Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 Thank you . I will definitely check him out. Aimee > > Hi Aimee, > > I have had 7 of the children I work with try secretin. Only 2 of > those continue to receive the infusions. The results vary. In the > beginning most have shown some improvements. Often it has been hard > to specifically attribute it to the secretin--because most of the > kids were involved in a variety of " interventions " at the same time > or shortly after getting the secretin-- (DMG, Super Nu Thera, AIT, > GCFC diet, etc.) I had one boy who did begin talking--he did not > have any other " interventions " except ABA. The method of receiving > the secretin varied as well. I had some get infusions and some did > it transdermal--Again, neither seemed better or worse (unless you > consider the infusion as being more invasive to the child--therefore > harder on the child). If you are considering secretin--as with any > other intervention--try to do one thing at a time so that you can > definitely attribute the results (negative or positive) to that > specific " intervention " . Several of my families have used Dr. > Bridges. He is located off Roswell Road in the Fountain Oaks > Shopping Center. His number is . Just to give you a > heads up on the cost--it is approximately $205.00 for the secretin > and $295.00 for him to give the infusion--He does not accept Medicaid > as far as I know. So that is approx $500 for one infusion of > Secretin. Last I heard he does have access to some Secretin (it has > been hard to find recently with the changing of companies from > Ferring to Repligen). Hope this helps! > > _____NetZero Free Internet Access and Email______ http://www.netzero.net/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 Aimee, Another option you may be interested in exploring is getting a prescription written for the secretin and then doing it transdermally (I'm not sure if that is a word-- " throught the skin " ) I have had several parents do one or two infusions and then do it " throught the skin " with the DMSO at home. It cuts back on the cost--no infusion necessary. I also heard, throught the vine, that there is a patch as well??? Someone may have more info on that--I haven't had anyone use the patch. Anyways--good luck! > Thank you . I will definitely check him out. > > Aimee > > > > Hi Aimee, > > > > I have had 7 of the children I work with try secretin. Only 2 of > > those continue to receive the infusions. The results vary. In the > > beginning most have shown some improvements. Often it has been hard > > to specifically attribute it to the secretin--because most of the > > kids were involved in a variety of " interventions " at the same time > > or shortly after getting the secretin-- (DMG, Super Nu Thera, AIT, > > GCFC diet, etc.) I had one boy who did begin talking--he did not > > have any other " interventions " except ABA. The method of receiving > > the secretin varied as well. I had some get infusions and some did > > it transdermal--Again, neither seemed better or worse (unless you > > consider the infusion as being more invasive to the child-- therefore > > harder on the child). If you are considering secretin--as with any > > other intervention--try to do one thing at a time so that you can > > definitely attribute the results (negative or positive) to that > > specific " intervention " . Several of my families have used Dr. > > Bridges. He is located off Roswell Road in the Fountain Oaks > > Shopping Center. His number is . Just to give you a > > heads up on the cost--it is approximately $205.00 for the secretin > > and $295.00 for him to give the infusion--He does not accept Medicaid > > as far as I know. So that is approx $500 for one infusion of > > Secretin. Last I heard he does have access to some Secretin (it has > > been hard to find recently with the changing of companies from > > Ferring to Repligen). Hope this helps! > > > > > > > > _____NetZero Free Internet Access and Email______ > http://www.netzero.net/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 One thing to think about would be splitting the cost of a vial between two families. I talked with a friend about this. If you've got a young child who doesn't weigh very much, part of the vial is wasted because the infusion is based on body weight. If you go in with another family on a vial, you could split the $205. The good doctor might even give you a discount on the injection fee. I've heard there's a difference in efficacy between the synthetic secretin and the porcine secretin (Ferring's), so be sure you know what you're getting. The best results, from what I've heard from other parents, is the Ferring brand. Lesli Atlanta, GA list-owner and mom to Connor, 4 y.o. michellewinkles@... wrote: > > Hi Aimee, > > I have had 7 of the children I work with try secretin. Only 2 of > those continue to receive the infusions. The results vary. In the > beginning