Re:

October 5, 2004

I've had many a Cobra revert to 2ndry once the pt became Medicare eligible.

Hi Folks, In situations where the former employer allows a new Medicare

beneficiary to retain her COBRA, I run into the rare COBRA administrator

who insists that the policyholder is now considered to be on an individual

plan instead of EGHP - in other words, the COBRA will become 2ndary when

Medicare entitlement begins. Is this EVER possible? Thanks for your

thoughts.

on

Transplant Financial Counselor

Legacy Transplant Services

1040 NW 22nd Ave Suite 480

Portland OR 97210

direct line/confidential voicemail

main line

main line toll-free

fax

lmorriso@...

IMPORTANT NOTICE: This communication, including any attachment, contains

information that may be confidential or privileged, and is intended solely

for the entity or individual to whom it is addressed. If you are not the

intended recipient, you should contact the sender and delete the message.

Any unauthorized disclosure, copying, or distribution of this message is

strictly prohibited. Nothing in this email, including any attachment, is

intended to be a legally binding signature.

January 13, 2005

Since we have a standard protocol in place for transplant-related medicines

only (long term and short term), I have a list of these meds with their

anticipated 30 and 90 day supply cost that I go over with the pt and have

them sign at the bottom, along with the date and my signature as witness.

There is also noted, at the bottom of this page, that this is for the

purpose of informed consent only, and not a contract on their part or ours.

If this is a commercial policy, I give the pt a copy to take with them. This

way, if the pts plan changes before we see them again for their yearly

re-eval, they can take the initiative to estimate the cost for themself.

The pts are told that this is an expense that they must consider as a

forever cost in their budgeting. Not like a car pmt that will eventually be

paid off.

They are also told that they need to consider what they are taking now as

part of their daily rx plan (except for dialysis only meds)as a part of

their costs. I do not get prices on anything other than our transplant

protocol meds that we typically prescribe.

This signed sheet will become a part of the permanent chart.

I have never had an insurance pharmacy plan refuse to give me the terms of

their perscription plan. I also note these terms on the pt med sheet, so

the pt can follow how the anticipated med costs were arrived at.

Re:

What we do with medications is, list what is needed post transplant

and what could potentially be needed (ie, toprol, lasix, fosamax,

plendil . . . ) We display on our copy the price that Eckerds or

Walmart Pharmacy has quoted us for a thirty day supply. We show what

medicare would pay for immunos and the difference. We give the pt the

med list without the price and tell them to go to their pharmacy and

using whatever their drug plan is, find out how much the medications

will cost them the first month after transplant.

>>> Felicia.Elizondo@... 1/10/2005 4:50:47 PM >>>

Does anybody have a financial layout that is given or presented to the

patients that states what thier financial responsibility would be? I am

looking for something for Medicare only patients that would not only

touch on the medical part but also on the medication side post

transplant. Something that would break down the charges or amounts that

they may be responsible for. I am looking for some ideas so that I can

put together something for my patients. If anybody would be interested

in sharing I would greatly appreciate it.

Thank you,

Felicia Elizondo, CMIS

Transplant Intake Coordinator

January 12, 2006

Medicare Part B pays 80% of the immunosuppressive drugs just like they did before (most pharmacies did not bill Medicare Part B and only billed Medicaid in the past) and their secondary insurance, Medicaid, picks up the 20% not their Part D company.

The confusing part is for renal, at least, we have to fill out the form for DME - Immunosuppressive drugs, docs do not know the date of discharge and thus the form becomes a stumbling block for getting patients their meds. In addition, the form requires information as to who paid for the patient's transplant, i.e. was it paid for by Medicare and if yes meds are denied and are sent back to Part B if pt still has active Medicare.

The whole situation with immunosuppressive drugs has resulted in many of our patients going without immunosuppressive drugs. Many dual eligibles have not received their card for the program they were assigned to and pharmacies do not have the time to try and find out their carriers and play with BC/BS for drugs for pts that do not know their Part D Claim # or Name of r. They are reluctant to give out expensive meds without knowing how they are going to be paid for them.

My entire week has been consumed with Medicare CMS conversations as well as trying to reassure patients that they will get their meds.

I thought our patients without coverage would benefit from this Part D but now I'm unsure how they are to access this benefit.

