Re: Re: Jan

[Guest guest]

Your stage 4 must be related to the degree of cirhosis. I'm pretty sure they

don't put ratings on the degree of hepatitis ( NASH).

Re: Jan

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[Guest guest]

Yes, hepatitis C has ratings depending on the amount of liver disease there is.

Stage refers to scarring and grade refers to inflammation. There are various

stages of cancer, too, as well as for cirrhosis.

I believe that I posted the scale for liver disease earlier today.

Colleen

Debra wrote:

Well I didnt think so either, but on the NASH group they all have

numbers for the stages of NASH they have.. Most will read something

like this NASH stage 3 Cirrhosis stage 4, etc.. like I said I have

no idea what all these numbers mean and I am going to ask my doctor

when I go back on the first to see what his take is on it. Im sure it

will be something new.. Debra

-- In livercirrhosissupport , " Crislip "

wrote:

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> Your stage 4 must be related to the degree of cirhosis. I'm pretty

sure they don't put ratings on the degree of hepatitis ( NASH).

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> Re: Jan

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[Guest guest]

If it was viral hepatitis, they would have put a letter after it, such as A, B,

C, D, F, H.

Colleen

Debra wrote:

Yeah, its all really confusing, because if you look at pics of my

liver its all cirrhotic with bridging fibrosis. I was told stage 4

too. But not sure if he meant the NASH was stage 4 or the

cirrhosis... but Ive been functioning quite well for the past 2

years.

As far as the hepatitis thing goes it was explained to me the way Mac

said. Because when they told me I had NASH Non Alc Steto Hepatitis,

I too thought about viral hepatitis and was told that hepatitis means

any inflammation to the liver.

In explaining the cirrhosis progression the doctor used this analogy,

probably not that good of one, but he said its like walking along a

table top you go along nice and easy until you just fall off the

end. He guessed I had about 5 to 7 on this liver and that was 2yrs

ago.. All doctors say different things.. Its amazing to think they

all went to medical school and can describe the same disease in so

many different ways and degrees. I have Barretts syndrome which is an

erosion of the esophagus and considered to be pre cancerous. God I

pray I dont have to deal with that too.. New doctor did say that the

Barretts is definitely a real minus when it comes to Varices tho. My

older brother died from cancer of the esophagus that went to the

liver... or vice versa, but he did not have cirrhosis. Debra

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> That si very well put, . The only doc who gave mine a number

was the pathologist at the hospital when my PC called him. She told

us verbatim what he said:( her): give it a number.. (Him): " Stage 4,

endstage. Necrosis, cirrhotic pattern confirmed " . So I went to the

surgeon's office, since he actually saw it and asked him did it all

look the same, and he said yes, there was no good or bad spot in

there, its all macronodular.

> Sent via BlackBerry from T-Mobile

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> Re: Jan

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> That's what I was thinking too, Bob. I think one of the

difficulties we have is all of these doctors seem to describe things

each his own way. Stage 4 cirhossis to me is max scarring/permanent

damage to the liver. Yet, as we know, a lot of people are still

functioning with stage 4. I think this is because of compensation,

which is a huge variable the doctors can't really categorize well.

The way I see it, if you are stage 4 your liver can't progress worse

in terms of scarring, etc. Which leaves progression of the disease

from that point to how long your other organs compensate, and how

well.

> Whether a doctor would agree with those thoughts I don't know.

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> I've never managed to get a doctor to give me a stage 1, 2, 3 & 4.

They don't want to be pinned down to an absolute.

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> Re: Jan

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