Re: Re: OT: the klinghardt heurobiology link

[Guest guest]

Jo (Josie) sent it to me and I forward it on....I think Joyce had put something on at one point as well.  It is amazing and overwhelming.  I always wonder who can follow these complicated protocols!  I would have to have a " keeper " to keep me on track! ;-)

 

To your health and healing!

Cheryl

 

 

 

wow. i've lost track of who sent this but it is incredible and ulp overwhelming. greateful to have so muchin one place and get the bigger picture.http://www.klinghardtneurobiology.com/LymeProtocolOct09.pdf

thankss in vt

[Guest guest]

Hi All, I am doing the protocal. And yes,its quite overwhelming. I have been on KPU about 6 mo and just added K2 and some of the other things yesterday. Have not been on the group much as my plate is very full,and need a lot of rest. So sorry if I miss any posts. Healing Blessings Joyce

wow. i've lost track of who sent this but it is incredible and ulp overwhelming. greateful to have so muchin one place and get the bigger picture.http://www.klinghar dtneurobiology. com/LymeProtocol Oct09.pdf

thankss in vt

[Guest guest]

Thanks for sharing, Joyce.  When you can, keep us posted and let us know what you think and how you are doing.

 

TAke care,

Cheryl

 

 

 

Hi All, I am doing the protocal. And yes,its quite overwhelming. I have been on KPU about 6 mo and just added K2 and some of the other things yesterday. Have not been on the group much as my plate is very full,and need a lot of rest. So sorry if I miss any posts. Healing Blessings Joyce 

 

wow. i've lost track of who sent this but it is incredible and ulp overwhelming. greateful to have so muchin one place and get the bigger picture.http://www.klinghar dtneurobiology. com/LymeProtocol Oct09.pdf

thankss in vt

[Guest guest]

Hi in vt ,Yes its quite overwhelming and my doc is helping me.I remember when I thought salt & sea was overwhelming. That was nothing to learn compared to all this. Especially feeling very ill.Slowly I go. One step at a time. JoyceSubject: Re: OT: the klinghardt heurobiology linkTo: Lyme_and_Rife Date: Wednesday, October 28, 2009, 6:39 AM

wow. i've lost track of who sent this but it is incredible and ulp

overwhelming. greateful to have so muchin one place and get the

bigger picture.

http://www.klinghar dtneurobiology. com/LymeProtocol Oct09.pdf

thanks

s in vt

[Guest guest]

ha ha oh joyce i know what you mean, when salt and c was too confusing to figure out! i have so many piles of notes on scraps of paper trying to sort out what i'm reading and i have to learn everything over and over again....much like a squirrel running in a cage...and then i order a supplement i've researched and it arrives and i don't know what i was thinking.....just why did i order taurine????? and a second bottle of biotin?????are you able to get any relief during the day? do your symptoms have the generosity of having some kind of rhythm? i hope it isn't all hell all day, many hugs to youxoxosusan in vt Hi in vt ,Yes its quite overwhelming and my doc is helping me.I remember when I thought salt & sea was overwhelming. That was nothing to learn compared to all this. Especially feeling very ill.Slowly I go. One step at a time. Joyceare

[Guest guest]

Wow , Thanks for writing your experience. Makes me feel like I am not the only one walking in circles. Symptoms are in different degrees,from light hell to heavy hell. Although the last 3 times I got B12,folic acid shot,the next day I felt way better but sorry to say it does not last. I felt like the real me in mind,body,spirit,emotions. Years ago when I got the shots I felt really great and then they stopped making me feel good. So I feel this is a BIG positive that they are helping again. How ru doing? Take care Joyce Hi in vt ,Yes its quite overwhelming and my doc is helping me.I remember when I thought salt & sea was overwhelming. That was nothing to learn compared to all this. Especially feeling very ill.Slowly I go. One step at a time. Joyceare

[Guest guest]

as someone wanting to add salt/c along with a CS protocol,i'm reading your post and wondering how salt/c helped in any healing for you or not. it sounds like it didn't help. I've been reading posts for and researching what i've read months. would you mind responding?

i'm interested.thank yoube wellstacy

 

ha ha oh joyce i know what you mean, when salt and c was too confusing to figure out!  i have so many piles of notes on scraps of paper trying to sort out what i'm reading and i have to learn everything over and over again....much like a squirrel running in a cage...

and then i order a supplement i've researched and it arrives and i don't know what i was thinking.....just why did i order taurine?????  and a second bottle of biotin?????

are you able to get any relief during the day?  do your symptoms have the generosity of having some kind of rhythm?  i hope it isn't all hell all day, many hugs to youxoxosusan in vt

 

Hi in vt ,Yes its quite overwhelming and my doc is helping me.I remember when I thought salt & sea was overwhelming. That was nothing to learn compared to all this. Especially feeling very ill.Slowly I go. One step at a time. Joyce

are 

[Guest guest]

