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Mindy

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Yes, I am familiar with all of this, Mindy. My first husband left me over this

disease, he told people I " refused to work " and went on during the divorce to

mutual friends about how I didn't do enough housework, didn't change the sheets

every week, didn't shower every single day. It was humiliating. He'd been

there with me for years but never believed me. A marriage counselor screamed at

me once, " Why don't you go on disability for your depression and help your poor

husband! " My " poor husband " inherited a huge estate from his parents. I

thought our agreement was I would do all I could- I was rehabbing the house all

myself, after all! And he would help me out until I got better. How was I

supposed to know that wasn't really going to happen? I mean, I'm " better " now,

but in some areas, and in others, like pain, I'm much worse.

Of course, that was a long time ago. Last year was my 25 year " anniversary. " A

quarter century. I got sick at 17. More than half my life with this. And God

knows, I have done all I could, pushed myself and done things. But it's never

good enough. And my mom- yikes, I won't even go there!

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