Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 Wow Lesa. I am not Stan but just wanted to say it's wonderful that you have done so much when in 1992 there wasn't much in the way of biomedical and DAN. You are an inspiration. WE have a lot here we can learn from you!!! K A 3.6 > > Hi! > > > > I was a little disappointed I hadn't heard from anyone. I was > filing my sent messages when I saw this was sent in a font almost > microscopic and totally unreadable. So, I'm sending it again. I can't > understand what happened to shrink it? Hmm! > > > > Thanks, > > Lesa Walsh > > > > _____ > > From: Lesa and Walsh > Sent: Sunday, December 03, 2006 6:35 PM > To: 'mb12 valtrex ' > Subject: Re:File - Sharing experiences using POLLS > Importance: High > Sensitivity: Personal > > > > Hi Stan, > > > > I'm relatively new to this group, but not to Autism. I didn't really want to > post this to the group just yet. I hope you can give me some guidance. Let > me say off the bat, my son, , is a walking miracle! > > > > He is at the start of the current Autism epidemic, born in May 1992. He was > pretty much, for the most part, toward the severe end of the spectrum [i.e.: > rocking, flapping, spinning, nuclear meltdowns, extreme hearing sensitivity, > very little language, couldn't comprehend a 1 step direction etc.]. > > > > In 1998, we discovered the DAN protocol [i did the 1st 2 years on my own w/ > our family GP helping where he could], IVIG and AIT and our lives changed > forever. Slowly, we started to see progress, except for the IVIG. That had a > startling impact on him and opening him up!! It seriously helped with his > wicked, wicked diarrhea. > > He was " un-testable " until 1997, and then, his IQ was [i believe] 53 verbal > and 89 performance. I think his cumulative was 71 or 72 [we moved recently, > so all the papers are packed in a box somewhere!] Anyway, I believe his IQ > jumped about 20 points in a 6-7 year period. We were told not to expect too > much improvement. > > > > Right now, he's struggling through 8th grade algebra and, a lot of the time, > he can find " x " ! He's very verbal, prior to moving, he had friends and is an > amazing, award winning artist [check out the Art of the MIND at the MIND > Institute website]. He's still GFCF, very little artificial food coloring, > low sugar, low yeast, low salicylate, low preservative diet. He's on Paxil, > Cytomel [tested + for Hashimoto's at 9!], Actos [has insulin spikes at 2 > hours], Zyrtec and the rest of the supplements from DAN. We've done another > round of IVIG from 2001/02 to 2005 [i think - he tested + for Myelin Basic > Protein antibodies], allergy sprays, L-glutathione shots, MB12 shots over > the years. > > > > still struggles with school, social skills, developmental delays, gross > motor skills and multi step directions, but at least now he can tell you, " I > missed that, I'm trying to stay focused Mom, I don't get that! " Not in my > wildest dreams, did I or my husband ever dared to hope anything close to > this. Yesterday, we went to a Challenge Air program and he flew a plane!! > > > > Anyway, he saw a DAN doc on LI from 2000 to 2005. We moved twice in 8 months > and so we are still trying to get settled after our last move in June. > has an appointment with a new DAN doctor in Jan. '07 in Ponte Vedra, FL. As > is 14.5 years old, do you think he'd benefit from some of the therapies > I've been reading about on this list over the last few weeks or so like > HBOT, Valtrex etc. Any information will better prepare me to ask questions > in Jan., so any insights would be appreciated. > > Thanks, > > Lesa > Quote Link to comment Share on other sites More sharing options...
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