Re: Has anyone found a doctor that believes in this?

[Guest guest]

Agree. If he wants to do serious research with SPECT scan to test our

neurotrasmission/receptors levels (today it is possible) and genetics studies i

am with him. Otherwise it is just a lost of time, the problem is in CNS.

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[Guest guest]

ok but he needs 100 humans and i dont know so much overhere

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[Guest guest]

I repeat, mate, we can get 100 people from yahoo group (with vornan helping) and

paxil progress. The point is: with the real support of that professor we can

give us an hope but he can't kidding ourselves with unreal theories. If he want

helping us (and save me from suicide, such as i have been lost much more than

sexual fuctions) he have to understand that the heart of the problem is in the

brain. But will be hard fighting against vanity and fantasies of a medical

professor.

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[Guest guest]

I think my pudendal nerve is damaged. I don''t think my genital anesthesia is

caused by brain damage. I could be wrong.

Kay

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[Guest guest]

this is his email

dr.m.d.waldinger@...

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[Guest guest]

perhaps vorman can send him a email that if waldinger wants 100 people. he can

gets 100 people.

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[Guest guest]

I think perhaps different drugs cause different problems in different people.

We all end up with sexual dysfunction, but in some people the problem is

primarily brain-based, whereas in others it might be more nerve based? Just a

theory I'm working on.

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[Guest guest]

Is it right that marcel waldinger is working in den haag? I'm from germany and

want to meet this professor maybe, it's only 6 hours away from home...

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[Guest guest]

Hikergal, you were saying that you didn't have the kind of pain in childbirth

that you had formerly experienced after acquiring genital anesthesia. If I

could still have children, I probably wouldn't either.

In my case, I think they may have unwittingly given me a permanent epidural when

I was injected with Haldol. I am wondering, too, if the release of too much

prolactin (hyperprolactinism) may have zapped my nerves in some way (since I was

a nursing mom at the time).

Kay

In SSRIsex , " hikergal43 " wrote:

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> I think perhaps different drugs cause different problems in different people.

We all end up with sexual dysfunction, but in some people the problem is

primarily brain-based, whereas in others it might be more nerve based? Just a

theory I'm working on.

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[Guest guest]

yes that is right.

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[Guest guest]

, Have you ever tried cabergoline? It is a prl antagonist.

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[Guest guest]

Does anyone know if there is any study being planned for this disorder . Drug companies will fight this because if patients think they are going /or run the risk of impotence they will refuse treatment and the company sales will tank . This is an uphill battle .The best way to do it is through the FDA and get your physician to complain .Once 100 or so complain they will put it in the literature next to the contraindications so that doctors must warn you . Media exposure should help . This is difficult to do. For me Viagra helped .Put I am not totally impotent . I still take the SNRI(Clomipramine) and the Viagra seems to neutralize the impotence but can still get a erection with about 70 & of maximum penile ‘hardness” but that still takes time of the right visual imagery ( which proves at least for me that cognitive behavior therapy reduces this iatrogenic disorder ) .Depression makes whatever the drug’s input to the disorder worse than it would be without it for me at least . This seems to be a case-by-case thing and I have seen on pattern with p<0.005 yet . Anyone know more about this ? Thanks for bearing with me , From: SSRIsex [mailto:SSRIsex ] On Behalf Of survivor030406Sent: Thursday, February 17, 2011 16:48To: SSRIsex@... Subject: Re: Has anyone found a doctor that believes in this? , Have you ever tried cabergoline? It is a prl antagonist.> > > > > > >> > > > > > > Just curious??> > > > > > >> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

,

Yes, it sure certainly sounds like you would be pain free during the last part

of child birth as well. I just read where you said you have a Christian doctor

who is helping you. I hope you can get some answers and some improvements. And

I think you should write a book!!

I am so glad I didn't have any pain medication with my fourth delivery or I

wouldn't have known how numb I am. 1st and 3rd deliveries I had pudundal

blocks, but 2nd was all natural prior to getting Genital Anesthesia, and I can't

tell you how shocked (but happy!) I was when I didn't have any pain when baby

number 4 was born!!!

For me, I think the lack of pain during the actual birth but experiencing pain

of contractions is a big piece of the puzzle. I'm guessing it means my uterus

has sensation but my PC muscle doesn't.

Also makes sense for my urinary problem. I physically can not stop the flow of

urine once it starts, and I believe that is because my PC muscle is numb. I

just recently realized that my PC muscle works just fine (in that I CAN stop the

flow of urine, not in actual sensation) just after having orgasm. I may not

feel the PC muscle, but I seem to be able to control it after orgasm.

Since seeing some improvements in the last several weeks, I also am experiencing

a little bit of improvement in my ability to stop the flow of urine.

This problem started for me prior to getting genital anesthesia, I suspect after

taking the anti depressant Cymbalta, but I think the genital anesthesia made the

problem even worse.

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[Guest guest]

No, never heard of it before. Wiki says " Cabergoline (brand names Dostinex and

Cabaser) an ergot derivative, is a potent dopamine receptor agonist on D2

receptors. In vitro, rat studies show cabergoline has a direct inhibitory effect

on pituitary lactotroph (prolactin) cells. It is frequently used as a first-line

agent in the management of prolactinomas due to higher affinity for D2 receptor

sites, less severe side effects, and more convenient dosing schedule than the

older bromocriptine. " ...whatever that means.

'You think it would fix nerve damage?

I really don't want to fool around with drugs. I've been drug-free for over 27

yrs now (if you don't count the caffiene in the cup of coffee I drink in the AM

Kay

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[Guest guest]

no one willing?

