Re: DR. McCandless and LDN

[Guest guest]

What Dr JM observes is quite similar to what we see with Valtrex in my opinion

and what

others observe about chelation.

In typical kids we don't see rashes and fungal flairs with these treatments.

That to me

says we are dealing with something different. I believe the rashes she observes

are

probably the same thing we see here, just triggered by a different modality.

My belief is a bit different than hers. I don't believe it's just a change in

the immune

system. I believe that it's a change in the balance of fungus, bacteria,

viruses and metals

in the body. All four play warfare with each other. Change one and you will

affect the

others. This is why it is so important to have a multi disciplined approach

when you

approach children with autism. It goes back to my last comment to Vera about

western

medicine. My belief is that if you treat autism, you need to consider the

combination of

fungus, bacteria, viruses and metals and work on them at the same or close to

the same

time. I don't wait for these types of markers when I know that they will likely

be there.

I've seen too many folks try a single therapy and throw their kids into a tail

spin and then

say, " Wow, that therapy didn't work. " ... but maybe it was working, but it was

causing a

fungal flair or a bacterial imbalance.

If one of our kids really " wigs out " over LDN (or Valtrex), it is likely a sign

of something

important that we need to better understand in that particular child... we

shouldn't turn a

blind eye to it, we should try to understand the underlying condition that is

causing the

flair... because that condition is likely one of the core issues of the child's

autism.

If I were to do LDN, I would do it with an antifungal, the same way as I would

with antiviral

or chelation. Or, I would at least have a strategy ready for the likely event a

flair would

happen.

Stan

>

> > Hi everyone,

> >

> > My name is and I am from Ohio. Have a son

> > with autism, will

> > turn 5 in March. Non-verbal. That is our main issue

> > with his

> > progress. Otherwise, lots of GI issues, still

> > battling yeast, but

> > that has gotten better lately. GFCF. Good gains with

> > the diet.

> > Allergies. Doing NAET for that. Also working with a

> > DAN doctor near

> > here. Starting up DMPS soon, as soon as we find out

> > whether he is a

> > responder to LDN or not. Just started TD LDN, ultra

> > low dose, 8 days

> > ago.... and here are my questions. Any

> > advice/information/ suggestions are so appreciated! !

> >

> > I am trying to understand how LDN affects

> > viruses/gut bugs or yeast.

> > I started TD LDN on my son on the 1/1/07 and stayed

> > on the 0.1 ml

> > (lowest) dose for three days. I saw increased

> > happiness, better

> > mood, calmer, better receptive and cooperation for

> > about 3 days. I

> > increased the dose to 0.2 ml day 4. My son woke the

> > happiest ever,

> > laughing, giggling, extremely tuned in....and he had

> > the best school

> > day of his life! He is non-verbal but this day he

> > made so many

> > successful word approximations that the therapists

> > at his school

> > were blown away!! I was, too! The social and verbal

> > gains were

> > awsome! However, we begun having problems the next

> > day (still 0.2)

> > with urinary accidents and YEAST!!!!! Red butt,

> > worse appetite,

> > chewing on clothing a bit, hyperactive, and very

> > sensory seeking.

> > However, verbals were awsome, socially great,

> > receptively great! 2

> > accidents that day. That night we decreased the

> > dose to 0.15 ml.

> > Stimming was better the day after, verbal and social

> > gains stayed,

> > but urinary accidents kept happening (2 times) and

> > YEASTY butt....

> > appetite poorer. A bit more clingy to me. So Dr said

> > to lower the

> > dose that night to 0.1 ml, so we did. Today is the

> > next day - my

> > son's social gains have decreased, eye contact

> > decreased, verbals

> > somewhat decreased but still there. Not as good

> > following directions

> > as before with the higher dose. More screaming

> > today. YEAST is

> > still an issue in the GI tract, red bottom, sensory

> > seeking

> > behaviors decreased but not the stimming. One

> > urinary accident

> > today, so that got a bit better. GREAT appetite

> > today!!

> >

> > Other than I don't know what to do - continue or

> > discontinue, I am

> > seeking some information about LDN in general. I

> > don't quite

> > understand the relationship between yeast/viruses/

> > bugs and LDN yet.

> > I read some of the posts from Dr McCandless but I am

> > still not

> > clear. The full dose would probably further worsen

> > the GI yeast for

> > us, yet I so want to try to go up becase the gains

> > were unbelievable

> > while we did the 0.2 ml for a couple days. But the

> > yeast and

> > accompanying behaviors scare me. If LDN was working

> > on viruses just

> > like the antivirals do, or in a similar fashion,

> > then why not try to

> > counteract yeast by Diflucan or something else??

> >

> > It is my understanding that our DAN dr would

> > probably want to

> > discontinue LDN, with the side effects noted, but

> > allowed us to try

> > some more with the 0.1 ml, then reevaluate and

> > decide about

> > continuing or discontinuing, probably by the end of

> > this week.

> > Gosh, I so want to continue since I have never seen

> > such beautiful

> > skills and engagement in my son ever before!!

> >

> > I was wondering if anyone could help me understand

> > the above issues.

> > I also read another post from Dr J. McCandless re.

> > LDN and how it is

> > important to go up to the full dose and bear with

> > the side

> > effects ...that they will get better....as LDN

> > levels out in the

> > body.....so maybe the yeast I am seeing is temporary

> > and it would

> > decrease later with the higher dose? Or, is the

> > yeast there perhaps

> > because the LDN is already working on some viral

> > issues and thus the

> > yeast??? never understood this one....if anyone can

> > shed light on

> > this one for me, I'd appreciate it!!!!

> >

> > Thanks for all your input!

> >

>