most have shown some improvements. Often it has been hard > to specifically attribute it to the secretin--because most of the > kids were involved in a variety of " interventions " at the same time > or shortly after getting the secretin-- (DMG, Super Nu Thera, AIT, > GCFC diet, etc.) I had one boy who did begin talking--he did not > have any other " interventions " except ABA. The method of receiving > the secretin varied as well. I had some get infusions and some did > it transdermal--Again, neither seemed better or worse (unless you > consider the infusion as being more invasive to the child--therefore > harder on the child). If you are considering secretin--as with any > other intervention--try to do one thing at a time so that you can > definitely attribute the results (negative or positive) to that > specific " intervention " . Several of my families have used Dr. > Bridges. He is located off Roswell Road in the Fountain Oaks > Shopping Center. His number is . Just to give you a > heads up on the cost--it is approximately $205.00 for the secretin > and $295.00 for him to give the infusion--He does not accept Medicaid > as far as I know. So that is approx $500 for one infusion of > Secretin. Last I heard he does have access to some Secretin (it has > been hard to find recently with the changing of companies from > Ferring to Repligen). Hope this helps! > > > > > > Hi listers! I watched a special on PAX lastnight about Secretin. > I haven't done much research in the past on it and didn't really know > what it did, etc. Now I have a better view!! My question is have > any of you tried Secretin, did it help, if so what dr. did you go > through? We want to try it and at least then we will know we've > exhausted all of our options!! Any info would be greatly appreciated. > > > > Aimee > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 I know a lot of people that do the DMSO transdermal secretin method, and I have seen respected researchers comment on this method. But, personally, I don't like it. First of all, DMSO pulls everything through the skin and into the blood stream......EVERYTHING. If you were to rub your childs' arm down with something to clean the area of transdermal, that cleaner, regardless of what it is, will be pulled into the blood stream by the DMSO. If you do not clean the area, you have all of the environmental toxins, the micro skin parasites, dirt, what ever going into the bloodstream. It's not natural. To me, the most natural way is through the bloodstream, infusion. The other difference between infusion and transdermal is that you can give your child secretin every day, to be more natural, rather than one big infusion of it. What I do is half the ferring vial, because had a full vial infusion on the second time and he had hyper activity from it for about a week. We cut the infusion in half and it fixed the hyperactive problem, but it' wasn't enough secretin to do what it needed to do. SO, secretin, after it is mixed(it comes in a powder form and is mixed with saline to be administered) secretin has a refrigerated life of 3 weeks. So, goes and has a infusion, exactly 3 weeks later, he goes and gets the other half. Works for him, works for me, and there is no waste, and the benefits are there, including the healing of the leaky gut. Where is the science that indicates that the pancreas actually secretes secretin every day?? Sure it's a digestive juice, but is this juice needed everyday? There are many other organs that secrete digestive juices, maybe pancreas secretin is just for certain times from what ever. I don't know the answer to that and the people that do won't give up the info. Even though the secretin doesn't start in the bloodstream initially in natural human form( it comes from the pancreas) it does eventually enter the bloodstream. I think....is that right? I'll have to look it up. It's been awhile. It may go through the bloodstream to get to the proper organs through infusion. I faxed Repligen a formal letter asking if they would give me the actual process of infusion of secretin, and of course, they never answered me. They probably laughed at my fax and threw it into the trash. If I sent a copy of a 100000.00 check made out to Repligen, they would have called me on the phone to discuss all of the fine details of my question. I'm about sick of all of these money hungry bastards, I'm gonna repair my son's health on my own....and have a doctor assist me, if there is one out there that gives a damn. Anyway, thats the last of secretin will ever get and he's had 5 infusions(actually 5 vials, 8 infusions). We are going for the root of the problems these days. At 02:03 AM 9/7/00 +0000, you wrote: > >Aimee, > >Another option you may be interested in exploring is getting a >prescription written for the secretin and then doing it transdermally >(I'm not sure if that is a word-- " throught the skin " ) I have had >several parents do one or two