Re: New Member - Absolutely Terrified

[Guest guest]

You should not stop Celexa abruptly, but taper off gradually. There is a good

chance that your sexual problems end, if you have stopped using Celexa. But that

is not certain.

> I have been on Celexa for 10 years and in the last two years have developed

sexual dysfunction.

[Guest guest]

Thank you so much Steve. I only realized the extent of the issue for me when it ruined my relationship because our levels of desire were so mismatched....then I thought back over the previous two years and things started to click. The experience is terrifying and my heart goes out to all of you. Thanks for your support.

Isaac

To: SSRIsex From: stevehazek@...Date: Thu, 27 Jan 2011 15:42:52 +0000Subject: Re: New Member - Absolutely Terrified

You should not stop Celexa abruptly, but taper off gradually. There is a good chance that your sexual problems end, if you have stopped using Celexa. But that is not certain.> I have been on Celexa for 10 years and in the last two years have developed sexual dysfunction.

[Guest guest]

Isaac,

the most important thing for you to know is to taper off very very slowly and

carefully - a lot of us here with lasting symptoms quit cold turkey and we think

that may have something to do with it. As far as sexual dysfunction showing

up while you're actually on the drug, that's extremely common. Some people

here got SD right away after just taking their first pill and others like you,

only after a long time, even years on SSRI's.

We really don't know how common pssd is, but clearly it happens to a small

minority (however being in that minority is horrible) so it is more likely that

you will be okay than not okay, but again the most important thing is that you

wean yourself off properly. It is a scary thing for sure but statistics are

definitely in your favor.

>

> >

>

> > It would in possible in theory to determine which genetic variations are

linked to PSSD. This could potentially help us identify the genes involved. I

don't think any major research institute will do such a study on their own for

some time.

>

> >

>

> >

>

> > I have discovered that it may be possible for me to do a GWAS (Genome Wide

Association Study) with Do It Yourself Genomics

http://www.diygenomics.org/participate.php . I do not have enough training YET

to do this but I am currently working on genomics research and learning more

everyday. This group will help citizen groups to set up studies of their own.

It essentially could help us to do the research ourselves.

>

> >

>

> > If we were to do this I would need many PSSD suffers to get themselves

genotyped. I have got myself genotyped. It currently costs $200 with 23andMe

(23andMe.com) . You would then have to volunteer your data for the study.

>

> >

>

> > I see two things potentially coming out of it.

>

> > 1) We may learn what genes are responsible for PSSD symptoms. This could

possibly help explain the disorder and MAY (I really cannot know) eventually

help lead to treatments.

>

> >

>

> > 2) It may allow us to determine the genetic basis such that others would not

take SSRIs if they were prone to developing PSSD.

>

> >

>

> > Right now I don't need commitment from anyone. I just want to see if there

are even close to enough people interested. We would need at least 100,

probably more people to participate for it to be effective.

>

> >

>

> > If you would be willing to get genotyped for such a study please reply and

let me know so I can know if its even worth my while looking into this with

DIYgenomics.

>

> >

>

[Guest guest]

You're welcome Isaac. Please join us in telling the world by emailing about PSSD

to psychiatrists in your city.

>

>

> Thank you so much Steve. I only realized the extent of the issue for me when

it ruined my relationship because our levels of desire were so

mismatched....then I thought back over the previous two years and things started

to click. The experience is terrifying and my heart goes out to all of you.

Thanks for your support.

>

> Isaac

[Guest guest]

I absolutely will. I'm in Toronto, Canada and will let people know. Your courage to organize around this cause moves me. And you've been helpful to me today as well - the support means a lot. Take care and thanks again.IsaacTo: SSRIsex From: stevehazek@...Date: Thu, 27 Jan 2011 19:41:12 +0000Subject: Re: New Member - Absolutely Terrified

You're welcome Isaac. Please join us in telling the world by emailing about PSSD to psychiatrists in your city.

>

>

> Thank you so much Steve. I only realized the extent of the issue for me when it ruined my relationship because our levels of desire were so mismatched....then I thought back over the previous two years and things started to click. The experience is terrifying and my heart goes out to all of you. Thanks for your support.

>

> Isaac

[Guest guest]

If you like to get or give live support, you can also join the PSSD chatroom.

>

> >

>

> >

>

> > Thank you so much Steve. I only realized the extent of the issue for me when

it ruined my relationship because our levels of desire were so

mismatched....then I thought back over the previous two years and things started

to click. The experience is terrifying and my heart goes out to all of you.

Thanks for your support.

>

> >

>

> > Isaac

>