Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Sissi, I just read Dillon's story at your web site. He sounds like a remarkable young man (with a remarkable mom) - I'm praying he can battle through this one. Are you at a Macon hospital this time? (I am from Warner Robins.) Joy update > Thanks everybody for the prayers and encouragement. Dillon's second set > of labs were the same as they were Friday morning. He's still spilling +4 > protein and +3 blood (on a scale of 1-4). We're doing a 24 hour urine > collection so doc said not to freak out until Monday. His blood looks good > but the proteinuria just started. He isn't swelling yet. > He's had no fever so it's probably not transient. More than likely it's > nephrosis. > I was hoping it was being caused by the old kidney damage and not > progression of his disease. But with no fever that's not likely. We were > told he was (almost -- not 100%) cured. Love those medical disclaimers, > don't you? > I'm a little more worried than usual because he's spilling more protein > than he ever did before. He never went above +3 before and had less than 50% > kidney function then. > Boone is not doing too well. He's crying an awful lot and acting very > strangely. He won't come into the house and it's kind of cold outside. I had > to use one of those newly acquired wrestling holds just to get a sweatshirt > and jacket on him. > Thanks again everyone, > > Sissi -- trying not to go crazy before Monday. > nitetrax@... > Kids' Page > http://home.isoa.net/~nitetrax/dillon.htm > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 We're home. Dillon's nephrologist is in Atlanta. He's just started spilling protein. Doc said not to freak out yet. So I'm trying not to. He also said the proteinuria was too high to be caused by a virus. Sissi nitetrax@... Kids' Page http://home.isoa.net/~nitetrax/dillon.htm update > > > > Thanks everybody for the prayers and encouragement. Dillon's second > set > > of labs were the same as they were Friday morning. He's still spilling +4 > > protein and +3 blood (on a scale of 1-4). We're doing a 24 hour urine > > collection so doc said not to freak out until Monday. His blood looks good > > but the proteinuria just started. He isn't swelling yet. > > He's had no fever so it's probably not transient. More than likely > it's > > nephrosis. > > I was hoping it was being caused by the old kidney damage and not > > progression of his disease. But with no fever that's not likely. We were > > told he was (almost -- not 100%) cured. Love those medical disclaimers, > > don't you? > > I'm a little more worried than usual because he's spilling more > protein > > than he ever did before. He never went above +3 before and had less than > 50% > > kidney function then. > > Boone is not doing too well. He's crying an awful lot and acting very > > strangely. He won't come into the house and it's kind of cold outside. I > had > > to use one of those newly acquired wrestling holds just to get a > sweatshirt > > and jacket on him. > > Thanks again everyone, > > > > Sissi -- trying not to go crazy before Monday. > > nitetrax@... > > Kids' Page > > http://home.isoa.net/~nitetrax/dillon.htm > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Mylene, thanks for posting this. I'm really stressed out about sending my girl to kindergarten next year and have seriously considered homeschooling her myself. I love where she is this year and really like her teachers, but I have no idea where she will be next year. I would greatly appreciate someone contacting me in this sort of situation. I think you're doing a great thing for your son! Good luck and keep trying with those parents!! Aimee in Atlanta Well, I am no longer shocked...i am truly disgusted. I reported the incident to the principle Wed., she stated she would look into it. I informed the spsecial ed. board of education director, they stated they would look into it. I called the school counselor & told him that all my life i have been told that a person in an official capacity is bound by law to report any signs of abuse or endagerment or neglect of a child, but that this issue was being ignored...he said he would look into it. I called the welfare office, then went in & discussed it with a worker, she stated what a shame it was. I have not received one return call regarding this issue. I have decided to officially withdraw my son from school & homeschool him. I have been in the medical field for 14 years before i had my blessed love & like many others ditched my career to take full care of him. Went from 25.00/hr. to 530/month disability. I homeschooled my 14 y/o for one year & he went from F's to testing out on a 10th grade level & was double-promoted. But i don't have a clue as to homeschool my little man with autism, mental retardaation, chronic static encephalopathy & sensory integration dysfunction. Maybe i can go on the internet & find ideals?????? I don't feel that i have an inkling of even where to start, but atleast i can lose the migraine & get some sleep for the first time in days. I need to find this little girls parents though, i have thought of putting an ad in the paper which will go like this: If you have a daughter named Kadeesha that goes to Powder Springs Elementary, please call me at . I saw an incident at school that you may want to know about....I will not give up on finding these parents. Anyone that homeschool's their child please e-mail me privately if you can give me some suggestions i would greatly appreciate it...thanks for bothering to read this email as it is very lenghty & whiny, but that's how i feel right now. God bless those children being abused or mistreated who cannot tell, and their parents who may not know.... ---------------------------------------------------- Sign Up for NetZero Platinum Today Only $9.95 per month! http://my.netzero.net/s/signup?r=platinum & refcd=PT97 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Hello folks! I am still waivering on whether or not to resume my duties here. The get away that I have been on for the past couple of days has not been remotely enough to even BEGIN to take away the stress of the prior week and I am thinking of taking a few more weeks off to go on another trip. In my absence, problems have continued to compound themselves as folks write in and appeal to me for help regarding the abuse they are receiving from a certain person who shall remain nameless -and regarding other issues that shall remain untold. As I do intend to help them all my time commitment to those individuals is going to be enormous. I also still intend to grow this group. It has been made clear to me that that the group has the potential to offer what regular message boards do not, and so I shall exploit the capacities of this group as much as possible, and to our benefit. Needless to say, I understand clearly now why Edan has