Any Ideas ?

[Guest guest]

Hi Everyone My story is I have six kids four girls two boys ages 36

down to 14. I started out fourteen years ago being hypo. I was on a

dose of levothyroxine 88 mgs. I went to another doctor who ran my

labs and put me up to 100mgs. I was on that dose for almost a year.

With only maybe two labs in that time. So I switched doctors again

this time this doctor didn't do my labs like she should have! So this

past Dec I started having trouble with my eyes. I'd wake up with

eyelids the size of golfballs and swelling under my eye area. So I

went to the doctor and she said maybe I was having an allergic

reaction to something and put me on prednisone and gave me samples of

celebrex, singular. So while I was on prednisone my swelling went

away, as soon as I was off it my eyes swelled again so back I went. I

asked her if it could be thyroid related she told me no! So back on

the prednisone I went well same thing happened in the mean time I

told her how tired I was to no avail. Also alot of heart palpations

and almost blacking out just really depressed and brain fog. So she

told me I needed a eye specialist which I went to see, first thing he

said it's thyroid and he put me on prednisone at a higher dose well

same story so, I was riding up and down at this point. I called went

back in to see her again explained what eye doctor had said so she

finally did my labs! I got a phone call from her telling me to stop

thyroid meds I was getting way to much. I was back on the pred again

and this time I had a bad reaction to it which sent me to the ER. I

went through two weeks of pure hell.o So being fed up I switched

doctors again. HE told me my thyroid was the size of strwberries. He

did labs put me on ATD and beta blocker and I seen a Endo who wanted

to do a RAI uptake scan. Yesterday I get a phone call results were

back no scan my tsh was at 33 so now they have put me into serious

hypo told me not to take anymore methimazole which I started at 15

then family doctor rasied it to 30 before my labs were back! Gosh

what a story and am I ever confussed. Not sure what the heck thry are

trying to do to me. Shirl sorry so long

[Guest guest]

My guess is they are looking at only the TSH and basing thier guesses

on that. What you need is a full thyroid panel run including antibodies

for both Grave's and for Hashimoto's.

It would also be a good idea to get the TRAB antibodies broken down to

TSI and TBII as TSI is the Grave's antibody responsible for hyper in

Grave's and TBII is the blocking antibody and why some Grave's patients

go hypo. To throw more fun into the mix it is possible to have both

Grave's and Hashimoto's.

What you need to do though is treat both diseases seperately. The eyes

will calm down once the thyroid levels are stable.. but yo uneed FT4

and FT3 to judge the thyroid. That aside the eye disease will run its

own course..

Kats3boys