infusions and then do it " throught the >skin " with the DMSO at home. It cuts back on the cost--no infusion >necessary. I also heard, throught the vine, that there is a patch as >well??? Someone may have more info on that--I haven't had anyone use >the patch. Anyways--good luck! > > > > > > Thank you . I will definitely check him out. > > > > Aimee > > > > > > Hi Aimee, > > > > > > I have had 7 of the children I work with try secretin. Only 2 of > > > those continue to receive the infusions. The results vary. In >the > > > beginning most have shown some improvements. Often it has been >hard > > > to specifically attribute it to the secretin--because most of the > > > kids were involved in a variety of " interventions " at the same >time > > > or shortly after getting the secretin-- (DMG, Super Nu Thera, >AIT, > > > GCFC diet, etc.) I had one boy who did begin talking--he did not > > > have any other " interventions " except ABA. The method of >receiving > > > the secretin varied as well. I had some get infusions and some >did > > > it transdermal--Again, neither seemed better or worse (unless you > > > consider the infusion as being more invasive to the child-- >therefore > > > harder on the child). If you are considering secretin--as with >any > > > other intervention--try to do one thing at a time so that you can > > > definitely attribute the results (negative or positive) to that > > > specific " intervention " . Several of my families have used Dr. > > > Bridges. He is located off Roswell Road in the Fountain Oaks > > > Shopping Center. His number is . Just to give you >a > > > heads up on the cost--it is approximately $205.00 for the >secretin > > > and $295.00 for him to give the infusion--He does not accept >Medicaid > > > as far as I know. So that is approx $500 for one infusion of > > > Secretin. Last I heard he does have access to some Secretin (it >has > > > been hard to find recently with the changing of companies from > > > Ferring to Repligen). Hope this helps! > > > > > > > > > > > > > > _____NetZero Free Internet Access and Email______ > > http://www.netzero.net/download/index.html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Thanks ! Did you see any improvements in your son after infusions? We just feel like we have to try this. She's come so far and we've tried so much but still no communication!!! There's bound to be a way to get through! Aimee Re: Re: Secretin > > I know a lot of people that do the DMSO transdermal secretin method, and I > have seen respected researchers comment on this method. > But, personally, I don't like it. > First of all, DMSO pulls everything through the skin and into the blood > stream......EVERYTHING. > If you were to rub your childs' arm down with something to clean the area > of transdermal, that cleaner, regardless of what it is, will be pulled into > the blood stream by the DMSO. > If you do not clean the area, you have all of the environmental toxins, the > micro skin parasites, dirt, what ever going into the bloodstream. > It's not natural. > To me, the most natural way is through the bloodstream, infusion. > The other difference between infusion and transdermal is that you can give > your child secretin every day, to be more natural, rather than one big > infusion of it. > What I do is half the ferring vial, because had a full vial infusion > on the second time and he had hyper activity from it for about a week. We > cut the infusion in half and it fixed the hyperactive problem, but it' > wasn't enough secretin to do what it needed to do. SO, secretin, after it > is mixed(it comes in a powder form and is mixed with saline to be > administered) secretin has a refrigerated life of 3 weeks. > So, goes and has a infusion, exactly 3 weeks later, he goes and gets > the other half. Works for him, works for me, and there is no waste, and the > benefits are there, including the healing of the leaky gut. > Where is the science that indicates that the pancreas actually secretes > secretin every day?? Sure it's a digestive juice, but is this juice needed > everyday? There are many other organs that secrete digestive juices, maybe > pancreas secretin is just for certain times from what ever. I don't know > the answer to that and the people that do won't give up the info. > Even though the secretin doesn't start in the bloodstream initially in > natural human form( it comes from the pancreas) it does eventually enter > the bloodstream. I think....is that right? > I'll have to look it up. It's been awhile. > It may go through the bloodstream to get to the proper organs through infusion. > I faxed Repligen a formal letter asking if they would give me the actual > process of infusion of secretin, and of course, they never answered me. > They probably laughed at my fax and threw it into the trash. If I sent a > copy of a 100000.00 check made out to Repligen, they would have called me > on the phone to discuss all of the fine