Any other thoughts????Bev

June 8, 2006

Try this one:

http://www.noridianmedicare.com/provider/pubs/med_b/fee_sched.html

From: TxFinancialCoordinators

[mailto:TxFinancialCoordinators ] On Behalf Of , E.

Sent: Thursday, June 08, 2006 2:59

PM

To:

Txfinancialcoordinators

Subject:

Good afternoon all,

Does anyone know the website for Medicare fee schedules?

Tx

E.

Transplant Financial Coordinator

Temple University

Hospital

3401 N.

Broad Street

Philadelphia, Pa

19140

FAX

June 8, 2006

Thank you

-----Original Message-----From: TxFinancialCoordinators [mailto:TxFinancialCoordinators ]On Behalf Of Kohlgraf, SonjaSent: Thursday, June 08, 2006 4:13 PMTo: TxFinancialCoordinators Subject: RE:

Try this one:

http://www.noridianmedicare.com/provider/pubs/med_b/fee_sched.html

From: TxFinancialCoordinators [mailto:TxFinancialCoordinators ] On Behalf Of , E.Sent: Thursday, June 08, 2006 2:59 PMTo: Txfinancialcoordinators Subject:

Good afternoon all,

Does anyone know the website for Medicare fee schedules?

Tx

E. Transplant Financial Coordinator Temple University Hospital 3401 N. Broad Street Philadelphia, Pa 19140 FAX

June 9, 2006

I think it may depend on who your F.I. is...check their website. Happy Friday to all!Sherri -----Original Message-----From: TxFinancialCoordinators [mailto:TxFinancialCoordinators ] On Behalf Of , E.Sent: Thursday, June 08, 2006 4:24 PMTo: TxFinancialCoordinators Subject: RE: Thank you-----Original Message-----From: TxFinancialCoordinators [mailto:TxFinancialCoordinators ]On Behalf Of Kohlgraf, SonjaSent: Thursday, June 08, 2006 4:13 PMTo: TxFinancialCoordinators Subject: RE: Try this one:http://www.noridianmedicare.com/provider/pubs/med_b/fee_sched.htmlFrom: TxFinancialCoordinators [mailto:TxFinancialCoordinators ] On Behalf Of , E.Sent: Thursday, June 08, 2006 2:59 PMTo: Txfinancialcoordinators Subject: Good afternoon all, Does anyone know the website for Medicare fee schedules? Tx E. Transplant Financial Coordinator Temple University Hospital 3401 N. Broad Street Philadelphia, Pa 19140 FAX

October 30, 2006

Congratulations and we wish you all the luck in the world. You will. be missed.

Hogan Transplant Financial Coordinator Lahey Clinic 41 Mall Rd. Burlington, MA 01805 phone fax

-----Original Message-----From: TxFinancialCoordinators [mailto:TxFinancialCoordinators ]On Behalf Of McIver, Sent: Monday, October 30, 2006 1:50 PMTo: TxFinancialCoordinators Subject:

Hello to All

I want everyone to know I will miss the TFCA. I have accepted a position outside of Summa Health System so I will no longer be a member- eff 11-8-06.

I really appreciate this organization and the wonder people that make up the TFCA.

I hope the Best for you all and that this organization never ends. I could not have done this job w/o You!

Thank you and God Bless you!

McIver

Renal Services Financial Counselor

Summa Health System

Office #

Fax #

mciverdsumma-health (DOT) org

See our web page at http://www.lahey.org for a full directory of Lahey sites, staff, services and career opportunities.THIS MESSAGE IS INTENDED FOR THE USE OF THE PERSON TO WHOM IT IS ADDRESSED. IT MAY CONTAIN INFORMATION THAT IS PRIVILEGED, CONFIDENTIAL AND EXEMPT FROM DISCLOSURE UNDER APPLICABLE LAW. If you are not the intended recipient, your use of this message for any purpose is strictly prohibited. If you have received this communication in error, please delete the message and notify the sender so that we may correct our records.