wow, how wonderful the shot would give you such a boost!!! so important to get some relief and a clear sign that there is improvement!!!! oh joyce, i guess i'd call my days about like yours. often it is a dark comedy, staggering through the day, every little thing that happens is overwhleming to my exhasuted self. like yestserday: in total crushed fatigue but agitated and hungry i just started head-in-the-refrigerator eating. too many things were happening at once, (which means one other thing!) i was also trying to get the fire started in the wood stove. after eating nuts and stuff i thought i'd just eat some kimchee out of the jar. and i dropped it. a whole quart. i watched it falling and as i watched it the thought going through my mind is oh i guess i'll have to eat it off the floor. but it didn't just break, it shattered into a million pieces and the liquid was oozing under the fridge, wow powerful smell, totally masked the smoke smell from the fire i'd forgotten, i was so confused and tired but managed to get shoes on and clean up the mess and damp the stove and crawl into bed for the regular day-hours of torture.anyway, i don't want to get too deep into my whole day, i'll just say that i ended up well fed and the house got very warm. nothing like wood heat to keep the house at 80.and to everyone: i have never written very much or for very long on a biggish group like this. felt way too vulnerable, and too exhasuted to make any commitment to staying in. and secretly i would get discouraged that i wasn't making progress in spite of my dedication to treatment, and everyone seemed so much healthier. but i am making myself try to stay with you guys, stay in relationship and ask the questions i need to ask. the warmth in the group makes it ok. it is dhard work, i feel sick and want to retreat, so many posts and i get confused and i can see it takes effort from you, too, joyce. i have to type slowly because of tendon pain and make corrections or you wouldn't be able to read this. but y'all are so worth it. xoxoxsusan in vt Wow , Thanks for writing your experience. Makes me feel like I am not the only one walking in circles. Symptoms are in different degrees,from light hell to heavy hell. Although the last 3 times I got B12,folic acid shot,the next day I felt way better but sorry to say it does not last. I felt like the real me in mind,body,spirit,emotions. Years ago when I got the shots I felt really great and then they stopped making me feel good. So I feel this is a BIG positive that they are helping again. How ru doing? Take care Joyce

[Guest guest]

hi weisstreasure

i'm taking some gaba at night, do i take the taurine with it as

well? no idea about the skin stuff, i have tiny sores in

unpredicatbable places around my body, never understand why they come

and go..

s in vt

> Taurine really seemed to help me sleep, but also exacerbates my

> skin breakouts, so then I have to compensate with more zinc. I've

> been taking it for years and stumbled upon the fact that it was

> recommended for lymies recently also. Not sure what the skin

> breakouts are about, though.

>

[Guest guest]

stacy i'm such a bad person to ask because i haven't had success on

any protocol. i've had good salt for years and eat a lot of it,

often put it in water becasue i crave it and so i thought i'd be

perfect for the salt c. unfortuantley i tried to go to 4-6 grams

within a few months of starting it and it increased my tinnitus

terribly and it hasn't calmed down much since then, several years

ago. but i discovered i just can't take large amounts of c, i react

to die-off with just a couple of grams by itself. so don't go by my

experience excetp to go very slowly, very slowly, especially if you

have high bacteria load and detox poorly.

all that said, i think it is an excellent protocol and hope i can go

back on it some day.

s in vt

> as someone wanting to add salt/c along with a CS protocol,i'm

> reading your post and wondering how salt/c helped in any healing

> for you or not. it sounds like it didn't help. I've been reading

> posts for and researching what i've read months. would you mind

> responding?

>

> i'm interested.

>

> thank you

>

> be well

> stacy

>

[Guest guest]

susan, thanks for writing your post and sticking around. i'm doing hte same. i'm going to my llmd after a year of not seeing her. i left confident i didn't need the abxs. i'm still not going to take them. i'm going to follow though with collodial silver and cs and continue the supplements i take nad what ever else is needed.

i hear you onthe time it take st o type an continually correct. lol this has taken at least 10 minutes.be well, stay warm.n

 

wow, how wonderful the shot would give you such a boost!!!   so important to get some relief and a clear sign that there is improvement!!!!   oh joyce, i guess i'd call my days about like yours.  often it is a dark comedy, staggering through the day, every little thing that happens is overwhleming to my exhasuted self.  like yestserday:  in total crushed fatigue but agitated and hungry i just started  head-in-the-refrigerator eating.   too many things were happening at once, (which means one other thing!) i was also trying to get the fire started in the wood stove.  after eating nuts and stuff i thought i'd just eat some kimchee out of the jar.  

and i dropped it.  a whole quart.  i watched it falling and as i watched it the thought going through my mind is oh i guess i'll have to eat it off the floor.  but it didn't just break, it shattered into a million pieces and the liquid was oozing under the fridge, wow powerful smell, totally masked the smoke smell from the fire i'd forgotten, i was so confused and tired but managed to get shoes on and clean up the mess and damp the stove and crawl into bed for the regular day-hours of torture.

anyway, i don't want to get too deep into my whole day, i'll just say that i ended up well fed and the house got very warm.  nothing like wood heat to keep the house at 80.

and to everyone:   i have never written very much or for very long on a biggish group like this.  felt way too vulnerable, and too exhasuted to make any commitment to staying in.    and secretly i would get discouraged that i wasn't making progress in spite of my dedication to treatment, and everyone seemed so much healthier.    but i am making myself try to stay with you guys, stay in relationship and ask the questions i need to ask.   the warmth in the group makes it ok.    it is dhard work, i feel sick and want to retreat, so many posts and i get confused and i can see it takes effort from you, too, joyce.   i have to type slowly because of tendon pain and make corrections or you wouldn't be able to read this.   but y'all are so worth it. 

xoxoxsusan in vt  

Wow , Thanks for writing your experience. Makes me feel like I am not the only one walking in circles. Symptoms are in different degrees,from light hell to heavy hell. Although the last 3 times I got B12,folic acid shot,the next day I felt way better but sorry to say it does not last. I felt like the real me in mind,body,spirit,emotions. Years ago when I got the shots I felt really great and then they stopped making me feel good. So I feel this is a BIG positive that they are helping again. How ru doing? Take care Joyce

[Guest guest]

