Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 I don't think so. SSDI Hi Folks, Can a person still get SSDI benefits if they have not worked in 10 years but did put in 40 quarters and more before that? This is NOT ESRD related. I had a patient argue with me that it was true. Thanks, Pat Hogan Transplant Financial Coordinator Lahey Clinic Burlington, MA Phone Fax See our web page at http://www.lahey.org for a full directory of Lahey sites, staff, services and career opportunities.THIS MESSAGE IS INTENDED FOR THE USE OF THE PERSON TO WHOM IT IS ADDRESSED. IT MAY CONTAIN INFORMATION THAT IS PRIVILEGED, CONFIDENTIAL AND EXEMPT FROM DISCLOSURE UNDER APPLICABLE LAW. If you are not the intended recipient, your use of this message for any purpose is strictly prohibited. If you have received this communication in error, please delete the message and notify the sender so that we may correct our records. IMPORTANT NOTICE: This communication, including any attachment, contains information that may be confidential or privileged, and is intended solely for the entity or individual to whom it is addressed. If you are not the intended recipient, you should contact the sender and delete the message. Any unauthorized disclosure, copying, or distribution of this message is strictly prohibited. Nothing in this email, including any attachment, is intended to be a legally binding signature. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Social security website is a good place to start:http://www.ssa.gov/pubs/10029.html#part1-----Original Message-----From: on, :LPH Trnsplnt Sent: Thursday, October 14, 2004 12:09 PMTo: TxFinancialCoordinators Subject: RE: SSDII don't think so. SSDIHi Folks, Can a person still get SSDI benefits if they have not worked in 10 years but did put in 40 quarters and more before that? This is NOT ESRD related. I had a patient argue with me that it was true. Thanks, Pat HoganTransplant Financial CoordinatorLahey ClinicBurlington, MA Phone Fax See our web page at http://www.lahey.org for a full directory of Lahey sites, staff, services and career opportunities.THIS MESSAGE IS INTENDED FOR THE USE OF THE PERSON TO WHOM IT IS ADDRESSED. IT MAY CONTAIN INFORMATION THAT IS PRIVILEGED, CONFIDENTIAL AND EXEMPT FROM DISCLOSURE UNDER APPLICABLE LAW. If you are not the intended recipient, your use of this message for any purpose is strictly prohibited. If you have received this communication in error, please delete the message and notify the sender so that we may correct our records. IMPORTANT NOTICE: This communication, including any attachment, contains information that may be confidential or privileged, and is intended solely for the entity or individual to whom it is addressed. If you are not the intended recipient, you should contact the sender and delete the message. Any unauthorized disclosure, copying, or distribution of this message is strictly prohibited. Nothing in this email, including any attachment, is intended to be a legally binding signature. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 No IT ISN'T hopeless !! I have fibromyalgia, there are NO TESTS to prove it. Just my word & my docs words. I WON!!! The ' impartial' SSDI doc wouldnt even say the dreaded FIBROMYALGIA word, my lawyer tried to make him LOL! I WON! DONT GIVE UP HOPE, KEEP TRYING!! You all have test reports & PROOF that your sick! love tilly fcpfirefly wrote: My god!!!!! it's hopeless.. > > > > > > > Today is the first time I had to take off from work because I > > am > > > > > > just > > > > > > > too exhausted to concentrate or make my appearances in court. > > > > > > > > > > > > > > I was back in court the day after I got out of the hospital (8 > > > > > > pints of > > > > > > > blood had to be transfused) and, yet, the only strenuous thing I > > > > > > did > > > > > > > this week was a two-day trial on Monday and Tuesday. > > > > > > > > > > > > > > The part of end stage cirrhosis (aside from the affects on > > family) > > > > > > that > > > > > > > I hate most, is; that I can now feel each step downhill in my > > > > > > health. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > web address: > > > > > > > http://groups. yahoo.com/ group/livercirrh osissupport/ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 I hope SSDI and SSI don't have spies here to see what I am about to say. It has been said to me that it doesn't matter how sick you are, only about 20% of applicants are approved the first time. And of the remaining 80%, only 20% are approved the second time, the first appeal hearing. It is their way of keeping down the costs. If they tell you you aren't sick enough, maybe you won't appeal, and they won't have to pay you. And, many people do not appeal. I would be interested in finding out how many people are actually approved who have appealed twice and reached the third stage. I would imagine it is rather high. I just hope you find out in time to be able to keep your house Bob. It took 6 months for them to deny me. Jan H > > No IT ISN'T hopeless !! I have fibromyalgia, there are NO TESTS to prove > it. Just my word & my docs words. I WON!!! > The ' impartial' SSDI doc wouldnt even say the dreaded FIBROMYALGIA word, > my lawyer tried to make him LOL! > I WON! > DONT GIVE UP HOPE, KEEP TRYING!! You all have test reports & PROOF that > your sick! > love > tilly > > fcpfirefly <fcpfirefly@... <fcpfirefly%40yahoo.com>> wrote: > My god!!!!! it's hopeless.. > > > > > > > > > > > > > Today is the first time I had to take off from work because I > > > > am > > > > > > > > > > just > > > > > > > > > > > too exhausted to concentrate or make my appearances in court. > > > > > > > > > > > > > > > > > > > > > > I was back in court the day after I got out of the hospital (8 > > > > > > > > > > pints of > > > > > > > > > > > blood had to be transfused) and, yet, the only strenuous thing > I > > > > > > > > > > did > > > > > > > > > > > this week was a two-day trial on Monday and Tuesday. > > > > > > > > > > > > > > > > > > > > > > The part of end stage cirrhosis (aside from the affects on > > > > family) > > > > > > > > > > that > > > > > > > > > > > I hate most, is; that I can now feel each step downhill in my > > > > > > > > > > health. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > > > > web address: > > > > > > > > > > > http://groups. yahoo.com/ group/livercirrh osissupport/ > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 Social Security is a Government Agency, which by the way, is owned by you. You can request their numbers under the Freedom of Information Act. They also have to provide their statistical information. If you request it in writing from them you will get it. On a side note, I do notice that people that work at SS do have personal preferences. For instance, when I paid well over $700 to apply and get my wifes VISA to come back from Japan to California with me, part of that whole process was to prove I was married. When I entered LAX and went through customs, me being in the military, had my dandy checklist. As the immigration officer was helping me process, I asked him about the Social Security Card, since my checklist said that it would be applied for upon arrival. He told me just to go to my local SSN office, so I did. Before I went there I asked what documents I needed. None of which was a marriage certificate. So when I arrived, I was greeted by an obviously overworked tired of dealing with costumers employee. When I turned in my (pre-filled out paperwork, given by the INS) she looked at my wife, who was Korean, and asked " are you married? " (I guess unmarried people go there all the time) I answered " yes " . She shuffled some paperwork, took my application in the back and came back and asked for our marriage certificate. I asked why I needed that? She stated she " couldn't give her a SSN card without it. " So I had to show her paperwork from the SS website that showed what I needed to bring and I even called and they said I did not need a marriage certificate since I had my VISA paperwork. This went on an on, until I started getting mad. I kind of raised my voice and explained that if all of our paperwork was good to get a VISA (which took 6 months) and that INS gave her a green card and let her into the country etc, and I HAD to prove that we were married to do this, then I didn't need to PROVE it to her. But be the nice kind, courteous American that I am, I thought I would prove a point and show her our proud marriage certificate .. Our marriage certificate was in Japanese, since we were married on the lovely Island of Okinawa. You should have seen the look on her face when she saw it! (Beautiful certificate by the way. The Japanese go all out.) She left and came back with our SSN card. The point of the story is to never give in to Government Beaurocracy and to always remember the Government is owned by you. It's purpose is to serve you. For some who are caught up in the beaurocracy, they forget that. But remember, it's not the governments job to remind you, but you, to remind them of their responsibilities. MaC P.S., I proudly serve and If I could do it for free I would. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 It took to the third stage to be approved, but it was with a lawyer's help. We considered getting the lawyer after the 1st refusal, but with the statistics for approval so low for the second appeal, we thought we would save the big guns for last. And just in the nick of time...in the 16 months of not working we went through my 401K of $12,000.00, a loan at 10% of $10,000.00 and an income tax refund of $5,000.00, in addition to maxxing out a half dozen credit cards We were ready to start eating PBJs at every meal when we finally got the approval letter. Even at that,we got a monthly check rather quickly, but took another 3 1/2 months to get the back pay! Now we have enough to live on, but not enough to pay back the loans AND medical bills. I wonder how much of the success is making it to the 3rd level and how much has to do with you having a lawyer. I am amazed at much differently you are treated in court when you are represented by council as opposed to when you are there by yourself! Re: Re: SSDI I hope SSDI and SSI don't have spies here to see what I am about to say. It has been said to me that it doesn't matter how sick you are, only about 20% of applicants are approved the first time. And of the remaining 80%, only 20% are approved the second time, the first appeal hearing. It is their way of keeping down the costs. If they tell you you aren't sick enough, maybe you won't appeal, and they won't have to pay you. And, many people do not appeal. I would be interested in finding out how many people are actually approved who have appealed twice and reached the third stage. I would imagine it is rather high. I just hope you find out in time to be able to keep your house Bob. It took 6 months for them to deny me. Jan H > > No IT ISN'T hopeless !! I have fibromyalgia, there are NO TESTS to prove > it. Just my word & my docs words. I WON!!! > The ' impartial' SSDI doc wouldnt even say the dreaded FIBROMYALGIA word, > my lawyer tried to make him LOL! > I WON! > DONT GIVE UP HOPE, KEEP TRYING!! You all have test reports & PROOF that > your sick! > love > tilly > > fcpfirefly <fcpfirefly@... <fcpfirefly%40yahoo.com>> wrote: > My god!!!!! it's hopeless.. > > > > > > > > > > > > > Today is the first time I had to take off from work because I > > > > am > > > > > > > > > > just > > > > > > > > > > > too exhausted to concentrate or make my appearances in court. > > > > > > > > > > > > > > > > > > > > > > I was back in court the day after I got out of the hospital (8 > > > > > > > > > > pints of > > > > > > > > > > > blood had to be transfused) and, yet, the only strenuous thing > I > > > > > > > > > > did > > > > > > > > > > > this week was a two-day trial on Monday and Tuesday. > > > > > > > > > > > > > > > > > > > > > > The part of end stage cirrhosis (aside from the affects on > > > > family) > > > > > > > > > > that > > > > > > > > > > > I hate most, is; that I can now feel each step downhill in my > > > > > > > > > > health. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > > > > web address: > > > > > > > > > > > http://groups. yahoo.com/ group/livercirrh osissupport/ > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 I tried to get a lawyer for the second stage. The appeal specialists firm told me they don't take any cases until the third stage. Probably part of that is that they get paid 25% of your back pay, so the longer it takes, the more they get. Jan H > > It took to the third stage to be approved, but it was with a > lawyer's help. We considered getting the lawyer after the 1st refusal, but > with the statistics for approval so low for the second appeal, we thought we > would save the big guns for last. > > And just in the nick of time...in the 16 months of not working we > went through my 401K of $12,000.00, a loan at 10% of $10,000.00 and an > income tax refund of $5,000.00, in addition to maxxing out a half dozen > credit cards We were ready to start eating PBJs at every meal when we > finally got the approval letter. Even at that,we got a monthly check rather > quickly, but took another 3 1/2 months to get the back pay! Now we have > enough to live on, but not enough to pay back the loans AND medical bills. > > I wonder how much of the success is making it to the 3rd level and how > much has to do with you having a lawyer. I am amazed at much differently you > are treated in court when you are represented by council as opposed to when > you are there by yourself! > > > > Re: Re: SSDI > > I hope SSDI and SSI don't have spies here to see what I am about to say. > It > has been said to me that it doesn't matter how sick you are, only about > 20% > of applicants are approved the first time. And of the remaining 80%, only > 20% are approved the second time, the first appeal hearing. It is their > way of keeping down the costs. If they tell you you aren't sick enough, > maybe you won't appeal, and they won't have to pay you. And, many people > do > not appeal. I would be interested in finding out how many people are > actually approved who have appealed twice and reached the third stage. I > would imagine it is rather high. I just hope you find out in time to be > able to keep your house Bob. It took 6 months for them to deny me. Jan H > > On 11/3/07, Murch <TWITT@... <TWITT%40prodigy.net>> wrote: > > > > No IT ISN'T hopeless !! I have fibromyalgia, there are NO TESTS to prove > > it. Just my word & my docs words. I WON!!! > > The ' impartial' SSDI doc wouldnt even say the dreaded FIBROMYALGIA > word, > > my lawyer tried to make him LOL! > > I WON! > > DONT GIVE UP HOPE, KEEP TRYING!! You all have test reports & PROOF that > > your sick! > > love > > tilly > > > > fcpfirefly <fcpfirefly@... <fcpfirefly%40yahoo.com><fcpfirefly%40yahoo.com>> wrote: > > My god!!!!! it's hopeless.. > > > > > > > > > > > > > > > > > > > Today is the first time I had to take off from work because I > > > > > > am > > > > > > > > > > > > > > just > > > > > > > > > > > > > > > too exhausted to concentrate or make my appearances in court. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I was back in court the day after I got out of the hospital (8 > > > > > > > > > > > > > > pints of > > > > > > > > > > > > > > > blood had to be transfused) and, yet, the only strenuous thing > > I > > > > > > > > > > > > > > did > > > > > > > > > > > > > > > this week was a two-day trial on Monday and Tuesday. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > The part of end stage cirrhosis (aside from the affects on > > > > > > family) > > > > > > > > > > > > > > that > > > > > > > > > > > > > > > I hate most, is; that I can now feel each step downhill in my > > > > > > > > > > > > > > health. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > > > > > > > > web address: > > > > > > > > > > > > > > > http://groups. yahoo.com/ group/livercirrh osissupport/ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 I've heard that they have to approve you the first time if you have documented proof that you have a disease or sickness that is on their list. For cirrhosis: For this condition to be severe enough to meet the Social Security Administration's listing the claimant must have: Esophageal varices with documents indicating massive hemorrhage; OR Performance of a shunt operation for esophageal varices; OR Serum total bilirubin of 2.5 mg or greater that persists on repeated examinations for at least five months; OR Ascites, recurrent for at least 5 months demonstrated by abdominal paracentesis; OR Hepatic encephalopathy; OR Confirmation of chronic liver disease by liver biopsy. Here's the social security website. http://www.ssa.gov/dibplan/dqualify5.htm Is your condition " severe " ? Your condition must interfere with basic work-related activities for your claim to be considered. If it does not, we will find that you are not disabled. If your condition does interfere with basic work-related activities, we go to Step 3. List of disabilities. http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm Colleen Jan Holman wrote: I hope SSDI and SSI don't have spies here to see what I am about to say. It has been said to me that it doesn't matter how sick you are, only about 20% of applicants are approved the first time. And of the remaining 80%, only 20% are approved the second time, the first appeal hearing. It is their way of keeping down the costs. If they tell you you aren't sick enough, maybe you won't appeal, and they won't have to pay you. And, many people do not appeal. I would be interested in finding out how many people are actually approved who have appealed twice and reached the third stage. I would imagine it is rather high. I just hope you find out in time to be able to keep your house Bob. It took 6 months for them to deny me. Jan H > > No IT ISN'T hopeless !! I have fibromyalgia, there are NO TESTS to prove > it. Just my word & my docs words. I WON!!! > The ' impartial' SSDI doc wouldnt even say the dreaded FIBROMYALGIA word, > my lawyer tried to make him LOL! > I WON! > DONT GIVE UP HOPE, KEEP TRYING!! You all have test reports & PROOF that > your sick! > love > tilly > > fcpfirefly > wrote: > My god!!!!! it's hopeless.. > > > > > > > > > > > > > Today is the first time I had to take off from work because I > > > > am > > > > > > > > > > just > > > > > > > > > > > too exhausted to concentrate or make my appearances in court. > > > > > > > > > > > > > > > > > > > > > > I was back in court the day after I got out of the hospital (8 > > > > > > > > > > pints of > > > > > > > > > > > blood had to be transfused) and, yet, the only strenuous thing > I > > > > > > > > > > did > > > > > > > > > > > this week was a two-day trial on Monday and Tuesday. > > > > > > > > > > > > > > > > > > > > > > The part of end stage cirrhosis (aside from the affects on > > > > family) > > > > > > > > > > that > > > > > > > > > > > I hate most, is; that I can now feel each step downhill in my > > > > > > > > > > health. