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I would like to see something from your project. A standard product

that all fp doctors could use. Not feel like we are subject to

being held hostage by a vendor since it is our organization and have

the product be more of ASP to make it simpler for everybody to use.

I am sure there are many great products out there that I am not

familiar with. I use Alteer now and have used soapware. It could

not be that hard with all the money AAFP collects from us to get

this up an going. Yes a good web site but lacks the resources that

AAFP should provide such as free easily used software for medical

records etc. That is going to be the only way to standardize the

system.

> I've been lurking for a number of months but would like to

introduce

> myself. My name is Louis Spikol and I am presently working half-

time in

> a two-person office in townPennsylvania.(as part of a larger

> hospital in practice.). I'm also the new third member of the AAFP

> Center for health information technology (CHIT) and would like to

> introduce myself in this capacity also. I've been greatly

influenced by

> Gordon as well as the entire IHI philosophy and I am " a believer "

along

> with the rest of you. I'm also greatly influenced by business

concepts

> such as the Toyota production system, continuous flow, decrease

waste

> etc. and believe strongly that information technology greatly

enables

> this. In my capacity at CHIT I would like to extend an offer of

> assistance in the realm of information technology. I would highly

> recommend that if you have not been at the web site-

> www.centerforhit.org that you check it out as there is a lot of

great

> stuff there.This is a great discussion group with lots of

wonderful

> people and great ideas.

>

> regards,

>

> Lou Spikol

>

> Louis Spikol M.D.

> Senior Health Care Information Technology Consultant

> Center for Health Information Technology (CHIT)

> American Academy of Family Physicians

> lspikol@p...

> lspikol@a...

> Cell:

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Maybe the academy should not be swayed by the vendors.

Regarding cost, the costs are still quite high. This is one of the

main stumbling blocks. The low cost guys such as a amazing charts

will have a hard time jumping thru the hoops.

I do agree portability is important. I doubt with having so many

vendors out there it will get to the point of dump out of one data

set and into another without much pain or cost. There are too many

variables with all the vendors.

Brent

> > > I've been lurking for a number of months but would like to

> > introduce

> > > myself. My name is Louis Spikol and I am presently working

half-

> > time in

> > > a two-person office in townPennsylvania.(as part of a

> larger

> > > hospital in practice.). I'm also the new third member of the

> AAFP

> > > Center for health information technology (CHIT) and would like

> to

> > > introduce myself in this capacity also. I've been greatly

> > influenced by

> > > Gordon as well as the entire IHI philosophy and I am " a

> believer "

> > along

> > > with the rest of you. I'm also greatly influenced by business

> > concepts

> > > such as the Toyota production system, continuous flow,

decrease

> > waste

> > > etc. and believe strongly that information technology greatly

> > enables

> > > this. In my capacity at CHIT I would like to extend an offer

of

> > > assistance in the realm of information technology. I would

> highly

> > > recommend that if you have not been at the web site-

> > > www.centerforhit.org that you check it out as there is a lot

of

> > great

> > > stuff there.This is a great discussion group with lots of

> > wonderful

> > > people and great ideas.

> > >

> > > regards,

> > >

> > > Lou Spikol

> > >

> > > Louis Spikol M.D.

> > > Senior Health Care Information Technology Consultant

> > > Center for Health Information Technology (CHIT)

> > > American Academy of Family Physicians

> > > lspikol@p...

> > > lspikol@a...

> > > Cell:

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Well, that is our goal in spite of your doubts-to be able to dump

out a core data set from one electronic record and into another

without much pain or cost. (Mind you this is the core data set-not

the multitude of notes, scanned items etc. that make up the chart-

that's a stickier problem)

Our goal is also to give everyone a fair shake in the market

including and especially the " low-cost guys "

Lou Spikol

Louis Spikol M.D.

Senior Healthcare IT Consultant

Center for Health Information Technology a(CHIT)

American Academy of Family Physicians

lspikol@...

lspikol@...

