Hi! Not really new to this, but a bit cluless

[Guest guest]

Hey yall! My name is and I live in TN, Chattanooga. Its beautiful here,

but medical resources are scarce. So my little story is I was DX'd hypo

(actually given RX) late summer of 08. I had been getting more and more tired

over that summer, hoping the rx would help, levels came back ok, but I gradually

just felt weaker. I thought it was stress, alot going on. We live in a rural

county and were fighting the school system to get my son in an autism school

before he turned 3 in Nov., and we did it! A week later I get a call my mother

had a seizure and was unresponsive. we rushed down, very long 3 1/2 days and she

passed away on my twins 3rd b'day, 11/20. I was a real mess for a while. then in

late Jan 09 I had Mono and felt that I never fully recovered from it. All this

time I am taking my son 1.5 hour drive to his school in the AM, them the same

drive to pick him up in the afternoon 3 days a week. I remember I was so sick he

didn't even go in June or 1/2 of July. (they had a summer program). by late Aug

09 I was having seizures. The husband was not very supportive. He did finally

take me to the dr. who did the origional dx in 08 (3 month wait on an endo) in

Oct, he took blood work, wanted me back in 2 weeks. Husband didn't take me, but

I got an increase in my thryoid rx. I just got worse and worse, basically

bed/couch ridden. Seizures about 4 times a week, falling down all the time from

severe chronic fatigue. Finally spouse takes me back to dr. in Jan 10 (his

excuse was he had to wait until he got vac. days, he was really very angry at me

for being so sick). I had a seizure there, prompted dr. to do more test on my

blood work. I get a letter saying my adrenal glands are barely functioning, an

RX (hydrocortisone), and was told I would be on this the rest of my life. That

was it. I get H to make another appt (around his work schedule). Oh, this dr had

ordered an MRI and sleep study. i met with the sleep study dr, we concluded I

had an anxiety disorder. Get back to dr and he is mad I didn't do sleep study,

he is adamant I have sleep apnea. My H, who was with me and in agreement with

the sleep study dr., switches sides and they are both badgering me. I've had no

support thru all of this, my husband had basically left me for dead for several

months, family is out of state, real friends I have are scattered across the US.

I finally call the endo, if I have to wait 3 months, so be it. I must have

sounded really pitiful on the mssg I left, someone called back asap and they put

me ahead of 4 ppl on the waiting list. H takes me in mid April, I go in to see

endo alone. Yeah, I'm really, really messed up. All that had happened was that

the seizures had stopped, but if i exerted myself in any way, I would have one.

They took alot of blood, wanted me back in 2 weeks, H said 'sure!'. Made appt.

They call me 3 days before to say the appt was with the NP, I needed to see the

Dr., but he had went to England for 3 weeks. I am fitted in on the boys last day

of school, like May 28th. I am more messed up than I thought. He finally

perscribed a natural thyroid rx (that I had been begging for, my full sister has

to take it), its Armour Thyroid. I have calcium leaking in my blood. My adrenal

gland (cotizone?) levels come back so-so, but to get an accurate test he needs

to do all this complicated testing. According to other bloodwork I have

fibromyalgia, i told him I wasn't in any pain, but it did hurt my knees alot to

walk up our stairs, he said he was surprised I was not in alot more pain. I will

have rheumatoid arthritis. Try the Armour Thyroid (60mcg) twice a day and please

come back in 2 weeks.

The Armour was causing horrible anxiety, along with the rx for my adrenal

glands, I cut back to one a day after a week. It does help with my chronic

fatigue, its feels like it went from severe to normal chronic fatigue. Did my H

make an appt for me? Nope. I am in a state of panic all the time, thankfully the

endo and my psychiatrist are finally communicating because I HAVE to take

alprazolam, alot.

I have an appt the 21st I think.

So sorry this ended up so long. I am completely alone in this. I have lost all

self-esteem, my husband has been verbally abusing me for almost 2 years. I feel

worthless, i can't drive beyond this very small town we live in (i may be able

to drive the hour to the dr office, but doubt I could make the drive back). I

just want feel like a good mother to my boys, I have 4.5 yr old twins.