June 13, 2007

Hi patricia,

I m tilly & I m disabled w/ severe fibro. I just wanted to say HI to a

fellow fibromite & say FIBRO SUX !! LOL it wont kill ya but you ll wish it did

LOL.I hope your doing ok today hun.

warm hugs,

tilly

Matney wrote:

Bob,

I ama keeping you and your wife in my prayers. My transplant nurse coordinator

told me to take the quinine. I will research to see if it is harmful. If you

have any info on this please send it my way. I am also in a LOT of pain, however

was told by my transplant team I could no longer take pain meds. I used to be on

15 mg of Morphine for chronic pain and fibromyalgia, but the team took me off

it. What do I do now????? They told me to take tylenol BUT all the info I have

says that tylenol is worse for the liver than anything else.

Thanks for all the help.

Tricia

Bob Aragon wrote:

Oh God yes, Tricia. I have a terrible time sleeping. With my wife in the

hospital, I did not even try to go to bed last night. I also go to sleep after

morning lactulose 'episode' around

9:00am , and sleep till noon or so. Sometimes I also have crampy legs, but my

liver and

spleen hurt so bad, I take narcotics for it. My hepatologist told me that

moriphine is not

hepatoxic so log as it is pure like oxycodone. I'm not sure but I thought I read

that quinine is bad for the liver. My primary care doctor had wanted me to take

it. I'm not sure, though.

Re: Back Pain - MaC

MaC,

The pain is under the rib cage. The cramping is unbearable. When I started the

mineral water and quinine it relieves the cramps to an extent but not

completely. Mineral water is UUUUGGGGHHHH. Taste is horrible. Quinine is an old

medication that has been out for many, many years. You used to be able to get it

with a RX but now it is not available, except in the vitamin section under a

product called Leg Cramps.

I am up most of the night walking to get the cramping to stop. I can't sleep at

night, I usually fall asleep around 6:00 am and sleep until about 1:00 pm.

Did your wife have trouble sleeping? Does anyone else in this group? If you have

any suggestions I would appreciate.

Thanks,

Tricia

MaC <mac0184yahoo (DOT) com> wrote:

In the area of your liver do you mean in your abdomen or under your rib cage?

The cramping must be unbearable. Especially in the feet and legs. What's quinine

by the way?

MaC

Matney <pmmatneyyahoo (DOT) com> wrote: Hi,

I have pain in the area of my liver ALWAYS, when I eat it gets worse. The pain

radiates up to my right shoulder and neck area. My Nurse coordinator said that

the hepatologist suggested the pain may be related to the cramping in my feet,

legs and hands. I take quinine and drink mineral water BUT the pain is still

bad.

I don't know if this helps you or not!!!

God Bless You.

MaC <mac0184yahoo (DOT) com> wrote:

Did anyone suffer from back pain with their cirrhosis? I was just

wondering, because looking back at some of my wifes stuff, they asked

her that frequently. I only noticed that she had back pain at the

onset of symptoms. I was wondering if this is a common symptom or not.

MaC

God Bless You

Tricia

" Nothing is permanent in our world, not even our troubles. " (Charlie Chaplin)

------------ --------- --------- ---

Building a website is a piece of cake.

Yahoo! Small Business gives you all the tools to get online.

June 19, 2007

Abijann,

I am so glad to hear that you are getting BOLD!!!! You Go GIRL!! Sometimes

you have to get tough to make them understand what they are putting you through.

I am still praying for you and your husband. Let me know if you need

anything.

GOD BLESS YOU

Tricia

abijann <no_reply > wrote:

Thank you for the information. I talked to Tim's doctor on the

phone and we still are in a wait and see situation.

I tried to find out if they plan to take my husband off this

one medication that costs us about 800 dollars a month. The doctor

said to get another months supply cause he wasn't sure. I pointed

out to him that I just paid about 3000 dollars for a three month

supply of a medication that he never even got a chance to take

because they switched his medication. He didn't like that too good.

More or less, he didn't want to hear about it. I told him that

these medications are too expensive to buy and they throw in the

trash and lose that amount of money. Boy, am I getting bold now.

So we have to get his medication refilled and take a loss on it

if they do this again. It is not just the cost of the medical

bills we have...it is the non caring attitude that doctors have

also. What do they care if a patient has food on the table because

they want to experiment on them.

---------------------------------

Pinpoint customers who are looking for what you sell.

June 22, 2007

,

Hello again, I hope today finds you as well as can be expected. Are you at

UAB? I have heard a lot about that place. Are you having a good experience?

