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And you keep holding on Abijann, as tightly as you can.

Things find a way of working themselves out and I hope in your case everything

does.

MaC

abijann <no_reply > wrote: I did

not know my post would bring such a reaction.

Mac knows alot about what I have gone through with this insurance.

He really knows about 1/8 of it, since I have tried to hold my

tongue about all that is going on. All I can say is that the last

three to four years, it has been sheer torture. Switching doctors

and hospitals may be alright for those who are fairly well, but

for someone who needs anywhere from 2 to 6 specialist, cannot

just go anywhere (hospital) and receive care that ordinary patients do

because of his medical problem, has a transplant, the new doctor

doesn't know his medical background except for looking at a two large

book medical history...cannot possibly handle this unless they are

placing the patients life at risk. We have gotten two doctor changes

made in the last year and both have placed my husband in a position

that could have cost him his life. Trying changing all of them at once

and also his transplant hospital. I'm not going to say anymore...I'm

just giving an example.

It is wonderful to know that not all patients have to go through this

and that there are some out there without worries. It must be a real

blessing. I feel blessed that we have insurance, of which I will

be losing mine shortly if this isn't cleared up...but that there

are many out there who do not have anything. They don't consider

us below poverty level because they don't know how much we

pay for all the medical costs. They should take that into

consideration and they would see that we are barely surviving and

to add the cost for us to get insurance on top of that...we may

just throw in the towel.

As far as living on the streets...that would be like throwing a patient

who is totally disabled and unable to fend for themselves out in the

snow and be told to survive. My husband knows all about surviving in

the wilderness. He has been in Alaska and was dropped off by plane

into the wilderness up there and lived in the wilderness with no

access to civilization for a period of a month. He and his brother

used to do this when they were healthy many different times. They are

hunters. Forget about me, I cannot walk in the woods and find my

way back unless I put up florencent tape all the way through. But

we tend to have different navigational aspects...he would get

lost in a mall very easy...building are not his cup of tea.

My husband has been seriously ill since 1983-84, however he worked

during that time till four years ago when he went into liver failure.

He is disabled now and I believe he should be treated with respect

and treated fairly and not have anything disrupt any peace he

could possibly have at this time. But, there hasn't been any

peace for us at all...it has been a constant battle because of

outside sources. He received a liver transplant because he wanted

to live and now he is even thinks he made the wrong decision because

of what we are going through. He was just hours away from dying,

maybe not even that. I wanted him to be with me and I held on

as tightly as I could...

_

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> I did not know my post would bring such a reaction.

>

> Mac knows alot about what I have gone through with this insurance.

> He really knows about 1/8 of it, since I have tried to hold my

> tongue about all that is going on. All I can say is that the last

> three to four years, it has been sheer torture. Switching doctors

> and hospitals may be alright for those who are fairly well, but

> for someone who needs anywhere from 2 to 6 specialist, cannot

> just go anywhere (hospital) and receive care that ordinary patients

do

> because of his medical problem, has a transplant, the new doctor

> doesn't know his medical background except for looking at a two

large

> book medical history...cannot possibly handle this unless they are

> placing the patients life at risk. We have gotten two doctor

changes

> made in the last year and both have placed my husband in a position

> that could have cost him his life. Trying changing all of them at

once

> and also his transplant hospital. I'm not going to say

anymore...I'm

> just giving an example.

>

> It is wonderful to know that not all patients have to go through

this

> and that there are some out there without worries. It must be a real

> blessing. I feel blessed that we have insurance, of which I will

> be losing mine shortly if this isn't cleared up...but that there

> are many out there who do not have anything. They don't consider

> us below poverty level because they don't know how much we

> pay for all the medical costs. They should take that into

> consideration and they would see that we are barely surviving and

> to add the cost for us to get insurance on top of that...we may

> just throw in the towel.

>

> As far as living on the streets...that would be like throwing a

patient

> who is totally disabled and unable to fend for themselves out in

the

> snow and be told to survive. My husband knows all about surviving

in

> the wilderness. He has been in Alaska and was dropped off by plane

> into the wilderness up there and lived in the wilderness with no

> access to civilization for a period of a month. He and his brother

> used to do this when they were healthy many different times. They

are

> hunters. Forget about me, I cannot walk in the woods and find my

> way back unless I put up florencent tape all the way through. But

> we tend to have different navigational aspects...he would get

> lost in a mall very easy...building are not his cup of tea.

>

> My husband has been seriously ill since 1983-84, however he worked

> during that time till four years ago when he went into liver

failure.

> He is disabled now and I believe he should be treated with respect

> and treated fairly and not have anything disrupt any peace he

> could possibly have at this time. But, there hasn't been any

> peace for us at all...it has been a constant battle because of

> outside sources. He received a liver transplant because he wanted

> to live and now he is even thinks he made the wrong decision because

> of what we are going through. He was just hours away from dying,

> maybe not even that. I wanted him to be with me and I held on

> as tightly as I could...

>

>

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

>

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Sorry to hear that you don't qualify.

Colleen

Debra wrote:

> I did not know my post would bring such a reaction.

>

> Mac knows alot about what I have gone through with this insurance.

> He really knows about 1/8 of it, since I have tried to hold my

> tongue about all that is going on. All I can say is that the last

> three to four years, it has been sheer torture. Switching doctors

> and hospitals may be alright for those who are fairly well, but

> for someone who needs anywhere from 2 to 6 specialist, cannot

> just go anywhere (hospital) and receive care that ordinary patients

do

> because of his medical problem, has a transplant, the new doctor

> doesn't know his medical background except for looking at a two

large

> book medical history...cannot possibly handle this unless they are

> placing the patients life at risk. We have gotten two doctor

changes

> made in the last year and both have placed my husband in a position

> that could have cost him his life. Trying changing all of them at

once

> and also his transplant hospital. I'm not going to say

anymore...I'm

> just giving an example.

>

> It is wonderful to know that not all patients have to go through

this

> and that there are some out there without worries. It must be a real

> blessing. I feel blessed that we have insurance, of which I will

> be losing mine shortly if this isn't cleared up...but that there

> are many out there who do not have anything. They don't consider

> us below poverty level because they don't know how much we

> pay for all the medical costs. They should take that into

> consideration and they would see that we are barely surviving and

> to add the cost for us to get insurance on top of that...we may

> just throw in the towel.

>

> As far as living on the streets...that would be like throwing a

patient

> who is totally disabled and unable to fend for themselves out in

the

> snow and be told to survive. My husband knows all about surviving

in

> the wilderness. He has been in Alaska and was dropped off by plane

> into the wilderness up there and lived in the wilderness with no

> access to civilization for a period of a month. He and his brother

> used to do this when they were healthy many different times. They

are

> hunters. Forget about me, I cannot walk in the woods and find my

> way back unless I put up florencent tape all the way through. But

> we tend to have different navigational aspects...he would get

> lost in a mall very easy...building are not his cup of tea.

>

> My husband has been seriously ill since 1983-84, however he worked

> during that time till four years ago when he went into liver

failure.

> He is disabled now and I believe he should be treated with respect

> and treated fairly and not have anything disrupt any peace he

> could possibly have at this time. But, there hasn't been any

> peace for us at all...it has been a constant battle because of

> outside sources. He received a liver transplant because he wanted

> to live and now he is even thinks he made the wrong decision because

> of what we are going through. He was just hours away from dying,

> maybe not even that. I wanted him to be with me and I held on

> as tightly as I could...

>

>

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

>

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