Re: STIMMING QUESTION TO DR JM

[Guest guest]

Pisinaris,

I'm curious about the patterns of stimming--for example, are there certain times

when he says, " ahh...ahhh " that conceivably are a form of communication? For

example, when he is particularly anxious or delighted or wants to say something

but can't get it out or is neurologically overloaded.You might keep a notebook

for a week and note the particular times he stimms a lot along with what was

happening at that time or just before..

I have found with Chelsey, that she goes into her, " ahh, baa, ahh " when she is

processing an intense interaction between us. She usually does this about five

minutes after the interaction is completed. It is her way of saying, " I'm

digesting what went on as beet I can--and storing the experience somewhere. " She

does this particular when the interaction deepened the understanding we have of

each other.

Jack

pisinaris wrote:

Listmates hello from Europe

My son 5 years old speaks very well,asks questions,seaks company of

others,loves affection,wants to play with other kids but his play

skills and motor skills are very low,however the other children like

him and get along with him.He also has a low mussle tone.

His major problem though is verbal stimming(shouting ahh,ahhh).

We tested plasma fatty acids and amino acids(as per Dr McCandless

advise) and they are ok.

We did GFCF for a year-no change on his stimming or any other

improvements.We still try to keep him away from gluten as much as

possible.

We tried Diflucan to resolve the yeast indicators in his urine and

we did get them cleaned up plus we saw an improvement and then we

tried the methyl-B12 shots at 1250mcg.We got high stimming and we

stopped.

I dont know what else to try.If he is not stimming he looks and acts

like a normal 5 year old kid.

He is taking CLO,Calcium and magnesium,Culturelle,probiogold.I

stopped the vitamins 2 months ago when I gave him Diflucan(they did

not seem to help)

Please help

Pisinaris

Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com>

[Guest guest]

Good question Jack

I have been trying to figure out the patterns of stimming myself for

quite a while.Definitely he can express himself so he can get it

out.When he is kept busy he does not stim(We cant possibly keep him

busy all day),when he plays computer games he is on the chair 2

hours calm,no stimming.When he is bored he stimms a lot.When he is

around people ,kids he likes(being happy)is also stim time,but

generally this is not 100%.Like am he stimms a lot,today he stimmed

in am then we played a game with airplane,sitting on the table

pretending I was the pilot ,his sister the stewardess and him the

passenger,no stim,he played the game fantastically(I asked myself is

this kid autistic?)he pretended he was eating the plastic food he

was offered,then he asked me if he could ride the plane and then he

was correcting us of the location of the plane stairs.

Later we had guests for swimming in our pool,he was not

participating in any of the games the other kids were playing and he

was stimming.Then 6pm he goes gets his doll and started playing with

a kid,no stim,they left he continued playing with his dolls and has

not stimmed untill he slept.Its these ups and downs that worry me if

there is something wrong with his metabolism.

When he is anxious and stressed he gets quiet and breaths funny so

this hypothesis is out.

I think his sound sensitivities could be a part of it.Have you tried

auditory processing therapy for reducing sound sensitivities?

Sorry for the long email

All the best of health

Pisinaris

> Listmates hello from Europe

> My son 5 years old speaks very well,asks questions,seaks company

of

> others,loves affection,wants to play with other kids but his play

> skills and motor skills are very low,however the other children

like

> him and get along with him.He also has a low mussle tone.

> His major problem though is verbal stimming(shouting ahh,ahhh).

>

> We tested plasma fatty acids and amino acids(as per Dr McCandless

> advise) and they are ok.

> We did GFCF for a year-no change on his stimming or any other

> improvements.We still try to keep him away from gluten as much as

> possible.

> We tried Diflucan to resolve the yeast indicators in his urine and

> we did get them cleaned up plus we saw an improvement and then we

> tried the methyl-B12 shots at 1250mcg.We got high stimming and we

> stopped.

>

> I dont know what else to try.If he is not stimming he looks and

acts

> like a normal 5 year old kid.

> He is taking CLO,Calcium and magnesium,Culturelle,probiogold.I

> stopped the vitamins 2 months ago when I gave him Diflucan(they

did

> not seem to help)

>

> Please help

> Pisinaris

>

>

>

> Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com>

>

>

>

[Guest guest]

Thanks so much for your comments and I think you touched the 2 basic

features of stimming.

1.Stimming(no matter in which form)is a common characteristic of

autism.

2.Stimming is a major(if not the number 1)battlefield in the

treatment of autism.

I personally feel that the medical community and autism experts have

paid little attention to this aspect of autism thinking that if every

biomedical part comes in place then the stimming will naturally

decrease or disappear.This could be true of course but in my opinion

thinking as an accountant and not as a doctor,its not the right

attitute and as I can read through your words you try to deal with it

with an approach which is very correct(i.e You are trying to

understand what Chelsey is trying to express or sort out in her mind

so you can enter that and try to help out).This is definitely a good

approach which you inspired me to start using it with my son.On the

other hand it could be possible that the connecting points???of the

different parts of the brain are not working properly and when the

external or internal stimulation comes it does not only arouse the

proper part of the brain but other parts of the brain as well which

causes this type of behaviour.Think for instance how you felt when

you were young and went on the first date.What was the state of our

mind?A lot of feelings,emotions,stimulus...which caused to some of us

overexcitement,to others a complete blockout of words coming out of

the mouth and to others doing things we never did before,like saying

stupid things,moving our fingers,tilting our feet,in other words

stimming!!!!!!!Imagine then what would happen if someone's

neurological system was not in the best of shape!

I remember i took a glass of wine then but it did not help much.This

is my understanding of stimming and i repeat I am not a Dr but still

the approach to help out is definitely the one you described untill

scientists learn more about the human brain and understand what can

be done to help our children.

I must say it is very nice and interesting communicating with you not

only because we are both men but we both seem to think with a

mathematical brain,we look at things and try to fix them with a

practical approach.Its very easy to say my kid had some forbidden

tiny piece of food and he is stimming big time,but is that all there

is to it?I believe not,there has to be much more involved.

thanks for the info on sound sensitivities,I will look it up on the

internet.

Pisinaris

> > Listmates hello from Europe

> > My son 5 years old speaks very well,asks questions,seaks company

> of

> > others,loves affection,wants to play with other kids but his play

> > skills and motor skills are very low,however the other children

> like

> > him and get along with him.He also has a low mussle tone.

> > His major problem though is verbal stimming(shouting ahh,ahhh).

> >

> > We tested plasma fatty acids and amino acids(as per Dr McCandless

> > advise) and they are ok.

> > We did GFCF for a year-no change on his stimming or any other

> > improvements.We still try to keep him away from gluten as much as

> > possible.

> > We tried Diflucan to resolve the yeast indicators in his urine

and

> > we did get them cleaned up plus we saw an improvement and then we

> > tried the methyl-B12 shots at 1250mcg.We got high stimming and we

> > stopped.

> >

> > I dont know what else to try.If he is not stimming he looks and

> acts

> > like a normal 5 year old kid.

> > He is taking CLO,Calcium and magnesium,Culturelle,probiogold.I

> > stopped the vitamins 2 months ago when I gave him Diflucan(they

> did

> > not seem to help)

> >

> > Please help

> > Pisinaris

> >

> >

> >

> > Many frequently asked questions and answers can be found at

> <http://forums.autism-rxguidebook.com>

> >

> >

> >