Dear ,First, let me give you a classy name to apply to the day of exploding kimchee and other catastrophes. A friend once told me that the French word for shit was 'merde', and a shower of the same was an 'emmerdement'. We Lymies are often beset with such emmerdements, but saying, 'I'm having an emmerdement,' with a sultry French accent somehow makes it better, and dilutes that persecuted feeling that can come from too many body parts hurting, gravity being a fiendish conspiracy, and a missing brain refusing to check in on top of everything else. You triumphed over an emmerdement! Congratulations! We're in a weird boot-camp for the would-be highly evolved. The tests are fierce, and it often feels like we're failing them, but 'adversity introduces us to ourselves'.(I picked that up as a piece of cross-stitch in a garage sale, and it's a highly treasured thing in our house.) Our experience makes us understand what's important and what friendship is and that emerdements can be endured.You are SO among friends! Friends who've been there, who've known the dark despair, the doubts that things will ever be OK again and who have learned to abide, with a smile, and not let the critters have the last word.It's always a pleasure to read your posts. So much so, that when we were in Maine, I toyed with the idea of asking if you'd like us to route our home return to pass through VT and maybe say Hi. You were spared ;-) when the temperature dropped and campgrounds were closing and we high-tailed it home, but who knows? Maybe next spring or summer we may pass by in the RV. Had a great visit with Sash and in our Airstream over a year ago when we were out west. We all really enjoyed the extra dimension of smiling at each other as real, flesh and blood people.Just remember, that things can and do get better, even though it feels like slow motion. I've been a total invalid in pain, exhausted and deeply frightened, and now I'm me again, sort of, and hoping to throw away my emerdement umbrella someday .Hang in there. We need you.Love and be well,Léna wow, how wonderful the shot would give you such a boost!!! so important to get some relief and a clear sign that there is improvement!!!! oh joyce, i guess i'd call my days about like yours. often it is a dark comedy, staggering through the day, every little thing that happens is overwhleming to my exhasuted self. like yestserday: in total crushed fatigue but agitated and hungry i just started head-in-the-refrigerator eating. too many things were happening at once, (which means one other thing!) i was also trying to get the fire started in the wood stove. after eating nuts and stuff i thought i'd just eat some kimchee out of the jar. and i dropped it. a whole quart. i watched it falling and as i watched it the thought going through my mind is oh i guess i'll have to eat it off the floor. but it didn't just break, it shattered into a million pieces and the liquid was oozing under the fridge, wow powerful smell, totally masked the smoke smell from the fire i'd forgotten, i was so confused and tired but managed to get shoes on and clean up the mess and damp the stove and crawl into bed for the regular day-hours of torture.anyway, i don't want to get too deep into my whole day, i'll just say that i ended up well fed and the house got very warm. nothing like wood heat to keep the house at 80.and to everyone: i have never written very much or for very long on a biggish group like this. felt way too vulnerable, and too exhasuted to make any commitment to staying in. and secretly i would get discouraged that i wasn't making progress in spite of my dedication to treatment, and everyone seemed so much healthier. but i am making myself try to stay with you guys, stay in relationship and ask the questions i need to ask. the warmth in the group makes it ok. it is dhard work, i feel sick and want to retreat, so many posts and i get confused and i can see it takes effort from you, too, joyce. i have to type slowly because of tendon pain and make corrections or you wouldn't be able to read this. but y'all are so worth it. xoxoxsusan in vt Wow , Thanks for writing your experience. Makes me feel like I am not the only one walking in circles. Symptoms are in different degrees,from light hell to heavy hell. Although the last 3 times I got B12,folic acid shot,the next day I felt way better but sorry to say it does not last. I felt like the real me in mind,body,spirit,emotions. Years ago when I got the shots I felt really great and then they stopped making me feel good. So I feel this is a BIG positive that they are helping again. How ru doing? Take care Joyce

[Guest guest]

Hi , BIG healing hug for you. Glad you are here. X Joyce Wow , Thanks for writing your

experience. Makes me feel like I am not the only one walking in circles. Symptoms are in different degrees,from light hell to heavy hell. Although the last 3 times I got B12,folic acid shot,the next day I felt way better but sorry to say it does not last. I felt like the real me in mind,body,spirit, emotions. Years ago when I got the shots I felt really great and then they stopped making me feel good. So I feel this is a BIG positive that they are helping again. How ru doing? Take care Joyce

[Guest guest]

Lena and susan

This just made my day!!!!!!!!!

Love,

 

Dear ,

First, let me give you a classy name to apply to the day of exploding kimchee and other catastrophes. A friend once told me that the French word for shit was 'merde', and a shower of the same was an 'emmerdement'. We Lymies are often beset with such emmerdements, but saying, 'I'm having an emmerdement,' with a sultry French accent somehow makes it better, and dilutes that persecuted feeling that can come from too many body parts hurting, gravity being a fiendish conspiracy, and a missing brain refusing to check in on top of everything else. 

You triumphed over an emmerdement! Congratulations! We're in a weird boot-camp for the would-be highly evolved. The tests are fierce, and it often feels like we're failing them, but 'adversity introduces us to ourselves'.(I picked that up as a piece of cross-stitch in a garage sale, and it's a highly treasured thing in our house.) Our experience makes us understand what's important and what friendship is and that emerdements can be endured.

You are SO among friends! Friends who've been there, who've known the dark despair, the doubts that things will ever be OK again and who have learned to abide, with a smile, and not let the critters have the last word.

It's always a pleasure to read your posts. So much so, that when we were in Maine, I toyed with the idea of asking if you'd like us to route our home return to pass through VT and maybe say Hi. You were spared ;-) when the temperature dropped and campgrounds were closing and we high-tailed it home, but who knows? Maybe next spring or summer we may pass by in the RV. Had a great visit with Sash and in our Airstream over a year ago when we were out west. We all really enjoyed the extra dimension of smiling at each other as real, flesh and blood people.

Just remember, that things can and do get better, even though it feels like slow motion. I've been a total invalid in pain, exhausted and deeply frightened, and now I'm me again, sort of, and hoping to throw away my emerdement umbrella someday .

Hang in there. We need you.