Cell:

Office:

> > > > I've been lurking for a number of months but would like to

> > > introduce

> > > > myself. My name is Louis Spikol and I am presently working

> half-

> > > time in

> > > > a two-person office in townPennsylvania.(as part of a

> > larger

> > > > hospital in practice.). I'm also the new third member of

the

> > AAFP

> > > > Center for health information technology (CHIT) and would

like

> > to

> > > > introduce myself in this capacity also. I've been greatly

> > > influenced by

> > > > Gordon as well as the entire IHI philosophy and I am " a

> > believer "

> > > along

> > > > with the rest of you. I'm also greatly influenced by

business

> > > concepts

> > > > such as the Toyota production system, continuous flow,

> decrease

> > > waste

> > > > etc. and believe strongly that information technology

greatly

> > > enables

> > > > this. In my capacity at CHIT I would like to extend an

offer

> of

> > > > assistance in the realm of information technology. I would

> > highly

> > > > recommend that if you have not been at the web site-

> > > > www.centerforhit.org that you check it out as there is a

lot

> of

> > > great

> > > > stuff there.This is a great discussion group with lots of

> > > wonderful

> > > > people and great ideas.

> > > >

> > > > regards,

> > > >

> > > > Lou Spikol

> > > >

> > > > Louis Spikol M.D.

> > > > Senior Health Care Information Technology Consultant

> > > > Center for Health Information Technology (CHIT)

> > > > American Academy of Family Physicians

> > > > lspikol@p...

> > > > lspikol@a...

> > > > Cell:

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  • 1 year later...

Hi Cheryl,

Just about every picky eater I have dealt with is either a fungal child needing

serious

antifungal treatment or a child who does not get enough vegetables (usually

both).

Fungus and lack of vegetables will cause your child to feel addicted to wheat,

milk, carbs

and starches... the exact foods that are likely causing the autistic symptoms to

worsen.

Most picky eaters I come across at our school are no longer picky when you break

this

cycle.

I have 50 kids eating vegatables and on a SCD like (less IGG food allergies)

diet at the

school. Every one is on the diet and many were picky eaters before.

- Stan

>

> Hi, my name is Cheryl and I have 2 boys, one ASD (3 yo) and one NT

> (14 months). I can honestly say that I don't believe my son is ASD

> but that's what we call it for now since it's just easier. We are

> seeing Dr. Goldberg (since November) and we've been on Valtrex for

> about 2.5 weeks now. I have not seen rashes or blisters but we have

> gotten a low grade fever for a couple days during week 1 and 2 and a

> couple of days of not feeling well. His dosage was 1/4 pill 3x a day

> for the first week and is now on 1/2 pill 3x a day. We do see some

> hyperactivity and we do remove the blue dye. Dr. G said we didn't

> have to unless we saw a reaction and I just thought it would be

> easier to not deal with the possibility at all! :) I know many of

> you wash it off, I find that if I crush it first, then I can pick out

> the blue dye with tweezers pretty easily. I noticed that some of you

> also get it compounded. I've never gotten anything compounded before

> in my life and I'm wondering, is it more expensive? Is it still

> covered under insurance?

>

> We dabbled with a little bit of DAN! but never saw a DAN! dr. We

> were doing the basics, DMG, SNT, Cal/mag, folinic acid. We stopped

> when we decided that Gryffin fit Dr. Goldberg's profile to a T and

> saw no regression. We didn't see any real gains with it, either. We

> got some minor verbal gains that may or may not be attributed to the

> DMG but since we didn't see any regression we chose to not put it

> back in as we knew how Dr. G felt about DAN! I figure I'll give his

> protocol a try and we'll go from there. In 6 months I may be

> changing my mind but until then, I'll stick it out and see where it

> goes as I just can't ignore my gut when it tells me that he's the one

> I need to see.

