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I AM HOME..............FINALLY

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debs.... i am so happy you are back at home with your family. i am sorry to

hear about the added diagnosis. please know that you and your family are

always in my heart and soul. you have fought and had a victorious outcome yet

again. your sense of humor was definatly missed around here. i hope your next

battles will help you lead a life as comfortable as possible. you deserve

it!!! i am still in awe. love, hugs and lot's of confetti the cabana boys are

throwing and will clean up. just after your massage. they have been waiting

for you. kathy in il

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Yes, finally, Debs! What a terrible ordeal this was for you and your

family. So glad to see that you finally made it home.

Please rest when you can - all of us here understand your need to do

that. The last thing you have to worry about is returning phone calls

and email. Just know that we've missed you a lot and continue to pray

for your complete recovery.

I hope trying to sell the house won't be too stressful for you. Let

everyone else worry and do the work!

God bless you,

[ ] I AM HOME..............FINALLY

> Hi All,

>

> Thank you for all your prayers and good wishes. I was finally given a

pardon

> on 2-4-03. While transferring from my bed to the wheelchair, I didn't

feel

> good, started to have tremors and finally passed out. I thought I was

in the

> process of dying. When I woke up, my head was on the pillow and I had

an IV

> running full wide open and oxygen running thru my nose, I had had a

seizure

> which they are now attributing to LUPUS. I apparently was having

these

> things while in the ICU and was given Dilantin, but things there got

better

> and it was decided to take me off the medication. Well, they still

won't put

> me on Dilantin unless I have another seizure, because I have so many

> reactions to medications that in this case the medication doesn't

warrant all

> the possible side-effects. Right now I look like I have been abused

from all

> the hematomas I have on my body from where the nurses caught me and

held me

> down during the seizure, but I guess this shall pass also.

>

> My husband and daughters are thrilled to have me home, 4 months is a

LONG

> time to be gone. These months that I have been sick, I caused me to

look at

> things VERY differently. Thank you so much for the those of you who

wrote me

> privately and called me, I am in the process of getting back to all of

you.

> The RN comes twice a week and the PT comes 3 times a week so I am

still

> pretty busy as I was in the hospital. Oh yes, my " free " time is

filled up

> with follow-up doctor appointments. We are also in the process of

getting

> the house ready to be sold.

> The hallways are a little narrow and we are hoping to find something

in Ft

> Lauderdale proper which they are revitalizing as they are doing with

many

> major cities. I would still move back to Chicago in a heartbeat

because I

> feel that it is best to be close to family when something like this

happens.

> We are also seeking out the advice of an attorney to see if we have

any

> recourse.

>

>

> So as you can see my plate is pretty full right now. Everyday I try

to do

> one more thing that I could not do the day before. This is the

hardest work

> I have ever done in my life. In addition to my own saga, I am also

compiling

> names of establishments where I have been denied service due to my

> handicap.......which I thought was against the law. This started with

my own

> beauty salon!

>

> I have missed and thought and prayed for each and every one of you.

To those

> of you who have called me or contacted me directly, please don't be

mad, I

> sleep a good part of my day and have to work whenever I have a little

spark

> of energy. Be assured, that I will get back to both of you. All I

can say,

> is that people truly surprise and sometimes disappointment you during

times

> like this. But I am a VERY fortunate woman and for that I will always

be

> grateful to GOD for.

>

> My love and prayers to one and all and as always I remain

....................

>

> Gentle, tender, angel hugs,

>

>

> Debs

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Debs,

Welcome home. I have been praying that this day would finally come. I

hope you are doing better and wish you a speedy recovery.