details of my question. > I'm about sick of all of these money hungry bastards, I'm gonna repair my > son's health on my own....and have a doctor assist me, if there is one out > there that gives a damn. > Anyway, thats the last of secretin will ever get and he's had 5 > infusions(actually 5 vials, 8 infusions). We are going for the root of the > problems these days. > > > > > > > At 02:03 AM 9/7/00 +0000, you wrote: > > > >Aimee, > > > >Another option you may be interested in exploring is getting a > >prescription written for the secretin and then doing it transdermally > >(I'm not sure if that is a word-- " throught the skin " ) I have had > >several parents do one or two infusions and then do it " throught the > >skin " with the DMSO at home. It cuts back on the cost--no infusion > >necessary. I also heard, throught the vine, that there is a patch as > >well??? Someone may have more info on that--I haven't had anyone use > >the patch. Anyways--good luck! > > > > > > > > > > > Thank you . I will definitely check him out. > > > > > > Aimee > > > > > > > > Hi Aimee, > > > > > > > > I have had 7 of the children I work with try secretin. Only 2 of > > > > those continue to receive the infusions. The results vary. In > >the > > > > beginning most have shown some improvements. Often it has been > >hard > > > > to specifically attribute it to the secretin--because most of the > > > > kids were involved in a variety of " interventions " at the same > >time > > > > or shortly after getting the secretin-- (DMG, Super Nu Thera, > >AIT, > > > > GCFC diet, etc.) I had one boy who did begin talking--he did not > > > > have any other " interventions " except ABA. The method of > >receiving > > > > the secretin varied as well. I had some get infusions and some > >did > > > > it transdermal--Again, neither seemed better or worse (unless you > > > > consider the infusion as being more invasive to the child-- > >therefore > > > > harder on the child). If you are considering secretin--as with > >any > > > > other intervention--try to do one thing at a time so that you can > > > > definitely attribute the results (negative or positive) to that > > > > specific " intervention " . Several of my families have used Dr. > > > > Bridges. He is located off Roswell Road in the Fountain Oaks > > > > Shopping Center. His number is . Just to give you > >a > > > > heads up on the cost--it is approximately $205.00 for the > >secretin > > > > and $295.00 for him to give the infusion--He does not accept > >Medicaid > > > > as far as I know. So that is approx $500 for one infusion of > > > > Secretin. Last I heard he does have access to some Secretin (it > >has > > > > been hard to find recently with the changing of companies from > > > > Ferring to Repligen). Hope this helps! > > > > > > > > > > > > > > > > > > > > _____NetZero Free Internet Access and Email______ > > > http://www.netzero.net/download/index.html > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Aimee, I didn't have improvements like the Beck child, but I did have improvements, with speech, concentration, did fairly well with it. If you must transderm, try to find something other than DMSO. There are some other ointments on the market that aren't so " radical " . DMSO was used long ago as a " fix all " ointment...I have learned to stay away from the fix all drugs. It affects too many different things in the body at once. I think it would interfere with other therapies the body is involved in. Use a search engine and put in DMSO, and read up on it. It's some wierd stuff. I don't mean to down everything, and I'm certainly not a expert or a doctor, But I have been reading about all this stuff for a long time. One thing you will come to know, EVERYTHING has a small problem with it. There's not a perfect medicine, and there's a million people with a million opinions about it. All you can do is go with your gut and do the best you can, providing for a individual you know better than anyone else. Read everything, and make a plan that you feel comfortable. If one thing doesn't work, discard it and try something else...but give everything some time.( I hate to wait too). At 07:40 AM 9/7/00 -0400, you wrote: > >Thanks ! Did you see any improvements in your son after infusions? We >just feel like we have to try this. She's come so far and we've tried so >much but still no communication!!! There's bound to be a way to get >through! > >Aimee > > Re: Re: Secretin > > >> >> I know a lot of people that do the DMSO transdermal secretin method, and I >> have seen respected researchers comment on this method. >> But, personally, I don't like it. >> First of all, DMSO pulls everything through the skin and into the blood >> stream......EVERYTHING. >> If you were to rub your childs' arm down with something to clean the area >> of transdermal, that cleaner, regardless of what it is, will be pulled >into >> the blood stream by the DMSO. >> If you do not clean