Guest guest Posted September 7, 1999 Report Share Posted September 7, 1999 In a message dated 9/7/99 5:01:49 PM, larryy@... writes: << I watched the Rainmaker this weekend. It sure struck a sour note as the plot of the movie was about an insurance company's refusal to pay for treatment.>> Hi Larry I know the lawyer that was responsible for bringing the REAL case to court. He was actively involved in the development of The Patient's Bill of Rights . One of the problems with legislation is that while one section of a Bill is great, often others that get attached are not good. Thus the entire Bill gets vetoed! This is what is happening to The Patient's Bill of Rights. It is a shame. If I were you I would resubmit and use the appeals process!! I thank goodness that I do NOT have an HMO right now... I will work hard to keep my insurance private! IMHO: The health care system in this country needs a major overhaul~ Take Care Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 1999 Report Share Posted September 8, 1999 Hi Larry, I read the book and saw the movie, (parts of it anyway) and it was an eye-opener. I am sure it happens all the time too. Hugs, Marta NJ >From: " larryyenko " <larryy@...> > >To All, > I watched the Rainmaker this weekend. It sure struck a sour note as the >plot of the movie was about an insurance company's refusal to pay for >treatment. >Larry NV > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2000 Report Share Posted January 12, 2000 Do you think they'll find anymore cases of Lyme? larryyenko wrote: > From: " larryyenko " <larryy@...> > > Clinton proposes electronic disease surveillance system > > January 10, 2000 > > NEW YORK (Reuters Health) -- President Clinton announced Monday that the > fiscal 2001 federal budget will include a nearly 50% increase in funding for > a programs aimed at improving the nation's ability to target, contain, and > prevent outbreaks of infectious diseases. > > The $20 million increase over last year's funding level will help fund > development of a nationwide electronic disease surveillance network. In > addition, the funds will be used to implement a new initiative to utilize > private sector laboratories in disease surveillance efforts. > > Private commercial labs would automatically send infectious disease > surveillance information to public health departments for analysis and > integration into larger surveillance efforts. The government has run pilot > projects of this type of system in seven states and has found that reports > of infectious diseases have risen significantly, as high as 230%. > > According to a White House statement, the increased funding supplements the > US Centers for Disease Control and Prevention's (CDC) current budget of > $44.3 million. The White House said that the new system would " ensure the > timely transmission of information from physicians and health facilities on > the front lines to state health departments and the CDC in order to rapidly > assimilate information, pinpoint potential outbreaks, and alert healthcare > providers if there is a potential infectious disease threat. " > > The information collected through the surveillance system will be compiled > and sent to physicians, which will enable physicians to better decide > appropriate care. > > Larry NV > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2000 Report Share Posted January 14, 2000 WE CANNOT AFFORD THE CDC OR NIH TO GET MORE INFO ON OUR LD'S, nor more $$, until we get an accounting. This money will end up wasting our tax dollars even more. Barb F. - MI From: <swsftwtx@...> Do you think they'll find anymore cases of Lyme? larryyenko wrote: > From: " larryyenko " <larryy@...> > > Clinton proposes electronic disease surveillance system > > January 10, 2000 > > NEW YORK (Reuters Health) -- President Clinton announced Monday that the > fiscal 2001 federal budget will include a nearly 50% increase in funding for > a programs aimed at improving the nation's ability to target, contain, and > prevent outbreaks of infectious diseases. > > According to a White House statement, the increased funding supplements the > US Centers for Disease Control and Prevention's (CDC) current budget of > $44.3 million. The White House said that the new system would " ensure the > timely transmission of information from physicians and health facilities on > the front lines to state health departments and the CDC in order to rapidly > assimilate information, pinpoint potential outbreaks, and alert healthcare > providers if there is a potential infectious disease threat. " <snip> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2000 Report Share Posted January 16, 2000 In a message dated 00-01-15 14:44:22 EST, you write: << WE CANNOT AFFORD THE CDC OR NIH TO GET MORE INFO ON OUR LD'S, nor more $$, until we get an accounting. This money will end up wasting our tax dollars even more. Barb F. - MI >> Hi All, Ditto from Chicago. The more our