Re: Wit's End Challenge Hypo/Hyper

[Guest guest]

Hi Chele,

I can emphasize with you, had panic attacks in the past too.

I am on Levoxy. 0.25mg. My Endo told me there is nothing wrong with my thyroid besides my HASHIMOTO. What a joke.

I went back to my physician, because she goes more by symptoms than blood test. She told me that she is aiming for a TSH of almost 0. Mine is 0.89 rig now and I feel much better. I don't want to comment on your blood results since I am not qualified. I try to eat healthy foods, veggies, whole grain (I know some are gluten intolerant) it doesn't look like I am having a problem with it.

I was thinking if you are having enough good bacteria in your digestive system. I had panic attacks, lost weight because I didn't have enough of the good bacteria. I got a stool test and then took tons of probiotics / just good bacteria for 1/2 year to replenish. I feel so much better. Also, I took magnesium for the digestive system and now I can have milk too (i was bloated ).

I would suggest you get your stool tested. Maybe also for parasites.

I hope my own experience can help you solve your problems, I wish you all the best. Owner of 's Breadhttp://wheatandsourdough.comhttp://lindasbread.blogspot.com/

To: Thyroiditis From: myloanlady@...Date: Tue, 10 Nov 2009 05:46:50 +0000Subject: Wit's End Challenge Hypo/Hyper

Hi everyone,I am at my wits end and am in GREAT need of your help. I have been feeling terrible and can't function, been to many dr.'s(insurance stopped paying) and they all can't figure out what to do for me . I would sooooo greatly appreciate any advice or help you can give. Here's a history:

2005:Had ovaries removed and tried many different HRT's, they all gave me a ton of skipped heart beats, so we stopped with hrt's and haven't been on any since.

2007:Was losing hair, gained about 15 pounds, dry skin, and slower than normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic levothyroxin 1 x day, here are the Labs in 07:Cholesterol total 324 (125-200) rangeLDL 240 (0-129) rangeTPO/Anti TPO 401 (<35) rangeThyroglobulin ABS 175 (<20) rangeTSH (3rd gen) 7.23 (.40-5.5) range

2007:TSH was tested again and at 3.5 and was told I am fine. Never felt any improvements, but didn't feel worse either.

2008:Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25 more 3x week. Again, not much change, but I was bad about remembering which days to take the extra, so it most likely wasn't much of a change anway. Gained more weight (25 all together).

2009 (May ¡Vpresent):Had a terrible panic attack while driving , first one ever. Then, had another a few weeks later¡Kduring stressful times. Dr.'s told me (er docs as well as regular doc) it was anxiety related to PTSD (end of '08 and '09 personally heartbreaking and very hard for me). So I believed docs, it made sense. They tested my TSH, and again it was 3.5. They put me on Synthroid proper, and raised me to .50 1x day. Then air hunger started, followed later by dizziness, high anxiety, constipation, weight loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure to my head. I couldn't/ can't drive due to not being safe with fogginess, dizziness, more anxiety attacks. Loss of appetite, depression, tinnitus, migraines (never had before) cold hands and feet, hair loss, out of no where would feel like I had been out of my body, then back in it in a flash (very scary feeling). BP= 90/50, very very bad heart palps (skipped beats with breathlessness) especially at nights. So far I have lost 35 pounds while trying not to I look icky skinny now and am eating tons of calories to just try and maintain. Bowel movements have basically stopped (1x month if lucky). Doc's are stumped. Here are labs:

JULY: TSH 4.43 (.34-4.82) range

AUGUST:LH 31.8 (15.9-54) range post-menopausal FSH 82.7 (23-116) postmenopausal rangeEstrodiol 16 (0-31) range untreated postmenopausalMagnesium serum 2.1 (1.6-2.6) rangeCortisol 21.1 (4.3-22.4) A.M. range adult femaleProgesterone .7 (0-.7) range postmenopausalACTH, plasma 20 (6-48) rangeEstrogens, total 69 (<40) range postmenopausal untreatedCholesterol total 246 (100-199) rangeLDL 175 (0-99) rangeIron (TIBC) 246 (250-450)Iron UIBC 146 (150-375) rangeIron serum 100 (35-155) rangeIron Sat % 41 (15-55) rangeFerritin 259 (10-250) rangeTSH 6.690 (.45-4.5) range T4 free .94 (.93-1.71) rangeTPO AB 698 (0-35)Endo took me OFF of Synthroid saying I was showing more Hyper symptoms than Hypo, and tests show Subclinical Hypo, so it was safe he said.

SEPTEMBER :Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am petite) with mild hepatocellular disease?Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling that well either). All other liver testing was fine (blood, and hepatitis, etc.) Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND, 83-93 IND IGG negative on all . Doc says not lyme, that's a false positive.

OCTOBER :Feeling a bit better, worse on skipped beats, but not losing weight as fast, dizziness better, and discovered xanax for anxiety symptoms which helps some but just some.T4 free .95 (.93-1.71) rangeThyroxine T4 7.5 (4.5-12) rangeTSH 4.93 (.45-4.5) rangeTriiodothyronine T3 104 (83-200) rangeFerritin, Serum 328 (10-290) range (raised a lot in short amount of time)ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average in size displays heterogeneous echotecture with increased vascularity especially in its lower pole. No dominant nodule identified. Suspicious for Hashimoto's thyroiditis.

Doctor wants me back on synthroid, but he isn't sure what to do since my TSH got lower OFF of meds and feel better than when on, and higher when we raised meds. Neither PCP or Endo will order free t3, or saliva adrenal testing. I really need to function, and so greatly miss having a life, I have people who really need me, and I need to be there for them! Any advice will help, and I promise future posts will NOT be this long ! Thank you so much,Chele

Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now.

[Guest guest]

Hi Chele:

Sorry to hear you have been feeling so badly. In my opinion, you need support for your adrenals and some thyroid medication. I have had many of the same symptoms and was dx with Hashi's over 4 yrs ago, but fortunately am feeling much better.

I used to be on Synthroid/Levothyroxine, but have done much better on Armour. Even though the Armour formula has changed this past year, I would never go back to Synthroid/Levo. Even though your TSH has come down, it is still in the high range. I feel best when mine is less than 1. Your Free T4 is in the low range also.

I take DHEA to support my adrenals. I read on this site and another one that that hyper feeling and anxiety/panic attacks comes from low performing adrenal glands.

I know everyone has to find what works best for themselves, but here is what I take daily that has helped me: Armour, DHEA, Vit D, Multi-Vitamins, Milk Thistle, CoQ10, Fish Oil, Progesterone Cream, Iodoral, Celtic Sea Salt. I am not saying you should take all of this. I just wanted you to see what my protocol was so you would not be alarmed if you found you were difficient in many areas and needed a lot of supporting meds or supplements.

Good luck and I know that you will get some great advice here and you will begin to feel better.

Subject: Wit's End Challenge Hypo/HyperTo: Thyroiditis Date: Tuesday, November 10, 2009, 12:46 AM

Hi everyone,I am at my wits end and am in GREAT need of your help. I have been feeling terrible and can't function, been to many dr.'s(insurance stopped paying) and they all can't figure out what to do for me . I would sooooo greatly appreciate any advice or help you can give. Here's a history:

2005:Had ovaries removed and tried many different HRT's, they all gave me a ton of skipped heart beats, so we stopped with hrt's and haven't been on any since.

2007:Was losing hair, gained about 15 pounds, dry skin, and slower than normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic levothyroxin 1 x day, here are the Labs in 07:Cholesterol total 324 (125-200) rangeLDL 240 (0-129) rangeTPO/Anti TPO 401 (<35) rangeThyroglobulin ABS 175 (<20) rangeTSH (3rd gen)

7.23 (.40-5.5) range

2007:TSH was tested again and at 3.5 and was told I am fine. Never felt any improvements, but didn't feel worse either.

2008:Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25 more 3x week. Again, not much change, but I was bad about remembering which days to take the extra, so it most likely wasn't much of a change anway. Gained more weight (25 all together).

2009 (May ¡Vpresent):Had a terrible panic attack while driving , first one ever. Then, had another a few weeks later¡Kduring stressful times. Dr.'s told me (er docs as well as regular doc) it was anxiety related to PTSD (end of '08 and '09 personally heartbreaking and very hard for me). So I believed docs, it made sense. They tested my TSH, and again it was 3.5. They put me on Synthroid proper, and raised me to .50 1x day. Then air hunger started, followed later by dizziness, high anxiety, constipation, weight loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure to my head. I couldn't/ can't drive due to not being safe with fogginess, dizziness, more anxiety attacks. Loss of appetite, depression, tinnitus, migraines (never had before) cold hands and feet, hair loss, out of no where would feel like I had been out of my body, then back in it

in a flash (very scary feeling). BP= 90/50, very very bad heart palps (skipped beats with breathlessness) especially at nights. So far I have lost 35 pounds while trying not to I look icky skinny now and am eating tons of calories to just try and maintain. Bowel movements have basically stopped (1x month if lucky). Doc's are stumped. Here are labs:

JULY: TSH 4.43 (.34-4.82) range

AUGUST:LH 31.8 (15.9-54) range post-menopausal FSH 82.7 (23-116) postmenopausal rangeEstrodiol 16 (0-31) range untreated postmenopausalMagnesium serum 2.1 (1.6-2.6) rangeCortisol 21.1 (4.3-22.4) A.M. range adult femaleProgesterone .7 (0-.7) range postmenopausalACTH, plasma 20 (6-48) rangeEstrogens, total 69 (<40) range postmenopausal untreatedCholesterol total

246 (100-199) rangeLDL 175 (0-99) rangeIron (TIBC) 246 (250-450)Iron UIBC 146 (150-375) rangeIron serum 100 (35-155) rangeIron Sat % 41 (15-55) rangeFerritin 259 (10-250) rangeTSH 6.690 (.45-4.5) range T4 free .94 (.93-1.71) rangeTPO

AB 698 (0-35)Endo took me OFF of Synthroid saying I was showing more Hyper symptoms than Hypo, and tests show Subclinical Hypo, so it was safe he said.

SEPTEMBER :Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am petite) with mild hepatocellular disease?Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling that well either). All other liver testing was fine (blood, and hepatitis, etc.) Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND, 83-93 IND IGG negative on all . Doc says not lyme, that's a false positive.

OCTOBER :Feeling a bit better, worse on skipped beats, but not losing weight as fast, dizziness better, and discovered xanax for anxiety symptoms which helps some but just some.T4 free .95 (.93-1.71) rangeThyroxine T4 7.5 (4.5-12) rangeTSH 4.93 (.45-4.5) rangeTriiodothyronine T3 104 (83-200) rangeFerritin, Serum 328 (10-290) range (raised a lot in short amount of time)ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average in size displays heterogeneous echotecture with increased vascularity

especially in its lower pole. No dominant nodule identified. Suspicious for Hashimoto's thyroiditis.

Doctor wants me back on synthroid, but he isn't sure what to do since my TSH got lower OFF of meds and feel better than when on, and higher when we raised meds. Neither PCP or Endo will order free t3, or saliva adrenal testing. I really need to function, and so greatly miss having a life, I have people who really need me, and I need to be there for them! Any advice will help, and I promise future posts will NOT be this long ! Thank you so much,Chele

[Guest guest]

Thank you, last week I went to an alternative Lyme doc in my area, and he had

stated that I need to be tested for coinfections, because the bands that did

show up just could be showing that my body did what it was supposed to do and

that is create antibodies to the lyme when it came in. Even though they show up

in my IGM (usually an " active " testing) I would have chronic lyme and be more

sick than I am. He is leaning toward coinfections, but I am broke from all the

testing these dr.'s are giving me, and would hate to be walking down the wrong

road ya know? I am so glad your friend is feeling better, how very scary that

must have been! Maybe I should be looking more in that direction?

