Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 I was taken off from work for what they thought was a seisure disorder. They found Chiairi 1 among other things(2 rutured discs, and a small menginoma (brain tumor) Went several places around here (MI) no one heard of it and if they did i got, " Oh it's not that bad " . In 2006 I found a surgeon that said that he knew about it could do the surgery and it would help. He did the surgery, said I would be good as new since it was alot worse that the MRI said.Surgeon washed his hands of me after my recivery from him. Long story short several doctors later they have all " fired " themselves as they no longer know what to do for me they suggested the Cleveland Clinic or Mayo. The last Neurologist wrote a letter to my lawyer for perm. disabilty. Any one have any advice which will be better or is there some place better. I am on limited income (2 incomes down to one). I appreciated knowing I not alone. Robin B Prairieville MI Quote Link to comment Share on other sites More sharing options...
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