Re: venting< another long one of course

[Guest guest]

Shirley

First of all, I agree with you. Your brothers wedding day is just

that.....HIS WEDDING DAY. I have found that " you can't please all the

people all the time, but you can please some of the people some of the

time. " And with the fluctuations of this disease, by the time your

brother invites those relatives that mom may approve of, who knows,

maybe she won't approve of them either. Anyway, please let your brother

know it will be his day and he can invite whom ever he wants. It is too

bad that your future sister-in-law wasn't able to know your mom before

the onset of LBD, but I am sure she will know her through your brother

and you. Both of you have taken on traits from her and can pass them

onto your future SIL. Just as you have done with the passing of your

other brother and your kids. You have kept his legacy alive and can do

the same in this situation also. I sure hope your brother gets better

soon. All of the pain and swelling can be so scary. Please let us know

what dr. results he gets and how he is doing. As for the rehearsal

dinner.......know that your brother asked you to do the dinner which is

an honor in itself. I think it should remain at that without the guilt

feelings. It is admirable for you to consider your moms feelings, yet

remember this is something your brother trusts you to do for him. I

would jump at the chance to do something so important for my

brother.......GO FOR IT!!!

I seem to have forgotten some of your email and wanted so badly to

respond to all of it.....sheesh, losing my mind and looking for it in

all the wrong places. All in all, keep your heart clear and focused on

what your brother is asking of you. Take Care and I am looking forward

to a reply from you.

Sandie

[Guest guest]

Shirley

Just remembered, I was going to ask if your mom is on any pain

medications? My dad takes Celebrex and Ultram. These seem to work,

most of the time and when they don't he has a standing order for Extra

Strength Tylenol that I request he has if he is still in pain.

Sandie

[Guest guest]

In a message dated 4/10/02 11:51:12 AM Central Daylight Time,

shirley0914@... writes:

> She is really hoping that the physical therapist will be able to get her

> head to stay up by that time.

>

Oh dear oh dear, but I hope for better luck there than we have had AND that

in addition to the better luck it won't happen to be just one of those days

when she has been grabbed by the down draft. Sorry to be so negative,

Shirley, but reality has a tight grip on me. Massage therapy DOES help him,

but it isn't enough.

What a nice honor that your brother has asked you take over the reins for the

dinner. As for what to do about the guest list, that is HIS choice. I

understand your mom's feelings, but it is still his and his bride's day.

Maybe you can find a creative orthotist to make her a brace that she could

wear under a jacket to help hold her head up. The head piece would still

show, but maybe a hat that might help? I don't know - am grasping at straws.

I suspect she is going to be aware of everyone there. People often think

there is " no one home " in Bob's head because of his posture, but he is quite,

quite aware of everything that goes on around him.

I hope your brother's problem is only gall bladder. The people I've known

who have had them removed have all done quite well, and it can now be done

laproscopically.

You have an incredible social calendar coming up! What fun. Congratulations

to you and your husband and son on his graduation from boot camp. Then comes

the fun of sub school and the diving tower. I can send you a cyber pic of it

if you like.

Keep smiling and laughing - it's what keeps us sane.

Cheryl (who just remembered how after a 3 week Hell)

[Guest guest]

She was taking vicodin which didn't really help 5/500 but is now taking

Naproxen 500 which she says help but then why is she in pain? Also she is

retaining lots of water and doesnt always take her water pills because she

wets too much.

>From: sanclown@...

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: Re: venting< another long one of course

>Date: Wed, 10 Apr 2002 12:16:47 -0500 (CDT)

>

>Shirley

>Just remembered, I was going to ask if your mom is on any pain

>medications? My dad takes Celebrex and Ultram. These seem to work,

>most of the time and when they don't he has a standing order for Extra

>Strength Tylenol that I request he has if he is still in pain.

>Sandie

>

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Thanks Cheryl,

Yes I know it won't really help but poor mom doesn't. As for the collar I

think I came up with an idea today too. Once she picks out her dress I was

going to try to get a piece of matching material and have my sister in law

make a cover for her neck collar to match. Is your hubby the one who has the

physical therapist come to the home? I was going to call mom's doctor and

ask if she can have someone come because she has such a hard time getting

out and keeps missing her appointments. Yes, send the picture. Thank you,

Shirley

>From: LewyLady@...

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: Re: venting< another long one of course

>Date: Wed, 10 Apr 2002 17:49:38 EDT

>

>In a message dated 4/10/02 11:51:12 AM Central Daylight Time,

>shirley0914@... writes:

>

>

> > She is really hoping that the physical therapist will be able to get her

> > head to stay up by that time.

> >

>Oh dear oh dear, but I hope for better luck there than we have had AND that

>in addition to the better luck it won't happen to be just one of those days

>when she has been grabbed by the down draft. Sorry to be so negative,

>Shirley, but reality has a tight grip on me. Massage therapy DOES help

>him,

>but it isn't enough.

>

>What a nice honor that your brother has asked you take over the reins for

>the

>dinner. As for what to do about the guest list, that is HIS choice. I

>understand your mom's feelings, but it is still his and his bride's day.

>Maybe you can find a creative orthotist to make her a brace that she could

>wear under a jacket to help hold her head up. The head piece would still

>show, but maybe a hat that might help? I don't know - am grasping at

>straws.

> I suspect she is going to be aware of everyone there. People often think

>there is " no one home " in Bob's head because of his posture, but he is

>quite,

>quite aware of everything that goes on around him.

>

>I hope your brother's problem is only gall bladder. The people I've known

>who have had them removed have all done quite well, and it can now be done

>laproscopically.

>

>You have an incredible social calendar coming up! What fun.

>Congratulations

>to you and your husband and son on his graduation from boot camp. Then

>comes

>the fun of sub school and the diving tower. I can send you a cyber pic of

>it

>if you like.

>

>Keep smiling and laughing - it's what keeps us sane.

>

>Cheryl (who just remembered how after a 3 week Hell)

>

>

>

[Guest guest]

In a message dated 4/10/02 6:12:30 PM Central Daylight Time,

shirley0914@... writes:

> Once she picks out her dress I was going to try to get a piece of matching

> material and have my sister in law make a cover for her neck collar to

> match.

GREAT idea !!!

No, we don't have anyone coming to the house, but I DID make that request

this afternoon of the massage therapist.

OK, will send the pic, but probably tomorrow evening or Friday. It's getting

late here and Bob wants some company. Tomorrow will be a long day.

Cheryl

[Guest guest]

Shirley

Just read your reply concerning the pain medication your mom is on.

Maybe she could try the Celebrex (which is for arthritis) or the Ultram.

As I mentioned, dad is on both of these and it does seem to help. I

hope your visit with your parents goes well.

Congratulations to you and your son on his upcoming graduation. You

must be one of the proudest moms on earth. Please tell him I am

grateful for his choice in defending our country.

Sandie

Des Moines, IA

[Guest guest]

Shirley

I was wondering how your visit went at your parents house. I may have

missed the posting. Also, how is your brother doing? You have been in

my thoughts and prayers, especially with everything going on in your

life.

Sandie

Des Moines, IA