Thanks again,

Chele

>

> Start reading about " chronic " lyme disease.  Traditional western doctors are

trained to go by the tests which are often inaccurate, particularly because if

one has this long enough, the antibodies are suppressed and won't show up on a

test. Lyme can be dormant for many years until one is traumatized either

physically or mentally.   There are false positives and false negatives.  A

" lyme literate doctor " will go by your symptoms as well as bands that show up on

testing.  Igenex is reputed to be a good lab for testing.  Research I have seen

states that Lyme can contribute to thyroid disease and is responsible for many

other illnesses.  Lyme is now called " the great imposter " because people get so

many other diagnoses. My doctor says that the occurrence has spread to epidemic

proportions and diagnosis is regularly missed. Read about symptoms of Lyme.  I

have met several people consistently told by infectious disease specialists

(even at s

> Hopkins!)  that they don't  have Lyme and eventually an alternative doc

diagnosed it accurately.  One of these people was in a wheelchair, about to have

brain surgery!  She is now getting better with treatment of Lyme.  Good luck

with your recovery.

>

[Guest guest]

Hi ,

Thank you, I will have my stool tested, funny you mention that, I just bought

Activia yesterday hoping that something might help. So, going down lower in your

TSH helped rid the symptoms? Did you have a period where when you were first

taking the meds that it made you feel worse before going so low on your TSH? I

hate these " hyper " feelings, that I am so scared to bring my TSH any lower

because I have read that it can make some people Hyper if too low. Are we sort

of opposite? I am glad you are feeling much better, that's great!

Thank you so much,

Chele

>

>

> Hi Chele,

>

> I can emphasize with you, had panic attacks in the past too.

>

> I am on Levoxy. 0.25mg. My Endo told me there is nothing wrong with my thyroid

besides my HASHIMOTO. What a joke.

>

> I went back to my physician, because she goes more by symptoms than blood

test. She told me that she is aiming for a TSH of almost 0. Mine is 0.89 rig now

and I feel much better. I don't want to comment on your blood results since I

am not qualified. I try to eat healthy foods, veggies, whole grain (I know some

are gluten intolerant) it doesn't look like I am having a problem with it.

>

> I was thinking if you are having enough good bacteria in your digestive

system. I had panic attacks, lost weight because I didn't have enough of the

good bacteria. I got a stool test and then took tons of probiotics / just good

bacteria for 1/2 year to replenish. I feel so much better. Also, I took

magnesium for the digestive system and now I can have milk too (i was bloated

).

>

> I would suggest you get your stool tested. Maybe also for parasites.

>

> I hope my own experience can help you solve your problems, I wish you all the

best.

>

>

>

> Owner of 's Bread

>

> http://wheatandsourdough.com

>

> http://lindasbread.blogspot.com/

>

>

>

>

> To: Thyroiditis

> From: myloanlady@...

> Date: Tue, 10 Nov 2009 05:46:50 +0000

> Subject: Wit's End Challenge Hypo/Hyper

>

>

>

>

>

>

> Hi everyone,

> I am at my wits end and am in GREAT need of your help. I have been feeling

terrible and can't function, been to many dr.'s(insurance stopped paying) and

they all can't figure out what to do for me . I would sooooo greatly appreciate

any advice or help you can give.

> Here's a history:

>

> 2005:

> Had ovaries removed and tried many different HRT's, they all gave me a ton of

skipped heart beats, so we stopped with hrt's and haven't been on any since.

>

> 2007:

> Was losing hair, gained about 15 pounds, dry skin, and slower than normal.

Diagnosed with Hashimoto's Thyroiditis and put on .25 generic levothyroxin 1 x

day, here are the Labs in 07:

> Cholesterol total 324 (125-200) range

> LDL 240 (0-129) range

> TPO/Anti TPO 401 (<35) range

> Thyroglobulin ABS 175 (<20) range

> TSH (3rd gen) 7.23 (.40-5.5) range

>

> 2007:

> TSH was tested again and at 3.5 and was told I am fine. Never felt any

improvements, but didn't feel worse either.

>

> 2008:

> Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25 more

3x week. Again, not much change, but I was bad about remembering which days to

take the extra, so it most likely wasn't much of a change anway. Gained more

weight (25 all together).

>

> 2009 (May ¡Vpresent):

> Had a terrible panic attack while driving , first one ever. Then, had another

a few weeks later¡Kduring stressful times. Dr.'s told me (er docs as well as

regular doc) it was anxiety related to PTSD (end of '08 and '09 personally

heartbreaking and very hard for me). So I believed docs, it made sense. They

tested my TSH, and again it was 3.5. They put me on Synthroid proper, and raised

me to .50 1x day. Then air hunger started, followed later by dizziness, high

anxiety, constipation, weight loss, insomnia, muscle pains, flashes in eyesight,

rushing of pressure to my head. I couldn't/ can't drive due to not being safe

with fogginess, dizziness, more anxiety attacks. Loss of appetite, depression,

tinnitus, migraines (never had before) cold hands and feet, hair loss, out of no

where would feel like I had been out of my body, then back in it in a flash

(very scary feeling). BP= 90/50, very very bad heart palps (skipped beats with

breathlessness) especially at nights. So far I have lost 35 pounds while trying

not to I look icky skinny now and am eating tons of calories to just try and

maintain. Bowel movements have basically stopped (1x month if lucky). Doc's are

stumped. Here are labs:

>

>

> JULY:

> TSH 4.43 (.34-4.82) range

>

> AUGUST:

> LH 31.8 (15.9-54) range post-menopausal

> FSH 82.7 (23-116) postmenopausal range

> Estrodiol 16 (0-31) range untreated postmenopausal

> Magnesium serum 2.1 (1.6-2.6) range

> Cortisol 21.1 (4.3-22.4) A.M. range adult female

> Progesterone .7 (0-.7) range postmenopausal

> ACTH, plasma 20 (6-48) range

> Estrogens, total 69 (<40) range postmenopausal untreated

> Cholesterol total 246 (100-199) range

> LDL 175 (0-99) range

> Iron (TIBC) 246 (250-450)

> Iron UIBC 146 (150-375) range

> Iron serum 100 (35-155) range

> Iron Sat % 41 (15-55) range

> Ferritin 259 (10-250) range

> TSH 6.690 (.45-4.5) range

> T4 free .94 (.93-1.71) range

> TPO AB 698 (0-35)

> Endo took me OFF of Synthroid saying I was showing more Hyper symptoms than

Hypo, and tests show Subclinical Hypo, so it was safe he said.

>

> SEPTEMBER :

> Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am petite)

with mild hepatocellular disease?

> Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling that

well either).

> All other liver testing was fine (blood, and hepatitis, etc.)

> Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND, 83-93 IND

IGG negative on all . Doc says not lyme, that's a false positive.

>

> OCTOBER :

> Feeling a bit better, worse on skipped beats, but not losing weight as fast,

dizziness better, and discovered xanax for anxiety symptoms which helps some but

just some.

> T4 free .95 (.93-1.71) range

> Thyroxine T4 7.5 (4.5-12) range

> TSH 4.93 (.45-4.5) range

> Triiodothyronine T3 104 (83-200) range

> Ferritin, Serum 328 (10-290) range (raised a lot in short amount of time)

> ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average in

size displays heterogeneous echotecture with increased vascularity especially in

its lower pole. No dominant nodule identified. Suspicious for Hashimoto's

thyroiditis.

>

> Doctor wants me back on synthroid, but he isn't sure what to do since my TSH

got lower OFF of meds and feel better than when on, and higher when we raised

meds. Neither PCP or Endo will order free t3, or saliva adrenal testing. I

really need to function, and so greatly miss having a life, I have people who

really need me, and I need to be there for them! Any advice will help, and I

promise future posts will NOT be this long !

> Thank you so much,

> Chele

>

>

>

>

>

>

>

>

>

>

> _________________________________________________________________

> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/177141664/direct/01/

> http://clk.atdmt.com/GBL/go/177141664/direct/01/

>

[Guest guest]

Hi ,

Thanks so much for your advice, I too was wondering about my adrenals, but my

doc's said that the blood work shows them working perfectly (is that true??),

and frustratingly none of my doc's believe in Armour or will run a free t3 on

me, no matter how much I kick and scream :-). I am searching once again for a

new doc, hoping to find one with a vast amount of knowledge in this area,

however, I think you are all so much more knowing since unfortunately you have

all lived it too. I am glad to hear that you are feeling much better, that's

great! Is it strange that my TSH came down off of meds, and went so high on the

meds??? Also, where should my free T4 be and should I be paying a little more

attention to that number? Thank you so much for showing me your regimen, that

helps for me to learn from others that have been through this.

Thanks so much again,

Chele

>

>

>

> Subject: Wit's End Challenge Hypo/Hyper

> To: Thyroiditis

> Date: Tuesday, November 10, 2009, 12:46 AM

>

>

>  

>

>

>

>

> Hi everyone,

> I am at my wits end and am in GREAT need of your help. I have been feeling

terrible and can't function, been to many dr.'s(insurance stopped paying)  and

they all can't figure out what to do for me . I would sooooo greatly appreciate

any advice or help you can give.

> Here's a history:

> 2005:

> Had ovaries removed and tried many different HRT's, they all gave me a ton of

skipped heart beats, so we stopped with hrt's  and haven't been on any since.

> 2007:

> Was losing hair, gained about 15 pounds, dry skin, and slower than normal.

Diagnosed with Hashimoto's Thyroiditis  and put on .25 generic levothyroxin 1 x

day, here are the Labs in 07:

> Cholesterol total       324   (125-200) range

> LDL                                 240  

(0-129)  range

> TPO/Anti TPO            401    (<35) range

> Thyroglobulin ABS       175    (<20) range

> TSH (3rd gen)            7.23    (.40-5.5) range

> 2007:

> TSH was tested again and at 3.5 and was told I am fine. Never felt any

improvements, but didn't feel worse either.

> 2008:

> Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25 more

3x week. Again, not much change, but I was bad about remembering which days to

take the extra, so it most likely wasn't much of a change anway.  Gained more

weight (25 all together).