Love and be well,

Léna

 

wow, how wonderful the shot would give you such a boost!!!   so important to get some relief and a clear sign that there is improvement!!!!   

oh joyce, i guess i'd call my days about like yours.  often it is a dark comedy, staggering through the day, every little thing that happens is overwhleming to my exhasuted self.  like yestserday:  in total crushed fatigue but agitated and hungry i just started  head-in-the-refrigerator eating.   too many things were happening at once, (which means one other thing!) i was also trying to get the fire started in the wood stove.  after eating nuts and stuff i thought i'd just eat some kimchee out of the jar.  

and i dropped it.  a whole quart.  i watched it falling and as i watched it the thought going through my mind is oh i guess i'll have to eat it off the floor.  but it didn't just break, it shattered into a million pieces and the liquid was oozing under the fridge, wow powerful smell, totally masked the smoke smell from the fire i'd forgotten, i was so confused and tired but managed to get shoes on and clean up the mess and damp the stove and crawl into bed for the regular day-hours of torture.

anyway, i don't want to get too deep into my whole day, i'll just say that i ended up well fed and the house got very warm.  nothing like wood heat to keep the house at 80.

and to everyone:   i have never written very much or for very long on a biggish group like this.  felt way too vulnerable, and too exhasuted to make any commitment to staying in.    and secretly i would get discouraged that i wasn't making progress in spite of my dedication to treatment, and everyone seemed so much healthier.    but i am making myself try to stay with you guys, stay in relationship and ask the questions i need to ask.   the warmth in the group makes it ok.    it is dhard work, i feel sick and want to retreat, so many posts and i get confused and i can see it takes effort from you, too, joyce.   i have to type slowly because of tendon pain and make corrections or you wouldn't be able to read this.   but y'all are so worth it. 

xoxox

susan in vt

 

Wow , Thanks for writing your experience. Makes me feel like I am not the only one walking in circles. Symptoms are in different degrees,from light hell to heavy hell. Although the last 3 times I got B12,folic acid shot,the next day I felt way better but sorry to say it does not last. I felt like the real me in mind,body,spirit,emotions. Years ago when I got the shots I felt really great and then they stopped making me feel good. So I feel this is a BIG positive that they are helping again. How ru doing? Take care Joyce

[Guest guest]

Hi ,Watch out! Next time we're out in CA, you'll be hearing from us!Love, Léna Lena and susan This just made my day!!!!!!!!! Love, On Thu, Oct 29, 2009 at 5:35 PM, Guyot Léna <drumrollstny (DOT) rr.com> wrote: Dear , First, let me give you a classy name to apply to the day of exploding kimchee and other catastrophes. A friend once told me that the French word for shit was 'merde', and a shower of the same was an 'emmerdement'. We Lymies are often beset with such emmerdements, but saying, 'I'm having an emmerdement,' with a sultry French accent somehow makes it better, and dilutes that persecuted feeling that can come from too many body parts hurting, gravity being a fiendish conspiracy, and a missing brain refusing to check in on top of everything else. You triumphed over an emmerdement! Congratulations! We're in a weird boot-camp for the would-be highly evolved. The tests are fierce, and it often feels like we're failing them, but 'adversity introduces us to ourselves'.(I picked that up as a piece of cross-stitch in a garage sale, and it's a highly treasured thing in our house.) Our experience makes us understand what's important and what friendship is and that emerdements can be endured. You are SO among friends! Friends who've been there, who've known the dark despair, the doubts that things will ever be OK again and who have learned to abide, with a smile, and not let the critters have the last word. It's always a pleasure to read your posts. So much so, that when we were in Maine, I toyed with the idea of asking if you'd like us to route our home return to pass through VT and maybe say Hi. You were spared ;-) when the temperature dropped and campgrounds were closing and we high-tailed it home, but who knows? Maybe next spring or summer we may pass by in the RV. Had a great visit with Sash and in our Airstream over a year ago when we were out west. We all really enjoyed the extra dimension of smiling at each other as real, flesh and blood people. Just remember, that things can and do get better, even though it feels like slow motion. I've been a total invalid in pain, exhausted and deeply frightened, and now I'm me again, sort of, and hoping to throw away my emerdement umbrella someday . Hang in there. We need you. Love and be well, Léna wow, how wonderful the shot would give you such a boost!!! so important to get some relief and a clear sign that there is improvement!!!! oh joyce, i guess i'd call my days about like yours. often it is a dark comedy, staggering through the day, every little thing that happens is overwhleming to my exhasuted self. like yestserday: in total crushed fatigue but agitated and hungry i just started head-in-the-refrigerator eating. too many things were happening at once, (which means one other thing!) i was also trying to get the fire started in the wood stove. after eating nuts and stuff i thought i'd just eat some kimchee out of the jar. and i dropped it. a whole quart. i watched it falling and as i watched it the thought going through my mind is oh i guess i'll have to eat it off the floor. but it didn't just break, it shattered into a million pieces and the liquid was oozing under the fridge, wow powerful smell, totally masked the smoke smell from the fire i'd forgotten, i was so confused and tired but managed to get shoes on and clean up the mess and damp the stove and crawl into bed for the regular day-hours of torture. anyway, i don't want to get too deep into my whole day, i'll just say that i ended up well fed and the house got very warm. nothing like wood heat to keep the house at 80. and to everyone: i have never written very much or for very long on a biggish group like this. felt way too vulnerable, and too exhasuted to make any commitment to staying in. and secretly i would get discouraged that i wasn't making progress in spite of my dedication to treatment, and everyone seemed so much healthier. but i am making myself try to stay with you guys, stay in relationship and ask the questions i need to ask. the warmth in the group makes it ok. it is dhard work, i feel sick and want to retreat, so many posts and i get confused and i can see it takes effort from you, too, joyce. i have to type slowly because of tendon pain and make corrections or you wouldn't be able to read this. but y'all are so worth it. xoxox susan in vt Wow , Thanks for writing your experience. Makes me feel like I am not the only one walking in circles. Symptoms are in different degrees,from light hell to heavy hell. Although the last 3 times I got B12,folic acid shot,the next day I felt way better but sorry to say it does not last. I felt like the real me in mind,body,spirit,emotions. Years ago when I got the shots I felt really great and then they stopped making me feel good. So I feel this is a BIG positive that they are helping again. How ru doing? Take care Joyce

[Guest guest]

Lena

That would be wonderful really really wonderful!!!!!!!