>

> My son is very high functioning but not very verbal. He doesn't stim

> (with the exception of a peri. vision stim which is diminishing), he

> doesn't have aggression problems or behavioral problems, not really

> having many issues with gut, he makes great eye contact, has great

> imitation and imagination and is very social. His deficit is in

> language. He'll repeat anything you ask him to. He has some

> functional language but mostly it's labeling and one word requests.

> He has a large vocabulary but mostly all nouns. He will attempt " I

> want... " but a lot of his language just isn't functional and he

> doesn't understand much. His receptive language really has seemed to

> blossom, though since starting the Valtrex. He also started creating

> his own words (or at least one new set of words) since starting. He

> calls chocolate soy milk " choco juice " and recently it's been changed

> to " cocoa juice " . I have no idea where it came from but I was glad

> to hear it! We start Diflucan next month and I'm excited to see

> what the two will do together. He doesn't have any behavioral signs

> of a yeast problem that most parents report but I do see some

> physical signs (bumps and such) that make me wonder if he has

> yeast. He's always been one to make slow and steady progress so I'm

> hopeful that we can bring him the rest of the way. He's actually

> pretty typical in most areas. We do have an ABA program through the

> RC. It's funny to me because the RC is the only one willing to dx

> him autistic. No one else really sees it. But I also knew what he

> was like when he first started early intervention and at that time,

> he had a *lot* of minor things that are common in ASD. Within 3

> months of EI they were gone. So he went from bordering between

> moderate and severe on CARS to not registering at all in a very short

> time.

>

> He is a picky eater and will only eat certain foods (I know I'm not

> alone here!) and we are working on potty training. I usually just

> keep him naked. He understands to go sit on the potty when he is

> naked but as soon as he has underwear or a diaper on, it's over. He

> does, however, get a diaper whenever he pees in his underwear and

> puts it on! Now if I could just get him to move on to getting new

> underwear instead of insisting on a diaper... At least it's progress

> and he understands he doesn't want to be wet anymore and that's a new

> thing. It just started this weekend. He would usually just scream

> whenever he saw underwear and beg for a diaper. When I put underwear

> on him anyway he would pee and not care that he was wet. So I guess

> I'm a step closer! I just keep trying the underwear a couple times a

> day.

>

> Well, if you've made it this far then I better not push my luck

> writing more. :) Thanks for reading and I hope to get a lot of

> useful information here.

>

> Cheryl

>

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Cheryl,

My kid was exactly like yours, ate everything till age 18-20 months

then dwindled down to 2-3 foods at age 2. It was very tough, he would

choke on food and throw it out. Luckily we found a good digestive

enzyme for him, started him on oats and buck wheat hot cereals for

breakfast and gradually build it. He startled us by eating grilled

chicken, beef etc in 2 weeks. He also got potty trained within weeks.

Now touch wood, he eats everything and there is nothing that he does

not like to eat. It makes life lot easier.

We used Creon 20 for digestive enzymes.

-Raj

>

> Thank you so much for replying! I really appreciate what you have

> said and now I'm more excited to see what happens after the

diflucan

> is added. I haven't looked much into SCD but I know of several on

it

> so I'm not *completely* unfamiliar with it. I will certainly look

> into it further. We are not GFCF but we do try to maintain the

> modified diet of Dr. G's. Could you please explain to me how

people

> get their kids to eat other foods? After being on an anti-fungal

do

> you just slowly try to introduce new things for them to try or do

you

> just do the whole " this is what you get, eat it or not " and re-

offer

> it later thing? My son gets zero veggies other than what I can

sneak

> onto a pizza in the pizza sauce pureed. He used to eat just about

> anything I gave him (that he liked the taste of) right up until

about

> 18-20 months. Then it slowly dwindled down to what we have now by

> the time he was 2. There is a *rare* occasion where he will taste

> something new and like it but then we can't get him to eat it

again.