> 2009 (May ¡Vpresent):

> Had a terrible panic attack while driving , first one ever. Then, had another

a few weeks later¡Kduring stressful times. Dr.'s told me (er docs as well as

regular doc) it was anxiety related to PTSD (end of '08 and '09 personally

heartbreaking and very hard for me).  So I believed docs, it made sense. They

tested my TSH, and again it was 3.5. They put me on Synthroid proper, and raised

me to .50 1x day.  Then air hunger started, followed later by dizziness, high

anxiety, constipation, weight loss, insomnia, muscle pains, flashes in eyesight,

rushing of pressure to my head. I couldn't/ can't drive due to not being safe

with fogginess, dizziness, more anxiety attacks.  Loss of appetite, depression,

tinnitus, migraines (never had before) cold hands and feet, hair loss, out of no

where would feel like I had been out  of my body, then back in it in a flash

(very scary feeling).  BP= 90/50, very very bad heart palps (skipped beats with

breathlessness)

> especially at nights. So far I have lost 35 pounds while trying not to I look

icky skinny now and am eating tons of calories to just try and maintain. Bowel

movements have basically stopped (1x month if lucky).  Doc's are stumped. Here

are labs:

>

> JULY:

> TSH                  4.43  (.34-4.82) range

> AUGUST:

> LH                     31.8  (15.9-54) range

post-menopausal

> FSH                    82.7  (23-116) postmenopausal range

> Estrodiol           16  (0-31) range untreated postmenopausal

> Magnesium serum   2.1 (1.6-2.6) range

> Cortisol            21.1 (4.3-22.4) A.M. range adult female

> Progesterone       .7 (0-.7) range postmenopausal

> ACTH, plasma       20 (6-48) range

> Estrogens, total   69  (<40) range postmenopausal untreated

> Cholesterol total  246 (100-199) range

> LDL                      175 (0-99) range

> Iron (TIBC)        246  (250-450)

> Iron UIBC          146  (150-375) range

> Iron serum         100  (35-155) range

> Iron Sat %           41 (15-55) range

> Ferritin           259  (10-250) range

> TSH               6.690 (.45-4.5) range 

> T4 free             .94 (.93-1.71) range

> TPO AB             698  (0-35)

> Endo took me OFF of Synthroid saying I was showing more Hyper symptoms than

Hypo, and tests show Subclinical Hypo, so it was safe he said.

> SEPTEMBER :

> Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am petite)

with  mild hepatocellular disease?

> Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling that

well either).

> All other liver testing was fine (blood, and hepatitis, etc.)

>    Lyme Testing (IGENEX)  Positive on IGM bands  31, 34, 41, 39 IND, 83-93

IND      IGG negative on all .   Doc says not lyme, that's a false

positive.

> OCTOBER :

> Feeling a bit better, worse on skipped beats, but not losing weight as fast,

dizziness better, and discovered xanax for anxiety symptoms which helps some but

just some.

> T4 free                  .95 (.93-1.71) range

> Thyroxine T4     7.5 (4.5-12) range

> TSH                        4.93 (.45-4.5) range

> Triiodothyronine T3   104  (83-200) range

> Ferritin, Serum    328 (10-290) range  (raised a lot in short amount of

time)

> ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average in

size displays heterogeneous echotecture with increased vascularity especially in

its lower pole. No dominant nodule identified. Suspicious for Hashimoto's

thyroiditis.

> Doctor wants me back on synthroid, but he isn't sure what to do since my TSH

got lower OFF of meds and feel better than when on, and higher when we raised

meds. Neither PCP or Endo will order free t3, or saliva adrenal testing. I

really need to function, and so greatly miss having a life, I have people who

really need me, and I need to be there for them! Any advice will help, and I

promise future posts will NOT be this long ! 

> Thank you so much,

> Chele

>  

>

>  

>

[Guest guest]

Well, there is alot of controversy about the Lyme diagnosis. I will tell you that my doctor found it in someone whose ONLY symptom was unremitting depression and when he was treated w/antibiotics, he got better; from what I have read, sometimes doctors treat it based on symptoms vs. labs. This is all so gray I know...hard to deal with. I have met a dentist in the area who is treating his own Lyme w/colloidal silver and a rife machine; there are numerous ways to treat it if it turns out this is part of your illness. Connie Strasheim? (think this is her last name) has written a new book w/ protocols from 13 different docs across the country. Seems like the cheapest protocol is Salt and Vitamin C...lots of controversy about all the treatments too. Hang in there...hope you find some answers soon. I didn't believe I had

lyme because my symptoms were so subtle and overlap w/Hashis and menopause...questioned those bands too about previous infections, etc. But, seems I am a bit better w/some antibiotic herbs at this point.

Subject: Re: Wit's End Challenge Hypo/HyperTo: Thyroiditis Date: Tuesday, November 10, 2009, 1:22 PM

Thank you, last week I went to an alternative Lyme doc in my area, and he had stated that I need to be tested for coinfections, because the bands that did show up just could be showing that my body did what it was supposed to do and that is create antibodies to the lyme when it came in. Even though they show up in my IGM (usually an "active" testing) I would have chronic lyme and be more sick than I am. He is leaning toward coinfections, but I am broke from all the testing these dr.'s are giving me, and would hate to be walking down the wrong road ya know? I am so glad your friend is feeling better, how very scary that must have been! Maybe I should be looking more in that direction? Thanks again,Chele>> Start reading about "chronic" lyme disease. Traditional western doctors are trained to go by the tests which are often inaccurate, particularly because if one has this long enough, the antibodies are suppressed and won't show up on a test. Lyme can be dormant for many years until one is traumatized either physically or mentally. There are false positives and false negatives. A "lyme literate doctor" will go by your symptoms as well as bands that show up on testing. Igenex is reputed to be a good lab for testing. Research I have seen states that Lyme can contribute to thyroid disease and is responsible for many other illnesses. Lyme is now called "the great imposter" because people get so many other diagnoses. My doctor says that the occurrence has spread to epidemic proportions and diagnosis is regularly missed. Read about symptoms of Lyme. I have met

several people consistently told by infectious disease specialists (even at s> Hopkins!) that they don't have Lyme and eventually an alternative doc diagnosed it accurately. One of these people was in a wheelchair, about to have brain surgery! She is now getting better with treatment of Lyme. Good luck with your recovery.>

[Guest guest]

That is great that you are starting to feel better, I hope to hear that you are

feeing LOTS better soon!!! I was just on the Lyme message board suggesting to a

woman to not only be tested for Lyme, but also for Hashi's, it seems like our

symptoms overlap like you said. I am so sorry you are having to deal with this.

I will get that book, thank you so very much. How's that rife machine working

out for the dentist's patients?

> >

> > Start reading about " chronic " lyme disease.  Traditional western doctors

are trained to go by the tests which are often inaccurate, particularly because

if one has this long enough, the antibodies are suppressed and won't show up on

a test. Lyme can be dormant for many years until one is traumatized either

physically or mentally.   There are false positives and false negatives.  A

" lyme literate doctor " will go by your symptoms as well as bands that show up on

testing.  Igenex is reputed to be a good lab for testing.  Research I have

seen states that Lyme can contribute to thyroid disease and is responsible for

many other illnesses.  Lyme is now called " the great imposter " because people

get so many other diagnoses. My doctor says that the occurrence has spread to

epidemic proportions and diagnosis is regularly missed. Read about symptoms of

Lyme.  I have met several people consistently told by infectious disease

specialists (even at s

> > Hopkins!)  that they don't  have Lyme and eventually an alternative doc

diagnosed it accurately.  One of these people was in a wheelchair, about to

have brain surgery!  She is now getting better with treatment of Lyme.  Good

luck with your recovery.

> >

>

[Guest guest]

I have never posted on here before - I mainly read for information and learning.

But I had to reply to your post because you could be describing me from 2007

until early this year when I was finally diagnosed with Hashimoto's after being

hypothyroid, and on synthroid, for 12 years.

The endo who diagnosed the Hashi's, tested my adrenals through a blood test and

told me everything was normal. Then he upped the synthroid and said come back in

three months. I got worse so I found a doctor through the Armour website. She is

a DO with emphasis on anti-aging. She does take insurance, although many of them

don't. At first I thought the anti-aging thing was a joke, but they are more

likely to test for adrenal issues and sex hormone deficiencies which a lot of

thyroid sufferers have.

She tested my adrenals using the saliva test and they came back low morning and

afternoon, then off the charts evening and bedtime. She also found that I have

low B, D, ferritin, DHEA and progesterone.

She started me on compounded thyroid, Isocort (which I can switch to HC later if

I feel I need it), sublingual B & D, iron, DHEA, bioidentical progesterone,

melatonin, selenium, celtic sea salt and iodine.

In answer to your question regarding TSH - if you have Hashi's your TSH could

bounce all over the place due to the swings caused by the antibodies attacking

your thyroid. So watching TSH with Hashi's is like trying to hit a moving

target. You need to look at Free T3, Free T4 and Reverse T3.

My doctor likes to see FT3 and FT4 in the upper third of range. The Reverse T3

was because I have asthma and my meds can cause my body to produce too much RT3

and not enough Free T3, which can cause hypo symptoms even though everything

else looks in range.

Everyone's body is different, so you need to find a good doctor who will listen

to you and your symptoms and will not chase a TSH - or worse will under medicate

you because they are afraid you will go hyper when your TSH gets down where it

needs to be - close to zero for Hashi's sufferers.

I will say I am feeling much improved and it has only been 1 1/2 months. So

please don't give up. Keep searching for a doc in your area who will help you!

Good luck!

Cyndi

>

> Hi ,

>

> Thanks so much for your advice, I too was wondering about my adrenals, but my

doc's said that the blood work shows them working perfectly (is that true??),

and frustratingly none of my doc's believe in Armour or will run a free t3 on

me, no matter how much I kick and scream :-). I am searching once again for a

new doc, hoping to find one with a vast amount of knowledge in this area,

however, I think you are all so much more knowing since unfortunately you have

all lived it too. I am glad to hear that you are feeling much better, that's

great! Is it strange that my TSH came down off of meds, and went so high on the

meds??? Also, where should my free T4 be and should I be paying a little more

attention to that number? Thank you so much for showing me your regimen, that

helps for me to learn from others that have been through this.

>

> Thanks so much again,

> Chele

>

[Guest guest]

there is tons of information and the ONLY sure thing i can tell you is that YOu

have to start educating your self about not only what " conventional " Drs -like

yours- know,, but also what the Good " alternative " drs know.

cuz you can tell that the " conventional " treatment you have had so far is NOT

working for you..

please get Shoman's book

LIving Well With Hypothryodism: WHAT YOUR DR WON'T TELL YOU THAT YOU NEED TO

KNOW

and also understand that you have " Adrenal Fatigue " , while most Alternative DRs

and websites only talk about the Adrenal glands and " Low cortisol " , but the FACT

is that " Adrenal Fatigue " is really about our UPregulated Stress System!

and our STress System consists of:

- our Brain and its

- HPA Axis (where A = Adrenal glands and

- SNS (sympathetic nervous system = our Fight or FLight system

BTW your panic attacks are related to ALL the HPA axis stress hormones and not

just cortisol and adrenaline..

learn ALL the facts related to the above and how the Concept and treatmentS

for " Adrenal Fatigue " should be put in context with what Conventional MEdical

REsearch knows about our HPA Axis and ALL of its Stress hormones ETc..

i also love the " Adrenal Fatigue " book by Dr WIlson.. not because it is

light on the Science and is therefore simplified and EZ to read,, but because he

does a great job of describing the AF lifestyle guidelines that not only help

our " Fatiuged " adrenals but also help CALM the Brain/HPA axis/ SNS / Stress

System! his guidelines cover the things we do Every Day that can Make or Break

our " Adrenal Fatigue " problem (food/ glycemic control, sleep exercise rules and

Stress management tips)

OH= and there is a Autoimmune THryoid disease connection to Wheat/ Gluten

intolerance/ Celiac disease

eg) we should not eat wheat/ gluten !

-Carol

" wrote:

>

>

> Hi everyone,

> I am at my wits end and am in GREAT need of your help. I have been

> feeling terrible and can't function, been to many dr.'s(insurance

> stopped paying) and they all can't figure out what to do for me . I

> would sooooo greatly appreciate any advice or help you can give.

> Here's a history:

>

> 2005:

> Had ovaries removed and tried many different HRT's, they all gave me a

> ton of skipped heart beats, so we stopped with hrt's and haven't been

> on any since.