 

Love,

 

Hi ,

Watch out! Next time we're out in CA, you'll be hearing from us!

Love, 

Léna

 

Lena and susan

This just made my day!!!!!!!!!

Love,

 

Dear ,

First, let me give you a classy name to apply to the day of exploding kimchee and other catastrophes. A friend once told me that the French word for shit was 'merde', and a shower of the same was an 'emmerdement'. We Lymies are often beset with such emmerdements, but saying, 'I'm having an emmerdement,' with a sultry French accent somehow makes it better, and dilutes that persecuted feeling that can come from too many body parts hurting, gravity being a fiendish conspiracy, and a missing brain refusing to check in on top of everything else. 

You triumphed over an emmerdement! Congratulations! We're in a weird boot-camp for the would-be highly evolved. The tests are fierce, and it often feels like we're failing them, but 'adversity introduces us to ourselves'.(I picked that up as a piece of cross-stitch in a garage sale, and it's a highly treasured thing in our house.) Our experience makes us understand what's important and what friendship is and that emerdements can be endured.

You are SO among friends! Friends who've been there, who've known the dark despair, the doubts that things will ever be OK again and who have learned to abide, with a smile, and not let the critters have the last word.

It's always a pleasure to read your posts. So much so, that when we were in Maine, I toyed with the idea of asking if you'd like us to route our home return to pass through VT and maybe say Hi. You were spared ;-) when the temperature dropped and campgrounds were closing and we high-tailed it home, but who knows? Maybe next spring or summer we may pass by in the RV. Had a great visit with Sash and in our Airstream over a year ago when we were out west. We all really enjoyed the extra dimension of smiling at each other as real, flesh and blood people.

Just remember, that things can and do get better, even though it feels like slow motion. I've been a total invalid in pain, exhausted and deeply frightened, and now I'm me again, sort of, and hoping to throw away my emerdement umbrella someday .

Hang in there. We need you.

Love and be well,

Léna

 

wow, how wonderful the shot would give you such a boost!!!   so important to get some relief and a clear sign that there is improvement!!!!   

oh joyce, i guess i'd call my days about like yours.  often it is a dark comedy, staggering through the day, every little thing that happens is overwhleming to my exhasuted self.  like yestserday:  in total crushed fatigue but agitated and hungry i just started  head-in-the-refrigerator eating.   too many things were happening at once, (which means one other thing!) i was also trying to get the fire started in the wood stove.  after eating nuts and stuff i thought i'd just eat some kimchee out of the jar.  

and i dropped it.  a whole quart.  i watched it falling and as i watched it the thought going through my mind is oh i guess i'll have to eat it off the floor.  but it didn't just break, it shattered into a million pieces and the liquid was oozing under the fridge, wow powerful smell, totally masked the smoke smell from the fire i'd forgotten, i was so confused and tired but managed to get shoes on and clean up the mess and damp the stove and crawl into bed for the regular day-hours of torture.

anyway, i don't want to get too deep into my whole day, i'll just say that i ended up well fed and the house got very warm.  nothing like wood heat to keep the house at 80.

and to everyone:   i have never written very much or for very long on a biggish group like this.  felt way too vulnerable, and too exhasuted to make any commitment to staying in.    and secretly i would get discouraged that i wasn't making progress in spite of my dedication to treatment, and everyone seemed so much healthier.    but i am making myself try to stay with you guys, stay in relationship and ask the questions i need to ask.   the warmth in the group makes it ok.    it is dhard work, i feel sick and want to retreat, so many posts and i get confused and i can see it takes effort from you, too, joyce.   i have to type slowly because of tendon pain and make corrections or you wouldn't be able to read this.   but y'all are so worth it. 

xoxox

susan in vt

 

Wow , Thanks for writing your experience. Makes me feel like I am not the only one walking in circles. Symptoms are in different degrees,from light hell to heavy hell. Although the last 3 times I got B12,folic acid shot,the next day I felt way better but sorry to say it does not last. I felt like the real me in mind,body,spirit,emotions. Years ago when I got the shots I felt really great and then they stopped making me feel good. So I feel this is a BIG positive that they are helping again. How ru doing? Take care Joyce

[Guest guest]

Be sure to stop in Las Vegas to see me!  J

From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of nancy berndt

Sent: Thursday, October 29, 2009

7:43 PM

To: Lyme_and_Rife

Subject: Re: Re:

OT: the klinghardt heurobiology link

Lena

That would be wonderful really really wonderful!!!!!!!

Love,

On Thu, Oct 29, 2009 at 7:34 PM, Guyot Léna <drumrollstny (DOT) rr.com> wrote:

Hi ,

Watch out!

Next time we're out in CA, you'll be hearing from us!

Love,

Léna

Lena

and susan

This just made my day!!!!!!!!!

Love,

On Thu, Oct 29, 2009 at 5:35 PM, Guyot Léna <drumrollstny (DOT) rr.com>

wrote:

Dear ,

First, let

me give you a classy name to apply to the day of exploding kimchee and other

catastrophes. A friend once told me that the French word for shit was 'merde',

and a shower of the same was an 'emmerdement'. We Lymies are often beset with

such emmerdements, but saying, 'I'm having an emmerdement,' with a sultry

French accent somehow makes it better, and dilutes that persecuted feeling that

can come from too many body parts hurting, gravity being a fiendish conspiracy,

and a missing brain refusing to check in on top of everything else.

