Re: Jan

[Guest guest]

The degree of damage to your liver does not always correlate to the actual stage

of your disease as it relates to your overall organic function.

Re: Jan

MaC - thank you for that explanation. Tired as I am today, I

learned

something. I have had two biopsies which confirmed the diagnosis of

cirrhosis. The first was around 6 years ago. The second was in March. On

that one, I was told that on a scale of 1 to 4, my liver damage was a 4 and

the progression of the disease was a 1. I am still trying to find out what

that really means, especially the progression rating. If I am already at

the top of the scale for damage, how can they determine a progression

rate?

What is the fourth state of liver disease?

Jan H

>

> Neither of you are ignorant. Hepatitis in this setting isn't referring

> to Hep A, B, C etc. It's referring to inflammation of the liver. Which

> Hepatitis means. Hepa=liver titis=inflammation.

> So you do have hepatitis of unknown origin. But you may not have

> cirrhosis unless of course they did a biopsy and confirmed cirrhosis

> which is the third stage of liver disease. Inflammation or hepatitis

> is the first stage.

>

> Most people hear hepatitis and think of the viral disease that it's

> most commonly associated with.

>

> MaC

>

>

> >

> > I have a question, and I hope I can put it so you can understand it.

> > Yesterday when I went to the hematologist and was ready to leave. I

> was waiting for the order for the blood work the doctor wanted before

> my next visit. The receptionist was having trouble reading my chart,

> and asked the other receptionist what something said. The second one

> said it said: Diagnosis, hepatitis.

> > I tried to tell them I didn't have hepatitis, I had cirrhosis of

> unknown origin. She told me that hepatitis is a general category they

> use for all liver patients. Is she ignorant or am I?

> >

> > Jan H

> >

>

>

>

--

Jan H

[Guest guest]

Good luck on your tests. I have the echo cardiogram today. here is a link on

pathology.

http://tpis.upmc.edu/tpis/dlp/DLPHome.html

Re: Jan

Great question Jan, Ive been wondering the same thing sort of.. all

these grades and scales are confusing. I hope you can enlighten us

Mac.. Well tomorrow I go for the doppler sonogram to see about the

portal hypertention and then I go for more bloodwork. It will be a

busy day. Today I had more energy than Ive had in a month, so I hope

I have some spoons left for tomorrow. I just woke up from long nap

and start my fast in an hour so Im waiting till the last minute to

eat something so that my blood sugar doesnt go to low before they

take the blood. About how long does a doppler sonogram usually take

anyway? God bless and good night, Debra

> > >

> > > I have a question, and I hope I can put it so you can

understand it.

> > > Yesterday when I went to the hematologist and was ready to

leave. I

> > was waiting for the order for the blood work the doctor wanted

before

> > my next visit. The receptionist was having trouble reading my

chart,

> > and asked the other receptionist what something said. The second

one

> > said it said: Diagnosis, hepatitis.

> > > I tried to tell them I didn't have hepatitis, I had cirrhosis of

> > unknown origin. She told me that hepatitis is a general category

they

> > use for all liver patients. Is she ignorant or am I?

> > >

> > > Jan H

> > >

> >

> >

> >

>

>

>

> --

> Jan H

>

>

>

[Guest guest]

Well I didnt think so either, but on the NASH group they all have

numbers for the stages of NASH they have.. Most will read something

like this NASH stage 3 Cirrhosis stage 4, etc.. like I said I have

no idea what all these numbers mean and I am going to ask my doctor

when I go back on the first to see what his take is on it. Im sure it

will be something new.. Debra

-- In livercirrhosissupport , " Crislip "

wrote:

>

> Your stage 4 must be related to the degree of cirhosis. I'm pretty

sure they don't put ratings on the degree of hepatitis ( NASH).

>

>

> Re: Jan

> >

> >

[Guest guest]

I have to agree that this group seems very grown up. I would hate for it to ever

get to arguing.My faith in a life after this one is based almost entirely in

what I experienced when Ardis died. People always say " I'm so sorry " and thats

nice, but I mean to tell you, I really believe that she is in a better place. If

not, then life truly is a cruel joke. She opened her eyes when she died, and she

could see. I could tell that she could see. The look was one of amazement, not

fear. Like a child on Christmas morning. A tear rolled down her cheek. I caught

it with a tissue, and keep a lock of her hair in that tissue in my wallet. I

will cry hard if it is ever lost. I know that nothing is forever, and am

resolved that it may be someday lost. For sure someday it will turn to dust.

Native American people are very tuned in to the fact that we breath every day

the dust of all who have come before us, and the earth is even made from it.

There is no way I could ever

believe that with all that dust, there is no spirit.

Re: Jan

Abijann - I really enjoy your posts because you know so much. And

yes it is

nice not to have to follow the rule about not discussing religion and

politics. Especially for those of us who don't know how much longer we have

to live, even though faith might have been a part of life all the time, it

becomes so much more important now. It would be hard not to be able to

mention it.