the area, you have all of the environmental toxins, >the >> micro skin parasites, dirt, what ever going into the bloodstream. >> It's not natural. >> To me, the most natural way is through the bloodstream, infusion. >> The other difference between infusion and transdermal is that you can give >> your child secretin every day, to be more natural, rather than one big >> infusion of it. >> What I do is half the ferring vial, because had a full vial infusion >> on the second time and he had hyper activity from it for about a week. We >> cut the infusion in half and it fixed the hyperactive problem, but it' >> wasn't enough secretin to do what it needed to do. SO, secretin, after it >> is mixed(it comes in a powder form and is mixed with saline to be >> administered) secretin has a refrigerated life of 3 weeks. >> So, goes and has a infusion, exactly 3 weeks later, he goes and gets >> the other half. Works for him, works for me, and there is no waste, and >the >> benefits are there, including the healing of the leaky gut. >> Where is the science that indicates that the pancreas actually secretes >> secretin every day?? Sure it's a digestive juice, but is this juice needed >> everyday? There are many other organs that secrete digestive juices, maybe >> pancreas secretin is just for certain times from what ever. I don't know >> the answer to that and the people that do won't give up the info. >> Even though the secretin doesn't start in the bloodstream initially in >> natural human form( it comes from the pancreas) it does eventually enter >> the bloodstream. I think....is that right? >> I'll have to look it up. It's been awhile. >> It may go through the bloodstream to get to the proper organs through >infusion. >> I faxed Repligen a formal letter asking if they would give me the actual >> process of infusion of secretin, and of course, they never answered me. >> They probably laughed at my fax and threw it into the trash. If I sent a >> copy of a 100000.00 check made out to Repligen, they would have called me >> on the phone to discuss all of the fine details of my question. >> I'm about sick of all of these money hungry bastards, I'm gonna repair my >> son's health on my own....and have a doctor assist me, if there is one out >> there that gives a damn. >> Anyway, thats the last of secretin will ever get and he's had 5 >> infusions(actually 5 vials, 8 infusions). We are going for the root of the >> problems these days. >> >> >> >> >> >> >> At 02:03 AM 9/7/00 +0000, you wrote: >> > >> >Aimee, >> > >> >Another option you may be interested in exploring is getting a >> >prescription written for the secretin and then doing it transdermally >> >(I'm not sure if that is a word-- " throught the skin " ) I have had >> >several parents do one or two infusions and then do it " throught the >> >skin " with the DMSO at home. It cuts back on the cost--no infusion >> >necessary. I also heard, throught the vine, that there is a patch as >> >well??? Someone may have more info on that--I haven't had anyone use >> >the patch. Anyways--good luck! >> > >> > >> > >> > >> > > Thank you . I will definitely check him out. >> > > >> > > Aimee >> > > > >> > > > Hi Aimee, >> > > > >> > > > I have had 7 of the children I work with try secretin. Only 2 of >> > > > those continue to receive the infusions. The results vary. In >> >the >> > > > beginning most have shown some improvements. Often it has been >> >hard >> > > > to specifically attribute it to the secretin--because most of the >> > > > kids were involved in a variety of " interventions " at the same >> >time >> > > > or shortly after getting the secretin-- (DMG, Super Nu Thera, >> >AIT, >> > > > GCFC diet, etc.) I had one boy who did begin talking--he did not >> > > > have any other " interventions " except ABA. The method of >> >receiving >> > > > the secretin varied as well. I had some get infusions and some >> >did >> > > > it transdermal--Again, neither seemed better or worse (unless you >> > > > consider the infusion as being more invasive to the child-- >> >therefore >> > > > harder on the child). If you are considering secretin--as with >> >any >> > > > other intervention--try to do one thing at a time so that you can >> > > > definitely attribute the results (negative or positive) to that >> > > > specific " intervention " . Several of my families have used Dr. >> > > > Bridges. He is located off Roswell Road in the Fountain Oaks >> > > > Shopping Center. His number is . Just to give you >> >a >> > > > heads up on the cost--it is approximately $205.00 for the >> >secretin >> > > > and $295.00 for him to give the infusion--He does not accept >> >Medicaid >> > > > as far as I know. So that is approx $500 for one infusion of >> > > > Secretin. Last I heard he does have access to some Secretin (it >> >has >> > > > been hard to find recently with the changing of companies from >> > > > Ferring to Repligen). Hope this