unethical govt. gets involved in ANYTHING, the more corrupt & greed-based a thing becomes. JMHO. Very SAD, to say the least! Honk, Honk from Chicago Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2000 Report Share Posted January 16, 2000 To All, If we can't rely on the government, who will we rely on, the insurance companies? The answer is making government more responsive. Our votes vs. business big money. The only way is to stick together and vote. Larry NV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 In a message dated 00-01-16 16:03:45 EST, you write: << If we can't rely on the government, who will we rely on, the insurance companies? The answer is making government more responsive. Our votes vs. business big money. The only way is to stick together and vote. Larry NV >> Well put, Larry! I would take this a step further & say rely on yourselves. Find alternatives to abxs, just in case the big docs have toubles that cause other docs to fall like dominos. (Don't mean to be negative - just looking at the problem / solutions from all possible aspects.) Lyme is called the " do it yourself disease " & I think all should look into alternatives for treatment. There are several natural alternatives to abxs. Blessings & velcros Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 Hi Larry, Thanks for sharing the article and especially for sharing your positive attitude. It is great that you are starting IV today too. I wish you the best with it, and hope they keep you on it long enough to do some good. As for the Paxil, don't write it off completely, while you may not be depressed now, when herxing begins you may find yourself needing some help. I never in my life thought I would need a drug of this type, and when my doctor suggested it, I at first declined, when I finally started taking it, I found that it helped with my pain. When I told the doctor about this, he told me it was not helping me with the pain, it was helping me to deal with the pain. It was like coming out of a cloudy fog into a bright sunshine day. As much as we would all like to have positive attitudes, it is not always possible when one is suffering great pain, or chronic illness of any kind. When I started the Paxil, I also became involved with this list, I really feel that the combo of Paxil and the support garnered and given via this list has really helped me to cope. We are all different though, this is just my own experience. Hugs, Marta > From: " larryyenko " <larryy@...> > > To All, > I too am positive that medical science will figure this out soon, sooner > than most of us think. I believe the key is a positive attitude. I saw an > internist here in Vegas as my LDMD is going to start IV abx today and he > wants a doc to follow me in Vegas. He also prescribed Paxil as he thought I > was depressed. It was kind of like he thought I should be on the > antidepressant because I had an unreasonable optimistic attitude about > getting normal. I just know I will get my complete life back, and soon! > Here's some more info that demonstrates that we are very close. > > Promising Results on a Universal Vaccine Immune Stimulant > January 27, 2000 > Journal of Immunology/MedscapeWire > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2003 Report Share Posted March 31, 2003 Hi Tess, I have been thinking of you and hoping your visit with was not too stressful for you.You have an awful lot on your plate right now,so just take it slow and easy and know you have so many caring friends praying for you and Em. Hugs June --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.465 / Virus Database: 263 - Release Date: 3/25/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Tess, I'm so sorry you had such a rough day yesterday. I think it may have been for the best that you didn't meet with after all. I hope today is much better for you. Try not to worry about your upcoming appointments. I think your doctors have your best interests at the forefront and you are equipped to ask questions and make the decisions you need to. Don't forget to write a list of questions or topics to take with you. Hugs, [ ] stuff > Hi...I am feeling pretty fragile, emotionally. My son has been in town, > and Em has had a really hard time with just that idea. She's really > needed my support, and I think it has helped her keep her bearings. > leaves tomorrow. I am going to see him for a short time this > afternoon. This knots me up inside as I love him dearly AND I am angry > at him. He needs my love & support, too, though in a different way. > Anyway, MANY different " buttons " are getting pushed right now. > > Saturday was beautiful, and I went outside and got my " ph's Coat " > climbing rose bush ready for the season. It felt really good to do > that. Yesterday Em & I drove to my folks' place, and had supper with > them, and a really nice visit. I was wiped out when we got home, but it > was worth it. > > I feel confused as to what to