All my love,

Alan

> Hi All,

>

> Thank you for all your prayers and good wishes. I was finally

given a pardon

> on 2-4-03. While transferring from my bed to the wheelchair, I

didn't feel

> good, started to have tremors and finally passed out. I thought I

was in the

> process of dying. When I woke up, my head was on the pillow and I

had an IV

> running full wide open and oxygen running thru my nose, I had had a

seizure

> which they are now attributing to LUPUS. I apparently was having

these

> things while in the ICU and was given Dilantin, but things there

got better

> and it was decided to take me off the medication. Well, they still

won't put

> me on Dilantin unless I have another seizure, because I have so

many

> reactions to medications that in this case the medication doesn't

warrant all

> the possible side-effects. Right now I look like I have been

abused from all

> the hematomas I have on my body from where the nurses caught me and

held me

> down during the seizure, but I guess this shall pass also.

>

> My husband and daughters are thrilled to have me home, 4 months is

a LONG

> time to be gone. These months that I have been sick, I caused me

to look at

> things VERY differently. Thank you so much for the those of you

who wrote me

> privately and called me, I am in the process of getting back to all

of you.

> The RN comes twice a week and the PT comes 3 times a week so I am

still

> pretty busy as I was in the hospital. Oh yes, my " free " time is

filled up

> with follow-up doctor appointments. We are also in the process of

getting

> the house ready to be sold.

> The hallways are a little narrow and we are hoping to find

something in Ft

> Lauderdale proper which they are revitalizing as they are doing

with many

> major cities. I would still move back to Chicago in a heartbeat

because I

> feel that it is best to be close to family when something like this

happens.

> We are also seeking out the advice of an attorney to see if we have

any

> recourse.

>

>

> So as you can see my plate is pretty full right now. Everyday I

try to do

> one more thing that I could not do the day before. This is the

hardest work

> I have ever done in my life. In addition to my own saga, I am also

compiling

> names of establishments where I have been denied service due to my

> handicap.......which I thought was against the law. This started

with my own

> beauty salon!

>

> I have missed and thought and prayed for each and every one of

you. To those

> of you who have called me or contacted me directly, please don't be

mad, I

> sleep a good part of my day and have to work whenever I have a

little spark

> of energy. Be assured, that I will get back to both of you. All I

can say,

> is that people truly surprise and sometimes disappointment you

during times

> like this. But I am a VERY fortunate woman and for that I will

always be

> grateful to GOD for.

>

> My love and prayers to one and all and as always I

remain ...................

>

> Gentle, tender, angel hugs,

>

>

> Debs

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Deb,

How wonderful to see you posting again. Rest and take it slowly soon you

will be well. You remain as always in my prayers and thought.

Lynn (MeMom)

Auntblabbie2000@... wrote:

> Hi All,

>

> Thank you for all your prayers and good wishes. I was finally given a pardon

> on 2-4-03. While transferring from my bed to the wheelchair, I didn't feel

> good, started to have tremors and finally passed out. I thought I was in the

> process of dying. When I woke up, my head was on the pillow and I had an IV

> running full wide open and oxygen running thru my nose, I had had a seizure

> which they are now attributing to LUPUS. I apparently was having these

> things while in the ICU and was given Dilantin, but things there got better

> and it was decided to take me off the medication. Well, they still won't put

> me on Dilantin unless I have another seizure, because I have so many

> reactions to medications that in this case the medication doesn't warrant all

> the possible side-effects. Right now I look like I have been abused from all

> the hematomas I have on my body from where the nurses caught me and held me

> down during the seizure, but I guess this shall pass also.

>

> My husband and daughters are thrilled to have me home, 4 months is a LONG

> time to be gone. These months that I have been sick, I caused me to look at

> things VERY differently. Thank you so much for the those of you who wrote me

> privately and called me, I am in the process of getting back to all of you.

> The RN comes twice a week and the PT comes 3 times a week so I am still

> pretty busy as I was in the hospital. Oh yes, my " free " time is filled up

> with follow-up doctor appointments. We are also in the process of getting

> the house ready to be sold.

> The hallways are a little narrow and we are hoping to find something in Ft

> Lauderdale proper which they are revitalizing as they are doing with many

> major cities. I would still move back to Chicago in a heartbeat because I

> feel that it is best to be close to family when something like this happens.

> We are also seeking out the advice of an attorney to see if we have any

> recourse.

