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Carers and Understanding

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Hi everyone,

My partner, Jon told me that last night he woke in the middle of the night

with awful aching pain in his shoulders and elbows - " it was right in the

joints, and like my arms were weak " - and an incredible " lethargy " in his

arms as though it took tremendous effort just to move them to a more

comfortable position.

On the one hand, he felt that it was a rather good opportunity to

understand more what I live through every day ... on the other hand, he was

reminded that some of the research has been hinting about the possible

contagious nature of CFS between couples and close family members.

I pray that he doesn't have CFS (at least, I would if I was religious) ...

but I am glad that he has even a slightly better understanding of what

every day of my life is like.

He tells me now and then that I should quit smoking. He used to smoke and

has stopped - but he keeps a pack in the glove box of the car unopened,

" just in case I have an accident " . (ie. he gets so stressed out that he

needs a smoke). My response to this has been, " well sweetheart <smiling

ever-so-sweetly> I guess I smoke because every single f---ing day of my

life is like a car accident. "

Anyone relate?

Hugs,

Kit.

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