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > > > > web address: > > > > > > > > > > > http://groups. yahoo.com/ group/livercirrh osissupport/ > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 I had the biopsy, but I was still denied, and I also have multiple other diseases which add up to make it impossible for me to work at anything long enough to support myself Jan H > > I've heard that they have to approve you the first time if you have > documented proof that you have a disease or sickness that is on their list. > > For cirrhosis: > For this condition to be severe enough to meet the Social Security > Administration's listing the claimant must have: > Esophageal varices with documents indicating massive hemorrhage; OR > Performance of a shunt operation for esophageal varices; OR > Serum total bilirubin of 2.5 mg or greater that persists on repeated > examinations for at least five months; OR > Ascites, recurrent for at least 5 months demonstrated by abdominal > paracentesis; OR > Hepatic encephalopathy; OR > Confirmation of chronic liver disease by liver biopsy. > > Here's the social security website. > http://www.ssa.gov/dibplan/dqualify5.htm > > Is your condition " severe " ? > Your condition must interfere with basic work-related activities for your > claim to be considered. If it does not, we will find that you are not > disabled. If your condition does interfere with basic work-related > activities, we go to Step 3. > > List of disabilities. > http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm > > Colleen > > > > Jan Holman <janholman@... <janholman%40gmail.com>> wrote: > I hope SSDI and SSI don't have spies here to see what I am about to say. > It > has been said to me that it doesn't matter how sick you are, only about > 20% > of applicants are approved the first time. And of the remaining 80%, only > 20% are approved the second time, the first appeal hearing. It is their > way of keeping down the costs. If they tell you you aren't sick enough, > maybe you won't appeal, and they won't have to pay you. And, many people > do > not appeal. I would be interested in finding out how many people are > actually approved who have appealed twice and reached the third stage. I > would imagine it is rather high. I just hope you find out in time to be > able to keep your house Bob. It took 6 months for them to deny me. Jan H > > > > > > No IT ISN'T hopeless !! I have fibromyalgia, there are NO TESTS to prove > > it. Just my word & my docs words. I WON!!! > > The ' impartial' SSDI doc wouldnt even say the dreaded FIBROMYALGIA > word, > > my lawyer tried to make him LOL! > > I WON! > > DONT GIVE UP HOPE, KEEP TRYING!! You all have test reports & PROOF that > > your sick! > > love > > tilly > > > > fcpfirefly > wrote: > > My god!!!!! it's hopeless.. > > > > > > > > > > > > > > > > > > > Today is the first time I had to take off from work because I > > > > > > am > > > > > > > > > > > > > > just > > > > > > > > > > > > > > > too exhausted to concentrate or make my appearances in court. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I was back in court the day after I got out of the hospital (8 > > > > > > > > > > > > > > pints of > > > > > > > > > > > > > > > blood had to be transfused) and, yet, the only strenuous thing > > I > > > > > > > > > > > > > > did > > > > > > > > > > > > > > > this week was a two-day trial on Monday and Tuesday. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > The part of end stage cirrhosis (aside from the affects on > > > > > > family) > > > > > > > > > > > > > > that > > > > > > > > > > > > > > > I hate most, is; that I can now feel each step downhill in my > > > > > > > > > > > > > > health. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > > > > > > > > web address: > > > > > > > > > > > > > > > http://groups. yahoo.com/ group/livercirrh osissupport/ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 I've been reading these posts and I pray that this is not always the case! I can't believe someone had to wait for, and I qoute " Esophageal varices with documents indicating massive hemorrhage " is outrageous! Do you know you can die from one single hemorrhage? Why wait until then? I cannot believe our government paperwork is so dumbfounded to wait until you are a candidate for the emergency room or ICU or death before you can apply for disability. I would bet, that this goes from region to region and there are probably many inconsistencies. I'm going to visit my local SSN office next week. And pull their Regulations and read them. No one with a terminal illness should have to prove they are bleeding to get benefits! I am outraged! MaC P.S., I will see if one of the SSA workers will want to join to set things straight or help us fill out paperwork. MsTigerHawk wrote: I've heard that they have to approve you the first time if you have documented proof that you have a disease or sickness that is on their list. For cirrhosis: For this condition to be severe enough to meet the Social Security Administration's listing the claimant must have: Esophageal varices with documents indicating massive hemorrhage; OR Performance of a shunt operation for esophageal varices; OR Serum total bilirubin of 2.5 mg or greater that persists on repeated examinations for at least five months; OR Ascites, recurrent for at least 5 months demonstrated by abdominal paracentesis; OR Hepatic encephalopathy; OR Confirmation of chronic liver disease by liver biopsy. Here's the social security website. http://www.ssa.gov/dibplan/dqualify5.htm __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 Another outrageous thing connected with my denial. I cannot get copies of the reports sent by the doctors they sent me to because they paid for them. Jan H > > I've been reading these posts and I pray that this is not always the > case! I can't believe someone had to wait for, and I qoute " Esophageal > varices with documents indicating massive hemorrhage " is outrageous! Do you > know you can die from one single hemorrhage? Why wait until then? I cannot > believe our government paperwork is so dumbfounded to wait until you are a > candidate for the emergency room or ICU or death before you can apply for > disability. > I would bet, that this goes from region to region and there are probably > many inconsistencies. > I'm going to visit my local SSN office next week. And pull their > Regulations and read them. No one with a terminal illness should have to > prove they are bleeding to get benefits! I am outraged! > > MaC > P.S., > I will see if one of the SSA workers will want to join to set things > straight or help us fill out paperwork. > > MsTigerHawk <tigerhawksoars@... <tigerhawksoars%40yahoo.com>> wrote: > I've heard that they have to approve you the first time if you have > documented proof that you have a disease or sickness that is on their list. > > For cirrhosis: > For this condition to be severe enough to meet the Social Security > Administration's listing the claimant must have: > Esophageal varices with documents indicating massive hemorrhage; OR > Performance of a shunt operation for esophageal varices; OR > Serum total bilirubin of 2.5 mg or greater that persists on repeated > examinations for at least five months; OR > Ascites, recurrent for at least 5 months demonstrated by abdominal > paracentesis; OR > Hepatic encephalopathy; OR > Confirmation of chronic liver disease by liver biopsy. > > Here's the social security website. > http://www.ssa.gov/dibplan/dqualify5.htm > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 I wonder how many just die in the mean time. Ardis's doctor said in her paperwork that she would be disabled until she recieved a liver transplant, but that the vast majority of liver transplant candidates die before recieving a liver. That she needed the ssdi in order to get a transplant.(medicare, in other words. They denied her anyway. But her appeal was lightening fast. She had a lawyer who was to take 25% of her back award. He went into the appeal hearing, and humiliated the SSDI doctor, and the judge said this in his ruling. (that the SSDI doctor was sorely unprepared to defend the governments position.) She won nearly $12,000. Re: Re: SSDI I hope SSDI and SSI don't have spies here to see what I am about to say. It has been said to me that it doesn't matter how sick you are, only about 20% of applicants are approved the first time. And of the remaining 80%, only 20% are approved the second time, the first appeal hearing. It is their way of keeping down the costs. If they tell you you aren't sick enough, maybe you won't appeal, and they won't have to pay you. And, many people do not appeal. I would be interested in finding out how many people are actually approved who have appealed twice and reached the third stage. I would imagine it is rather high. I just hope you find out in time to be able to keep your house Bob. It took 6 months for them to deny me. Jan H On 11/3/07, Murch <TWITTprodigy (DOT) net> wrote: > > No IT ISN'T hopeless !! I have fibromyalgia, there are NO TESTS to prove > it. Just my word & my docs words. I WON!!! > The ' impartial' SSDI doc wouldnt even say the dreaded FIBROMYALGIA word, > my lawyer tried to make him LOL! > I WON! > DONT GIVE UP HOPE, KEEP TRYING!! You all have test reports & PROOF that > your sick! > love > tilly > > fcpfirefly <fcpfireflyyahoo (DOT) com <fcpfirefly% 40yahoo.com> > wrote: > My god!!!!! it's hopeless.. > > > > > > > > > > > > > Today is the first time I had to take off from work because I > > > > am > > > > > > > > > > just > > > > > > > > > > > too exhausted to concentrate or make my appearances in court. > > > > > > > > > > > > > > > > > > > > > > I was back in court the day after I got out of the hospital (8 > > > > > > > > > > pints of > > > > > > > > > > > blood had to be transfused) and, yet, the only strenuous thing > I > > > > > > > > > > did > > > > > > > > > > > this week was a two-day trial on Monday and Tuesday. > > > > > > > > > > > > > > > > > > > > > > The part of end stage cirrhosis (aside from the affects on > > > > family) > > > > > > > > > > that > > > > > > > > > > > I hate most, is; that I can now feel each step downhill in my > > > > > > > > > > health. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > > > > web address: > > > > > > > > > > > http://groups. yahoo.com/ group/livercirrh osissupport/ > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 Wwoooo weeee , we got us another cirrhosis support shindig agoin on!! wwooo hooo! Re: Re: SSDI Another outrageous thing connected with my denial. I cannot get copies of the reports sent by the doctors they sent me to because they paid for them. Jan H > > I've been reading these posts and I pray that this is not always the > case! I can't believe someone had to wait for, and I qoute " Esophageal > varices with documents indicating massive hemorrhage " is outrageous! Do you > know you can die from one single hemorrhage? Why wait until then? I cannot > believe our government paperwork is so dumbfounded to wait until you are a > candidate for the emergency room or ICU or death before you can apply for > disability. > I would bet, that this goes from region to region and there are probably > many inconsistencies. > I'm going to visit my local SSN office next week. And pull their > Regulations and read them. No one with a terminal illness should have to > prove they are bleeding to get benefits! I am outraged! > > MaC > P.S., > I will see if one of the SSA workers will want to join to set things > straight or help us fill out paperwork. > > MsTigerHawk <tigerhawksoars@ yahoo.com <tigerhawksoars% 40yahoo.com> > wrote: > I've heard that they have to approve you the first time if you have > documented proof that you have a disease or sickness that is on their list. > > For cirrhosis: > For this condition to be severe enough to meet the Social Security > Administration' s listing the claimant must have: > Esophageal varices with documents indicating massive hemorrhage; OR > Performance of a shunt operation for esophageal varices; OR > Serum total bilirubin of 2.5 mg or greater that persists on repeated > examinations for at least five months; OR > Ascites, recurrent for at least 5 months demonstrated by abdominal > paracentesis; OR > Hepatic encephalopathy; OR > Confirmation of chronic liver disease by liver biopsy. > > Here's the social security website. > http://www.ssa. gov/dibplan/ dqualify5. htm > > > ____________ _________ _________ _________ _________ __ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 Having fun, huh? Jan H > > Wwoooo weeee , we got us another cirrhosis support shindig agoin on!! > wwooo hooo! > > Re: Re: SSDI > > Another outrageous thing connected with my denial. I cannot get copies of > > the reports sent by the doctors they sent me to because they paid for > > them. Jan H > > > > > > > > I've been reading these posts and I pray that this is not always the > > > case! I can't believe someone had to wait for, and I qoute " Esophageal > > > varices with documents indicating massive hemorrhage " is outrageous! Do > you > > > know you can die from one single hemorrhage? Why wait until then? I > cannot > > > believe our government paperwork is so dumbfounded to wait until you are > a > > > candidate for the emergency room or ICU or death before you can apply > for > > > disability. > > > I would bet, that this goes from region to region and there are probably > > > many inconsistencies. > > > I'm going to visit my local SSN office next week. And pull their > > > Regulations and read them. No one with a terminal illness should have to > > > prove they are bleeding to get benefits! I am outraged! > > > > > > MaC > > > P.S., > > > I will see if one of the SSA workers will want to join to set things > > > straight or help us fill out paperwork. > > > > > > MsTigerHawk <tigerhawksoars@ yahoo.com <tigerhawksoars% 40yahoo.com> > > wrote: > > > I've heard that they have to approve you the first time if you have > > > documented proof that you have a disease or sickness that is on their > list. > > > > > > For cirrhosis: > > > For this condition to be severe enough to meet the Social Security > > > Administration' s listing the claimant must have: > > > Esophageal varices with documents indicating massive hemorrhage; OR > > > Performance of a shunt operation for esophageal varices; OR > > > Serum total bilirubin of 2.5 mg or greater that persists on repeated > > > examinations for at least five months; OR > > > Ascites, recurrent for at least 5 months demonstrated by abdominal > > > paracentesis; OR > > > Hepatic encephalopathy; OR > > > Confirmation of chronic liver disease by liver biopsy. > > > > > > Here's the social security website. > > > http://www.ssa. gov/dibplan/ dqualify5. htm > > > > > > > > > ____________ _________ _________ _________ _________ __ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 ??? They can't resend them? or they just won't send them to you? I had two years of medical records of my wife sent to me at .25cts a page sent for free because the records sections lost track of my request. MaC P.S. The squeaky wheel gets the oil! I'm interested, why do you call it " your denial. " ? Jan Holman wrote: Another outrageous thing connected with my denial. I cannot get copies of the reports sent by the doctors they sent me to because they paid for them. Jan H __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 Why, yes, maam, I kinda am, thank you. Re: Re: SSDI > > Another outrageous thing connected with my denial. I cannot get copies of > > the reports sent by the doctors they sent me to because they paid for > > them. Jan H > > > > > > > > I've been reading these posts and I pray that this is not always the > > > case! I can't believe someone had to wait for, and I qoute " Esophageal > > > varices with documents indicating massive hemorrhage " is outrageous! Do > you > > > know you can die from one single hemorrhage? Why wait until then? I > cannot > > > believe our government paperwork is so dumbfounded to wait until you are > a > > > candidate for the emergency room or ICU or death before you can apply > for > > > disability. > > > I would bet, that this goes from region to region and there are probably > > > many inconsistencies. > > > I'm going to visit my local SSN office next week. And pull their > > > Regulations and read them. No one with a terminal illness should have to > > > prove they are bleeding to get benefits! I am outraged! > > > > > > MaC > > > P.S., > > > I will see if one of the SSA workers will want to join to set things > > > straight or help us fill out paperwork. > > > > > > MsTigerHawk <tigerhawksoars@ yahoo.com <tigerhawksoars% 40yahoo.com> > > wrote: > > > I've heard that they have to approve you the first time if you have > > > documented proof that you have a disease or sickness that is on their > list. > > > > > > For cirrhosis: > > > For this condition to be severe enough to meet the Social Security > > > Administration' s listing the claimant must have: > > > Esophageal varices with documents indicating massive hemorrhage; OR > > > Performance of a shunt operation for esophageal varices; OR > > > Serum total bilirubin of 2.5 mg or greater that persists on repeated > > > examinations for at least five months; OR > > > Ascites, recurrent for at least 5 months demonstrated by abdominal > > > paracentesis; OR > > > Hepatic encephalopathy; OR > > > Confirmation of chronic liver disease by liver biopsy. > > > > > > Here's the social security website. > > > http://www.ssa. gov/dibplan/ dqualify5. htm > > > > > > > > > ____________ _________ _________ _________ _________ __ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 SS is not adhereing to their website policy - I can promise you that. I do agree that if you turn the average joe down a time or two the odds are they won't pursue it - don't know how to pursue, can't afford to pursue it, don't feel well enough to pursue it, are scared to pursue and a few weren't legitimate to begin with. What a disgusting and dishonerable way of doing business though - didn't the Courts find against a few insurance companies for that type of practice ? One of the biggest debilitating factors of cirhosis is fatigue and memory problems to me, which they want to ignore. How can they do this when they pay disability on Chronic Fatigue Syndrome alone ? Probably because it is a largely intangible problem that they can use as an easy way out. I can see that the government doesn't want to pursue a policy of reasonableness, common sense and fairness - because when social security runs out of money they are in big deep trouble for their mismanagement, if not fraudulent and illegal use of funds that were never ever supposed to have been touched for anything but social security. That