>

> So as you can see my plate is pretty full right now. Everyday I try to do

> one more thing that I could not do the day before. This is the hardest work

> I have ever done in my life. In addition to my own saga, I am also compiling

> names of establishments where I have been denied service due to my

> handicap.......which I thought was against the law. This started with my own

> beauty salon!

>

> I have missed and thought and prayed for each and every one of you. To those

> of you who have called me or contacted me directly, please don't be mad, I

> sleep a good part of my day and have to work whenever I have a little spark

> of energy. Be assured, that I will get back to both of you. All I can say,

> is that people truly surprise and sometimes disappointment you during times

> like this. But I am a VERY fortunate woman and for that I will always be

> grateful to GOD for.

>

> My love and prayers to one and all and as always I remain ...................

>

> Gentle, tender, angel hugs,

>

> Debs

>

>

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Thanks Kathy,

I have settled down some being home almost a week. Home cooked food and

sounds are the best medicine for anyone!

I am sorry that you lost your battle against corporate America. After

working for American Express and then for UnitedHealthcare, I knew that

anything they do is just above the " legal gray line " . It really sucks!

I am going to try to answer as many e-mails as I can, but the tremors have

started again and that makes me nervous and VERY hard to type.

Hang in there kiddo, corporate America ain't doing too good either!

Gentle, tender, angel hugs,

Debs

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Lynn,

I have been thinking about you often. How are you doing? I have no choice

but to go slow. I still have at least one major surgery ahead of me that I

don't even want to think about. They will have to fuse my leg or replace the

component. Some choice, huh???? And now, the tremors have started again, I

pray that this is not the start of a seizure.

How goes your battle with the legal community? It looks as though I may be

joining you in that same battle. I am still waiting on a hearing from Social

Security, but in the mean time I will have this to occupy my tiny neurotic

mind!

Take good care of yourself, my friend. 2003 has GOT to be better for both of

us!

Debs

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June,

It sure has been a long time! I am so glad to be back and how are you doing,

my friend?

My hands are really shaking and spasming bad, so I think this will probably

be my last note for this evening.

Talk to everyone very soon!

Debs

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Hi Debs,

It is soooo wonderful to see you posting. You have traveled such a long

hard

road.

I guess I am okay. The eating is terrible. I get so nauseous when I eat,

some nights like last night can be very bad. No one has any answers for me

either. All the problems I am having are coming from the Whipple surgery, so

they are for keeps.

My legal problems go on. One on positive note the ortho doctor I am seeing

said he would do a deposition for me. Originally, he told me, he would not do a

deposition and I was not to ask. My attorney's secretary seems to be able to

work miracles. So that is really good news but he won't be doing it until the

spring. Once again wc is trying to stop my income. We always end up at square

one with them. I just pray and trust in God.

I hope each day bring you new accomplishments. I also wish that each day you

feel a more like yourself. Your kids must be so relieved that you are home.

You

remain as always in my prayers.

Lynn (MeMom)

Auntblabbie2000@... wrote:

> Lynn,

>

> I have been thinking about you often. How are you doing? I have no choice

> but to go slow. I still have at least one major surgery ahead of me that I

> don't even want to think about. They will have to fuse my leg or replace the

> component. Some choice, huh???? And now, the tremors have started again, I

> pray that this is not the start of a seizure.

>

> How goes your battle with the legal community? It looks as though I may be

> joining you in that same battle. I am still waiting on a hearing from Social

> Security, but in the mean time I will have this to occupy my tiny neurotic

> mind!

>

> Take good care of yourself, my friend. 2003 has GOT to be better for both of

> us!

>

> Debs

>

>

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Kathy, I will keep a good thought that something turns up for you soon. One

thought is to check out your local college job board. My oldest daughter,

Vickie, just found

a new job from this posting board. It is designed strictly for part-time

employees to coincide with their inflexible school schedule. She is really

excited as it will be an office job where she takes incoming calls ONLY.

Just a thought!

Hope you have a great pain free weekend

Debs

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