Yes, I take lactalose (UGH) I mix it with unsweetened decaffienated tea and it

goes down okay. When I was in the hospital, they gave it to me straight and I

thought it would not stay down. I am also on Xifaxin. Another medication for

the ammonia. The lactalose had stopped working its magic. Now I take both. IT

WORKS NOW!!!!!

I haven't worked since August, 2005. I can't hold still long enough to write

my name. My mom has to write the checks for all my bells coz no one could read

them. (HA HA) But I try to think positive and hopefully I will get the call

soon and be back to work. I never thought I would ever look forward to working,

but be careful for what you ask for, right????

Take care of you.

GOD BLESS YOU,

Tricia

sljp32798@... wrote:

Tricia,

Thanks so much for your reply. My meld is 7 and in Alabama it has to be 19 for

transplant.Enephalopathy is a huge drain on me. I have never met anyone with it,

and I often feel I am just going crazy!! Do you have to use that nasty

lactulose? But still life is good. I stopped working 9 months ago, that has

really helped.

I pray we can be as pain free, as possible, and still smile at each sunrise.

Thanks so much for responding to me.

God Speed,

>

> Date: 2007/06/21 Thu PM 10:06:26 EST

> To: livercirrhosissupport

> Subject: Re: Just Joined group - Hi there.

>

> Hi ,

>

> This is a good group!! I am 54 YO mother of one, grandmother of two. I was

diagnosed with Hep C in 1999. Diagnosed with End Stage Liver Disease with

Cirrhosis in December 2005.

>

> I have had one GI Bleed, one fluid drainage and still battle with

encephalopathy(sp?). I was placed on the Transplant list on February 19, 2007.

My MELD (Model for End Stage Liver Disease) score in May was 10. You have to

have 15 or higher to get the transplant. I will have to get worse!! UGH!! I have

very bad tremors in my hands and head (from the enceph).

>

> I have learned a lot of patience and humility. I have to have these for all

the doctors visits I have to go to. I also have learned to have faith in God

that whatever the outcome of my life is He is in control and I accept that.

>

> This is just a summary. If you have any specific questions, feel free to write

me.

>

> Have you had a biopsy? Have you been referred to a transplant facility? Where

are you?

>

> I am in Waco, GA. and go to Piedmont Hospital for Transplant care.

>

> GOD BLESS YOU!!!

>

> Tricia

>

> sljp32798 wrote:

> Hi guys ( And girls,)

>

> I am looking for a support website, after viewing several of your

> posts, and seeing that you know God is in control. I feel I have found

> what I am looking for.

>

> I am f,married,age49,diagnoised with cirrhosis in Oct 2006. I really

> like the good articles that are posted.

>

> Could each of you give me a quick run down of your status?

>

> Thanks so much for all info, looking forward to meeting you.

>

> God Speed,

>

> God Bless You

>

> Tricia

>

> " Nothing is permanent in our world, not even our troubles. " (Charlie Chaplin)

>

> ---------------------------------

> Expecting? Get great news right away with email Auto-Check.

> Try the Yahoo! Mail Beta.

>

October 8, 2007

Thanks so much for the kind words.

I do check in a few times per week. I have had a round of ill health

lately, though it was nothing to worry any one over.

I think you should know that I still have a MELD score an the Docs I

see are not letting me off the hook.

I am so much better that i like to belive I will never go back on the

lilist! However, something one day will get me, I am hoping for it

to be " old age " ... :-D

Please keeping thinking happy thoughts and enjoy each day.

>

> I think it is wonderful how you kept this group open for

> others when you were taken off the transplant list.

> I have, personally, made so many friends here and enjoyed

> listening to their good times and cried along with them in

> their bad times. I was here when you first started this group

> and left once because I became so sick...you were kind enough

> to let me come back then (I use a different name now).

>

> I hope you are doing well and I'm so glad you have posted

> now.

>

October 9, 2007

I noticed that there are quite a few bouncing members. I could fix that but I

haven't been given that capacity.

Colleen

abijann <no_reply > wrote:

Can you get these people unbounced?

Dennis: Kip4164

Ginger: itpmom13

Kathy: saveliok23

Group Email: livercirrhosissupport

web address:

http://groups.yahoo.com/group/livercirrhosissupport/

November 6, 2007

Wow , I just read your post that is being discussed. This morning

there were so many that I couldnt read them all. Im so sorry if I

have offended you in anyway--It was definitely not my intention.