>

> 2007:

> Was losing hair, gained about 15 pounds, dry skin, and slower than

> normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic

> levothyroxin 1 x day, here are the Labs in 07:

> Cholesterol total 324 (125-200) range

> LDL 240 (0-129) range

> TPO/Anti TPO 401 (<35) range

> Thyroglobulin ABS 175 (<20) range

> TSH (3rd gen) 7.23 (.40-5.5) range

>

> 2007:

> TSH was tested again and at 3.5 and was told I am fine. Never felt any

> improvements, but didn't feel worse either.

>

> 2008:

> Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25

> more 3x week. Again, not much change, but I was bad about remembering

> which days to take the extra, so it most likely wasn't much of a change

> anway. Gained more weight (25 all together).

>

> 2009 (May ¡Vpresent):

> Had a terrible panic attack while driving , first one ever. Then, had

> another a few weeks later¡Kduring stressful times. Dr.'s told me (er

> docs as well as regular doc) it was anxiety related to PTSD (end of '08

> and '09 personally heartbreaking and very hard for me). So I believed

> docs, it made sense. They tested my TSH, and again it was 3.5. They put

> me on Synthroid proper, and raised me to .50 1x day. Then air hunger

> started, followed later by dizziness, high anxiety, constipation, weight

> loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure

> to my head. I couldn't/ can't drive due to not being safe with

> fogginess, dizziness, more anxiety attacks. Loss of appetite,

> depression, tinnitus, migraines (never had before) cold hands and feet,

> hair loss, out of no where would feel like I had been out of my body,

> then back in it in a flash (very scary feeling). BP= 90/50, very very

> bad heart palps (skipped beats with breathlessness) especially at

> nights. So far I have lost 35 pounds while trying not to I look icky

> skinny now and am eating tons of calories to just try and maintain.

> Bowel movements have basically stopped (1x month if lucky). Doc's are

> stumped. Here are labs:

>

>

> JULY:

> TSH 4.43 (.34-4.82) range

>

> AUGUST:

> LH 31.8 (15.9-54) range post-menopausal

> FSH 82.7 (23-116) postmenopausal range

> Estrodiol 16 (0-31) range untreated postmenopausal

> Magnesium serum 2.1 (1.6-2.6) range

> Cortisol 21.1 (4.3-22.4) A.M. range adult female

> Progesterone .7 (0-.7) range postmenopausal

> ACTH, plasma 20 (6-48) range

> Estrogens, total 69 (<40) range postmenopausal untreated

> Cholesterol total 246 (100-199) range

> LDL 175 (0-99) range

> Iron (TIBC) 246 (250-450)

> Iron UIBC 146 (150-375) range

> Iron serum 100 (35-155) range

> Iron Sat % 41 (15-55) range

> Ferritin 259 (10-250) range

> TSH 6.690 (.45-4.5) range

> T4 free .94 (.93-1.71) range

> TPO AB 698 (0-35)

> Endo took me OFF of Synthroid saying I was showing more Hyper symptoms

> than Hypo, and tests show Subclinical Hypo, so it was safe he said.

>

> SEPTEMBER :

> Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am

> petite) with mild hepatocellular disease?

> Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling

> that well either).

> All other liver testing was fine (blood, and hepatitis, etc.)

> Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND,

> 83-93 IND IGG negative on all . Doc says not lyme, that's a false

> positive.

>

> OCTOBER :

> Feeling a bit better, worse on skipped beats, but not losing weight as

> fast, dizziness better, and discovered xanax for anxiety symptoms which

> helps some but just some.

> T4 free .95 (.93-1.71) range

> Thyroxine T4 7.5 (4.5-12) range

> TSH 4.93 (.45-4.5) range

> Triiodothyronine T3 104 (83-200) range

> Ferritin, Serum 328 (10-290) range (raised a lot in short amount of

> time)

> ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average

> in size displays heterogeneous echotecture with increased vascularity

> especially in its lower pole. No dominant nodule identified. Suspicious

> for Hashimoto's thyroiditis.

>

> Doctor wants me back on synthroid, but he isn't sure what to do since my

> TSH got lower OFF of meds and feel better than when on, and higher when

> we raised meds. Neither PCP or Endo will order free t3, or saliva

> adrenal testing. I really need to function, and so greatly miss having a

> life, I have people who really need me, and I need to be there for them!

> Any advice will help, and I promise future posts will NOT be this long

> [] !

> Thank you so much,

> Chele

>

[Guest guest]

Hi Chele,

Activia alone will not do it if you are having problems. I will check and see what I took and mail it to you. It was very expensive but I took it for 1/2 year. Right now I am replenishing again and take Probiotic 1 2 3 pure encapsulations. It makes a big differents. Before I was diagnosed with Hashi, my doc. gave me the probiotics and magnesium. At that time I had panic attacks. Well, if the nutrition don't get absorbed, then one is suffering from malnutrition. No wonder I had panic attacks. After I took lots of multivitamins and probiotis and magn. I felt soooo much better. No panic attacks, no weight loss (without trying to loose weight).

Get some books from the library about the Thyroid. Go to Google and check the new regulations for blood levels with Hashi and Graves. One can become graves after years of having Hashi.

I feel much better with the TSH so low. I believe it has to be even lower / like my doc. said, close to O.

Keep us up to date. I would like to know what you change and if it helps.

You mentioned your stool test. What was the result.

Since I am having trouble with my digestive system, I try to eat lots of fermented food. Sauerkraut / eat 1 Tbs. each day. Yogurt / I make my own. The I make curd from yogurt. I have the recipe on my webpage. Check it out. If you have questions you can write to me from there.

I wish you the best of luck and the right people in your live.

Owner of 's Breadhttp://wheatandsourdough.comhttp://lindasbread.blogspot.com/

To: Thyroiditis From: myloanlady@...Date: Tue, 10 Nov 2009 18:28:59 +0000Subject: Re: Wit's End Challenge Hypo/Hyper

Hi ,Thank you, I will have my stool tested, funny you mention that, I just bought Activia yesterday hoping that something might help. So, going down lower in your TSH helped rid the symptoms? Did you have a period where when you were first taking the meds that it made you feel worse before going so low on your TSH? I hate these "hyper" feelings, that I am so scared to bring my TSH any lower because I have read that it can make some people Hyper if too low. Are we sort of opposite? I am glad you are feeling much better, that's great!Thank you so much,Chele>> > Hi Chele,> > I can emphasize with you, had panic attacks in the past too.> > I am on Levoxy. 0.25mg. My Endo told me there is nothing wrong with my thyroid besides my HASHIMOTO. What a joke. > > I went back to my physician, because she goes more by symptoms than blood test. She told me that she is aiming for a TSH of almost 0. Mine is 0.89 rig now and I feel much better. I don't want to comment on your blood results since I am not qualified. I try to eat healthy foods, veggies, whole grain (I know some are gluten intolerant) it doesn't look like I am having a problem with it. > > I was thinking if you are having enough good bacteria in your digestive system. I had panic attacks, lost weight because I didn't have enough of the good bacteria. I got a stool test and then took tons of probiotics / just good bacteria for 1/2 year to replenish. I feel so much better. Also, I took magnesium for the digestive system and now I can have milk too (i was bloated ). > > I would suggest you get your stool tested. Maybe also for parasites.> > I hope my own experience can help you solve your problems, I wish you all the best.> > > > Owner of 's Bread> > http://wheatandsourdough.com> > http://lindasbread.blogspot.com/> > > > > To: Thyroiditis > Date: Tue, 10 Nov 2009 05:46:50 +0000> Subject: Wit's End Challenge Hypo/Hyper> > > > > > > Hi everyone,> I am at my wits end and am in GREAT need of your help. I have been feeling terrible and can't function, been to many dr.'s(insurance stopped paying) and they all can't figure out what to do for me . I would sooooo greatly appreciate any advice or help you can give. > Here's a history:> > 2005:> Had ovaries removed and tried many different HRT's, they all gave me a ton of skipped heart beats, so we stopped with hrt's and haven't been on any since.> > 2007:> Was losing hair, gained about 15 pounds, dry skin, and slower than normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic levothyroxin 1 x day, here are the Labs in 07:> Cholesterol total 324 (125-200) range> LDL 240 (0-129) range> TPO/Anti TPO 401 (<35) range> Thyroglobulin ABS 175 (<20) range> TSH (3rd gen) 7.23 (.40-5.5) range> > 2007:> TSH was tested again and at 3.5 and was told I am fine. Never felt any improvements, but didn't feel worse either.> > 2008:> Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25 more 3x week. Again, not much change, but I was bad about remembering which days to take the extra, so it most likely wasn't much of a change anway. Gained more weight (25 all together).> > 2009 (May ¡Vpresent):> Had a terrible panic attack while driving , first one ever. Then, had another a few weeks later¡Kduring stressful times. Dr.'s told me (er docs as well as regular doc) it was anxiety related to PTSD (end of '08 and '09 personally heartbreaking and very hard for me). So I believed docs, it made sense. They tested my TSH, and again it was 3.5. They put me on Synthroid proper, and raised me to .50 1x day. Then air hunger started, followed later by dizziness, high anxiety, constipation, weight loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure to my head. I couldn't/ can't drive due to not being safe with fogginess, dizziness, more anxiety attacks. Loss of appetite, depression, tinnitus, migraines (never had before) cold hands and feet, hair loss, out of no where would feel like I had been out of my body, then back in it in a flash (very scary feeling). BP= 90/50, very very bad heart palps (skipped beats with breathlessness) especially at nights. So far I have lost 35 pounds while trying not to I look icky skinny now and am eating tons of calories to just try and maintain. Bowel movements have basically stopped (1x month if lucky). Doc's are stumped. Here are labs:> > > JULY: > TSH 4.43 (.34-4.82) range> > AUGUST:> LH 31.8 (15.9-54) range post-menopausal > FSH 82.7 (23-116) postmenopausal range> Estrodiol 16 (0-31) range untreated postmenopausal> Magnesium serum 2.1 (1.6-2.6) range> Cortisol 21.1 (4.3-22.4) A.M. range adult female> Progesterone .7 (0-.7) range postmenopausal> ACTH, plasma 20 (6-48) range> Estrogens, total 69 (<40) range postmenopausal untreated> Cholesterol total 246 (100-199) range> LDL 175 (0-99) range> Iron (TIBC) 246 (250-450)> Iron UIBC 146 (150-375) range> Iron serum 100 (35-155) range> Iron Sat % 41 (15-55) range> Ferritin 259 (10-250) range> TSH 6.690 (.45-4.5) range > T4 free .94 (.93-1.71) range> TPO AB 698 (0-35)> Endo took me OFF of Synthroid saying I was showing more Hyper symptoms than Hypo, and tests show Subclinical Hypo, so it was safe he said.> > SEPTEMBER :> Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am petite) with mild hepatocellular disease?> Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling that well either). > All other liver testing was fine (blood, and hepatitis, etc.)> Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND, 83-93 IND IGG negative on all . Doc says not lyme, that's a false positive.> > OCTOBER :> Feeling a bit better, worse on skipped beats, but not losing weight as fast, dizziness better, and discovered xanax for anxiety symptoms which helps some but just some.> T4 free .95 (.93-1.71) range> Thyroxine T4 7.5 (4.5-12) range> TSH 4.93 (.45-4.5) range> Triiodothyronine T3 104 (83-200) range> Ferritin, Serum 328 (10-290) range (raised a lot in short amount of time)> ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average in size displays heterogeneous echotecture with increased vascularity especially in its lower pole. No dominant nodule identified. Suspicious for Hashimoto's thyroiditis.> > Doctor wants me back on synthroid, but he isn't sure what to do since my TSH got lower OFF of meds and feel better than when on, and higher when we raised meds. Neither PCP or Endo will order free t3, or saliva adrenal testing. I really need to function, and so greatly miss having a life, I have people who really need me, and I need to be there for them! Any advice will help, and I promise future posts will NOT be this long ! > Thank you so much,> Chele> > > > > > > > > > > __________________________________________________________> Hotmail: Trusted email with Microsoft's powerful SPAM protection.> http://clk.atdmt.com/GBL/go/177141664/direct/01/> http://clk.atdmt.com/GBL/go/177141664/direct/01/>

Bing brings you maps, menus, and reviews organized in one place. Try it now.

