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[Fwd: cyber petition]

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Dear friends,

I don't know if I worded this quite right, but this is what I wrote on the

petition concerning the article in Reader's Digest.

S. Mathews wrote:

> To Whom It May Concern:

> Life itself is difficult, but add a chronic, widespread

> musculoskeletal pain and fatigue disorder, life is anything except

> uncomplicated. In addition to the pain and fatigue, many suffer from

> unrefreshed sleep, irritable bowel, muscle spasms, chronic headaches,

> morning stiffness, cognitive or memory impairments, reduced coordination

> and depressed endurance.

> Fibromyalgia can be as disabling as rheumatoid arthritis. Many people

> that have FMS cannot hold a steady job due to this condition. In addition

> to the inability to steady employment, health care costs are astronomical

> and

> usually lead to poor treatment outcomes due to the few physicians

> possessing the education or tools to diagnose and treat FMS. Even with a

> diagnosis, the symptoms of FMS cannot be controlled with a single

> therapeutic agent.

> One of the most common problems that is faced with living with FMS

> is the fact that one looks fine but feels terrible. How does one go about

> explaining that the pain exists when there are no visible signs of injury

> or

> illness?

> Most FMS patients have more than one disease that encompasses their

> already difficult life. Add a story from someone that does not have

> competent knowledge about any disorder that creates chronic pain, and

> false perception of the problems faced by many will be overlooked.

> The author that compares apples with oranges should try a taste test

> before making the final decision. He/she may wind up with grapefruit. If

> one has never had to deal with chronic pain personally, they will never

> come close to the understanding that we face on a day to day basis. We

> have to suffer, whether in silence or not, and Mr. Armbrister needs to

> learn to research his sources more completely before he writes about

> something of which he has no personal knowledge.

>

> S. Mathews

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Message-ID:

Date: Fri, 01 May 1998 01:12:43 -0500

Reply-To: tsw1@...

X-Mailer: Mozilla 4.04 [en] (Win95; I)

MIME-Version: 1.0

To: tsmathews@...

Subject: cyber petition

Content-Type: text/plain; charset=us-ascii

Content-Transfer-Encoding: 7bit

To Whom It May Concern:

Life itself is difficult, but add a chronic, widespread

musculoskeletal pain and fatigue disorder, life is anything

except uncomplicated. In addition to the pain and fatigue, many suffer

from unrefreshed sleep, irritable bowel,

muscle spasms, chronic headaches, morning stiffness, cognitive or memory

impairments, reduced coordination

and depressed endurance.

Fibromyalgia can be as disabling as rheumatoid arthritis. Many

people that have FMS cannot hold a steady job

due to this condition. In addition to the inability to steady

employment, health care costs are astronomical and

usually lead to poor treatment outcomes due to the few physicians

possessing the education or tools to diagnose

and treat FMS. Even with a diagnosis, the symptoms of FMS cannot be

controlled with a single therapeutic agent.

One of the most common problems that is faced with living with FMS

is the fact that one looks fine but feels

terrible. How does one go about explaining that the pain exists when

there are no visible signs of injury or

illness?

Most FMS patients have more than one disease that encompasses their

already difficult life. Add a story

from someone that does not have competent knowledge about any disorder

that creates chronic pain, and

false perception of the problems faced by many will be overlooked.

The author that compares apples with oranges should try a taste

test before making the final decision. He/she

may wind up with grapefruit. If one has never had to deal with chronic

pain personally, they will never come close to

the understanding that we face on a day to day basis. We have to

suffer, whether in silence or not, and

Mr. Armbrister needs to learn to research his sources more completely

before he writes about something of which

he has no personal knowledge.

S. Mathews

--------------7A6AF8A97C52969D2D29A62E--

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