helps! >> > > > >> > > > >> > > >> > > >> > > >> > > _____NetZero Free Internet Access and Email______ >> > > http://www.netzero.net/download/index.html >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Thank you . I'm getting more people with results than without. We are definitely going to infuse, even if we have to mortgage the house!! We aren't even considering transdermal. We've heard too many bad things. We simply must fix this girl!! She has a problem with food. When she doesn't eat, she's great. When she eats, she's grouchy for several hours!! So if this will help her digest food, then it's worth it! Thanks to everyone for your comments. This is a really big decision and I really appreciate all of the input!! Aimee > Aimee, I didn't have improvements like the Beck child, but I did have > improvements, with speech, concentration, did fairly well with it. > If you must transderm, try to find something other than DMSO. There are > some other ointments on the market that aren't so " radical " . DMSO was used > long ago as a " fix all " ointment...I have learned to stay away from the fix > all drugs. It affects too many different things in the body at once. I > think it would interfere with other therapies the body is involved in. > Use a search engine and put in DMSO, and read up on it. > It's some wierd stuff. > I don't mean to down everything, and I'm certainly not a expert or a > doctor, But I have been reading about all this stuff for a long time. > One thing you will come to know, EVERYTHING has a small problem with it. > There's not a perfect medicine, and there's a million people with a million > opinions about it. > All you can do is go with your gut and do the best you can, providing for a > individual you know better than anyone else. > Read everything, and make a plan that you feel comfortable. If one thing > doesn't work, discard it and try something else...but give everything some > time.( I hate to wait too). > > _______________________________________________ Why pay for something you could get for free? NetZero provides FREE Internet Access and Email http://www.netzero.net/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Take a look at this as well Aimee, http://www.gfcfdiet.com/ If nothing else, you might want to consider a dairy free diet.(gluten is tough, but it can be done...I did it :-) If your concerned of her having a casein/gluten issue, you can have a urine test for 99.00 Here's the lab. www.greatplainslaboratory.com Good Luck, At 01:04 PM 9/7/00 -0400, you wrote: > >Thank you . I'm getting more people with results than without. We are >definitely going to infuse, even if we have to mortgage the house!! We >aren't even considering transdermal. We've heard too many bad things. We >simply must fix this girl!! She has a problem with food. When she doesn't >eat, she's great. When she eats, she's grouchy for several hours!! So if >this will help her digest food, then it's worth it! > >Thanks to everyone for your comments. This is a really big decision and I >really appreciate all of the input!! > >Aimee > >> Aimee, I didn't have improvements like the Beck child, but I did have >> improvements, with speech, concentration, did fairly well with it. >> If you must transderm, try to find something other than DMSO. There are >> some other ointments on the market that aren't so " radical " . DMSO was used >> long ago as a " fix all " ointment...I have learned to stay away from the >fix >> all drugs. It affects too many different things in the body at once. I >> think it would interfere with other therapies the body is involved in. >> Use a search engine and put in DMSO, and read up on it. >> It's some wierd stuff. >> I don't mean to down everything, and I'm certainly not a expert or a >> doctor, But I have been reading about all this stuff for a long time. >> One thing you will come to know, EVERYTHING has a small problem with it. >> There's not a perfect medicine, and there's a million people with a >million >> opinions about it. >> All you can do is go with your gut and do the best you can, providing for >a >> individual you know better than anyone else. >> Read everything, and make a plan that you feel comfortable. If one thing >> doesn't work, discard it and try something else...but give everything some >> time.( I hate to wait too). >> >> > > >_______________________________________________ >Why pay for something you could get for free? >NetZero provides FREE Internet Access and Email >http://www.netzero.net/download/index.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Oh Yes, I remember the days............. At 08:59 PM 9/7/00 -0400, you wrote: > >Thanks again , but we're already there. Casein free since May '99 and >gluten free since April this year. Wow what a withdrawal we saw, 8 weeks of >it. Pretty nasty stuff!! > >Aimee > > > > Take a look at this as well Aimee, http://www.gfcfdiet.com/ > > If nothing else, you might want to consider a dairy free diet.