was the rules when social security was set up. No you cannot trust your government in this so lets hope they start allowing people to opt for investing the ss money they pay into optional investment funds. I suspect the people will have more $ returned for their investment, it must be at least as safe, and it will force the government agency to compete or disappear. I was interviewed ( tested ) by a physichiatrist or physchologist, don't know which. He noted at the end of our very intense session consisting largely of math of about 1 1/2 hours that I was exhausted and was making significant mistakes. Why would they test me for mathematical skills - I have an illness ? Has anyone else had to do this ? Yet recommended that I go back to work in my former occupation as a loan officer, an occupation I left in 1995 in an industry that has significantly changed since then. What a numb nut suggestion. Do you know anyone that wants to invest in a loan officer that is good for about 1- 2 hours a day, maybe 3 if we're lucky, and will make your health insurance rates skyrocket for the group overall ? Plus giving significant time off for just being ill or being at the doctors ( a day long trip). Oh, and excuse me customer, my nose is bleeding again - geez the way my nose bleeds the customers would think their loan officers snort buckets of cocaine And what was that loan you requested, I can't remember how much $ you wanted, or for how long, or what the collateral was going to be, or was the customer before you or after you...... and by the why, what the heck is your name again ? Could you just come back tomorrow and I'll look all this up - that is if I remembered to write and down - I'm just really nausious today. LOL. What he failed to note was that in order to do my best I took about a 2 hour nap before the session and about a 3 hour nap afterwards because I was completely wiped out. That I began making significant mathematical mistakes as the session continued and spent probably 50% of the time with my head held in my hands trying to dig out the information that I knew I knew but couldn't retrieve. That I got lost in a small building I knew well and could not find where he was located for about 20 minutes. ( How embarrassing - it felt sort of like being Alice in Wonderland and I was beginning to panic. ). I honestly feel like I would have had my disability then if I had not have had the education I have. If I had not been able to to complete much of what I did because I didn't know how I would have been better off than having great difficulty completing what once came easy to me. They seemed to blow off the fact that I could not remember or retrieve information anywhere near my former rate which to me indicates significant problems i.e. my brain is in a fog !. Rather they were much more influenced by the fact that I had information and abilities that others did not and never had. That is in a sense reverse discrimination isn't it ? We appealed to the Administrative Law Judge - this was acknowledged immediately. Yet no date has even been set. That appeal was requested early Spring 07. I get a letter from my local congressman about once a month telling me nothing has happened with my case. What an AMAZING GRASP OF THE OBVIOUS thank you, and my taxes pay for this letter ? When I asked them how they could help me, they said, at the least they could speed up the process . REALLY ?! Speed it up before I die or afterwards ? Does this get them out of paying the back pay ? I know one thing, it will be in my will shortly that this back pay be pursued for my children if I never get it - it is still owed and that medicare should be pursued to pick up some of the medical expenses. I'll just set my creditors on them You generally hear about how people evade taxes. I wish someone would write on how people pay taxes. I never received any type of government benefit or welfare in my life. I asked once for my son to be in a special school program when I was a single mom with no child support but I made $20 or something like that too much money monthly. I put myself through college working as a cocktail waitress/bartender. My father made good money all of his adult life and never drew SS but a year. He was awarded partial disability after WWII for injuries but refused it, believing it was part of your duty to your country. When he was ill and dying he asked could he draw that $ ( not asking for backpay) but they refused. So he gave the government his service for WWII and gave them back his partial disability for another 50 years, along with paying a mega mega amount of personal taxes over the years and they didn't think that was a good enough deal to begin a small payment monthly for a year or so till he died. He was proud to be an American. My mother died at age 38 and that is more SS they kept that she worked and earned. Where does this money go ? My father refused the benefits for us kids back then from her death. My xhusband and I had a financially successful business for many years and paid more taxes, hundreds of thousands of dollars of personal and corporate taxes. We did not look for namby pamby tax shelters - we just paid the taxes and went forward with life. I am like others - I have just about gone through my divorce settlement and am now requesting the last of retirement savings, which won't last me long. I am moving to the country, which I am thrilled about, but part of that is to enable me to be able to raise our own food so that my kids and I will be able to make it. I working on maxing out my credit card. Mostly I just try not to think about it. Sorry for the soapbox. Re: Re: SSDI I've heard that they have to approve you the first time if you have documented proof that you have a disease or sickness that is on their list. For cirrhosis: For this condition to be severe enough to meet the Social Security Administration's listing the claimant must have: Esophageal varices with documents indicating massive hemorrhage; OR Performance of a shunt operation for esophageal varices; OR Serum total bilirubin of 2.5 mg or greater that persists on repeated examinations for at least five months; OR Ascites, recurrent for at least 5 months demonstrated by abdominal paracentesis; OR Hepatic encephalopathy; OR Confirmation of chronic liver disease by liver biopsy. Here's the social security website. http://www.ssa.gov/dibplan/dqualify5.htm Is your condition " severe " ? Your condition must interfere with basic work-related activities for your claim to be considered. If it does not, we will find that you are not disabled. If your condition does interfere with basic work-related activities, we go to Step 3. List of disabilities. http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm Colleen Jan Holman wrote: I hope SSDI and SSI don't have spies here to see what I am about to say. It has been said to me that it doesn't matter how sick you are, only about 20% of applicants are approved the first time. And of the remaining 80%, only 20% are approved the second time, the first appeal hearing. It is their way of keeping down the costs. If they tell you you aren't sick enough, maybe you won't appeal, and they won't have to pay you. And, many people do not appeal. I would be interested in finding out how many people are actually approved who have appealed twice and reached the third stage. I would imagine it is rather high. I just hope you find out in time to be able to keep your house Bob. It took 6 months for them to deny me. Jan H > > No IT ISN'T hopeless !! I have fibromyalgia, there are NO TESTS to prove > it. Just my word & my docs words. I WON!!! > The ' impartial' SSDI doc wouldnt even say the dreaded FIBROMYALGIA word, > my lawyer tried to make him LOL! > I WON! > DONT GIVE UP HOPE, KEEP TRYING!! You all have test reports & PROOF that > your sick! > love > tilly > > fcpfirefly > wrote: > My god!!!!! it's hopeless.. > > > > > > > > > > > > > Today is the first time I had to take off from work because I > > > > am > > > > > > > > > > just > > > > > > > > > > > too exhausted to concentrate or make my appearances in court. > > > > > > > > > > > > > > > > > > > > > > I was back in court the day after I got out of the hospital (8 > > > > > > > > > > pints of > > > > > > > > > > > blood had to be transfused) and, yet, the only strenuous thing > I > > > > > > > > > > did > > > > > > > > > > > this week was a two-day trial on Monday and Tuesday. > > > > > > > > > > > > > > > > > > > > > > The part of end stage cirrhosis (aside from the affects on > > > > family) > > > > > > > > > > that > > > > > > > > > > > I hate most, is; that I can now feel each step downhill in my > > > > > > > > > > health. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > > > > web address: > > > > > > > > > > > http://groups. yahoo.com/ group/livercirrh osissupport/ > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 It is outrageous Mac. You help and interpretation would be greatly appreciated too, as I am sure by this point I am so thoroughly p. o.'d I cannot look at any of it with calmness or rationality. Re: Re: SSDI I've been reading these posts and I pray that this is not always the case! I can't believe someone had to wait for, and I qoute " Esophageal varices with documents indicating massive hemorrhage " is outrageous! Do you know you can die from one single hemorrhage? Why wait until then? I cannot believe our government paperwork is so dumbfounded to wait until you are a candidate for the emergency room or ICU or death before you can apply for disability. I would bet, that this goes from region to region and there are probably many inconsistencies. I'm going to visit my local SSN office next week. And pull their Regulations and read them. No one with a terminal illness should have to prove they are bleeding to get benefits! I am outraged! MaC P.S., I will see if one of the SSA workers will want to join to set things straight or help us fill out paperwork. MsTigerHawk wrote: I've heard that they have to approve you the first time if you have documented proof that you have a disease or sickness that is on their list. For cirrhosis: For this condition to be severe enough to meet the Social Security Administration's listing the claimant must have: Esophageal varices with documents indicating massive hemorrhage; OR Performance of a shunt operation for esophageal varices; OR Serum total bilirubin of 2.5 mg or greater that persists on repeated examinations for at least five months; OR Ascites, recurrent for at least 5 months demonstrated by abdominal paracentesis; OR Hepatic encephalopathy; OR Confirmation of chronic liver disease by liver biopsy. Here's the social security website. http://www.ssa.gov/dibplan/dqualify5.htm __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Probably a whole lot Bob. That is why I want mine pursued " post-mortem " - would that be the word ? Re: Re: SSDI I hope SSDI and SSI don't have spies here to see what I am about to say. It has been said to me that it doesn't matter how sick you are, only about 20% of applicants are approved the first time. And of the remaining 80%, only 20% are approved the second time, the first appeal hearing. It is their way of keeping down the costs. If they tell you you aren't sick enough, maybe you won't appeal, and they won't have to pay you. And, many people do not appeal. I would be interested in finding out how many people are actually approved who have appealed twice and reached the third stage. I would imagine it is rather high. I just hope you find out in time to be able to keep your house Bob. It took 6 months for them to deny me. Jan H On 11/3/07, Murch <TWITTprodigy (DOT) net> wrote: > > No IT ISN'T hopeless !! I have fibromyalgia, there are NO TESTS to prove > it. Just my word & my docs words. I WON!!! > The ' impartial' SSDI doc wouldnt even say the dreaded FIBROMYALGIA word, > my lawyer tried to make him LOL! > I WON! > DONT GIVE UP HOPE, KEEP TRYING!! You all have test reports & PROOF that > your sick! > love > tilly > > fcpfirefly <fcpfireflyyahoo (DOT) com <fcpfirefly% 40yahoo.com> > wrote: > My god!!!!! it's hopeless.. > > > > > > > > > > > > > Today is the first time I had to take off from work because I > > > > am > > > > > > > > > > just > > > > > > > > > > > too exhausted to concentrate or make my appearances in court. > > > > > > > > > > > > > > > > > > > > > > I was back in court the day after I got out of the hospital (8 > > > > > > > > > > pints of > > > > > > > > > > > blood had to be transfused) and, yet, the only strenuous thing > I > > > > > > > > > > did > > > > > > > > > > > this week was a two-day trial on Monday and Tuesday. > > > > > > > > > > > > > > > > > > > > > > The part of end stage cirrhosis (aside from the affects on > > > > family) > > > > > > > > > > that > > > > > > > > > > > I hate most, is; that I can now feel each step downhill in my > > > > > > > > > > health. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > > > > web address: > > > > > > > > > > > http://groups. yahoo.com/ group/livercirrh osissupport/ > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Gets the blood flowing to the brain anyway . Watch out - don't burst a varicies ....... ROTFL !!! Course if it does, then you can write SSDI a letter thanking them for paving your way to approval ......... Re: Re: SSDI > > Another outrageous thing connected with my denial. I cannot get copies of > > the reports sent by the doctors they sent me to because they paid for > > them. Jan H > > > > > > > > I've been reading these posts and I pray that this is not always the > > > case! I can't believe someone had to wait for, and I qoute " Esophageal > > > varices with documents indicating massive hemorrhage " is outrageous! Do > you > > > know you can die from one single hemorrhage? Why wait until then? I > cannot > > > believe our government paperwork is so dumbfounded to wait until you are > a > > > candidate for the emergency room or ICU or death before you can apply > for > > > disability. > > > I would bet, that this goes from region to region and there are probably > > > many inconsistencies. > > > I'm going to visit my local SSN office next week. And pull their > > > Regulations and read them. No one with a terminal illness should have to > > > prove they are bleeding to get benefits! I am outraged! > > > > > > MaC > > > P.S., > > > I will see if one of the SSA workers will want to join to set things > > > straight or help us fill out paperwork. > > > > > > MsTigerHawk <tigerhawksoars@ yahoo.com <tigerhawksoars% 40yahoo.com> > > wrote: > > > I've heard that they have to approve you the first time if you have > > > documented proof that you have a disease or sickness that is on their > list. > > > > > > For cirrhosis: > > > For this condition to be severe enough to meet the Social Security > > > Administration' s listing the claimant must have: > > > Esophageal varices with documents indicating massive hemorrhage; OR > > > Performance of a shunt operation for esophageal varices; OR > > > Serum total bilirubin of 2.5 mg or greater that persists on repeated > > > examinations for at least five months; OR > > > Ascites, recurrent for at least 5 months demonstrated by abdominal > > > paracentesis; OR > > > Hepatic encephalopathy; OR > > > Confirmation of chronic liver disease by liver biopsy. > > > > > > Here's the social security website. > > > http://www.ssa. gov/dibplan/ dqualify5. htm > > > > > > > > > ____________ _________ _________ _________ _________ __ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 I am not sure what you are exactly referring to, but I call it my denial, because I was denied SSI on the basis of their feeling that I could make a living at data entry. Of course, there is no job available here in data entry, and I don't know how long anyone would employ me when I can't use my hands very long because of the neuropathy, and I can't look at a computer screen very long because almost all my medications bother my eyes. And I can't sit here for very long at a time either. But I did do data entry when I first moved west, in California, but I didn't do it very well. I asked someone why they don't check to make sure the job exists before they tell you to do it. I was told it didn't matter if it wasn't available here, if there was such a job anywhere in the US, then I was expected to apply for it. Of course, most people who apply for disability don't have the money to move anywhere, but that doesn't matter. To say nothing about the strength to move. I am having trouble lifting the sewing machine from a chair to the table. But I can move. The US is a mobile society. Sorry, not my best day, didn't get much sleep last night. Jan H > > ??? > They can't resend them? or they just won't send them to you? > I had two years of medical records of my wife sent to me at .25cts a page > sent for free because the records sections lost track of my request. > > MaC > > P.S. The squeaky wheel gets the oil! > > I'm interested, why do you call it " your denial. " ? > > Jan Holman <janholman@... <janholman%40gmail.com>> wrote: Another > outrageous thing connected with my denial. I cannot get copies of > the reports sent by the doctors they sent me to because they paid for > them. Jan H > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Jan everytime you see your doctor, get a copy of their notes and any tests results. Also ask for copies of any scans or xrays at the time they are performed. I always do this and sometimes it raises eyebrows at the doctors offices, etc, but better eyebrows than not having your own set of records. Remember these are your records and you are entitled to them. God bless, Debra > > I've heard that they have to approve you the first time if you have > > documented proof that you have a disease or sickness that is on their list. > > > > For cirrhosis: > > For this condition to be severe enough to meet the Social Security > > Administration's listing the claimant must have: > > Esophageal varices with documents indicating massive hemorrhage; OR > > Performance of a shunt operation for esophageal varices; OR > > Serum total bilirubin of 2.5 mg or greater that persists on repeated > > examinations for at least five months; OR > > Ascites, recurrent for at least 5 months demonstrated by abdominal > > paracentesis; OR > > Hepatic encephalopathy; OR > > Confirmation of chronic liver disease by liver biopsy. > > > > Here's the social security website. > > http://www.ssa.gov/dibplan/dqualify5.htm > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 " I've heard that they have to approve you the first time if you have documented proof that you have a disease or sickness that is on their list. " Only if it prevents you from doing " some sort of substantial " work. They claimed his cirrhosis was stable, diabetes under control with medication, cancer had been treated, and was currently not known to be metastatic. Also, a lot of it depends on the case worker