> Any thoughts?

>

> Cheryl

>

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Cheryl,

We have our son on digestive enzymes for the last 3 years. We are also

patients of Dr. Krigsman and we talked to him about digestive enzymes.

There is really no side effects with regards to digestive enzymes.

Since our kids have gut issues, our kids end up losing these enzymes.

So its good idea to supplement them.

We started with creon 5, then switched to creon 10 and then finally

moved to creon 20 dosage with each meal (breakfast, lunch and dinner).

You have to sprinkle it on the food.

-Raj

>

> Raj & Stan,

>

> Thanks so much for the advice. Typically, how long do you see

> children needing the enzymes? Should I continue to use them after

> starting Diflucan?

>

> On a side note, my son said he was cold for the first time today!

> And last night when I was showing him how to take off his pants to

> potty by example (it's something he already knows but doesn't do)

and

> when I was finished showing him what to do he said, " Good job! High

> 5! " I'm loving the Valtrex!

>

> Cheryl

>

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,

Its just that my son was 3 yrs old when we started with digestive

enzymes and it was tough for him to swallow the capsule, hence we

opened the enzyme and sprinkled on his food, eg. spoon of yogurt.

The different strengths are to see which level you will need to

see better results (more formed BM).

We are doing rotational diet as my son had food sensitivities, they

have gone down significantly but there are still some that are high.

By rotational diet, I meant if my son has chicken one day, we give

him chicken for lunch/dinner and then he does not have chicken for 5-

6 days. Another good thing was giving 24 hr SCD home made goat

yogurt, it helped in building up bacterial flora in our son's gut.

We have removed the food items which show high food sensitivity

reaction and rotate other foods.

Hope that helps.

-Raj

>

> Hi Raj, we have just started using Creon - can you tell me why you

need to sprinkle on the food and not simply take it has a capsule?

> Didn't know there were different strengths, is this to do with the

amount of food being eaten - what have you noticed with these

enzymes - and lastly have you dropped the diets or are you doing both

> mary

> Re: Introduction

>

>

> Cheryl,

>

> We have our son on digestive enzymes for the last 3 years. We are

also

> patients of Dr. Krigsman and we talked to him about digestive

enzymes.

> There is really no side effects with regards to digestive

enzymes.

> Since our kids have gut issues, our kids end up losing these

enzymes.

> So its good idea to supplement them.

>

> We started with creon 5, then switched to creon 10 and then

finally

> moved to creon 20 dosage with each meal (breakfast, lunch and

dinner).

> You have to sprinkle it on the food.

>

> -Raj

>

>

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Stacie,

The recipe to make goat yogurt is available at www.pecanbread.com.

Yes this does have casein, but apparently by the using the 24 hr

process, its much easier to break down and digest. Plus its a great

way to introduce beneficial bacteria in your kids. Its been a major

saviour for us, our son's beneficial bacteria went from 0 level to

4+. Also it helped in him gaining weight.

-Raj

> >

> > Hi Raj, we have just started using Creon - can you tell me why

you

> need to sprinkle on the food and not simply take it has a capsule?

> > Didn't know there were different strengths, is this to do with

the

> amount of food being eaten - what have you noticed with these

> enzymes - and lastly have you dropped the diets or are you doing

both

> > mary

> > Re: Introduction

> >

> >

> > Cheryl,

> >

> > We have our son on digestive enzymes for the last 3 years. We

are

> also

> > patients of Dr. Krigsman and we talked to him about digestive

> enzymes.

> > There is really no side effects with regards to digestive

> enzymes.

> > Since our kids have gut issues, our kids end up losing these

> enzymes.

> > So its good idea to supplement them.

> >

> > We started with creon 5, then switched to creon 10 and then

> finally

> > moved to creon 20 dosage with each meal (breakfast, lunch and

> dinner).

> > You have to sprinkle it on the food.

> >

> > -Raj

> >

> >

>

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