Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 I want to wish everyone a happy New Year. We can only hope that 2002 will bring more peace to our world as well as to each of us and our families. My mother is steadily declining with infrequent better days. I still spend part of each evening at the nh to feed her to ensure that she eats. I seldom go twice a day anymore even on the weekends. I've learned that I need some time for myself. I can not be totally absorbed in LBD or permit LBD to absorb me. I have the opportunity to watch the other patients at meal times and some of them are probably LBD too while others clearly have different problems. Every now and then I stumble on someone whose loved one appears to have LBD (with or without Alzheimers or Parkinsons) and spread a little information their way. One woman may be joining this board in the next couple days. It's nice to see the relief people feel to hear that everything going on with their loved one is not just going on with their loved one alone--relief that they are not alone. I can remember when I first learned about LBD and experienced that relief. I have always been a loner but I am learning from LBD that nothing is more important than to not be alone too much. Sept 11 was particularly hard for me because I was living in Israel when the Yom Kippur war broke out in 1973. I have to keep reminding myself that this war may go on for a very long time but it will never be the same as that war--we Americans won't totally lose control of our lives in this war as people in Israel did during that one. We won't have blackouts and all the city buses won't go into the army and all the food delivery system won't be diverted to feeding soldiers as it was there. And yet, since those of us who are responsible for people with LBD have lost control of our lives to LBD--or to caregiving--it's hard to believe that life won't spin totally out of control because of this war. I hope it won't for any of us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 I am probably the newest member to this group as I joined this week. My father, 90, has just been diagnosed with LBD. He and my mother still live alone in Boulder, CO. I have one brother who also lives in Boulder and a sister in San Francisco. I live in Atlanta. I had never heard of this disease until last week and am so thankful to have a " name " on it, although everything I have read about it is very discouraging. My brother, obviously, has the most difficult time, beside my mother, bless her heart. My sister and I visit often and will be going there January 19th. What was going to be a visit will probably turn out to be moving my father into a home. He has deteriorated very fast in the last month, especially the last two weeks. Of course he believes my mother is ill, not him. He has some characteristics of Parkinson's, namely slumped and shuffling when walking. I am so new to this I can't tell you how comforting it is to know all of you are out there and hoping to help people like us. My prayers for peace go out to your mother and you and your family Thank you, Sue Brown steviegail wrote: > I want to wish everyone a happy New Year. We can only hope that 2002 > will bring more peace to our world as well as to each of us and our > families. > > My mother is steadily declining with infrequent better days. I still > spend part of each evening at the nh to feed her to ensure that she > eats. I seldom go twice a day anymore even on the weekends. I've > learned that I need some time for myself. I can not be totally > absorbed in LBD or permit LBD to absorb me. > > I have the opportunity to watch the other patients at meal times and > some of them are probably LBD too while others clearly have different > problems. Every now and then I stumble on someone whose loved one > appears to have LBD (with or without Alzheimers or Parkinsons) and > spread a little information their way. One woman may be joining this > board in the next couple days. > > It's nice to see the relief people feel to hear that everything going > on with their loved one is not just going on with their loved one > alone--relief that they are not alone. I can remember when I first > learned about LBD and experienced that relief. I have always been a > loner but I am learning from LBD that nothing is more important than > to not be alone too much. > > Sept 11 was particularly hard for me because I was living in Israel > when the Yom Kippur war broke out in 1973. I have to keep reminding > myself that this war may go on for a very long time but it will never > be the same as that war--we Americans won't totally lose control of > our lives in this war as people in Israel did during that one. We > won't have blackouts and all the city buses won't go into the army > and all the food delivery system won't be diverted to feeding > soldiers as it was there. > > And yet, since those of us who are responsible for people with LBD > have lost control of our lives to LBD--or to caregiving--it's hard to > believe that life won't spin totally out of control because of this > war. I hope it won't for any of us. > > > Quote Link to comment Share on other sites More sharing options...
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