[Guest guest]

What state are you in?  Somebody might be able to make a

recommendation.

From:

Thyroiditis [mailto:Thyroiditis ] On Behalf

Of Michele

Sent: Tuesday, November 10, 2009 1:36 PM

To: Thyroiditis

Subject: Re: Wit's End Challenge Hypo/Hyper

Hi ,

Thanks so much for your advice, I too was wondering about my adrenals, but my

doc's said that the blood work shows them working perfectly (is that true??),

and frustratingly none of my doc's believe in Armour or will run a free t3 on

me, no matter how much I kick and scream :-). I am searching once again for a

new doc, hoping to find one with a vast amount of knowledge in this area,

however, I think you are all so much more knowing since unfortunately you have

all lived it too. I am glad to hear that you are feeling much better, that's

great! Is it strange that my TSH came down off of meds, and went so high on the

meds??? Also, where should my free T4 be and should I be paying a little more

attention to that number? Thank you so much for showing me your regimen, that

helps for me to learn from others that have been through this.

Thanks so much again,

Chele

>

>

>

> Subject: Wit's End Challenge Hypo/Hyper

> To: Thyroiditis

> Date: Tuesday, November 10, 2009, 12:46 AM

>

>

> Â

>

>

>

>

> Hi everyone,

> I am at my wits end and am in GREAT need of your help. I have been feeling

terrible and can't function, been to many dr.'s(insurance stopped

paying) and they all can't figure out what to do for me . I would

sooooo greatly appreciate any advice or help you can give.

> Here's a history:

> 2005:

> Had ovaries removed and tried many different HRT's, they all gave me a ton

of skipped heart beats, so we stopped with hrt's and haven't been on any

since.

> 2007:

> Was losing hair, gained about 15 pounds, dry skin, and slower than normal.

Diagnosed with Hashimoto's Thyroiditis and put on .25 generic

levothyroxin 1 x day, here are the Labs in 07:

> Cholesterol total     Â

324Â Â (125-200) range

>

LDLÂ Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â

 240  (0-129) range

> TPO/Anti TPOÂ Â Â Â Â Â Â Â Â Â Â

401Â Â Â (<35) range

> Thyroglobulin ABSÂ Â Â Â Â Â

175Â Â Â (<20) range

> TSH (3rd

gen)Â Â Â Â Â Â Â Â Â Â Â

7.23Â Â Â (.40-5.5) range

> 2007:

> TSH was tested again and at 3.5 and was told I am fine. Never felt any

improvements, but didn't feel worse either.

> 2008:

> Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25

more 3x week. Again, not much change, but I was bad about remembering which

days to take the extra, so it most likely wasn't much of a change anway.Â

Gained more weight (25 all together).

> 2009 (May ¡Vpresent):

> Had a terrible panic attack while driving , first one ever. Then, had

another a few weeks later¡Kduring stressful times. Dr.'s told me (er docs as

well as regular doc) it was anxiety related to PTSD (end of '08 and '09

personally heartbreaking and very hard for me). So I believed docs, it

made sense. They tested my TSH, and again it was 3.5. They put me on Synthroid

proper, and raised me to .50 1x day. Then air hunger started, followed

later by dizziness, high anxiety, constipation, weight loss, insomnia, muscle

pains, flashes in eyesight, rushing of pressure to my head. I couldn't/ can't

drive due to not being safe with fogginess, dizziness, more anxiety

attacks. Loss of appetite, depression, tinnitus, migraines (never had

before) cold hands and feet, hair loss, out of no where would feel like I had

been out of my body, then back in it in a flash (very scary

feeling). BP= 90/50, very very bad heart palps (skipped beats with

breathlessness)

> especially at nights. So far I have lost 35 pounds while trying not to I

look icky skinny now and am eating tons of calories to just try and maintain.

Bowel movements have basically stopped (1x month if lucky). Doc's are

stumped. Here are labs:

>

> JULY:

>

TSHÂ Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â

4.43Â (.34-4.82) range

> AUGUST:

>

LHÂ Â Â Â Â Â Â Â Â Â Â Â

       31.8 (15.9-54) range

post-menopausal

>

FSHÂ Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â

82.7Â (23-116) postmenopausal range

> Estrodiol        Â

 16 (0-31) range untreated postmenopausal

> Magnesium serum  2.1 (1.6-2.6) range

>

Cortisol         Â

 21.1 (4.3-22.4) A.M. range adult female

> Progesterone      .7 (0-.7) range

postmenopausal

> ACTH, plasma      20 (6-48) range

> Estrogens, total  69 (<40) range postmenopausal

untreated

> Cholesterol total 246 (100-199) range

>

LDLÂ Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â

 175 (0-99) range

> Iron (TIBC)Â Â Â Â Â Â Â 246Â

(250-450)

> Iron UIBCÂ Â Â Â Â Â Â Â Â

146Â (150-375) range

> Iron serum       Â

100Â (35-155) range

> Iron Sat

%Â Â Â Â Â Â Â Â Â Â 41

(15-55) range

>

Ferritin         Â

259Â (10-250) range

>

TSHÂ Â Â Â Â Â Â Â Â Â Â Â Â Â

6.690 (.45-4.5) rangeÂ

> T4

free           Â

..94 (.93-1.71) range

> TPO

ABÂ Â Â Â Â Â Â Â Â Â Â Â

698Â (0-35)

> Endo took me OFF of Synthroid saying I was showing more Hyper symptoms

than Hypo, and tests show Subclinical Hypo, so it was safe he said.

> SEPTEMBER :

> Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am

petite) with mild hepatocellular disease?

> Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling

that well either).

> All other liver testing was fine (blood, and hepatitis, etc.)

> Â Â Lyme Testing (IGENEX)Â Positive on IGM bandsÂ

31, 34, 41, 39 IND, 83-93 INDÂ Â Â Â Â IGG negative

on all .  Doc says not lyme, that's a false positive.

> OCTOBER :

> Feeling a bit better, worse on skipped beats, but not losing weight as

fast, dizziness better, and discovered xanax for anxiety symptoms which helps

some but just some.

> T4

free                Â

..95 (.93-1.71) range

> Thyroxine T4Â Â Â Â 7.5 (4.5-12) range

>

TSHÂ Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â

 4.93 (.45-4.5) range

> Triiodothyronine T3Â Â 104Â (83-200) range

> Ferritin, Serum   328 (10-290) range (raised a

lot in short amount of time)

> ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average

in size displays heterogeneous echotecture with increased vascularity

especially in its lower pole. No dominant nodule identified. Suspicious for

Hashimoto's thyroiditis.

> Doctor wants me back on synthroid, but he isn't sure what to do since my

TSH got lower OFF of meds and feel better than when on, and higher when we

raised meds. Neither PCP or Endo will order free t3, or saliva adrenal testing.

I really need to function, and so greatly miss having a life, I have people who

really need me, and I need to be there for them! Any advice will help, and I

promise future posts will NOT be this long !Â

> Thank you so much,

> Chele

> Â

>

> Â

>

[Guest guest]

Hi Cyndi,

I have tears in my eyes because I finally have hope for the first time!!! You

and the others on here are showing me that 1. I sure did pick the best group to

join 2. I need to work more with my alternative doc, and maybe he knows someone

who specializes with the thyroid 3. I will actually feel better some day

(hopefully soon).

I can not thank you and everyone here enough for already helping me and guiding

me in different paths, I am eager to learn more I love all the feedback and

education! Cyndi, I am so glad you are feeling better, and so quickly..wow

that's great!

Thank you,

Chele

> >

> > Hi ,

> >

> > Thanks so much for your advice, I too was wondering about my adrenals, but

my doc's said that the blood work shows them working perfectly (is that true??),

and frustratingly none of my doc's believe in Armour or will run a free t3 on

me, no matter how much I kick and scream :-). I am searching once again for a

new doc, hoping to find one with a vast amount of knowledge in this area,

however, I think you are all so much more knowing since unfortunately you have

all lived it too. I am glad to hear that you are feeling much better, that's

great! Is it strange that my TSH came down off of meds, and went so high on the

meds??? Also, where should my free T4 be and should I be paying a little more

attention to that number? Thank you so much for showing me your regimen, that

helps for me to learn from others that have been through this.

> >

> > Thanks so much again,

> > Chele

> >

>

[Guest guest]

Hi Carol,

I just wrote to Cyndi about how I have tears of hope right now! You are all

teaching me so much that thousands of dollars worth of dr. visits haven't. You

are helping me in ways I could never repay! I have been feeling lost and

hopeless, on the computer trying to learn about all the diseases my docs keep

telling me they think I have (hemochromatosis,lymphoma,leukemia,chronic fatigue

syndrome,lyme, firbromyalgia, etc). I am going to read all about the information

you and the others have given me, and I am just so very very thankful! I can't

wait to have a life again, I used to be so much fun!

Thank you,

Chele

> >

> >

> > Hi everyone,

> > I am at my wits end and am in GREAT need of your help. I have been

> > feeling terrible and can't function, been to many dr.'s(insurance

> > stopped paying) and they all can't figure out what to do for me . I

> > would sooooo greatly appreciate any advice or help you can give.

> > Here's a history:

> >

> > 2005:

> > Had ovaries removed and tried many different HRT's, they all gave me a

> > ton of skipped heart beats, so we stopped with hrt's and haven't been

> > on any since.

> >

> > 2007:

> > Was losing hair, gained about 15 pounds, dry skin, and slower than

> > normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic

> > levothyroxin 1 x day, here are the Labs in 07:

> > Cholesterol total 324 (125-200) range

> > LDL 240 (0-129) range

> > TPO/Anti TPO 401 (<35) range

> > Thyroglobulin ABS 175 (<20) range

> > TSH (3rd gen) 7.23 (.40-5.5) range

> >

> > 2007:

> > TSH was tested again and at 3.5 and was told I am fine. Never felt any

> > improvements, but didn't feel worse either.

> >

> > 2008:

> > Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25

> > more 3x week. Again, not much change, but I was bad about remembering

> > which days to take the extra, so it most likely wasn't much of a change

> > anway. Gained more weight (25 all together).

