Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Hi everyone,I am at my wits end and am in GREAT need of your help. I have been feeling terrible and can't function, been to many dr.'s(insurance stopped paying) and they all can't figure out what to do for me . I would sooooo greatly appreciate any advice or help you can give. Here's a history: 2005:Had ovaries removed and tried many different HRT's, they all gave me a ton of skipped heart beats, so we stopped with hrt's and haven't been on any since. 2007:Was losing hair, gained about 15 pounds, dry skin, and slower than normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic levothyroxin 1 x day, here are the Labs in 07:Cholesterol total 324 (125-200) rangeLDL 240 (0-129) rangeTPO/Anti TPO 401 (<35) rangeThyroglobulin ABS 175 (<20) rangeTSH (3rd gen) 7.23 (.40-5.5) range 2007:TSH was tested again and at 3.5 and was told I am fine. Never felt any improvements, but didn't feel worse either. 2008:Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25 more 3x week. Again, not much change, but I was bad about remembering which days to take the extra, so it most likely wasn't much of a change anway. Gained more weight (25 all together). 2009 (May ¡Vpresent):Had a terrible panic attack while driving , first one ever. Then, had another a few weeks later¡Kduring stressful times. Dr.'s told me (er docs as well as regular doc) it was anxiety related to PTSD (end of '08 and '09 personally heartbreaking and very hard for me). So I believed docs, it made sense. They tested my TSH, and again it was 3.5. They put me on Synthroid proper, and raised me to .50 1x day. Then air hunger started, followed later by dizziness, high anxiety, constipation, weight loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure to my head. I couldn't/ can't drive due to not being safe with fogginess, dizziness, more anxiety attacks. Loss of appetite, depression, tinnitus, migraines (never had before) cold hands and feet, hair loss, out of no where would feel like I had been out of my body, then back in it in a flash (very scary feeling). BP= 90/50, very very bad heart palps (skipped beats with breathlessness) especially at nights. So far I have lost 35 pounds while trying not to I look icky skinny now and am eating tons of calories to just try and maintain. Bowel movements have basically stopped (1x month if lucky). Doc's are stumped. Here are labs: JULY: TSH 4.43 (.34-4.82) range AUGUST:LH 31.8 (15.9-54) range post-menopausal FSH 82.7 (23-116) postmenopausal rangeEstrodiol 16 (0-31) range untreated postmenopausalMagnesium serum 2.1 (1.6-2.6) rangeCortisol 21.1 (4.3-22.4) A.M. range adult femaleProgesterone .7 (0-.7) range postmenopausalACTH, plasma 20 (6-48) rangeEstrogens, total 69 (<40) range postmenopausal untreatedCholesterol total 246 (100-199) rangeLDL 175 (0-99) rangeIron (TIBC) 246 (250-450)Iron UIBC 146 (150-375) rangeIron serum 100 (35-155) rangeIron Sat % 41 (15-55) rangeFerritin 259 (10-250) rangeTSH 6.690 (.45-4.5) range T4 free .94 (.93-1.71) rangeTPO AB 698 (0-35)Endo took me OFF of Synthroid saying I was showing more Hyper symptoms than Hypo, and tests show Subclinical Hypo, so it was safe he said. SEPTEMBER :Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am petite) with mild hepatocellular disease?Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling that well either). All other liver testing was fine (blood, and hepatitis, etc.) Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND, 83-93 IND IGG negative on all . Doc says not lyme, that's a false positive. OCTOBER :Feeling a bit better, worse on skipped beats, but not losing weight as fast, dizziness better, and discovered xanax for anxiety symptoms which helps some but just some.T4 free .95 (.93-1.71) rangeThyroxine T4 7.5 (4.5-12) rangeTSH 4.93 (.45-4.5) rangeTriiodothyronine T3 104 (83-200) rangeFerritin, Serum 328 (10-290) range (raised a lot in short amount of time)ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average in size displays heterogeneous echotecture with increased vascularity especially in its lower pole. No dominant nodule identified. Suspicious for Hashimoto's thyroiditis. Doctor wants me back on synthroid, but he isn't sure what to do since my TSH got lower OFF of meds and feel better than when on, and higher when we raised meds. Neither PCP or Endo will order free t3, or saliva adrenal testing. I really need to function, and so greatly miss having a life, I have people who really need me, and I need to be there for them! Any advice will help, and I promise future posts will NOT be this long ! Thank you so much,Chele Quote Link to comment Share on other sites More sharing options...
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