Re: Thank you to everyone

[Guest guest]

Dear Friends:

I justed wanted to say that it can take a very, very long time to

find a doctor to help you with this. I sometimes think I saw more

doctors than most and more than anyone should see in three lifetimes.

But, in the end of it, I met Dr. Milhorat and he is the greatest that

you could ever hope to know.

When my ear first started pounding, I began seeing one doctor after

another after another. I would tell them I had a daily headache...

front and back of the skull radiating into my neck and cervical

spine, the pounding in my ear always in pace with my heartbeat and

facial pain. I had MRI's and if they even bothered to look at them,

they said they were normal. If they read the report, they would say

it was normal or normal variants and not the cause of my symptoms.

Most of them said they never had a patient who complained of pounding

in the ear. Finally, in the third year of my doctor visits, one

Neurotologist said my noises were just Pulsatile Tinntitus and to

just live with it.

One day, I went to see a neurosurgeon who worked at one of the best

hospitals here. I told him my symptoms. He looked at my films and

started yelling at me for wasting his time. There was nothing wrong

on my films and he was too busy with real surgeries for people who

had brain tumors and real problems and who were not bothering him

with nonsense about a headache and a noise in the ear which was

meaningless. He picked up my films, threw them on the floor and

stormed out.

I bent down and picked everything up and I can remember my hands

shaking. I was so humiliated and still nowhere closer to knowing why

my head hurt all day everyday and why I had that pounding noise. Of

course, I would up in tears and that made my head hurt more and my

ear pounded more.

I still had years ahead of me to visit doctors and have more

appointments that all led to nowhere.....just variations on the same

theme. Most of the other doctors I saw did not yell but they all

missed it. Some of them laughed at me, some thought I was complaining

about nothing but as a whole, they all felt that there was nothing

wrong with me that they could treat.

So, when I first met Dr. Milhorat and he spoke to me like a person

and he asked me questions. Imagine, the greatest doctor ever asked me

about the same condition that other doctors laughed about or ignored.

He also has never yelled or laughed at me. Not only, do Dr. Bolognese

and Dr. Milhorat help us surgically, they reduce so much of the

frustration that develops in us when we spend years like this.

My point is you just cannot give up with this. I wasted years of my

life trying to find a doctor as have many others. Things are much

better today and there is so much more information than when I first

started with this. You just cannot give up after one or two or

fifteen appointments.

Dana