> >

> > 2009 (May ¡Vpresent):

> > Had a terrible panic attack while driving , first one ever. Then, had

> > another a few weeks later¡Kduring stressful times. Dr.'s told me (er

> > docs as well as regular doc) it was anxiety related to PTSD (end of '08

> > and '09 personally heartbreaking and very hard for me). So I believed

> > docs, it made sense. They tested my TSH, and again it was 3.5. They put

> > me on Synthroid proper, and raised me to .50 1x day. Then air hunger

> > started, followed later by dizziness, high anxiety, constipation, weight

> > loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure

> > to my head. I couldn't/ can't drive due to not being safe with

> > fogginess, dizziness, more anxiety attacks. Loss of appetite,

> > depression, tinnitus, migraines (never had before) cold hands and feet,

> > hair loss, out of no where would feel like I had been out of my body,

> > then back in it in a flash (very scary feeling). BP= 90/50, very very

> > bad heart palps (skipped beats with breathlessness) especially at

> > nights. So far I have lost 35 pounds while trying not to I look icky

> > skinny now and am eating tons of calories to just try and maintain.

> > Bowel movements have basically stopped (1x month if lucky). Doc's are

> > stumped. Here are labs:

> >

> >

> > JULY:

> > TSH 4.43 (.34-4.82) range

> >

> > AUGUST:

> > LH 31.8 (15.9-54) range post-menopausal

> > FSH 82.7 (23-116) postmenopausal range

> > Estrodiol 16 (0-31) range untreated postmenopausal

> > Magnesium serum 2.1 (1.6-2.6) range

> > Cortisol 21.1 (4.3-22.4) A.M. range adult female

> > Progesterone .7 (0-.7) range postmenopausal

> > ACTH, plasma 20 (6-48) range

> > Estrogens, total 69 (<40) range postmenopausal untreated

> > Cholesterol total 246 (100-199) range

> > LDL 175 (0-99) range

> > Iron (TIBC) 246 (250-450)

> > Iron UIBC 146 (150-375) range

> > Iron serum 100 (35-155) range

> > Iron Sat % 41 (15-55) range

> > Ferritin 259 (10-250) range

> > TSH 6.690 (.45-4.5) range

> > T4 free .94 (.93-1.71) range

> > TPO AB 698 (0-35)

> > Endo took me OFF of Synthroid saying I was showing more Hyper symptoms

> > than Hypo, and tests show Subclinical Hypo, so it was safe he said.

> >

> > SEPTEMBER :

> > Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am

> > petite) with mild hepatocellular disease?

> > Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling

> > that well either).

> > All other liver testing was fine (blood, and hepatitis, etc.)

> > Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND,

> > 83-93 IND IGG negative on all . Doc says not lyme, that's a false

> > positive.

> >

> > OCTOBER :

> > Feeling a bit better, worse on skipped beats, but not losing weight as

> > fast, dizziness better, and discovered xanax for anxiety symptoms which

> > helps some but just some.

> > T4 free .95 (.93-1.71) range

> > Thyroxine T4 7.5 (4.5-12) range

> > TSH 4.93 (.45-4.5) range

> > Triiodothyronine T3 104 (83-200) range

> > Ferritin, Serum 328 (10-290) range (raised a lot in short amount of

> > time)

> > ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average

> > in size displays heterogeneous echotecture with increased vascularity

> > especially in its lower pole. No dominant nodule identified. Suspicious

> > for Hashimoto's thyroiditis.

> >

> > Doctor wants me back on synthroid, but he isn't sure what to do since my

> > TSH got lower OFF of meds and feel better than when on, and higher when

> > we raised meds. Neither PCP or Endo will order free t3, or saliva

> > adrenal testing. I really need to function, and so greatly miss having a

> > life, I have people who really need me, and I need to be there for them!

> > Any advice will help, and I promise future posts will NOT be this long

> > [] !

> > Thank you so much,

> > Chele

> >

>

[Guest guest]

Hi carol,

I agree with you. Sometimes it is difficult to say something here because you can't see my face, if I smile or not. That's why I am careful and try to be polite all the time. I don't want people to think i am not friendly, which I am.

It is a wonderful group here and I repeat myself, without your combined knowledge I would not feel as good as I do today. Right now I attend an online class for my business. I would not be able to do it without the help I had here to improof my health.

Thank you, everyone of you ))) Owner of 's Breadhttp://wheatandsourdough.comhttp://lindasbread.blogspot.com/

To: Thyroiditis From: ms_sisyphus_00@...Date: Wed, 11 Nov 2009 18:19:33 +0000Subject: Re: Wit's End Challenge Hypo/Hyper

Dear LInda :)you are a member of this forum and you have right to tell us to wear tinfoil on our heads if you so choose (admittedly we probably won't listen to your instructions but still telling what You think or Experienced is NOT "Disagreeing" with other people!! IF it was? we wouldn't be learning any thing new about our situation . it would have just stoppe dwith "low cortiosl and free t3 ;)our bodies are a LOT more complex than that and we only learn that by discussing the minutiae (sp) with others i always love hearing differnt people's experiences =and their theories on what exactly what went wrong in which part of their "Workflow" as per your solution below,, i think you should also factor the STress system intor yoru equation because when we are stuck in Stress mode (with SNS dominance and the HPA Axis cranking out high amounts of ALL our stress hormones (CRH, AVP, POMC, MSH, BE, ACTH , Cortisol --and Adrenal androgens =these processes BURN UP a LOT of our Electrolytes, miernals, vitamins and amino acids = our Building blocks for all the chemical and enzymatic actions that take place in the body..but why do WE get stuck in STress mode?OH and the Stress hormones that get us read to FIGHT or ruN???they also affect the Cell receptors in our BRain ==causing us to feel Fight/Flight Emotions like: Panic, Anxiety, ANger, irriation, hopelessness(Freeze response!) or a number of other "negative" type emotions ... For Example: the HPA axis hormone called Vasopressin aka AVPVasopressin (aka AVP) is being implicated in Grooming, socialization , aggression(fight for the water and territory), Charity/sharing, Memory => as well as AVPs "Main" job of Water handling, vasoconstriction And blood clotting + 100 other "tasks" via its 3 cell receptor types!Dr Teitelbaum and others are now implicating Vasopresin direclty in the "Postural Hypotension" problems so prevelant in hypot/AF, CFS, and FM patietns!plus the feelign many of us have all the time of Thirsty, carry water bottle with us . (many of our bodies are not "handling" water properly and we are Essentially *Dehydrated at the cellular level becasue we can't "absorb" the water due to Sodium wasting AND vasopressin issues...+-Carol>> > > Hi,> > > > you said: issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first-> > > > I have to disagree. Sorry, but I hardly had any good bacteria in my digestive system and it was imperative to deal with this issue as soon as possible. My panic attacks came from lack of nutrients, due to the problems with the digestive system.> > One can deal with both at the same time. And Activia yogurt will not do it. > > Usually I don't disagree with anybody here on the board, because I don't have the right and the combined knowledge is just wonderful. If I wouldn't have had you guys to draw knowledge from, I would have ended up as a crippled person. My endo told me to take cymbalta for fibro. Ha Ha .> > I rather listen to you; everyone has the best interest at heart for the fellow sufferer. And for that I will be always thankful.> > > > > Owner of 's Bread> > http://wheatandsourdough.com> > http://lindasbread.blogspot.com/> > > > > > > > > > > > > To: Thyroiditis > Date: Wed, 11 Nov 2009 06:37:16 -0800> Subject: Re: Wit's End Challenge Hypo/Hyper> > > > > > > > Chele, I just read your post. Of course you had hyper symptoms - they sometimes go back and forth with thyroiditis. Look at the very high tsh in your case. (Mine was 1.26 perfect level but I had a large goiter full of nodules and high anti-thyroid antibodies so sometimes tsh doesn't mean much.) I lost 50 lbs and was skin and bones, wet skin, constant anxiety, etc etc. I can't tell you all the symptoms. that is the past and I've moved on.> > FIRST, everyone, see what the RIGHT amt of T4 will do for you, then work on the rest. Many symptoms, as Dr Langer told me, will fall off. He was right and even he was amazed. I responded right away to the t4 water solution he gave me. (What made me so bad off at the time were issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first.)> > You can google and find Dr langer's phone number in Berkeley Ca. You may have read Shomon write about him.> > good luck - the truth is out there and you can find it.> > > > > > > > __________________________________________________________> Windows 7: Unclutter your desktop.> http://go.microsoft.com/?linkid=9690331 & ocid=PID24727::T:WLMTAGL:ON:WL:en-US:WWL_WIN_evergreen:112009>

Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now.

[Guest guest]

Glad to hear you had a CT and MRI and they were clear! I had a friend who had

those symptoms and had a brain tumor.

I have tons of floaters and they are nothing. They are actually dead cells in

the " gel " inside your eye. They get worse the older you get.

I hope you get everything figured out so you can feel better soon!

Miaja**

> >

> > Chele-

> >

> > Are you STILL having flashes in your eyesight, dizziness and/or migraines?

These are very serious symptoms. Have you been to a neurologist?

> >

> > Miaja**

> >

>

[Guest guest]

btw, Chele

i forgot to mention another Stress hormone = Vasopessin

i was reading about 10 different medical/websties and their respective " Side

Effects " lists for the RX for the hormone Vasopressin

and a few different websites contained Side Effects that weren't listed on the

others,,

i was really struck by a few that mentioend bizaare things like

- belching (which i had when i was Really sick!) how elegant

and

- *disconnected feeling* !!!!

there were a few others; i posted the links i found orignially

but i think it was on ANother forum..but Google Vasopressin RX side effects and

read a few different website's lists

OH and then google for SIADH and see if That medication (that lowers

HIgh-Vasopressin patients) and see if any of Those side effects sound familiar

...

NOTE: I say this about Vasopressin =like the Hypthalamus can get " Fatigued " the

way the Adrenals/ and their Cortisol hormone can

and These levels will typically NOT show up on any conventional medical lab

test..

but the Dr WIlson's guidelines help the Brain calm down as much as they

help the Adrenals; cortisol production Normalize !!

sadly ; this all takes more time than we would like it to IMO!

but the Adaptogen/s MAY help calm the brain!!?!

Also See Dr Teitelbaum website to get a broader view :0 or another side to

the story

-Carol

> > > > > > >

> > > > > > >

> > > > > > > Hi everyone,

> > > > > > > I am at my wits end and am in GREAT need of your help. I have been

> > > > > > > feeling terrible and can't function, been to many dr.'s(insurance

> > > > > > > stopped paying) and they all can't figure out what to do for me .

I

> > > > > > > would sooooo greatly appreciate any advice or help you can give.

> > > > > > > Here's a history:

> > > > > > >

> > > > > > > 2005:

> > > > > > > Had ovaries removed and tried many different HRT's, they all gave

me a

> > > > > > > ton of skipped heart beats, so we stopped with hrt's and haven't

been

> > > > > > > on any since.

> > > > > > >

> > > > > > > 2007:

> > > > > > > Was losing hair, gained about 15 pounds, dry skin, and slower than

> > > > > > > normal. Diagnosed with Hashimoto's Thyroiditis and put on .25

generic

> > > > > > > levothyroxin 1 x day, here are the Labs in 07:

> > > > > > > Cholesterol total 324 (125-200) range

> > > > > > > LDL 240 (0-129) range

> > > > > > > TPO/Anti TPO 401 (<35) range

> > > > > > > Thyroglobulin ABS 175 (<20) range

> > > > > > > TSH (3rd gen) 7.23 (.40-5.5) range

> > > > > > >

> > > > > > > 2007:

> > > > > > > TSH was tested again and at 3.5 and was told I am fine. Never felt

any

> > > > > > > improvements, but didn't feel worse either.