Please let me welcome you to the group. Im sorry if you feel that

some of us are in a click and I just dont see it that way. Im all for

any topic one wants to discuss. God Bless, Debra

>

> Bob, I have to say mea culpa here. I got off topic and

responded to me

> but she was the only one to receive that criticism. It should have

been sent

> to me. I take full blame.

> When you're the ONLY one to get a remark, especially when you

didn't DO

> anything, it stings. I feel very guilty here and that I've caused a

problem.

> I'll try to do better. It's the best I can do because I NEED this

group!

> 's message to me about personal problems re being mean as

> liver-disease-related was tremendously helpful to me! It makes me

see, too,

> how emotional responses to small things may seem out of place to

someone who

> doesn't have as many and such a variety of stresses.

> Coping is a tremendous and often thankless job!

>

> " Have you ever noticed how areas with great unemployment

always have

> the most work to be done? " --attrubuted to Studs Terkel

>

> Re:

>

> I am just confused about who is not getting a reply. I am baffled

by your

> anger. I was just letting the group know what had taken place at the

> doctor's yesterday. I am going to have surgery, and since I have

end stage

> liver disease, it isn't as routine or simple as it would have been

a couple

> of years ago. One thing I am quite sure of is the fact that there

are not

> any " CLIKCKs " as you describe. This is just a bummer because is

seems that

> you are angry with everyone, and I don't quite understand why.

>

> ,

>

> I understand why you might feel like an " outsider " . Some of the

new people

> have hit it off. But I don't think the intention is to leave

anyone out,

> although I have noticed it has happened to a few and we need to be

aware of

> that.

>

> It happened before though, as there are always members who have

been here

> longer and developed a repoire with one another and forget to fill

in the

> details for the newcomers.

>

> Sometimes the number of posts is overwhelming also, especially for

people

> who are ill or dealing with ill ones. I've got a feeling that is

the

> difficultly for Abijan.

>

> I personally felt your reply on giving SS #s was ok given in the

context it

> was given to answer another post. Not sure that Mac meant to

single you out

> - as a moderator you just have to pick a place to use as the

example.

> Probably an admin. note on its own would be better.

>

> The cut and paste is a good point too - as is changing the subject

lines.

> However, with the " new " yahoo format it doesn't seem to let you cut

and

> paste anymore or at least I haven't figured it out. I know it

makes it

> impossible to be a digest user, which I was for a while.

>

> Your post is a good reminder to each of us that this is supposed to

be

> foremost a support group and I think we all need to take the time to

> remember that as 1st priority. Also remember that lots of chit

chat is

> overwhelming at times.

>

> I personally am humbled by all you are having to deal with and

so sorry

> we have not been there for you. Sometimes I fail to grasp what is

going on

> with a person because I take big breaks from the list. I find

internet

> lists way to addictive, so I limit my time on them and remind

myself I have

> other things to do and take big breaks.

>

> Hang in there with us ,

>

November 6, 2007

In asian culture, the liver is associated with anger and I was witness to why

hippocrates said " those who are made of bile are vociferous, malignant and will

not be quiet " . My best friend and loved one Ardis would act out when she was

confused with ammonia so bad that if one didn't love her, they would run, and

keep running. I try to behave but sometimes I am told that I didn't. All I can

do is say sorry, and try again to behave and take lactulose and watch the

protien.

Sent via BlackBerry from T-Mobile

Re:

I am just confused about who is not getting a reply. I am baffled by your

anger. I was just letting the group know what had taken place at the

doctor's yesterday. I am going to have surgery, and since I have end stage

liver disease, it isn't as routine or simple as it would have been a couple

of years ago. One thing I am quite sure of is the fact that there are not

any " CLIKCKs " as you describe. This is just a bummer because is seems that

you are angry with everyone, and I don't quite understand why.

,

I understand why you might feel like an " outsider " . Some of the new people

have hit it off. But I don't think the intention is to leave anyone out,

although I have noticed it has happened to a few and we need to be aware of

that.

It happened before though, as there are always members who have been here

longer and developed a repoire with one another and forget to fill in the

details for the newcomers.