you get! Just luck! <<<If your condition does interfere with basic work-related activities, we go to Step 3. In the end though it all boils down to: even if you are found to be unable to perform your former job, can you adapt to other kinds of work? And let's face it, a Wal Mart greeter can be pretty infirm and still perform their job. SSDI does not care if you were making $50,000.00 a year, and you will be going to $7.00 an hour...it is still work. had varicies, but not bad enough to band, no ascites, but he had chronic liver disease not by biopsy, but by surgical exploration the and surgeon actually handling his liver. In addition he had Hep C, AND colon cancer, (discovered at the same time) stage III, and both the interferon treatments and the Xeloda to help clear up either one made him so sick he spent most of his time in bed. He ALSO has Type II diabetes, and documented depression and anxiety and had been hopitalized within the past year for suicidal ideations. His cancer surgery had rendered him with bowel incontinence if he was more that 3 seconds away from a bathroom..when he had to go, he had to go..right then. Yet, he passed all the qualifications down to the fifth...can you adjust to other work and they said yes he can. I suggested that there weren't many jobs that let you sit right next to the toilet, and allowed you to go anytime and as often as needed, or else poop in his Depends, and they stuck to their guns. Until we hired the lawyer, and we ended up not even having to appear before the judge. He looked over the paperwork and said they had made mistakes at the previous levels and should have been approved When listing your symptoms, don't lie, but exaggerate somewhat...if your condition has EVER caused you to get only 2 or 3 hour asleep at night, put that down, even if it doesn't happen every week. A friend on another mailing list sent me the following advice: " And no matter how friendly anyone from the SSA seems, remember these people are charged with eliminating people from the SSA rolls: Never concede that maybe he can work a little. He can't. Be detailed, thorough, give them everything they ask for and MORE. And, remember always, these people are NOT YOUR FRIENDS. I got SSDI. I did not lie or exaggerate but I remembered that whatever I said, they would sort of " cut in half. " Meaning, if I said I had insomnia six nights a week, they would figure I had insomnia three nights. Be careful about this. You need be very clear on the forms how sick your husband is. They will not give him the benefit of doubt, etc. Hope this helps... Also make sure ALL your doctors have sent in your medical charts...'s oncologist helped him as much as anything, because he wrote them a letter explaining 's situation. (the lawyer didn't hurt though.) If your case seems to hit a snag, write to your local Congressman and tell them about the hold up. They can usually help speed things up. Also CALL,, CALL, let them know you are NOT going to roll over and give up! Re: Re: SSDI I've heard that they have to approve you the first time if you have documented proof that you have a disease or sickness that is on their list. For cirrhosis: For this condition to be severe enough to meet the Social Security Administration's listing the claimant must have: Esophageal varices with documents indicating massive hemorrhage; OR Performance of a shunt operation for esophageal varices; OR Serum total bilirubin of 2.5 mg or greater that persists on repeated examinations for at least five months; OR Ascites, recurrent for at least 5 months demonstrated by abdominal paracentesis; OR Hepatic encephalopathy; OR Confirmation of chronic liver disease by liver biopsy. Here's the social security website. http://www.ssa.gov/dibplan/dqualify5.htm Is your condition " severe " ? Your condition must interfere with basic work-related activities for your claim to be considered. If it does not, we will find that you are not disabled. If your condition does interfere with basic work-related activities, we go to Step 3. List of disabilities. http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm Colleen Jan Holman wrote: I hope SSDI and SSI don't have spies here to see what I am about to say. It has been said to me that it doesn't matter how sick you are, only about 20% of applicants are approved the first time. And of the remaining 80%, only 20% are approved the second time, the first appeal hearing. It is their way of keeping down the costs. If they tell you you aren't sick enough, maybe you won't appeal, and they won't have to pay you. And, many people do not appeal. I would be interested in finding out how many people are actually approved who have appealed twice and reached the third stage. I would imagine it is rather high. I just hope you find out in time to be able to keep your house Bob. It took 6 months for them to deny me. Jan H > > No IT ISN'T hopeless !! I have fibromyalgia, there are NO TESTS to prove > it. Just my word & my docs words. I WON!!! > The ' impartial' SSDI doc wouldnt even say the dreaded FIBROMYALGIA word, > my lawyer tried to make him LOL! > I WON! > DONT GIVE UP HOPE, KEEP TRYING!! You all have test reports & PROOF that > your sick! > love > tilly > > fcpfirefly > wrote: > My god!!!!! it's hopeless.. > > > > > > > > > > > > > Today is the first time I had to take off from work because I > > > > am > > > > > > > > > > just > > > > > > > > > > > too exhausted to concentrate or make my appearances in court. > > > > > > > > > > > > > > > > > > > > > > I was back in court the day after I got out of the hospital (8 > > > > > > > > > > pints of > > > > > > > > > > > blood had to be transfused) and, yet, the only strenuous thing > I > > > > > > > > > > did > > > > > > > > > > > this week was a two-day trial on Monday and Tuesday. > > > > > > > > > > > > > > > > > > > > > > The part of end stage cirrhosis (aside from the affects on > > > > family) > > > > > > > > > > that > > > > > > > > > > > I hate most, is; that I can now feel each step downhill in my > > > > > > > > > > health. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > > > > web address: > > > > > > > > > > > http://groups. yahoo.com/ group/livercirrh osissupport/ > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 , you never have to apologize about the soapbox. Not after my famous " potty chair rant " of last spring. This group got deadly quiet for weeks after that. I am also so riled up about this, and i didn't even get turned down yet. My meeting was also with a psychologist. She wanted to spend some time talking to both me and Sharon about what life was like now, and what it had been like before I got sick. We spent so mush time giving her our sob story there was very little time to complete the math part. She gave me three words to remember. Then she asked me to start at 100 and count backward by sevens. I got the first number wrong, and then could not do it. Then she asked all kinds of questions about who was the president, vice president, date, time, bla, bla and then asked what the three words were. Sharon says I got two of them wrong. Sharon also says that she would ask a specific question, and I would start to answer, but ramble into a different subject, and wander off in the conversation, which is just , I think , normal, or it is what all my friends and family complain about. So, she either thinks I was just faking it all, (and maybe I faked my biopsy too, and the hepatologists notes which say " complicated by hepatic encephalopathy " ) or she believes that life as I knew it is over, and I live in a foggy hell, the good days only the product of much pooping, and to tell you the truth, i wont be suprised if she says in her report that I'm perfectly able to work. If they did it to , then you never know. I share your frustration, . I'm am sorry. Maybe you will get a liver when the time comes. Maybe you got the short end here and now, but it will somehow be made up to you. You are deserving. This just all sucks. Re: Re: SSDI I've heard that they have to approve you the first time if you have documented proof that you have a disease or sickness that is on their list. For cirrhosis: For this condition to be severe enough to meet the Social Security Administration' s listing the claimant must have: Esophageal varices with documents indicating massive hemorrhage; OR Performance of a shunt operation for esophageal varices; OR Serum total bilirubin of 2.5 mg or greater that persists on repeated examinations for at least five months; OR Ascites, recurrent for at least 5 months demonstrated by abdominal paracentesis; OR Hepatic encephalopathy; OR Confirmation of chronic liver disease by liver biopsy. Here's the social security website. http://www.ssa. gov/dibplan/ dqualify5. htm Is your condition " severe " ? Your condition must interfere with basic work-related activities for your claim to be considered. If it does not, we will find that you are not disabled. If your condition does interfere with basic work-related activities, we go to Step 3. List of disabilities. http://www.ssa. gov/disability/ professionals/ bluebook/ AdultListings. htm Colleen Jan Holman <janholmangmail (DOT) com> wrote: I hope SSDI and SSI don't have spies here to see what I am about to say. It has been said to me that it doesn't matter how sick you are, only about 20% of applicants are approved the first time. And of the remaining 80%, only 20% are approved the second time, the first appeal hearing. It is their way of