introduction

[Guest guest]

My name is , I live in Fort , Coliorado. I have two daughters

(20/16) and single, but have a wonderful SO who has helped me cope the past

year.

MVA in 1988 left me with FMS. Went into remission from 1990-last spring. In

September got a " virus " that has not gotten better. Lost my job of 8 years as

Church Secretary, and have gone downhill emotionally since. I was denied first

go for SSDI, even though thier independant ooooodoc stated in his report, there

is little chance I will ever be able to be gainfully employed again, and that

the pain is real.

Current symptoms include:

fevers of Unknown Origin, normal temp of 96.3,

temp fluctuates from 96.3-105.7 for no apparant reason

Migarine type headaches Headaches,

especially when my neck feels tight. Pain seems to come from base of skull

and radiate up and across forehead.

Hear " crackling " when I move my head and neck.

Hoarseness/Voice loss that has been going on for 7 months

Extreme Fatigue: feel tired all the time, sleep but not restorative sleep

IBS: goes from loose stools to green " water " ; no diet changes seem to make a

difference

Pain in trapezius area, hips, ankles, elbows, wrists, knees. Knees buckle,

especially when getting out of bed. Legs and arms seem to " go to sleep " .

Fingers swell and joints hurt when I make a fist (sometimes too swollen to make

a fist). Uncontrollable " twitching " in arms/eyes/thighs

Face gets red, hot, and dry. Heat radiates from cheeks, bridge of nose

Blister like sores on my tongue and inside my mouth. Seem to come fast and go

fast.

Dry, deep cough.

Short-term memory problems. " Forget " what I am doing. Loose train of thought

easily; forget names/faces

Mainly, same symptoms of all others trying to find a cause!!

Thanks for listening!!