Sometimes the number of posts is overwhelming also, especially for people

who are ill or dealing with ill ones. I've got a feeling that is the

difficultly for Abijan.

I personally felt your reply on giving SS #s was ok given in the context it

was given to answer another post. Not sure that Mac meant to single you out

- as a moderator you just have to pick a place to use as the example.

Probably an admin. note on its own would be better.

The cut and paste is a good point too - as is changing the subject lines.

However, with the " new " yahoo format it doesn't seem to let you cut and

paste anymore or at least I haven't figured it out. I know it makes it

impossible to be a digest user, which I was for a while.

Your post is a good reminder to each of us that this is supposed to be

foremost a support group and I think we all need to take the time to

remember that as 1st priority. Also remember that lots of chit chat is

overwhelming at times.

I personally am humbled by all you are having to deal with and so sorry

we have not been there for you. Sometimes I fail to grasp what is going on

with a person because I take big breaks from the list. I find internet

lists way to addictive, so I limit my time on them and remind myself I have

other things to do and take big breaks.

Hang in there with us ,

November 6, 2007

wrote : Bob, I have to say mea culpa here. I got off topic and

responded to me

> but she was the only one to receive that criticism. It should have been

> sent

> to me. I take full blame.

> When you're the ONLY one to get a remark, especially when you didn't DO

> anything, it stings. I feel very guilty here and that I've caused a

> problem.

> I'll try to do better. It's the best I can do because I NEED this group!

, hon, you were not the only person to be off topic that day. MaC was

off topic himself, as were many others.

(By the way, I am a HUGE fan of Zinn!!!!)

November 6, 2007

I'm just not sure that MaC's comment was directed at any one particular person,

in fact it could be assumed that he was including himself in the reminder.

Re:

wrote : Bob, I have to say mea culpa here. I got off topic and

responded to me

> but she was the only one to receive that criticism. It should have

been

> sent

> to me. I take full blame.

> When you're the ONLY one to get a remark, especially when you didn't

DO

> anything, it stings. I feel very guilty here and that I've caused a

> problem.

> I'll try to do better. It's the best I can do because I NEED this

group!

, hon, you were not the only person to be off topic that day. MaC

was

off topic himself, as were many others.

(By the way, I am a HUGE fan of Zinn!!!!)

Group Email: livercirrhosissupport

web address:

http://groups.yahoo.com/group/livercirrhosissupport/

December 15, 2007

, it is a sad commentary on the state of health care and on the economy

that things are this way. It is admirable that you recognize yourself as one

of the lucky ones for having a place to go. I do admire your philosophy!

Just reading up today, I found a study relevant to what we've been

discussing about disability and other problems!

We are not alone!

The article is long, and the relevant part begins at the heading " Blame the

Victim. " Just seeing that this predatory system is formally recognized and

has been put into print validates what I've been seeing just from friends

and family and personal experiences.

http://www.justhealthnow.org Originally, I got the article from the Project

Censored website. That's a good one too for getting at the truth. You sure

won't get it on mainstream media!

This site has LOTS of information and is interesting particularly in the

exposition of the swinging door between government, media, and corporations

-- most especially medical corporations. It's an eye-opener as to what the

problem really is.

Old

THERE ARE ONLY TWO POSSIBLE FUTURES FOR THIS PLANET:

A NON-NUCLEAR ONE, OR A CANCEROUS ONE

I knew months ago that my life here was coming to an

end. I knew in May ’06 that my body couldn’t take

much more. Dr. s told me that if I continued

to drink or indulge in painkillers I would have 18

month to two years before it caught up on me.

Today, the worst thing happened – my house, my safe

place, my home, was taken by my bank.

I am one of the lucky ones; I have a clean, safe,

place to go. My ex and family want the best for me.

But still I want this to be over. I don’t want them

to see me at my worst.

Thanks guys, especially Bobby for you help and

support.

Pray for me, God is good,

All my love,

--- Bracewell wrote:

> Remember the insurance company employee who

> testified in Congress that she

> was paid bonus for every claim she could turn down?

> It only got to her when

> a patient died as a direct result.

> That is predatory, no matter how you look at it.

>

> Old

>

> Re:

>

> No problem - just ask if you need a hand.

> To be honest, sometimes being a b & *^% is the only

> way

> to get thru to some of these insurance folks.

