Re: Observer

[Guest guest]

Hi ,

Welcome to the group. I'm glad you chose to post. Will your

husband be eligible for unemployment while searching for a new

job? Have you tried filing for SSI? SSI doesn't require credits,

though they do have income limits for spouses. Have you tried

public assistance from the Department of Welfare? If your state

supports disabled individuals they will probably require you to

file for SSI. I turn the phone ringer off when I sleep, I awaken

easily. Post anytime, you can cry, vent, whatever works for you.

Any questions ask, I'm not shy. Take care of you.

Big gentle huggles,

Dimntd in Feasterville-Trevose, PA, USA )

Be the person your pets think you are.

[Guest guest]

>

> Hi Everyone,

> I have been a observer for at least six-months. I have finally

gotten up the nerve to post.

> We are going through a very hard time right now, like most. My

husband may lose his job next week. And we are already hurting

financially . SS turned me down. I didn't have work credits in the

right time. Is there anything else I could do to get the credits I

have?? I was sharing this with my sister and she insisted I get a job

with the bank. I told her there is no way I could work. She just keep

on . I told her she really doesn't understand,and needs to walk in

my shoes. She just doesn't get it. Even my husband who sees it's

affect everyday gets resentful. My sleeping and inactivity . As if I

rather do this then Live. I have Fibro,Reflux/IBS, CFS and of course

some disc issues and more. I have two wonderful kids. They keep me

going. This is a very hard way to live. I have not gotten into a good

grove of coping yet. I try to stay positive and do what I can each

day. But it's hard when my husband is so resentful. He calls each day

from work over and over again until I wake up. I have explained, and

he has seen me just fall asleep at odd times. When my body gives out,

I can doze off doing anything.He calls for no other reason than to

wake me up.I feel like I am on the defense all the time.

> I feel that if I had a little more moral support from my husband I

could cope better.

> I will stop here. That's enough for my first post. Thank you for

the shoulder to cry on.

>

>

,

I am so sorry to hear that you are having such a horrible time of it.

Dealing with horrible illness is bad enough without having to deal

with people who don't understand.

I know you may have already done this, but perhaps find some good CFS

websites and print out some information for your sister and husband

to read. Having said this, I know that some people just aren't

interested, and will never read it, but it's worth a try right?

I can't help feeling that if those who are close to us actually

understood, they wouldn't be so horrible.

I think that you will have to sit down with your husband and have a

really good talk. Explain thing to him, in a calm manner. Tell him

what your limitations are. Ask him how he feels too.

Sometimes it just takes perseverance, that people do come round

eventually, that's what happened in my family. Ignorance is the real

problem that you need to overcome.

There are however, some people who don't really want to understand.

Don't waste your precious energy on them.

Goodluck and remember, that at least in groups like this, you have

found people who understand and support you.

take care, ness