> > > > > > >

> > > > > > > 2008:

> > > > > > > Dr. upped my levo a lil bit to taking .25 levo all days, but

adding .25

> > > > > > > more 3x week. Again, not much change, but I was bad about

remembering

> > > > > > > which days to take the extra, so it most likely wasn't much of a

change

> > > > > > > anway. Gained more weight (25 all together).

> > > > > > >

> > > > > > > 2009 (May ¡Vpresent):

> > > > > > > Had a terrible panic attack while driving , first one ever. Then,

had

> > > > > > > another a few weeks later¡Kduring stressful times. Dr.'s told me

(er

> > > > > > > docs as well as regular doc) it was anxiety related to PTSD (end

of '08

> > > > > > > and '09 personally heartbreaking and very hard for me). So I

believed

> > > > > > > docs, it made sense. They tested my TSH, and again it was 3.5.

They put

> > > > > > > me on Synthroid proper, and raised me to .50 1x day. Then air

hunger

> > > > > > > started, followed later by dizziness, high anxiety, constipation,

weight

> > > > > > > loss, insomnia, muscle pains, flashes in eyesight, rushing of

pressure

> > > > > > > to my head. I couldn't/ can't drive due to not being safe with

> > > > > > > fogginess, dizziness, more anxiety attacks. Loss of appetite,

> > > > > > > depression, tinnitus, migraines (never had before) cold hands and

feet,

> > > > > > > hair loss, out of no where would feel like I had been out of my

body,

> > > > > > > then back in it in a flash (very scary feeling). BP= 90/50, very

very

> > > > > > > bad heart palps (skipped beats with breathlessness) especially at

> > > > > > > nights. So far I have lost 35 pounds while trying not to I look

icky

> > > > > > > skinny now and am eating tons of calories to just try and

maintain.

> > > > > > > Bowel movements have basically stopped (1x month if lucky). Doc's

are

> > > > > > > stumped. Here are labs:

> > > > > > >

> > > > > > >

> > > > > > > JULY:

> > > > > > > TSH 4.43 (.34-4.82) range

> > > > > > >

> > > > > > > AUGUST:

> > > > > > > LH 31.8 (15.9-54) range post-menopausal

> > > > > > > FSH 82.7 (23-116) postmenopausal range

> > > > > > > Estrodiol 16 (0-31) range untreated postmenopausal

> > > > > > > Magnesium serum 2.1 (1.6-2.6) range

> > > > > > > Cortisol 21.1 (4.3-22.4) A.M. range adult female

> > > > > > > Progesterone .7 (0-.7) range postmenopausal

> > > > > > > ACTH, plasma 20 (6-48) range

> > > > > > > Estrogens, total 69 (<40) range postmenopausal untreated

> > > > > > > Cholesterol total 246 (100-199) range

> > > > > > > LDL 175 (0-99) range

> > > > > > > Iron (TIBC) 246 (250-450)

> > > > > > > Iron UIBC 146 (150-375) range

> > > > > > > Iron serum 100 (35-155) range

> > > > > > > Iron Sat % 41 (15-55) range

> > > > > > > Ferritin 259 (10-250) range

> > > > > > > TSH 6.690 (.45-4.5) range

> > > > > > > T4 free .94 (.93-1.71) range

> > > > > > > TPO AB 698 (0-35)

> > > > > > > Endo took me OFF of Synthroid saying I was showing more Hyper

symptoms

> > > > > > > than Hypo, and tests show Subclinical Hypo, so it was safe he

said.

> > > > > > >

> > > > > > > SEPTEMBER :

> > > > > > > Liver ultrasound, (have spider angiomas) showed mild fatty liver

(I am

> > > > > > > petite) with mild hepatocellular disease?

> > > > > > > Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been

feeling

> > > > > > > that well either).

> > > > > > > All other liver testing was fine (blood, and hepatitis, etc.)

> > > > > > > Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39

IND,

> > > > > > > 83-93 IND IGG negative on all . Doc says not lyme, that's a

false

> > > > > > > positive.

> > > > > > >

> > > > > > > OCTOBER :

> > > > > > > Feeling a bit better, worse on skipped beats, but not losing

weight as

> > > > > > > fast, dizziness better, and discovered xanax for anxiety symptoms

which

> > > > > > > helps some but just some.

> > > > > > > T4 free .95 (.93-1.71) range

> > > > > > > Thyroxine T4 7.5 (4.5-12) range

> > > > > > > TSH 4.93 (.45-4.5) range

> > > > > > > Triiodothyronine T3 104 (83-200) range

> > > > > > > Ferritin, Serum 328 (10-290) range (raised a lot in short

amount of

> > > > > > > time)

> > > > > > > ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe

average

> > > > > > > in size displays heterogeneous echotecture with increased

vascularity

> > > > > > > especially in its lower pole. No dominant nodule identified.

Suspicious

> > > > > > > for Hashimoto's thyroiditis.

> > > > > > >

> > > > > > > Doctor wants me back on synthroid, but he isn't sure what to do

since my

> > > > > > > TSH got lower OFF of meds and feel better than when on, and higher

when

> > > > > > > we raised meds. Neither PCP or Endo will order free t3, or saliva

> > > > > > > adrenal testing. I really need to function, and so greatly miss

having a

> > > > > > > life, I have people who really need me, and I need to be there for

them!

> > > > > > > Any advice will help, and I promise future posts will NOT be this

long

> > > > > > > [] !

> > > > > > > Thank you so much,

> > > > > > > Chele

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

hi Miaji

do you have any HIgh cortisol test results from a *24hr cortisol saliva test*?

(Eg Adrenal Fatigue " ??

my floaters went away when i was taking PS/Rhodiola to help my (slightlY) high

cortisol.. i Know that that supplement helped calm my brain (i could tell that i

didn't react as strongly to Life/emotional occurences)

but i also woke up startled Every mornign i took that Supp -for 6 months.

i do have vision issues again (betw4en hypot and AF/HPA Axis/SNS) my eyes were

affected since a kid (coke bottles in grade school 8-o

Have you found any thing that helps your floaters?

and have you persued the 'Adrenal fatigue " cortisol connection at all?

(I know that Cushings patients also get floaters and also CSR== that is where i

read about the light " Dimmer " symptom that I have!)

--Carol

> > >

> > > Chele-

> > >

> > > Are you STILL having flashes in your eyesight, dizziness and/or migraines?

These are very serious symptoms. Have you been to a neurologist?

> > >

> > > Miaja**

> > >

> >

>

[Guest guest]

Carol,

Can I ask you how you cured the Air-hunger?

Mine was getting better, then my Dr switched me from Nature Throid to Armour.

Since the week I have been on Armour my air hunger flared up again...man it is

miserable.

I started on Isocort again thinking that might help, but so far it hasn't

subsided

Just curious how to speak with my Dr about air hunger. Right now they have no

idea what I am talking about....there is a cure for it, right?

I am just so unsure how this all started all of the sudden at 38 years old

> >

> > Chele-

> >

> > Are you STILL having flashes in your eyesight, dizziness and/or migraines?

These are very serious symptoms. Have you been to a neurologist?

> >

> > Miaja**

> >

>

[Guest guest]

YES eye probelms are common in both Hypot and " Adrenal Fatigu3d' patietns . and

btw, glad the conventional tests cleared you

ANother clue that you DO have " Adrenal Fatigue "

tons of symtpoms and tons of conventional tests done that are ALL " Normal "

the Hallmark of most Adrenal Fatigue Patients

i have all your Eye sytmpoms for ever and yes, in a way the vision thing IS a

neuralogical problem . do you know which part of the retina the SNS ennervates

and which part of the retina the PNS ennervates?

problem DRs do NOT believe in Adrenal Fatigue (Whidh IS a stupid name for

what we have!!)

=================================

remember that " Adrenal Fatigue " is really about the BRAIN being stuck in stress

mode 24/7/365 and it Tells the rest of the body to go into Stress mode,, by way

of the HPA Axis -and ALL of the stress hormones- and the SNS = Sympathetic

Nervous system

==================================

start googling different word combinations to learn more

the SCience is there in *conventional Medical Research ==

but sadly it is only a few Alternative MDs that are putting it all together and

realizing that MANY People have this problem (which sadly they called by the

confusing and silly name = " Adrenal Fatigue " )

btw, i just researched the Stress hormone Vasopressin and vision and eyes

yesterday ! this stress hormone returned Hundreds of thousands of items!

=======================================

the stress hormones made during the HPA Axis " workflow "

CRH/CRF , Vasopressin , POMC, Beta-endorphins, MSH (and its 5 cell receptyr

Types MCR 1- 5!!) ACTH, Cortisol, Adrenal Androgens , and to some extent

ALdosterone

======================================

all of these get UPregulated (and get fatigued sometimes??) during our " stress

response " and i will assume that in MOST of our cases, that our conventional

Lab tests will = " Normal "

-- just like in most of us AF patietn cases,, our conventional Cortisol tests

also = " Normal " !!

==all of the Stress hormones affect the Eye in some way or antoher

google

ALL of your symptosm are common in a lot of HypOT/ AFd patietns!

so please do check out Dr (and Dr Teitelbaum) for a broad and

good education on how the entire stress system gets affected in HYpot /hashis

patietns

AND to learn what you can do to get healthy and get rid of all the symtoms

(NOT cured overnight!) but you will start feeling improvement very quickly!!

-Carol

> >

> > Chele-

> >

> > Are you STILL having flashes in your eyesight, dizziness and/or migraines?

These are very serious symptoms. Have you been to a neurologist?

> >

> > Miaja**

> >

>

[Guest guest]

hi

btw i am having issues after having switched from Old armour to Naturethroid!

its such a drag (i may Now even be *very slightly overmedicated,, but i was

having HEart Palps!! at the lower -15mg dosage = i NEver had heart palps on

Armour ==tho i did on Sinthroid!!)

it worries me that NAturethroid shares 2 of the *same Inactive ingredients that

Sinthrodi does!?

==anwya; i have to get my Free t4/ Free t3/ Rt3 to be Optimal

Plus i have to help my 'Adrenal Fatiuge "

but where Adrenal Fatigeu is really an upregulation of the Brain/ SNS/ HPS Axis

= our Stress system..

i just read that a side-effect of Vasopressin was shortness of breath! and

ofcourse we do have *1 of the Vasopressin cell receptor Types in our lungs! as

well as elsewhere..

* i am starting to think of the Breathing /air hunger issues as a mixture of the

Stress hormones (and the SNS!) affecting these weird sensations (which is NOT an

asthma type of symptom =that Is a separate issue for folks)

*one thing that MAY be important is to make sure that you are well hydrated

=with whatever OPtimal Salt /potassium /water intake is best for each of us!

=========

Find DR JOhn Lowe's website!

he is the DR who first Documented the HYPOT patient sympto of Air Hunger (and I

also have " Forgetting to breathe!!

like my brain was SO hypot/AFd that it couldn't even send the AUtonomic Nervous

sysetm messages to tell the lungs/diaphram to .breathe.

* i don't tell my regular DRs -who i get my ARmour/NT from- about most of my

symtpsom cuz it only confuses them!

OH< ya know what i was thinkin gof doing?

SOME *Alternative MDs have on their websties, a LONG patietns form /history/

symtposm list that include the Types of sytmpsom that many of us hypot/AF/

CFS/FM pateisnts have

and i was thinking that i MIGHT find one ; fill it out and Take it to my REGULAR

DR ???it would at least prove to the reuglar dr (who takes my crummy insurance )

that there are tonsof Alternative DRs who KNOW that there is the whole other

Popoulation of patients who have thigns wrong at their " cellular Level " i am

sick of being called or inferred that i am a hypochondriac (or a " Dweller " as my

Dr called me at my last visit )

has any one taken an Alternative DRs " health questionaire " /symptoms list to

their REgular DR??

how did it go?

