NCC/talked with Chip

[Guest guest]

Hi Gang,

I've been reading posts and answering when I can. I'm still in the halo and

I hope the instrumentation will be available in a couple of weeks.

Chip (from WACMA) called me this past week and we talked for quite a while.

One of the things we discussed was all of the major on line support groups

linking together. I need to contact most of them yet, but have been in touch

with Dorothy Poppe and her new group. My hopes would be if someone finds one

of the groups, we will have links to all on every site. This will make it

easier for people looking for information and support. Eventually I'd like

to have informational video on site as well. Lots of leg work before this

all comes into play.

Here's a list of sites that you will find very informational, they are from

the US, UK, Spain, Italy, and France. It is in hopes that we can offer

assistance on a world wide basis.

http://www.theannconroytrust.org.uk/

http://www.conquerchiari.org/index.htm

http://www.afacpa.org/

http://www.pressenter.com/~wacma/

http://web.tiscali.it/siringomielia/

http://www.csfinfo.org/

http://www.apaiser.asso.fr/cgi-bin/index.php

http://www.asap.org/

Kathleen

Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed

with craniocervical instability, Ehlers Danlos, and Tethered Cord Syndrome,

surgery for everything but EDS since 1998.

http://chiariconnectioninternational.com/