You

triumphed over an emmerdement! Congratulations! We're in a weird boot-camp for

the would-be highly evolved. The tests are fierce, and it often feels like

we're failing them, but 'adversity introduces us to ourselves'.(I picked that

up as a piece of cross-stitch in a garage sale, and it's a highly treasured

thing in our house.) Our experience makes us understand what's important

and what friendship is and that emerdements can be endured.

You are SO among friends! Friends who've been

there, who've known the dark despair, the doubts that things will ever be OK

again and who have learned to abide, with a smile, and not let the critters

have the last word.

It's always

a pleasure to read your posts. So much so, that when we were in Maine, I toyed

with the idea of asking if you'd like us to route our home return to pass

through VT and maybe say Hi. You were spared ;-) when the temperature dropped

and campgrounds were closing and we high-tailed it home, but who knows? Maybe

next spring or summer we may pass by in the RV. Had a great visit with Sash and

in our

Airstream over a year ago when we were out west. We all really enjoyed the

extra dimension of smiling at each other as real, flesh and blood people.

Just

remember, that things can and do get better, even though it feels like

slow motion. I've been a total invalid in pain, exhausted and deeply

frightened, and now I'm me again, sort of, and hoping to throw away my

emerdement umbrella someday .

Hang in

there. We need you.

Love and be

well,

Léna

wow, how wonderful the shot would give you such a

boost!!! so important to get some relief and a clear sign that there is

improvement!!!!

oh joyce, i guess i'd call my days about like yours.

often it is a dark comedy, staggering through the day, every little thing

that happens is overwhleming to my exhasuted self. like yestserday:

in total crushed fatigue but agitated and hungry i just started

head-in-the-refrigerator eating. too many things were

happening at once, (which means one other thing!) i was also trying to get the

fire started in the wood stove. after eating nuts and stuff i thought i'd

just eat some kimchee out of the jar.

and i dropped it. a whole quart. i watched

it falling and as i watched it the thought going through my mind is oh i guess

i'll have to eat it off the floor. but it didn't just break, it shattered

into a million pieces and the liquid was oozing under the fridge, wow powerful

smell, totally masked the smoke smell from the fire i'd forgotten, i was so

confused and tired but managed to get shoes on and clean up the mess and damp

the stove and crawl into bed for the regular day-hours of torture.

anyway, i don't want to get too deep into my whole

day, i'll just say that i ended up well fed and the house got very warm.

nothing like wood heat to keep the house at 80.

and to everyone: i have never written very much

or for very long on a biggish group like this. felt way too vulnerable,

and too exhasuted to make any commitment to staying in. and

secretly i would get discouraged that i wasn't making progress in spite of my

dedication to treatment, and everyone seemed so much healthier.

but i am making myself try to stay with you guys, stay in relationship and

ask the questions i need to ask. the warmth in the group makes it ok.

it is dhard work, i feel sick and want to retreat, so many posts

and i get confused and i can see it takes effort from you, too, joyce. i

have to type slowly because of tendon pain and make corrections or you wouldn't

be able to read this. but y'all are so worth it.

xoxox

susan in vt

Wow , Thanks for writing your experience. Makes

me feel like I am not the only one walking in circles. Symptoms are in

different degrees,from light hell to heavy hell. Although the last 3 times I

got B12,folic acid shot,the next day I felt way better but sorry to say it

does not last. I felt like the real me in mind,body,spirit,emotions.

Years ago when I got the shots I felt really great and then they stopped

making me feel good. So I feel this is a BIG positive that they are helping

again. How ru doing? Take care Joyce

[Guest guest]

Hey!  If we are putting our orders in....Seattle! ;-)

Cheryl

 

Be sure to stop in Las Vegas to see me!  J

 

From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of nancy berndt

Sent: Thursday, October 29, 2009 7:43 PM To: Lyme_and_Rife Subject: Re: Re: OT: the klinghardt heurobiology link

 

 

Lena

That would be wonderful really really wonderful!!!!!!!

 

Love,

 

Hi ,

 

Watch out! Next time we're out in CA, you'll be hearing from us!

 

Love, 

Léna

 

 

 

Lena and susan

This just made my day!!!!!!!!!

Love,

 

Dear ,

 

First, let me give you a classy name to apply to the day of exploding kimchee and other catastrophes. A friend once told me that the French word for shit was 'merde', and a shower of the same was an 'emmerdement'. We Lymies are often beset with such emmerdements, but saying, 'I'm having an emmerdement,' with a sultry French accent somehow makes it better, and dilutes that persecuted feeling that can come from too many body parts hurting, gravity being a fiendish conspiracy, and a missing brain refusing to check in on top of everything else. 

 

You triumphed over an emmerdement! Congratulations! We're in a weird boot-camp for the would-be highly evolved. The tests are fierce, and it often feels like we're failing them, but 'adversity introduces us to ourselves'.(I picked that up as a piece of cross-stitch in a garage sale, and it's a highly treasured thing in our house.) Our experience makes us understand what's important and what friendship is and that emerdements can be endured.

 

You are SO among friends! Friends who've been there, who've known the dark despair, the doubts that things will ever be OK again and who have learned to abide, with a smile, and not let the critters have the last word.

 

It's always a pleasure to read your posts. So much so, that when we were in Maine, I toyed with the idea of asking if you'd like us to route our home return to pass through VT and maybe say Hi. You were spared ;-) when the temperature dropped and campgrounds were closing and we high-tailed it home, but who knows? Maybe next spring or summer we may pass by in the RV. Had a great visit with Sash and in our Airstream over a year ago when we were out west. We all really enjoyed the extra dimension of smiling at each other as real, flesh and blood people.

 

Just remember, that things can and do get better, even though it feels like slow motion. I've been a total invalid in pain, exhausted and deeply frightened, and now I'm me again, sort of, and hoping to throw away my emerdement umbrella someday .