> I'm glad your hubby's treatment is going ahead.

> God Bless,

>

> --- abijann <no_reply > wrote:

>

> > Thank you for offering. Everything is in

> > negotiations now...if it

> > doesn't go through well, I just might take you up

> on

> > it. They know

> > now exactly what is happening and I'm hoping

> things

> > will work out.

> > It will be a true relief if it does. My husband is

> > getting the

> > testing done, they got that far.

> >

> > I could honestly write a book about what I have

> been

> > through concerning

> > insurance since my husband became ill. Oprah

> > Winfrey had a program

> > on it one day and believe you me, I wish I would

> > have been there.

> > I think stage fright wouldn't have even effected

> me

> > that day...I would

> > be so worked up about it ___I would have opened

> > everyone in the nations

> > eyes about all this. The program would of lastest

> > three to four hours

> > or more just with me talking. I used to be shy,

> > timid, and very

> > quiet...I would not fight with anyone. If someone

> > tried to fight with

> > me and I just turn away from them and shrug it

> off.

> > Dealing with

> > the insurance has turned me into the biggest mouth

> > XXXX, excuse the

> > language, on the face of the earth. My husband

> just

> > looks at me

> > in amazement, he cannot believe I'm the same

> person.

> > When you

> > are down, the only place to go is to fight your

> way

> > back up or they

> > will trample you to nothing.

> >

>

____________________________________________________________________________

> ________

> Looking for last minute shopping deals?

> Find them fast with Yahoo! Search.

>

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

>

> Group Email:

> livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

December 15, 2007

I'm so sorry . Wish I had words to comfort you.

You are right though, God is good, even when we walk through the valley of the

shadow of death...

I will not fear, for you are with me.

God Bless,

Pamela

Re:

>

> No problem - just ask if you need a hand.

> To be honest, sometimes being a b & *^% is the only

> way

> to get thru to some of these insurance folks.

> I'm glad your hubby's treatment is going ahead.

> God Bless,

>

> --- abijann <no_reply > wrote:

>

> > Thank you for offering. Everything is in

> > negotiations now...if it

> > doesn't go through well, I just might take you up

> on

> > it. They know

> > now exactly what is happening and I'm hoping

> things

> > will work out.

> > It will be a true relief if it does. My husband is

> > getting the

> > testing done, they got that far.

> >

> > I could honestly write a book about what I have

> been

> > through concerning

> > insurance since my husband became ill. Oprah

> > Winfrey had a program

> > on it one day and believe you me, I wish I would

> > have been there.

> > I think stage fright wouldn't have even effected

> me

> > that day...I would

> > be so worked up about it ___I would have opened

> > everyone in the nations

> > eyes about all this. The program would of lastest

> > three to four hours

> > or more just with me talking. I used to be shy,

> > timid, and very

> > quiet...I would not fight with anyone. If someone

> > tried to fight with

> > me and I just turn away from them and shrug it

> off.

> > Dealing with

> > the insurance has turned me into the biggest mouth

> > XXXX, excuse the

> > language, on the face of the earth. My husband

> just

> > looks at me

> > in amazement, he cannot believe I'm the same

> person.

> > When you

> > are down, the only place to go is to fight your

> way

> > back up or they

> > will trample you to nothing.

> >

>

__________________________________________________________

> ________

> Looking for last minute shopping deals?

> Find them fast with Yahoo! Search.

>

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

>

> Group Email:

> livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

December 29, 2007

Old ,

How sweet your father sounds. Precious memories indeed! Praise God for

them.

Pamela

>

> I quite understand what you are saying about placing it all on you

> for his care. I found out that unless the doctor sees him in his

> office and sees the bedsores himself...that it can be completely

> avoided as far as a patients care. However, once he has this

> brought to his attention in his office, that makes him responsible

> for it...then they have to take action. Bedsores can lead to

> serious skin breakdown and infections and if they are not treated,

> can also lead to muscle underneath the skin breaking down, also.

>

> It sounds like you were able to do a very good job in taking care

> of your loved one inspite of people being cruel.

> I had a run in with a couple nurses, about two doctors, and

> also a couple secretaries. They can really be there with their

> noses in the air about things at times.

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

December 29, 2007

Pamela, I am wondering how things are in your situation?, it's been awhile.