Re: med CFS/FMS

[Guest guest]

Hi,

One of my little projects right now is studing herbal medicine &

homeopathic treatment, and there is an amazing body of knowledge that has

just been pushed aside & ignored. Much of the treatments have even been

heavily medically researched, but still ignored. (there's no Pharmaceutical

profit in natural things u can't patent & soak people for.

If you send me a very thorough account of your symptoms, I will search

my resources. I'm personally having a lot of luck with simple things, and

they're cheap & harmless. Nothing to lose.

Ken

& Vickie wrote:

>

>

> Just wondering if anyone on the list has had any experience with or

> knows of someone who has had any experience with the newer forms of

> Growth Hormones for treating FMS or CFS. I am curious to know if any

> doctors are willing to at least try this for a period of time to see

> what the results are. Most of us do test positive for a deficiency in

> this area but doctors are afraid in general to tamper with the delicate

> hormonal system. I have pulled up numerous articles off medline where

> research shows how there are many people who do suffer with this and

> once treated appropriately, have a tremendous decrease in symptoms, are

> finally able to loose weight, especially around the mid-line or torso

> area and that it decreases chances of cardiac problems developing and

> helps with cognitive functioning as well as lifting symptoms of

> depression and other similar mood disorders. WOW!

>

> It has already been proven that we are deficient in most all hormones

> including this one, so I just don't understand the resistance to at

> least trying this treatment at a safe dose for the time frame that

> research has shown to give the best benefits, which may be anywhere

> between 3 months to 18 months if my memory serves me correctly, and that

> was of course dependent on the case. Also, it is now available in a

> synthetic form that appears to work just as well. It does have some

> possible serious side effects to consider, especially if you don't need

> it or have other medical conditions that may contraindicate the use of

> this hormone, but that is true for just about anything we put in our

> mouths. Just like the pain meds, seems like we should be at least given

> the opportunity to see if this may be a treatment option that could be

> helpful for us,or just like so many other of the meds or treatments

> being used on a trial basis.

>

> I have pretty much developed a good sense as to what is going on in my

> body, sort of an intuitive thing I guess. Of course I used to be a

> practicing nurse and I continue to try to keep up with things that

> especially relate to my illness or those that are related. There has

> been more than one instance when I have told my doctor that I felt I

> needed certain things, or that I felt I was low in certain hormones and

> he did not really take me seriously, but when my lab results come back,

> sure enough, there it was! But he just says that he doesn't belive that

> the growth hormone has anything of value to offer and it would be a

> waste of time.

>

> So, like I said above, I would like to know if anyone has gone this

> route and what their experiences were. That little voice inside just

> keeps bugging me to check into this. My hypothalamus may be all messed

> up, but it seems that when I augment my glands with hormones, such as

> low dose cortisol, thyroid, etc, I feel so much better. Like my body

> says, aahhh! Thank you for the help, I needed that. So if my pituitary

> needs some help getting back on track then I say go for it. It is almost

> like the whole body is so out of balance, and it you can just find a

> good balanced mix of meds and hormone supplementation to help jump start

> everything back up and help the body to get back into balance (the

> hormonal/immune system), and then the body may just be able to

> eventually remember how to work properly once all the batteries have

> been recharged and then gradually wean the body off the strong hormones

> if possible to maybe more natural forms and herbs that help to maintain

> normal function. I am of course postulating about all of this but I

> would just like to find someone who believes in treating the body as a

> whole and is willing to aggresively work at trying to get the HPA axis

> back into balance and I just do not think this is possible to do by

> trying one thing at a time

>

> . It's like if you have 5 things broken on your computer and you just

> fix one, you can't expect that it is going to work properly. Not until

> all 5 things have been repaired at the same time can you then expect it

> to hopefully work properly. Of course, invaribaly somethings else will

> go wrong or will have been missed (especially if it is like my

> computer!), but do you get my drift? We try one or two new things for a

> while, then somethings else for a while, but never really have someone

> help us put it all together and work on trying to get all systems up and

> going at the same time. And the more medicine becomes specialized, the

> more difficult it is to find anybody who understands this concept. Our

> bodies are not that much different than a machine, just much more

> technical. Anyone out there had this same line of thinking ? It has

> always just seemed common sense to me, but then, who am I to dictate how

> the medical professions should conduct themselves. Just one more reason

> I was happy to not have to deal with all of that when my illness forced

> my to have to quit working.

>

> Sorry for all the rambling. It is way past my bedtime and I had promised

> myself I would not stay up so late again darn it!

> Goodnight to all and if anyone has any comments on the subject above, I

> would love to hear them.

> Vickie J.

>

> ------------------------------------------------------------------------

>