Guest guest Posted April 7, 2010 Report Share Posted April 7, 2010 I am frustrated and need some help. About 3 months ago I had TMJ surgery. During this surgery my doctor noticed my thyroid was swollen and my eyes looked like someone who had thyroid problems. I need to add that I have fibromyalgia as well as a few other conditions. I decided to check out what may be causing a swollen thyroid. So as I always do, I went to webmd and learned about thyroid disorders. I was told that you could have an irregular thyroid level or an autoimmune thyroid problem such as graves disease or hashimotos. When I was reading about hashimotos and got to the symptoms I about fell over. I had all but one of the symptoms. Armed with this information I decided to go to my GP and ask him. He ran some blood work and my thyroid levels were: T3= 77 normal levels for my lab are (76-181) only 1 point above normal T4 Free= 1.0 (.8 to 1.8) only .2 above normal TSH= .91 (.34 to 4.82) According to him my levels were fine and he did not see a problem, but refered me to an endocronologist. I went to see the endocronologist. She told me based on her exam and my symptoms alone she would have diagnosed me with hashimotos. However since my thyroid levels were normal (very, very low normal) she wanted to wait 6 weeks and run the levels again. If they were still low she would go ahead and put me on a low dose of thyroid in an effort to help control some of my symptoms. 6 weeks later the lab tests were ran again. T3= 104 T4 Free= .9 TSH= .47 So I called her to see what we were going to do, and she had a secretary call me back and tell me everything was normal and we would do nothing. Needless to say this has me upset because all the symptoms are still there. Yes my T3 slightly increased, but my T4Free and TSH went down. They both are barely in the normal catagory. The other thing that alarms me is that in January of 2009 or a year ago my TSH was at 1.473. Now it is .47. So my question is what should I do? Should I get a second opinion, or take natural supplements? With my fibromyalgia I am more sensitive to everything. I have found that normal for others is not normal for me. It is not like I want another illness, but if I do have hashimotos and medicine could make me feel better, than I want to find that out. Please help me. If someone can put in plain language exactly what the difference between T3, T4free and TSH is, I would also appreciate this. Desperate in Kansas Patti Quote Link to comment Share on other sites More sharing options...
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