(gluten is > > tough, but it can be done...I did it :-) > > If your concerned of her having a casein/gluten issue, you can have a >urine > > test for 99.00 Here's the lab. www.greatplainslaboratory.com > > > > Good Luck, > > > > At 01:04 PM 9/7/00 -0400, you wrote: > > > > > >Thank you . I'm getting more people with results than without. We >are > > >definitely going to infuse, even if we have to mortgage the house!! We > > >aren't even considering transdermal. We've heard too many bad things. >We > > >simply must fix this girl!! She has a problem with food. When she >doesn't > > >eat, she's great. When she eats, she's grouchy for several hours!! So >if > > >this will help her digest food, then it's worth it! > > > > > >Thanks to everyone for your comments. This is a really big decision and >I > > >really appreciate all of the input!! > > > > > >Aimee > > > > > >> Aimee, I didn't have improvements like the Beck child, but I did have > > >> improvements, with speech, concentration, did fairly well with >it. > > >> If you must transderm, try to find something other than DMSO. There are > > >> some other ointments on the market that aren't so " radical " . DMSO was >used > > >> long ago as a " fix all " ointment...I have learned to stay away from the > > >fix > > >> all drugs. It affects too many different things in the body at once. I > > >> think it would interfere with other therapies the body is involved in. > > >> Use a search engine and put in DMSO, and read up on it. > > >> It's some wierd stuff. > > >> I don't mean to down everything, and I'm certainly not a expert or a > > >> doctor, But I have been reading about all this stuff for a long time. > > >> One thing you will come to know, EVERYTHING has a small problem with >it. > > >> There's not a perfect medicine, and there's a million people with a > > >million > > >> opinions about it. > > >> All you can do is go with your gut and do the best you can, providing >for > > >a > > >> individual you know better than anyone else. > > >> Read everything, and make a plan that you feel comfortable. If one >thing > > >> doesn't work, discard it and try something else...but give everything >some > > >> time.( I hate to wait too). > > >> > > >> > > > > > > > > >_______________________________________________ > > >Why pay for something you could get for free? > > >NetZero provides FREE Internet Access and Email > > >http://www.netzero.net/download/index.html > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 I have a 3 year old son with autism. On the 15th of this month, my husband and I will be going down to Harlingen to get secretin infusion for my son. Has anybody else on this list tried this? If so, I would love to know what your experiences with it were. This will be our first time and I'm a little nervous. Also, I was wondering if anybody here knows of a doctor in Houston or Austin that does secretin infusions. We live in Austin and the only doctor that I have found that accepts insurance is this doctor in Harlingen. Since secretin is something that you have to do more then once, it would be nice to not have to drive to Harlingen everytime. Especially since my son can't stand long car rides. Thanks in advance! Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 Hi - I continue to use secretin infusions with my son who has GI problems that the secretin helps tremendously with!! Dr. Pharo in Houston does secretin infusions....... My son has not shown any negative reactions - only positive in that when he has the secretin he has formed bowel movements.... he has not talked or made major advancements mentally - but the progress is slow and steady..... I'm curious, what form of secretin are you using? Gaspretin? Ferring? or Synthetic? I wish you and your child well! secretin I have a 3 year old son with autism. On the 15th of this month, my husband and I will be going down to Harlingen to get secretin infusion for my son. Has anybody else on this list tried this? If so, I would love to know what your experiences with it were. This will be our first time and I'm a little nervous. Also, I was wondering if anybody here knows of a doctor in Houston or Austin that does secretin infusions. We live in Austin and the only doctor that I have found that accepts insurance is this doctor in Harlingen. Since secretin is something that you have to do more then once, it would be nice to not have to drive to Harlingen everytime. Especially since my son can't stand long car rides. Thanks in advance! Jen Autism-Awareness-Actionegroups is a comprehensive nationwide list that covers all areas of autism - to subscribe go to: http://groups.yahoo.com/group/autism-awareness-action Unlocking Autism - An organization whose goal is to unlock autism, one door, one child, at a time... http://www.unlockingautism.org H.E.A.R.T - " Hear My Silence " CD to benefit Autism Research - www.helpautism.org. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.