(No subject)

[Guest guest]

Dear amagicwielder,

For whatever it is worth, I respectfully disagree. I see this as a

support group as well as a place to give and receive information helpful to

our children. I think that I get so much information and learn so many

things through reading about the day to day trials and tribulations of the

members of the group. I am not sure what the " clicky " thing is you refer

to, but I am open and willing to talk to anyone here. You think that we

should have personal remarks kept personal, and that seems to lend itself to

the development of " clicks " more so than to allow people here to feel free

to express themselves as they wish. I will say one more time that you can't

separate the soul from the person, and my faith is a part of me, however it

comes out, and I do not disrespect those who do not share my own faith.

Hey, I wish you the best, and I hope you find the strictly informational,

less personal, less clicky group that you so desire. I love this group, and

I hope that it goes on for folks to come to in freedom for as long as it can

exist. Many good fortunes to you and yours!

Barb Martz

Mom to Jonas (MDS) 2 & 7

(no subject)

> For whatever its worth, a small piece of advice

>

> Please remember, this is only my opinion and should be taken as such,

>

> When u open a website such as this one to all of the world to use, you

must

> not become " clicky " with a choice few and leave others out. I personally

> could care less as this is one of many websites I use for my daughter, but

I

> have heard this complaint from others, a lot. This is suppose to be used

for

> information gathering or querying concerns or comments about our children

and

> not for personal interactions in the form that I have seen lately.

Personal

> interacting communications should be kept personal, one to one and not

posted

> publically. Making friends using this website as an initial greeting is

> wonderful and handy, and should be followed up in a more one to one forum,

I

> feel. Anyone coming in should be welcomed. All religious backgrounds

kept

> out of communications, leaving those to the aforementioned personal emails

> that can be made. We are all different and come from many different

places

> and have our own unique situations concerning our children with mds and

that

> was what I was searching form when I came here. I wanted to find someone

who

> has similar concerns as my katie.

>

> My sincere apologies for not signing up but I wanted to see first what I

was

> getting into. Perhaps this is the reason for the problems I encountered.

>

> I think you've made a wonderful step in the right direction and wish u and

> all the others the best.

>

>

>

[Guest guest]

Thanks, Bethany. It means a lot to me to know that at least one person

understands and was helped by my explanation of the difference between addiction

and tolerance. That is what I was trying to achieve.

Barbara

> That's a very valid point. I'm still not sure what the difference is, but it

> does mean a lot to think I'm not an addict! I don't mind taking a long time to

> get off a medication, and it's reassuring to realize this doesn't signify

> addiction.

> Bethany

>

> > I'm not arguing. I'm doing my best to help people who use narcotics as they

> > are supposed to--for pain--not to feel guilty because they think they are

> > addicts.

> >

> > Barbara