-Carol

> > >

> > > Chele-

> > >

> > > Are you STILL having flashes in your eyesight, dizziness and/or migraines?

These are very serious symptoms. Have you been to a neurologist?

> > >

> > > Miaja**

> > >

> >

>

[Guest guest]

No, never had testing because I don't have any symptoms of adrenal fatigue.

LOTS and lots of people have floaters that are nothing. In fact, I am in school

right now and everyone at my lab table has them when we look through the

microscope. I'm sure the whole table doesn't have cortisol problems!

>

> hi Miaji

>

> do you have any HIgh cortisol test results from a *24hr cortisol saliva test*?

(Eg Adrenal Fatigue " ??

>

> my floaters went away when i was taking PS/Rhodiola to help my (slightlY) high

cortisol.. i Know that that supplement helped calm my brain (i could tell that i

didn't react as strongly to Life/emotional occurences)

>

> but i also woke up startled Every mornign i took that Supp -for 6 months.

>

> i do have vision issues again (betw4en hypot and AF/HPA Axis/SNS) my eyes were

affected since a kid (coke bottles in grade school 8-o

>

> Have you found any thing that helps your floaters?

> and have you persued the 'Adrenal fatigue " cortisol connection at all?

>

> (I know that Cushings patients also get floaters and also CSR== that is where

i read about the light " Dimmer " symptom that I have!)

>

> --Carol

>

[Guest guest]

well , the " Adrenal Fatigue " drs do estimate that about 50% of folks in the USA

have some level of Adrenal Fatigue ! the fact is that the SAD diet is NOT good

for adrenals and they do say that Sugar is The biggest stressor and most common

stressor in " Adrenal Fatigue "

and remember that " Adrenal Fatigue " is really about our *entire Stress system =

Brain, SNS and HPA axis! and they upregulate AKA go HIGH and STAY Elevated!

(which is why the adrenals/cortisol can get " Fatigued " cuz the brain/sns/hpa

keeps telling the Adrenal gladns to make more! make more!)

tho Teitelbaum CFS/FM dr and Dr Borkin ARE starting to talk about the other

parts BUT here is what most alternative DRs are not talking about :

= other parts of the SNS/HPA Axis can get " fatigued " or maladapted.. and for

those other stress hormoens in the HPA axis " Cascade " ? the RATIOS of one to

another can affect symptoms and signs!

i was Very surprised to see that Vasopressin (AKA AVP) and eye returns

*millions* of items when searhcing by those 2 words on Google.

and ofcourse the SNS/PNS ennervate different parts of the retina .huge

adrenalie/cortisol rush? that also means the SNS send a huge electrical " burst

into the part of the Retina that is ennervated by the SNS!! and that Moves the

eye into WIDE VIEW VS fine,upclose, read fine print MODe

and CUshings' patients have CSR ;;

where do those Floater bits come from ? may be from the " bubling' of the

surface/RPE layer that occurs in CSR (another " benign " condition --until it

isn't

** consider that real floaters (vs the *miniscule* and *stationary* blind spot

that ALL Humans have *where the Optic Nerve is located in the retina*) are

probably a beginning sign that *some level of 'Adrenal Fatigue " is occuring..

> >

> > hi Miaji

> >

> > do you have any HIgh cortisol test results from a *24hr cortisol saliva

test*? (Eg Adrenal Fatigue " ??

> >

> > my floaters went away when i was taking PS/Rhodiola to help my (slightlY)

high cortisol.. i Know that that supplement helped calm my brain (i could tell

that i didn't react as strongly to Life/emotional occurences)

> >

> > but i also woke up startled Every mornign i took that Supp -for 6 months.

> >

> > i do have vision issues again (betw4en hypot and AF/HPA Axis/SNS) my eyes

were affected since a kid (coke bottles in grade school 8-o

> >

> > Have you found any thing that helps your floaters?

> > and have you persued the 'Adrenal fatigue " cortisol connection at all?

> >

> > (I know that Cushings patients also get floaters and also CSR== that is

where i read about the light " Dimmer " symptom that I have!)

> >

> > --Carol

> >

>

[Guest guest]

Hi Chele,

I don't have HH assuming you mean Hereditary Hemochromatosis; but I struggle

with low iron and low vitamin B12 common in Hashis. I have Hashimoto's

Thyroiditis. My kids have it too; my youngest daughter also has Graves in

addition to Hashis. She has both hypo and hyper symptoms and is on a

block/replace meds (an anti-thyroid drug and thyroid replacement hormone). This

seems to be working well, but it took four years to find her competent help.

All the other doctors wanted to kill her thyroid with RAI (radioactive iodine)

therapy.

The reason you need a knowledgeable hematologist is that too much iron can/will

increase your cancer risk. If you can't find a hematologist soon try just going

to a blood bank and donating blood. The ferritin level needs to be lowered

immediately. Inflammation common in Hashis causing ferritin to go high seems

illogical to me.

A friend has Hereditary Hemochromatosis and gets bloodlettings regularly and

also gets iron and CBC testing regularly. She had a big scare and her iron

suddenly went high and other tests indicated further cancer testing. The root

problem was an undiagnosed infection, which cleared fairly quickly and she got

her high ferritin down and now her doc watches it closely. BTW, she was given a

diagnosis of Hashis that cleared up after her iron went back into balance and

she started eating a healthy unrefined food diet. The literature says iron

overload can destroy organs, cause autoimmune thyroid disease, cancer, heart

disease, stoke and more.

If you aggressively treat the high iron some of the other stuff may revolve.

Read everything you can on Lyme's and hemochromatosis. Has your doc considered

just giving you a round of antibotics for the Lyme's? Instead of insisting the

tests are wrong and making illogical statements as to why your ferritin is so

high. I noticed that migraines are common with both high and low iron.

Keep us updated.

Best of luck,

~Bj

> > >

> > >

> > > Hi everyone,

> > > I am at my wits end and am in GREAT need of your help. I have been

> > > feeling terrible and can't function, been to many dr.'s(insurance

> > > stopped paying) and they all can't figure out what to do for me . I

> > > would sooooo greatly appreciate any advice or help you can give.

> > > Here's a history:

> > >

> > > 2005:

> > > Had ovaries removed and tried many different HRT's, they all gave me a

> > > ton of skipped heart beats, so we stopped with hrt's and haven't been

> > > on any since.

> > >

> > > 2007:

> > > Was losing hair, gained about 15 pounds, dry skin, and slower than

> > > normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic

> > > levothyroxin 1 x day, here are the Labs in 07:

> > > Cholesterol total 324 (125-200) range

> > > LDL 240 (0-129) range

> > > TPO/Anti TPO 401 (<35) range

> > > Thyroglobulin ABS 175 (<20) range

> > > TSH (3rd gen) 7.23 (.40-5.5) range

> > >

> > > 2007:

> > > TSH was tested again and at 3.5 and was told I am fine. Never felt any

> > > improvements, but didn't feel worse either.

> > >

> > > 2008:

> > > Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25

> > > more 3x week. Again, not much change, but I was bad about remembering

> > > which days to take the extra, so it most likely wasn't much of a change

> > > anway. Gained more weight (25 all together).

> > >

> > > 2009 (May ¡Vpresent):

> > > Had a terrible panic attack while driving , first one ever. Then, had

> > > another a few weeks later¡Kduring stressful times. Dr.'s told me (er

> > > docs as well as regular doc) it was anxiety related to PTSD (end of '08

> > > and '09 personally heartbreaking and very hard for me). So I believed

> > > docs, it made sense. They tested my TSH, and again it was 3.5. They put

> > > me on Synthroid proper, and raised me to .50 1x day. Then air hunger

> > > started, followed later by dizziness, high anxiety, constipation, weight

> > > loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure

> > > to my head. I couldn't/ can't drive due to not being safe with

> > > fogginess, dizziness, more anxiety attacks. Loss of appetite,

> > > depression, tinnitus, migraines (never had before) cold hands and feet,

> > > hair loss, out of no where would feel like I had been out of my body,

> > > then back in it in a flash (very scary feeling). BP= 90/50, very very

> > > bad heart palps (skipped beats with breathlessness) especially at

> > > nights. So far I have lost 35 pounds while trying not to I look icky

> > > skinny now and am eating tons of calories to just try and maintain.

> > > Bowel movements have basically stopped (1x month if lucky). Doc's are

> > > stumped. Here are labs:

> > >

> > >

> > > JULY:

> > > TSH 4.43 (.34-4.82) range

> > >

> > > AUGUST:

> > > LH 31.8 (15.9-54) range post-menopausal

> > > FSH 82.7 (23-116) postmenopausal range

> > > Estrodiol 16 (0-31) range untreated postmenopausal

> > > Magnesium serum 2.1 (1.6-2.6) range

> > > Cortisol 21.1 (4.3-22.4) A.M. range adult female

> > > Progesterone .7 (0-.7) range postmenopausal

> > > ACTH, plasma 20 (6-48) range

> > > Estrogens, total 69 (<40) range postmenopausal untreated

> > > Cholesterol total 246 (100-199) range

> > > LDL 175 (0-99) range

> > > Iron (TIBC) 246 (250-450)

> > > Iron UIBC 146 (150-375) range

> > > Iron serum 100 (35-155) range

> > > Iron Sat % 41 (15-55) range

> > > Ferritin 259 (10-250) range

> > > TSH 6.690 (.45-4.5) range

> > > T4 free .94 (.93-1.71) range

> > > TPO AB 698 (0-35)

> > > Endo took me OFF of Synthroid saying I was showing more Hyper symptoms

> > > than Hypo, and tests show Subclinical Hypo, so it was safe he said.

> > >

> > > SEPTEMBER :

> > > Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am

> > > petite) with mild hepatocellular disease?

> > > Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling

> > > that well either).

> > > All other liver testing was fine (blood, and hepatitis, etc.)

> > > Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND,

> > > 83-93 IND IGG negative on all . Doc says not lyme, that's a false

> > > positive.

> > >

> > > OCTOBER :

> > > Feeling a bit better, worse on skipped beats, but not losing weight as

> > > fast, dizziness better, and discovered xanax for anxiety symptoms which

> > > helps some but just some.

> > > T4 free .95 (.93-1.71) range

> > > Thyroxine T4 7.5 (4.5-12) range

> > > TSH 4.93 (.45-4.5) range

> > > Triiodothyronine T3 104 (83-200) range

> > > Ferritin, Serum 328 (10-290) range (raised a lot in short amount of

> > > time)

> > > ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average

> > > in size displays heterogeneous echotecture with increased vascularity

> > > especially in its lower pole. No dominant nodule identified. Suspicious

> > > for Hashimoto's thyroiditis.

> > >

> > > Doctor wants me back on synthroid, but he isn't sure what to do since my

> > > TSH got lower OFF of meds and feel better than when on, and higher when

> > > we raised meds. Neither PCP or Endo will order free t3, or saliva

> > > adrenal testing. I really need to function, and so greatly miss having a

> > > life, I have people who really need me, and I need to be there for them!

> > > Any advice will help, and I promise future posts will NOT be this long

> > > [] !

> > > Thank you so much,

> > > Chele

> > >

> >

>