 

Hang in there. We need you.

 

Love and be well,

Léna

 

 

 

wow, how wonderful the shot would give you such a boost!!!   so important to get some relief and a clear sign that there is improvement!!!!   

 

oh joyce, i guess i'd call my days about like yours.  often it is a dark comedy, staggering through the day, every little thing that happens is overwhleming to my exhasuted self.  like yestserday:  in total crushed fatigue but agitated and hungry i just started  head-in-the-refrigerator eating.   too many things were happening at once, (which means one other thing!) i was also trying to get the fire started in the wood stove.  after eating nuts and stuff i thought i'd just eat some kimchee out of the jar.  

 

and i dropped it.  a whole quart.  i watched it falling and as i watched it the thought going through my mind is oh i guess i'll have to eat it off the floor.  but it didn't just break, it shattered into a million pieces and the liquid was oozing under the fridge, wow powerful smell, totally masked the smoke smell from the fire i'd forgotten, i was so confused and tired but managed to get shoes on and clean up the mess and damp the stove and crawl into bed for the regular day-hours of torture.

 

anyway, i don't want to get too deep into my whole day, i'll just say that i ended up well fed and the house got very warm.  nothing like wood heat to keep the house at 80.

 

and to everyone:   i have never written very much or for very long on a biggish group like this.  felt way too vulnerable, and too exhasuted to make any commitment to staying in.    and secretly i would get discouraged that i wasn't making progress in spite of my dedication to treatment, and everyone seemed so much healthier.    but i am making myself try to stay with you guys, stay in relationship and ask the questions i need to ask.   the warmth in the group makes it ok.    it is dhard work, i feel sick and want to retreat, so many posts and i get confused and i can see it takes effort from you, too, joyce.   i have to type slowly because of tendon pain and make corrections or you wouldn't be able to read this.   but y'all are so worth it. 

 

xoxox

susan in vt

 

 

Wow , Thanks for writing your experience. Makes me feel like I am not the only one walking in circles. Symptoms are in different degrees,from light hell to heavy hell. Although the last 3 times I got B12,folic acid shot,the next day I felt way better but sorry to say it does not last. I felt like the real me in mind,body,spirit,emotions. Years ago when I got the shots I felt really great and then they stopped making me feel good. So I feel this is a BIG positive that they are helping again. How ru doing? Take care Joyce

 

 

 

 

 

 

 

 

 

[Guest guest]

Hi ,Thanks for reminding me! We had a great time in Las Vegas on our last jaunt. Camped at Circus Circus and rode the Deuce to lots of shows up and down the strip. Hot, though. Definitely want to go there again. I'll let you know if we're headed there again; would love to see you! :)Be well,Léna Be sure to stop in Las Vegas to see me! J From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of nancy berndt Sent: Thursday, October 29, 2009 7:43 PM To: Lyme_and_Rife Subject: Re: Re: OT: the klinghardt heurobiology link Lena That would be wonderful really really wonderful!!!!!!! Love, On Thu, Oct 29, 2009 at 7:34 PM, Guyot Léna <drumrollstny (DOT) rr.com> wrote: Hi , Watch out! Next time we're out in CA, you'll be hearing from us! Love, Léna Lena and susan This just made my day!!!!!!!!! Love, On Thu, Oct 29, 2009 at 5:35 PM, Guyot Léna <drumrollstny (DOT) rr.com> wrote: Dear , First, let me give you a classy name to apply to the day of exploding kimchee and other catastrophes. A friend once told me that the French word for shit was 'merde', and a shower of the same was an 'emmerdement'. We Lymies are often beset with such emmerdements, but saying, 'I'm having an emmerdement,' with a sultry French accent somehow makes it better, and dilutes that persecuted feeling that can come from too many body parts hurting, gravity being a fiendish conspiracy, and a missing brain refusing to check in on top of everything else. You triumphed over an emmerdement! Congratulations! We're in a weird boot-camp for the would-be highly evolved. The tests are fierce, and it often feels like we're failing them, but 'adversity introduces us to ourselves'.(I picked that up as a piece of cross-stitch in a garage sale, and it's a highly treasured thing in our house.) Our experience makes us understand what's important and what friendship is and that emerdements can be endured. You are SO among friends! Friends who've been there, who've known the dark despair, the doubts that things will ever be OK again and who have learned to abide, with a smile, and not let the critters have the last word. It's always a pleasure to read your posts. So much so, that when we were in Maine, I toyed with the idea of asking if you'd like us to route our home return to pass through VT and maybe say Hi. You were spared ;-) when the temperature dropped and campgrounds were closing and we high-tailed it home, but who knows? Maybe next spring or summer we may pass by in the RV. Had a great visit with Sash and in our Airstream over a year ago when we were out west. We all really enjoyed the extra dimension of smiling at each other as real, flesh and blood people. Just remember, that things can and do get better, even though it feels like slow motion. I've been a total invalid in pain, exhausted and deeply frightened, and now I'm me again, sort of, and hoping to throw away my emerdement umbrella someday . Hang in there. We need you. Love and be well, Léna wow, how wonderful the shot would give you such a boost!!! so important to get some relief and a clear sign that there is improvement!!!! oh joyce, i guess i'd call my days about like yours. often it is a dark comedy, staggering through the day, every little thing that happens is overwhleming to my exhasuted self. like yestserday: in total crushed fatigue but agitated and hungry i just started head-in-the-refrigerator eating. too many things were happening at once, (which means one other thing!) i was also trying to get the fire started in the wood stove. after eating nuts and stuff i thought i'd just eat some kimchee out of the jar. and i dropped it. a whole quart. i watched it falling and as i watched it the thought going through my mind is oh i guess i'll have to eat it off the floor. but it didn't just break, it shattered into a million pieces and the liquid was oozing under the fridge, wow powerful smell, totally masked the smoke smell from the fire i'd forgotten, i was so confused and tired but managed to get shoes on and clean up the mess and damp the stove and crawl into bed for the regular day-hours of torture. anyway, i don't want to get too deep into my whole day, i'll just say that i ended up well fed and the house got very warm. nothing like wood heat to keep the house at 80. and to everyone: i have never written very much or for very long on a biggish group like this. felt way too vulnerable, and too exhasuted to make any commitment to staying in. and secretly i would get discouraged that i wasn't making progress in spite of my dedication to treatment, and everyone seemed so much healthier. but i am making myself try to stay with you guys, stay in relationship and ask the questions i need to ask. the warmth in the group makes it ok. it is dhard work, i feel sick and want to retreat, so many posts and i get confused and i can see it takes effort from you, too, joyce. i have to type slowly because of tendon pain and make corrections or you wouldn't be able to read this. but y'all are so worth it. xoxox susan in vt Wow , Thanks for writing your experience. Makes me feel like I am not the only one walking in circles. Symptoms are in different degrees,from light hell to heavy hell. Although the last 3 times I got B12,folic acid shot,the next day I felt way better but sorry to say it does not last. I felt like the real me in mind,body,spirit,emotions. Years ago when I got the shots I felt really great and then they stopped making me feel good. So I feel this is a BIG positive that they are helping again. How ru doing? Take care Joyce