And the scientific advances are also amazing. I don't know if it was here

or somewhere else where I read that they are now able to reverse cirrhosis

in mice. Maybe they will be able to translate that to humans in time for

some of us here. Wouldn't that be great. Jan H

On Dec 30, 2007 4:49 PM, abijann <no_reply@yahoogroup s.com> wrote:

> We live in a world of not just many different beliefs, but many

> different ways of looking at all things. That, to me makes it

> very special. If we can discuss anything at all and have it

> done in a peaceful environment, like the one here....there would

> be more peace for everyone and more love to go around. We all

> have questions and we all search for answers and it seems as

> soon as we think we know something... something else becomes clear

> to us that we didn't know before.

>

> Like when I was truly sure that alcoholic could not have a

> transplant unless they were free from alcohol for a period of

> 6 months. Then, Mac posted an article here that said they

> had changed that to being taken on an individual basis... To

> me that was a step forward that they would do this. We read

> many different things and it just takes one little thing to

> change, that can make a very big difference. I just read the

> other day about an instrument they use to remove tissue from

> the body very gently. It kills the cells and then removes

> them a little at a time with suction. This is an

> advancement I thought was just great. They may be able to

> remove tumors this way and not damage the tissue around

> them. They say it won't even hurt the vessel that our blood

> flows through, the doctor can feel when he is near them being

> they are a different type of tissue. Nothing I say here is

> written in stone...anyone can rebuke what I say and they

> have the right to do so.

>

> Bob is right, where else could a person bring up religious

> things and state what they believe and not go into a big

> argument about it all. I hope this group will always be this way.

> This shows true caring and true respect for other people, ourselves

> included.

>

>

>

--

Jan H

[Guest guest]

Mac - thanks. That was the article I had read. Jan H

> Jan,

> I think this is the article you may have been thinking of. I don't know if

> it was posted in the group before but I remember seeing it as well. This is

> from the University of San Diego. Let's pray they make marked advances with

> this.

>

> http://www.medicinenet.com/script/main/art.asp?articlekey=86087

>

> MaC

>

> Jan Holman <janholman@... <janholman%40gmail.com>> wrote: Abijann -

> I really enjoy your posts because you know so much. And yes it is

>

> nice not to have to follow the rule about not discussing religion and

> politics. Especially for those of us who don't know how much longer we

> have

> to live, even though faith might have been a part of life all the time, it

> becomes so much more important now. It would be hard not to be able to

> mention it.

>

> And the scientific advances are also amazing. I don't know if it was here

> or somewhere else where I read that they are now able to reverse cirrhosis

> in mice. Maybe they will be able to translate that to humans in time for

> some of us here. Wouldn't that be great. Jan H

>

> On Dec 30, 2007 4:49 PM, abijann

<no_reply <no_reply%40yahoogroups.com>>

> wrote:

>

> > We live in a world of not just many different beliefs, but many

> > different ways of looking at all things. That, to me makes it

> > very special. If we can discuss anything at all and have it

> > done in a peaceful environment, like the one here....there would

> > be more peace for everyone and more love to go around. We all

> > have questions and we all search for answers and it seems as

> > soon as we think we know something...something else becomes clear

> > to us that we didn't know before.

> >

> > Like when I was truly sure that alcoholic could not have a

> > transplant unless they were free from alcohol for a period of

> > 6 months. Then, Mac posted an article here that said they

> > had changed that to being taken on an individual basis... To

> > me that was a step forward that they would do this. We read

> > many different things and it just takes one little thing to

> > change, that can make a very big difference. I just read the

> > other day about an instrument they use to remove tissue from

> > the body very gently. It kills the cells and then removes

> > them a little at a time with suction. This is an

> > advancement I thought was just great. They may be able to

> > remove tumors this way and not damage the tissue around

> > them. They say it won't even hurt the vessel that our blood

> > flows through, the doctor can feel when he is near them being

> > they are a different type of tissue. Nothing I say here is

> > written in stone...anyone can rebuke what I say and they

> > have the right to do so.

> >

> > Bob is right, where else could a person bring up religious

> > things and state what they believe and not go into a big

> > argument about it all. I hope this group will always be this way.

> > This shows true caring and true respect for other people, ourselves

> > included.

> >

> >

> >

>

> --

> Jan H

>

>

[Guest guest]

Jan,

I totally love your attitude and I'm right there with ya on the " Heaven is going

to be sooo much better. "

God Bless you!!!

Pamela

Re: Jan

Abijann - no you aren't making it harder for me. I know you are just a

caring person. I think my chances just went down some today to ever get on

any transplant list. I had the angiogram. it is a good news bad news

story. Good news- the blockage to my left kidney which used to be 80% has

gone down to 50%. Good news well kinda - they didn't do an angioplasty

today so got to go home. Bad news - the reason they didn't do the

angioplasty is that I have too many new blockages in my heart to fix them

with angioplasty and stents, so I am being sent to a surgeon for triple

bypass. I will have to wait for his office to call me before I will know

when they are going to do it.

