Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 , It is very hard to keep up with posts, and you chime in as often as you can!!! ((((hugs)))) debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 I did not realize you did not respond to me. I have noticed you and felt like you contribute just fine.Please do not feel like you are not a favorite, as I know I am not a favorite here either but I always put my 2 cents worth in.\ which of the syndromes do you have? I have fibromyalgia, chronic fatigue syndrome, and migraines and gerd and ibs. ((((hugs)))) debbie ________________________________ I'm usually on the side and really thought others would respond to you, I am not a favourite here so I keep pretty much to myself. I owe you an apology, it was selfish of me to not respond to you I was thinking only of myself and not what you were going through and I am sorry. If you want to chat feel free to email me, I'll be happy to hear from you. {{{ hugs }}} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2010 Report Share Posted February 7, 2010 I agree but was feeling like I was the only person that responds to her and she was feeling left out. and i think everyone reponds.I was just explaining that I don't think that is true. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 I hope they get on the right page soon. That must be extremely frustrating.I hope the neurologist has some answers Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 My husband has to help me get dressed also. I will keep you in my prayers Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 , I so sympathize with your situation. Even though I am able to get around fairly well, when I am in pain like tonight (my shoulder barely hurts in comparison with my neck, suddenly), I wish so much that I had someone here to help me. I get two hours a month for housekeeping help, but that is a bare minimum, though better than nothing at all. I do hope that the people involved in trying to get you more help with succeed soon. I hope you get some definitive answers soon and that they are relatively benign ones. Barbara S in CT > > Extremely frustrating. my husband is doing most things for me and although I went to rehab and they taught me how to use pins and tape to pull up my pants this was 15 months ago about and now I am finding that using them is too difficult, I have support workers for showering 2 days a week the rest of the time and for everything else my husband who works 6 days a week HAS to do it. This sucks but we are working with MPs and also advocacy to get more hours who knows what we are suposed to do in the meantime?? Could take months before they give us more support and we cant apply for help until I have seen the neurologist to get a proper diagnosis and hopefully a prognosis I have decided that I dont care if this is going to be forever like this I just want to KNOW that one way or another. Not knowing is worse than knowing simply because knowing you can plan your future a bit better. I have many dreams and goals I would like to achieve and its a bit hard to do any of them until I know a bit more about what is happening with my health........ > Let you know what happens appmt is 23rd feb > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.