[Guest guest]

Hi,I too have been having those tiny sores around my body that come and go, thought it was only me. Dermatologist doesn't have a clue either as to why.....can't even find anything researching about it. Please let me know if you ever find an answer....To: Lyme_and_Rife Sent: Thu, October 29, 2009 7:40:37 AMSubject: Re: Re: OT: the klinghardt heurobiology link

hi weisstreasure

i'm taking some gaba at night, do i take the taurine with it as

well? no idea about the skin stuff, i have tiny sores in

unpredicatbable places around my body, never understand why they come

and go..

s in vt

> Taurine really seemed to help me sleep, but also exacerbates my

> skin breakouts, so then I have to compensate with more zinc. I've

> been taking it for years and stumbled upon the fact that it was

> recommended for lymies recently also. Not sure what the skin

> breakouts are about, though.

>

[Guest guest]

Hey ,I'm psyched to see Whidbey! Well, also Alaska, eventually too, maybe.How wonderful it would be to have you come visit! And anybody else in the Lyme tribe coming to see DK!It's both scary and fun to not know where we'll end up. Trusting the flow, findingourway.Love,Léna Hey Lena, I vote for Seattle too, only may I suggest Whidbey Island or Squim. These places are known as the blue hole in the sky in Washington as they are in the Olympic Rain Shadow. I loved Whidbey and would move back in a heartbeat if our jobs weren't here in AK. If you picked Seattle, you would be able to see DK and I could visit you when I come down from AK to visit my sis. Love, > >> > >> > >> > >> > >> > >> Wow , Thanks for writing your experience. Makes me feel like > >> I am not the only one walking in circles. Symptoms are in > >> different degrees,from light hell to heavy hell. Although the last > >> 3 times I got B12,folic acid shot,the next day I felt way better > >> but sorry to say it does not last. I felt like the real me in > >> mind,body,spirit,emotions. Years ago when I got the shots I felt > >> really great and then they stopped making me feel good. So I feel > >> this is a BIG positive that they are helping again. How ru doing? > >> Take care Joyce > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > > > > > > > > > > > > >

[Guest guest]

We have spent many happy family drives going around Whidbey Island.  When I did the www.findyourspot.com that someone put on the forum, Oak Harbor on Whidbey Island was one of my spots!  The view from West Whidbey across the water to the Olympic Mountains is incomparable! 

 

Most people just hear about the rain in Spain stays mainly on the plain...no, no, no.....I mean the rain in Seattle and don't realize that we have inland sand dunes (Moses Lake), desert, and high plains.  You can go from Rain Forrest (on the peninsula) to desert in a few  hours.   One of the other things few people realize is that the Skagit Valley around La Conner grows more tulips/daffodils and Iris then anywhere else in the USA.  It rivals Holland.  It is about 1 hour north of us.  We drive up to see the daffodil fields, then again a few weeks later to see the tulip fields.  Words cannot express the beauty of standing on a knoll and looking out across hundreds of acres of vibrant color.

 

This really is the end of the travel log!!! ;-)

 

Cheryl

 

 

 

Hey ,

I'm psyched to see Whidbey! Well, also Alaska, eventually too, maybe.

How wonderful it would be to have you come visit! And anybody else in the Lyme tribe coming to see DK!

It's both scary and fun to not know where we'll end up. Trusting the flow, findingourway.

Love,

Léna

 

Hey Lena,I vote for Seattle too, only may I suggest Whidbey Island or Squim. These places are known as the blue hole in the sky in Washington as they are in the Olympic Rain Shadow. I loved Whidbey and would move back in a heartbeat if our jobs weren't here in AK. If you picked Seattle, you would be able to see DK and I could visit you when I come down from AK to visit my sis.

Love,> >>> >>> >>> >>> >>> >> Wow , Thanks for writing your experience. Makes me feel like

> >> I am not the only one walking in circles. Symptoms are in > >> different degrees,from light hell to heavy hell. Although the last > >> 3 times I got B12,folic acid shot,the next day I felt way better

> >> but sorry to say it does not last. I felt like the real me in > >> mind,body,spirit,emotions. Years ago when I got the shots I felt > >> really great and then they stopped making me feel good. So I feel

> >> this is a BIG positive that they are helping again. How ru doing? > >> Take care Joyce> >>> >>> >>> >>> >>> >>> >>

> >>> >>> >>> >>> >>> >>> >>> >> >> >> >> >> >>