I asked the dr. if he had any bypass jokes, but he didn't know any. So, if

anyone here has some, let me know. You are so right when you say it is the

creator who does all these miraculous things. For me, the most miraculous

isn't the healing I have experienced directly from him and with the

assistance of the doctors. It is the assurance I have where I will spend

eternity. That is why I can get through all this. Some times I

almost feel guilty trying to stay alive longer to spend time with my kids

and grandchildren when I know that heaven will be so much better than life

here on earth even with the kids and grandkids. But as I have said before,

I am doing what I can to take care of myself, and relying on God to decide

when it is time for me to go.

I know I am going to get a portable cd player when I have my surgery so I

can listen to my favorite music. Jan H

On Mon, Mar 24, 2008 at 8:05 AM, abijann <no_reply > wrote:

> I had a very dear friend on here who was told she could not have a

> transplant and she wanted one so much. She finally found a doctor

> that would agree to it. When she was placed on the list, the same

> day she was called for a transplant. A few months after that, she

> died because of someone not recognizing an emergency situation. I

> still think of her often. Her determination and her struggle for life

> could not be matched. So often, doctors just tell the patient that

> they cannot have a transplant and the patient just gives up hope.

> No one should give up hope. My husband never received his transplant

> till he reach the top of the list and went over the top of the list

> ratings and he is still with me here today. You could say that they

> brought him back when he had almost his entire body over the

> threshold of deaths door.

>

> My husband told me I saved his life cause I recognized how bad his

> blood work was and got in touch with the right people at the hospital

> after a secretary would not let me talk to the doctor and then got

> him to the hospital to stabilize him before being transported to

> the transplant hospital. I did not save him...Our creator did. It

> isn't man that saves men...only God can breathe life into us and

> sustain the breath we have. Man is only an instrument he uses to help.

> I know it was a miracle...because everything that had taken place was

> way too organized, after that, and no man organized it...it just fell

> into place one thing at a time.

>

> When I read those articles, I thought of you. I just thought you

> would like to read them and maybe, if you wanted a transplant, you

> could discuss with your doctors about having one. I'm sorry if

> I made it more difficult for you. I hope that whatever you decide

> to do that you will be blest.

>

>

>

--

Jan H

[Guest guest]

dear Jan, I found this in a draft. I dont know if I posted it or not.

Re: Jan

I don't have family living with me, not sure how it would work with gmail

for someone to post for me. Will check into that. My daughter and

grandsons probably know already. My daughter is going to try to come over

for the surgery. She is going through a really rough time right now,

personally and financially, so I told her I would understand if she can't

make it. Younger son just had a baby, and other two are 2000 miles away.

After my angiogram when the doctor was talking to me, I asked him if he had

any bypass jokes, he thought about it for a while and then said no. So will

have to find somewhere else. Most of my " humor " comes from finding the

weird and funny as life is lived, so I am sure there will be some. Thanks

for appreciating it, not everybody does. They think I am rather macabre

Jan H

On Sat, Mar 29, 2008 at 10:27 AM, abijann <no_reply@yahoogrou p s.com> wrote:

> My prayers are with you that your operation will be a success and

> that you will start to feel much better. You have been through

> quite alot. Your humor is a so much welcomed event here is the group.

> You have a wonderful outlook that is very much admired by me.

> I hope you will have someone in your family post here during your

> time away from us so we know how you are doing. Best wishes,

> dear friend.

>

>

>

--

Jan H

[Guest guest]

Bobby - yes, you had posted that before. I have been wondering whom I could

get to do that. Jan

On Wed, Apr 2, 2008 at 9:01 PM, Bob Aragon

wrote:

> dear Jan, I found this in a draft. I dont know if I posted it or not.

>

> Re: Jan

>

> I don't have family living with me, not sure how it would work with gmail

> for someone to post for me. Will check into that. My daughter and

> grandsons probably know already. My daughter is going to try to come over

> for the surgery. She is going through a really rough time right now,

> personally and financially, so I told her I would understand if she can't

> make it. Younger son just had a baby, and other two are 2000 miles away.

>

> After my angiogram when the doctor was talking to me, I asked him if he

> had

> any bypass jokes, he thought about it for a while and then said no. So

> will

> have to find somewhere else. Most of my " humor " comes from finding the

> weird and funny as life is lived, so I am sure there will be some. Thanks

> for appreciating it, not everybody does. They think I am rather macabre

> Jan H

>

> On Sat, Mar 29, 2008 at 10:27 AM, abijann <no_reply@yahoogrou p s.com>

> wrote:

>

> > My prayers are with you that your operation will be a success and

> > that you will start to feel much better. You have been through

> > quite alot. Your humor is a so much welcomed event here is the group.

> > You have a wonderful outlook that is very much admired by me.

> > I hope you will have someone in your family post here during your

> > time away from us so we know how you are doing. Best wishes,

> > dear friend.

> >

> >

> >

>

> --

> Jan H

>

>