Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Hi all! Wow, , that's quite a song . . . if we all had the strength, I think we'd be riding bulls!! =) Well, I think my experiment failed . . . or I should say I'm back to 'no answers' again =) The thing I was testing was 'vitamins'. It occurred to me that when I forgot to take them, my lumps weren't so painful and angry looking . . . and when I would remember them for more than three days or so . . . the lumps were terrible and I grew one or two more. I thought I was on to something when on Tuesday I was on my feet all day running back and forth with fingerprinting. Normally on a day like that, my lumps hurt and by the end of the day, I've got big malaise going on. This Tuesday (no vitamins) was different in that my lumps were only a little sore and I actually felt 'good' the rest of the night! But . . . that's all blown out of the water as yesterday and this morning, the lumps are hurting and I have a few new ones. BOOOO! What I have learned by this is . . . shocking (somewhat) the system kinda messes the EN up (i.e. adding more Dapsone, not taking vitamins) for a couple of days, but the disease finds a way to make it back again. hmmmmmm . . . something to think about there. Sounds to me like a definite autoimmune thing??? Here's a question, from my husband actually . . . but I'm curious as well. I know all of us are in some kind of pain, be it from the lumps or RA or what-have-you (literally) =) but I've been noticing pretty much all along that when I get up in the morning I'm really stiff and sore; the whole body hurts. Very recently, I'm noticing that DURING the night, this stiffness and soreness is affecting me. Two nights ago, it was so bad that I could barely roll myself over in my sleep and this morning it was bad enough that the husband actually paid attention to it. So the question is, Does anyone else have this kind of pain?? I told him we all have different pains, told him of the RA some of you have and the different things you all have . . . but is there someone out there who is just affected this way by the EN??? K, I've written enough . . . I'll leave that question out and see if anyone else suffers this way. Thanks all! Have a great day!! M Quote Link to comment Share on other sites More sharing options...
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