keeping down the costs. If they tell you you aren't sick enough, maybe you won't appeal, and they won't have to pay you. And, many people do not appeal. I would be interested in finding out how many people are actually approved who have appealed twice and reached the third stage. I would imagine it is rather high. I just hope you find out in time to be able to keep your house Bob. It took 6 months for them to deny me. Jan H > > No IT ISN'T hopeless !! I have fibromyalgia, there are NO TESTS to prove > it. Just my word & my docs words. I WON!!! > The ' impartial' SSDI doc wouldnt even say the dreaded FIBROMYALGIA word, > my lawyer tried to make him LOL! > I WON! > DONT GIVE UP HOPE, KEEP TRYING!! You all have test reports & PROOF that > your sick! > love > tilly > > fcpfirefly > wrote: > My god!!!!! it's hopeless.. > > > > > > > > > > > > > Today is the first time I had to take off from work because I > > > > am > > > > > > > > > > just > > > > > > > > > > > too exhausted to concentrate or make my appearances in court. > > > > > > > > > > > > > > > > > > > > > > I was back in court the day after I got out of the hospital (8 > > > > > > > > > > pints of > > > > > > > > > > > blood had to be transfused) and, yet, the only strenuous thing > I > > > > > > > > > > did > > > > > > > > > > > this week was a two-day trial on Monday and Tuesday. > > > > > > > > > > > > > > > > > > > > > > The part of end stage cirrhosis (aside from the affects on > > > > family) > > > > > > > > > > that > > > > > > > > > > > I hate most, is; that I can now feel each step downhill in my > > > > > > > > > > health. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > > > > web address: > > > > > > > > > > > http://groups. yahoo.com/ group/livercirrh osissupport/ > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Thanks for the empathy Bob. It is what stands out about you - your ability to understand what others go through and unselfish way of comforting them, when you have your own things to deal with. You're not afraid to address another person's pain or frustration or to become a part of it - I bet it 's why you used to drink too ? It's also why you have friends. I think I tend to stay away from it. Old survival habit but it does not require the courage you have to feel. But don't worry about me - the best thing I can do is get mad. It takes a long time for that to happen because I prefer my happy pursuit of live and let live.... but once I get mad and give up on this hurry up and wait game, I generally can make things happen too. If there is any characteristic that stands out about my life it is that I am a survivor. I don't even know how to think any other way. I came from a harsh environment in some ways - not for lack of money, but maybe more just old-time, pioneering, protestant, scot-irish thought processes. I asked my Dad once why he never helped me with school or anything else. I mean the other 5 kids - some got a new car, some got at least some school paid for, one got apartment paid for, car and school, one even got to wear and own a , at that time very fashionable rabbit coat, along with a camaro and school - her mom was in Goood. Some of it depended on who was your mother, to which he would not admit but it was pretty clear to see. I got nothing. Really, I mean nothing. I didn't really care at the time, as long as I didn't have to be subjected to their rules and such. I asked my Dad several years later - why ? Very simple answer - you were the kid who could get it on your own. No one else could. In a strange way that was meant as a compliment, believe it or not. It also made me self-reliant and probably a little weird and it is why I will have my liver and I will have my disability. lol. If there is any way possible I will have my disability and I will have a new liver when it is time. I don't really even doubt that, I just don't know when it will happen. The doctors I have spoken with about a new liver speak in a positive way about my chances of getting a liver. I am apparently a good candidate for successful transplant. I know that is not a guarentee but if I there is a liver for me when mine no longer functions well enough for me to live I plan on getting it. However I do believe there is still the possibility of making this liver last a good while if I can eliminate most of the stress, toxins that float around everywhere and pursue a good healthly lifestyle with open air and healthy food. Which leads to another important question ? WHAT IS THE OFFICIAL PURPOSE OF DISABILITY ? Does anyone know ? Is it so that you can eat before you die or is it so that you can live a little longer before you die ? That is something I've been meaning to investigate - which way their official rhetoric goes in support of ? Right now it looks like, if you've got to have internal bleeding first it supports a) eating before you die. Yet if you can get disability for chronic fatigue one would think the answer would be live a little longer or even c) simply difficulty working. I know a woman who had a heart attack. Applied for disability and was turned down. Got a lawyer and got disability. She gets to avoid having another heart attack but we have to bleed out before we get to try to live a little longer ?? I know another with seizures/epilepsy. She's pretty much ok as long as she is not having a seizure. She had no problem getting approved. They can't be inconsistent with it and I believe that they probably are. I would think their policies must apply equally to everyone and across the board on all diseases. Yet I wonder if they are giving cirhosis people a difficult time because they are considered terminal ??? And expensive if they get a liver transplant. Maybe the policies are harder for what is going to put medicare costs further in the hole ? And we are more likely to simply " go away " ?? I told the woman who is supposed to be my advocate - at this point if I got in front of a judge or anyone for that matter I was quite likely to lose my manners, blow a gasket and lay into them. She said go right ahead - it is often the most effective thing. She's a former SS employee. Re: Re: SSDI I've heard that they have to approve you the first time if you have documented proof that you have a disease or sickness that is on their list. For cirrhosis: For this condition to be severe enough to meet the Social Security Administration' s listing the claimant must have: Esophageal varices with documents indicating massive hemorrhage; OR Performance of a shunt operation for esophageal varices; OR Serum total bilirubin of 2.5 mg or greater that persists on repeated examinations for at least five months; OR Ascites, recurrent for at least 5 months demonstrated by abdominal paracentesis; OR Hepatic encephalopathy; OR Confirmation of chronic liver disease by liver biopsy. Here's the social security website. http://www.ssa. gov/dibplan/ dqualify5. htm Is your condition " severe " ? Your condition must interfere with basic work-related activities for your claim to be considered. If it does not, we will find that you are not disabled. If your condition does interfere with basic work-related activities, we go to Step 3. List of disabilities. http://www.ssa. gov/disability/ professionals/ bluebook/ AdultListings. htm Colleen Jan Holman <janholmangmail (DOT) com> wrote: I hope SSDI and SSI don't have spies here to see what I am about to say. It has been said to me that it doesn't matter how sick you are, only about 20% of applicants are approved the first time. And of the remaining 80%, only 20% are approved the second time, the first appeal hearing. It is their way of keeping down the costs. If they tell you you aren't sick enough, maybe you won't appeal, and they won't have to pay you. And, many people do not appeal. I would be interested in finding out how many people are actually approved who have appealed twice and reached the third stage. I would imagine it is rather high. I just hope you find out in time to be able to keep your house Bob. It took 6 months for them to deny me. Jan H > > No IT ISN'T hopeless !! I have fibromyalgia, there are NO TESTS to prove > it. Just my word & my docs words. I WON!!! > The ' impartial' SSDI doc wouldnt even say the dreaded FIBROMYALGIA word, > my lawyer tried to make him LOL! > I WON! > DONT GIVE UP HOPE, KEEP TRYING!! You all have test reports & PROOF that > your sick! > love > tilly > > fcpfirefly > wrote: > My god!!!!! it's hopeless.. > > > > > > > > > > > > > Today is the first time I had to take off from work because I > > > > am > > > > > > > > > > just > > > > > > > > > > > too exhausted to concentrate or make my appearances in court. > > > > > > > > > > > > > > > > > > > > > > I was back in court the day after I got out of the hospital (8 > > > > > > > > > > pints of > > > > > > > > > > > blood had to be transfused) and, yet, the only strenuous thing > I > > > > > > > > > > did > > > > > > > > > > > this week was a two-day trial on Monday and Tuesday. > > > > > > > > > > > > > > > > > > > > > > The part of end stage cirrhosis (aside from the affects on > > > > family) > > > > > > > > > > that > > > > > > > > > > > I hate most, is; that I can now feel each step downhill in my > > > > > > > > > > health. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > > > > web address: > > > > > > > > > > > http://groups. yahoo.com/ group/livercirrh osissupport/ > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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