somethings else will

go wrong or will have been missed (especially if it is like my

computer!), but do you get my drift? We try one or two new things for a

while, then somethings else for a while, but never really have someone

help us put it all together and work on trying to get all systems up and

going at the same time. And the more medicine becomes specialized, the

more difficult it is to find anybody who understands this concept. Our

bodies are not that much different than a machine, just much more

technical. Anyone out there had this same line of thinking ? It has

always just seemed common sense to me, but then, who am I to dictate how

the medical professions should conduct themselves. Just one more reason

I was happy to not have to deal with all of that when my illness forced

my to have to quit working.

Sorry for all the rambling. It is way past my bedtime and I had promised

myself I would not stay up so late again darn it!

Goodnight to all and if anyone has any comments on the subject above, I

would love to hear them.

Vickie J.

[Guest guest]

vickie

the only thing that i know about is....a friend of mine..her younger son

(7yrs old) had to take this growth hormone...and her insurnace wouldnt pay

for it ...and it would have costed her over $20,000.00 a year for the

medication..but luckily for her...some social programs here in our state

helped her with the med bills...so 1)some insurances wont pay for the

treatments and 2) it is very costly!

margaret U

At 03:34 AM 7/13/98 -0500, you wrote:

>

>

>Just wondering if anyone on the list has had any experience with or

>knows of someone who has had any experience with the newer forms of

>Growth Hormones for treating FMS or CFS. I am curious to know if any

>doctors are willing to at least try this for a period of time to see

>what the results are. Most of us do test positive for a deficiency in

>this area but doctors are afraid in general to tamper with the delicate

>hormonal system. I have pulled up numerous articles off medline where

>research shows how there are many people who do suffer with this and

>once treated appropriately, have a tremendous decrease in symptoms, are

>finally able to loose weight, especially around the mid-line or torso

>area and that it decreases chances of cardiac problems developing and

>helps with cognitive functioning as well as lifting symptoms of

>depression and other similar mood disorders. WOW!

>

>It has already been proven that we are deficient in most all hormones

>including this one, so I just don't understand the resistance to at

>least trying this treatment at a safe dose for the time frame that

>research has shown to give the best benefits, which may be anywhere

>between 3 months to 18 months if my memory serves me correctly, and that

>was of course dependent on the case. Also, it is now available in a

>synthetic form that appears to work just as well. It does have some

>possible serious side effects to consider, especially if you don't need

>it or have other medical conditions that may contraindicate the use of

>this hormone, but that is true for just about anything we put in our

>mouths. Just like the pain meds, seems like we should be at least given

>the opportunity to see if this may be a treatment option that could be

>helpful for us,or just like so many other of the meds or treatments

>being used on a trial basis.

>

>I have pretty much developed a good sense as to what is going on in my

>body, sort of an intuitive thing I guess. Of course I used to be a

>practicing nurse and I continue to try to keep up with things that

>especially relate to my illness or those that are related. There has

>been more than one instance when I have told my doctor that I felt I

>needed certain things, or that I felt I was low in certain hormones and

>he did not really take me seriously, but when my lab results come back,

>sure enough, there it was! But he just says that he doesn't belive that

>the growth hormone has anything of value to offer and it would be a

>waste of time.

>

>So, like I said above, I would like to know if anyone has gone this

>route and what their experiences were. That little voice inside just

>keeps bugging me to check into this. My hypothalamus may be all messed

>up, but it seems that when I augment my glands with hormones, such as

>low dose cortisol, thyroid, etc, I feel so much better. Like my body

>says, aahhh! Thank you for the help, I needed that. So if my pituitary

>needs some help getting back on track then I say go for it. It is almost

>like the whole body is so out of balance, and it you can just find a

>good balanced mix of meds and hormone supplementation to help jump start

>everything back up and help the body to get back into balance (the

>hormonal/immune system), and then the body may just be able to

>eventually remember how to work properly once all the batteries have

>been recharged and then gradually wean the body off the strong hormones

>if possible to maybe more natural forms and herbs that help to maintain

>normal function. I am of course postulating about all of this but I

>would just like to find someone who believes in treating the body as a

>whole and is willing to aggresively work at trying to get the HPA axis

>back into balance and I just do not think this is possible to do by

>trying one thing at a time

>

>. It's like if you have 5 things broken on your computer and you just

>fix one, you can't expect that it is going to work properly. Not until

>all 5 things have been repaired at the same time can you then expect it

>to hopefully work properly. Of course, invaribaly somethings else will

>go wrong or will have been missed (especially if it is like my

>computer!), but do you get my drift? We try one or two new things for a

>while, then somethings else for a while, but never really have someone

>help us put it all together and work on trying to get all systems up and

>going at the same time. And the more medicine becomes specialized, the

>more difficult it is to find anybody who understands this concept. Our

>bodies are not that much different than a machine, just much more

>technical. Anyone out there had this same line of thinking ? It has

>always just seemed common sense to me, but then, who am I to dictate how

>the medical professions should conduct themselves. Just one more reason

>I was happy to not have to deal with all of that when my illness forced

>my to have to quit working.

>

>Sorry for all the rambling. It is way past my bedtime and I had promised

>myself I would not stay up so late again darn it!

>Goodnight to all and if anyone has any comments on the subject above, I

>would love to hear them.

>Vickie J.

>

>

>------------------------------------------------------------------------

>