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> > > > > > yes marcel waldinger, but he says it is coused bij ssri but its not

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> > > > > > Post SSRI Sexual Dysfunction and that the writing on wikipa about

Post SSRI Sexual Dysfunction is not correct.

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> > > > > > in my case his name for my case is genitale anastasia and Adonis

ejaculation coused by ssri.

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[Guest guest]

I have had 3 doctors who didn't dismiss PSSD :

1) An Endo who had been a heavy steroid uses in college (and I suspect had some

problems of his own) told me he was certain it could

happen. He helped me with the testosterone and was willing to do anything he

could, he later quit he practice to go into research.

2) A Family doc who said he didn't doubt it at all. He suscribed to the forum at

one point, and always mentions it when I saw him. He was very old and retired a

few years ago.

3) My Prolotherapy doc (if you don't know what that is look it up, but I promise

it works, it's my first line of treatment for any sports injury; elbow, wrist,

achilles, shoulder...worked everytime)anyway he didn't doubt me a bit. His reply

was " dispite what the TV ads say anytime you put a pill in your mouth you are

doing an experiment " . He then related several stories about reactions he had to

vaious medications. This doc is semi-retired and was once commander of a large

US Army hospital in Germany. He now runs a Prolotheray and PRP clinic from his

home and he is really down on the medical establishment.

I won't even get into the docs who didn't believe it was possible or told me it

was all in my head. Needless to say there are a few I would like to knock the

living fuck out of.

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not

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Post SSRI Sexual Dysfunction is not correct.

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ejaculation coused by ssri.

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[Guest guest]

So why no one is willing to contact him to? I dont get is a prof that believe

us....

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[Guest guest]

i still need more people who want to contact him...

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[Guest guest]

As I posted previously,

I am from The Netherlands too.

I contacted this professor today, made an appointment in september. Lets c what

he can tell me. I told him my problem with libido and erectyle disfuntion, As He

told me on the phone he has seen this problem before, but you told me that

aswell..

As I understood he is prescribing you requip?

its an agonist for Dopamine, which means the professor focusses on prescribing

you medication for your neurotransmittors, cq your brain.

This means he is not focussing on fixing your nerves but your brain system.

In other words, I dont know what he told you exactly,

but I do think he underlines the problem is in your brain, else he would not

prescribe you this medication,

but....perhaps I dont understand...

please mail me in dutch what this guy told you?

Sebastiaan

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[Guest guest]

I live in Boston and have seen Dr Ducharme. He works with a local prominent

Urologist -- the pre-eminent neurologist in Boston who works with sexual health.

Both the urologist and Dr Ducharme have no doubt whatsoever that my ejaculatory

anhedonia and erectile dysfunction (the latter being unresponsive to viagra,

cialis, etc) are due to previous SSRI use.

The urologist (Dr Munarriz) went so far as to say " this is classic " and

that he has " many many patients " with these problems.

I *have* encountered a fair number of psychiatrists in the area who have

dismissed my symptoms as " not because of the drugs " . One said " you've been off

your drugs for 6 months so it's out of your system " and the other said " your

sexual dysfunction is due to depression, not previous drug use " . Both were

idiots.

I have however found no fewer than three psychiatrists / MDs in the area who

believe me entirely without question. They say that this is rare (ejaculatory

anhedonia in particular is very rare) but that they've seen it, it does and can

happen, and that " when you use these drugs you're screwing around with neurology

so of course things like this can happen " .

So yeah, I've " found a doctor -- more than one doctor -- who believes in this " .

What I have *NOT* found (yet) is a solution. I cannot tolerate welbutrin -- it

makes me suicidally depressed and shoots my anxiety levels off the charts -- and

that is the " drug of choice " for counteracting SSRI-related sexual dysfunction.

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[Guest guest]

Could you please ask them to publish a scientific article about PSSD or to

mention it on their own website or to ask a collegue to do so?

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> I live in Boston and have seen Dr Ducharme. He works with a local prominent

Urologist -- the pre-eminent neurologist in Boston who works with sexual health.

>

> Both the urologist and Dr Ducharme have no doubt whatsoever that my

ejaculatory anhedonia and erectile dysfunction (the latter being unresponsive to

viagra, cialis, etc) are due to previous SSRI use.

[Guest guest]

Goodday Compatriots,

I am seeing Dr. Waldinger as well and he has prescribed Requip telling me about

another patient of his with similar problems for which this helped quite well..

Unfortunately it doesn't for me. After 3 weeks no effects so I quit.

He does not want to prescribe Clomid / Arimidex / Dostinex as he says

endocrinology is not his area.

I have purchased Clomid online and have started on 25 mg. day for 1 week now.

Still no effect though

Keep me posted on any consultations you have with Dr. Waldinger. I will see him

again in October.

Regards, Tom.

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[Guest guest]

see message #20209. I posted a link from Ducharm's website there in which he

mentions PSSD.

Flegel

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> > I live in Boston and have seen Dr Ducharme. He works with a local prominent

Urologist -- the pre-eminent neurologist in Boston who works with sexual health.

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> > Both the urologist and Dr Ducharme have no doubt whatsoever that my

ejaculatory anhedonia and erectile dysfunction (the latter being unresponsive to

viagra, cialis, etc) are due to previous SSRI use.

>

[Guest guest]

Thank you.

>

> see message #20209. I posted a link from Ducharm's website there in which he

mentions PSSD.

> Flegel