HUH??!! Herniation SHRUNK??!!

[Guest guest]

Drew (14 this July, 13 mm ACM I dx’ed at 5 ½ yo in December, ’99) had

another MRI last week, and my ped got the report today. I’ll be getting a

copy tomorrow when we see him for something else (Celiac Disease check,

since I was dx’ed 2 weeks ago), but he said the report says the herniation

is 8 mm??!! Is it possible for a Chiari to shrink??!! Also, he’s had a

number of troubling symptoms, including body temp control problems (always

hot, can’t sweat, never thirsty, sensory and expressive language issues

[dx’ed autism, Jan of ‘97]). These have become more problematic over time.

The report says no evidence of brainstem compression, but can a herniation

get thicker?? Could it possibly obstruct or slow CSF circulation enough to

result in these problems? Who can I see in the Northeast who gets that the

autism and language issues are standing in the way of our knowing about many

symptoms he may have?

LIZARD