even say to my pcp and rheumy this week > when I see them. Then next week I see my Gyn and am supposed to > schedule the hysterectomy. I haven't lost the weight necessary but I > don't know how long she'll want to wait with the pre-cancerous > condition. I do feel like I can be bluntly honest with her, and she'll > hear me. > > " Arthur " has been creeping back more & more...cannot bend my left thumb > now, and I am stiffening up a lot. There's so much inflammation in my > hands, wrists and shoulders...you can feel the squishy fluid. > > My anxiety level is high today in anticipation of seeing . > > Thanks for letting me talk to you all. > > All my love..... > > Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Kay, Best wishes on your upcoming surgery. I will pray that it's not cancer. Peggy [ ] stuff I have been emailing K who has asked me to consider posting my update for the group. While I have been lurking, I haven’t been contributing much. By the time I get home from work and read emails, any issues someone has had others have already dealt with. Nothing more of value I can add. But I do care. The following is the email I sent (with some editing). Sorry it’s a bit long. , I’ve been following the progress with your mom. I’m so sorry that chemo is not an option for her. I remember the second go ‘round with my mother. The first time she endured it for nearly nine months. In 1985 I guess it was different—especially for a woman with invasive breast cancer. It was all through her lymph nodes and had metastasized. She was wretchedly sick but stuck with it. Nearly five years later, it resurfaced and they wanted her to do chemo again. I think she tried for three weeks and said, “That’s it. I’m done.” There just comes a point, you know? I guess we each have to figure what that is for ourselves. It’s hard on everyone and my heart goes out to you because I know what you’re going through. Hmmm, me? Well, it’s been a little rough lately. I’m wearing my brace at work and to and from there. Most days it helps support my back. I’m not doing my stretches as often as I should so maybe that’s why I still hurt sometimes. I don’t take any pain pills though because they’re just so hard to get off of and I don’t like the way they make me feel. Plus, I HATE/ABHOR/LOATHE/DESPISE the constipation. It’s the number one thing I find makes me feel so awful when I’m on them. I take Extra Strength Tylenol. If I could be up and moving around I don’t think I’d hurt so badly when I get up from a sitting position. That’s agony. But since my job is a sitting one for the most part, I do try to get up and move around every half hour or so but I forget too often. On the other hand, because sitting is painful, I end up standing at my computer throughout the day. When I first stand up (from sitting or lying down) it’s sheer agony in my lower back until I “settle into myself”. After a few minutes I can move around okay and the pain mostly goes away. I suspect Dr. Flemming will want to do a CT scan when I see him in December (10 months post op) to determine what’s happening with the fusing. Hopefully, I’ll continue to get good news from that arena. Had to reschedule my November appt. with him because I’ll be undergoing another surgery next Tuesday. Seems I have a tumor in my left kidney which the urologist believes is renal cell carcinoma. There’s a very remote chance that it’s an oncocytoma (and not RCC) which is considered to be benign. The problem is that it can sometimes “hide” RCC. In any case, because of the size and placement of the tumor, they can’t do a partial nephrectomy; the whole kidney must be removed. They also won’t do a biopsy given the situation; they know the kidney has to go. Fortunately it’s slow-growing and the good news is that it doesn’t appear to have metastasized to my lungs/chest which it’s prone to do. Given that likely possibility (that it hasn’t spread), my prognosis is excellent. It’s been there for two years. [Forgot to tell you this part, .] Seems something else was reported on my tests when I took them in 2005. During my visit with the urologist, he asked me why I’d waited so long to have the surgery. I told him I didn’t know I needed it. Had no clue anything was wrong. They only found it this time by accident which I understand happens quite often with the kidney. I went in for something else, my PCP sent me first for an ultrasound and then a renal CT scan. Voila! there it was. If I’m dreading anything, it’s the 4-6 hour surgery, being “under” again, being on pain meds again, and just recuperating, again, for another 4-6 weeks. Still, I’m blessed and thankful that it appears to be something that won’t cause me later worries and so I’m not going to complain. I’m just going to be grateful for all my blessings. Please take care of yourself, . I care about you. Kay Quote Link to comment Share on other sites More sharing options...
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