Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 My son is 5 years old and we just started this biomedical approach last April. He was always speech delayed but really did not show any autistic symptoms till soon alter his 4 year old shots (MMT, DTP, Polio). We started the diet and supplements which included B 12 injections, Coromega, cod liver oil , TMG, custom amino acids,N-acetyl-carnitine, probiotics and oil of oregano. We had so many improvements just from the supplements in attention and language. His first haircut hair sample showed low levels of mercury. The next step was to start chelation. Since my DAN doctor wanted to do more research with DMPS we started chelation with DMSA. We did a challenge dose and the 10 hour urine sample showed excretion of lead. We did the first full weekend of chelation and we noticed some increased stimming and crying but it subsided after a few days and then we noticed and increase in language and cognition. After the second round the autistic behaviors increased. Lots of visual and oral stimming and more hyperactive. Of course this was the week that he started kindergarten. When he finished preschool last year he was writing his name ,all of the letters and drawing pictures. Now his writing is more scrambled and messy. He is crying more and having trouble transitioning. These problems have never been this bad. When the behaviors did not decrease after a few days I sent an email to my DAN doctor and she told me to stop the chelation for now. It has now been over 2 weeks and the symptoms remain. Has anyone had this type of regression using DMSA? I heard that Boyd Haley said that DMSA was a neurotoxin. I read about the great results parents are having with the TD- DMPS. I understand about drug metabolism since I am a nurse anesthetist and it makes more sense to have a lower constant pull of mercury instead of a big dump every two weeks. I know that sometimes after chelation you see an increase in behaviors , but does it continue for over 2 weeks? We are not using TTDF or any other creams. My son also had a TSH level of 34 on his first test which has decreased to 27 after 1 month of supplements. My DAN doctor put him on a low dose of synthyroid and it dropped to 14. We have never done viral titers or any geometric testing. Should I be looking at something else? I really do not want to give him DMSA again. Any advice would be appreciated. Thanks Sym Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Sym, That high a TSH reading definitely points to hypothyroidism. From what I've heard, once treated and thyroid levels get closer to normal, there should be huge improvements. A TSH of 14 is still too high. As far as the chelation goes, How is his gut? That's usually the cause of regressions associated w/ chelation. Things may go better if you get him well established on a milder protocol before you bring in the big guns. Transdermal glutathione and then maybe TTFD (since you're doing B12 already, the other components of the trio). Also folinic acid should go in the mix if it's not there already. Hang it there, I know it's frustrating when ground is lost. We're going through a bout of behavioral issues from some changes we made recently. Sharon > My son is 5 years old and we just started this biomedical approach last > April. He was always speech delayed but really did not show any > autistic symptoms till soon alter his 4 year old shots (MMT, DTP, > Polio). We started the diet and supplements which included B 12 > injections, Coromega, cod liver oil , TMG, custom amino > acids,N-acetyl-carnitine, probiotics and oil of oregano. We had so > many improvements just from the supplements in attention and language. > His first haircut hair sample showed low levels of mercury. > The next step was to start chelation. Since my DAN doctor wanted to do > more research with DMPS we started chelation with DMSA. We did a > challenge dose and the 10 hour urine sample showed excretion of lead. > We did the first full weekend of chelation and we noticed some > increased stimming and crying but it subsided after a few days and then > we noticed and increase in language and cognition. After the second > round the autistic behaviors increased. Lots of visual and oral > stimming and more hyperactive. Of course this was the week that he > started kindergarten. When he finished preschool last year he was > writing his name ,all of the letters and drawing pictures. Now his > writing is more scrambled and messy. He is crying more and having > trouble transitioning. These problems have never been this bad. > When the behaviors did not decrease after a few days I sent an email to > my DAN doctor and she told me to stop the chelation for now. It has > now been over 2 weeks and the symptoms remain. Has anyone had this > type of regression using DMSA? I heard that Boyd Haley said that DMSA > was a neurotoxin. I read about the great results parents are having > with the TD- DMPS. I understand about drug metabolism since I am a > nurse anesthetist and it makes more sense to have a lower constant pull > of mercury instead of a big dump every two weeks. > I know that sometimes after chelation you see an increase in behaviors > , but does it continue for over 2 weeks? We are not using TTDF or any > other creams. > My son also had a TSH level of 34 on his first test which has decreased > to 27 after 1 month of supplements. My DAN doctor put him on a low > dose of synthyroid and it dropped to 14. We have never done viral > titers or any geometric testing. Should I be looking at something > else? I really do not want to give him DMSA again. Any advice would > be appreciated. > > Thanks > Sym > Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 " My son also had a TSH level of 34 on his first test which has decreased to 27 after 1 month of supplements. My DAN doctor put him on a low dose of synthyroid and it dropped to 14. " 14 is still way too high, from my understanding. I also thought that the consensus was to use Armour Thyroid (natural) as opposed to Synthroid (synthetic) to treat the ASD kids with hypothyroidism. Jody mom to -5 and -8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Dr. Buttar told me that most of the kids on TD DMPS experience a 4- 6 week period of irritability and sometimes regression but this will go away. Many families are saying that it goes away after a few weeks. Also, (just my thinking) is it possible that you've loosened some metals up (relocated them) and they never had a chance to leave the system because you stopped prematurely? I'd consider starting up with the TD DMPS. Terri > My son is 5 years old and we just started this biomedical approach last > April. He was always speech delayed but really did not show any > autistic symptoms till soon alter his 4 year old shots (MMT, DTP, > Polio). We started the diet and supplements which included B 12 > injections, Coromega, cod liver oil , TMG, custom amino > acids,N-acetyl-carnitine, probiotics and oil of oregano. We had so > many improvements just from the supplements in attention and language. > His first haircut hair sample showed low levels of mercury. > The next step was to start chelation. Since my DAN doctor wanted to do > more research with DMPS we started chelation with DMSA. We did a > challenge dose and the 10 hour urine sample showed excretion of lead. > We did the first full weekend of chelation and we noticed some > increased stimming and crying but it subsided after a few days and then > we noticed and increase in language and cognition. After the second > round the autistic behaviors increased. Lots of visual and oral > stimming and more hyperactive. Of course this was the week that he > started kindergarten. When he finished preschool last year he was > writing his name ,all of the letters and drawing pictures. Now his > writing is more scrambled and messy. He is crying more and having > trouble transitioning. These problems have never been this bad. > When the behaviors did not decrease after a few days I sent an email to > my DAN doctor and she told me to stop the chelation for now. It has > now been over 2 weeks and the symptoms remain. Has anyone had this > type of regression using DMSA? I heard that Boyd Haley said that DMSA > was a neurotoxin. I read about the great results parents are having > with the TD- DMPS. I understand about drug metabolism since I am a > nurse anesthetist and it makes more sense to have a lower constant pull > of mercury instead of a big dump every two weeks. > I know that sometimes after chelation you see an increase in behaviors > , but does it continue for over 2 weeks? We are not using TTDF or any > other creams. > My son also had a TSH level of 34 on his first test which has decreased > to 27 after 1 month of supplements. My DAN doctor put him on a low > dose of synthyroid and it dropped to 14. We have never done viral > titers or any geometric testing. Should I be looking at something > else? I really do not want to give him DMSA again. Any advice would > be appreciated. > > Thanks > Sym > Mom to Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.