pulled up stakes and moved onward, and I have told him as much in a recent letter that I sent to him before I headed off on my brief sojourn to the wilderness. Speaking of which, I hesitate to say what I have been up to, but it has been a combination of business and pleasure. My firm had a company retreat from Sunday through Tuesday at one of the local state parks. I left early simply to get away from the flap on AI and get to a place where I could hear birds flying without airplanes screaming through every two minutes to drown them out. There were a lot of cooperative group exercises at the retreat that were designed to build teamwork and trust, (an Aspie nightmare, in other words) but I survived. I ate too much, went against my values and drank a bit, and sat up late at night watching meteors, or spending time with members of my firm telling ghost stories in one of our cabins. Late at night, after lights out, two of those people heard noises in their cabin. (Small objects being knocked off the dressers and so forth). One of them turned on the lights in terror - just in time to see a couple of mice running for their boltholes. Of note was that yours truly led a group of about fifteen people on a hike through the park (which I am very familiar with). We went 4.2 miles round trip and topped rocky overlooks and also went down into deep canyons. One of those on the tour was a recently hired woman who, coincidentally, is an heiress to a sizable chunk of an insurance magnate's fortune (and if I mentioned the name of the company that her relative owned, you would all know it, more likely than not). Far from being a rich snob (though her net worth had to be in the tens of millions of dollars) she hiked along with the rest of us - much of that time by my side [Tom's heart skips a beat as he remembers this -Boy was she cute! And my age too!] and helped to make the hike a fun one. I'll see her around the office soon, and I cannot wait! I said above that I ate too much. Gluttony is bad, of course, but I just have to tell you about the chocolate cake I had at the retreat. There were three thick layers of chocolate cake, with thick chocolate- mouse and a thick layer of chocolate frosting between each layer of cake. The cake was topped with chocolate icing, shavings of dark chocolate, chocolate chips, chocolate cake crumbs, and chocolate syrup. I ate a gigantic piece of it that was about the size of both fists put together and I must say it was THE best chocolate cake I have had in my life (the only rival being a Sara Lee chocolate cake that had chocolate chips sprinkled over it). Inger, I am going to let you hold things together indefinitely if you don't mind. I will dip in and out to do a few things on the group, most of which you all won't notice. When I come back in earnest, I will make an official announcement of some sort, and then maybe Inger and I can have a talk about how long she wants to stay on as moderator. Please be patient as I progress through this time of recovery. In the meantime, please chat amongst yourselves, get to know each other better, and provide support for those who need it. Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Tom: > I am still waivering on whether or not to resume my duties here. Take your time in deciding. Change your mind as many times as you like. > The get away that I have been on for the past couple of days has not been remotely enough to even BEGIN to take away the stress of the prior week and I am thinking of taking a few more weeks off to go on another trip. Sounds like a good idea. > In my absence, problems have continued to compound themselves as folks write in and appeal to me for help regarding the abuse they are receiving from a certain person who shall remain nameless -and regarding other issues that shall remain untold. As I do intend to help them all my time commitment to those individuals is going to be enormous. OK. > I also still intend to grow this group. It has been made clear to me that that the group has the potential to offer what regular message boards do not, and so I shall exploit the capacities of this group as much as possible, and to our benefit. Great! > Speaking of which, I hesitate to say what I have been up to, but it has been a combination of business and pleasure. My firm had a company retreat from Sunday through Tuesday at one of the local state parks. What very good timing as you were in dire need to get away. > I left early simply to get away from the flap on AI and get to a place where I could hear birds flying without airplanes screaming through every two minutes to drown them out. There were a lot of cooperative group exercises at the retreat that were designed to build teamwork and trust, (an Aspie nightmare, in other words) but I survived. Oh gawd! I don't know if i would have. I wouldn't mind building teamwork and trust with a group of aspies (in fact that's what i spend most of my time trying to do online) but being forced to do so with a group of NTs - yikes! > I ate too much, went against my values and drank a bit, and sat up late at night watching meteors, or spending time with members of my firm telling ghost stories in one of our cabins. Late at night, after lights out, two of those people heard noises in their cabin. (Small objects being knocked off the dressers and so forth). One of them turned on the lights in terror - just in time to see a couple of mice running for their boltholes. LOL! I had a mouse in my house a cuple of years ago. I was sitting at my desk working and suddenly the cutest little paws and a tiny little nose appeared over the desk edge. We both stared at each other in utter surprise for several seconds before it darted off to hide again. (In my favorite cardigan I later found out...) I fed it for a couple of days and then I got a non-harming trap to catch it and put it outdoors. It was soo cute! > Of note was that yours truly led a group of about fifteen people on a hike through the park (which I am very familiar with). We went 4.2 miles round trip and topped rocky overlooks and also went down into deep canyons. One of those on the tour was a recently hired woman who, coincidentally, is an heiress to a sizable chunk of an insurance magnate's fortune (and if I mentioned the name of the company that her relative owned, you would all know it, more likely than not). > Far from being a rich snob (though her net worth had to be in the tens of millions of dollars) she hiked along with the rest of us - much of that time by my side [Tom's heart skips a beat as he remembers this -Boy was she cute! Sounds like a dream hike then. ;-) > And my age too!] Which is..? (If one may be so nosy as to ask.) > and helped to make the hike a fun one. I'll see her around the office soon, and I cannot wait! Nice to have someting pleasant to look forward to. ;-) > I said above that I ate too much. Gluttony is bad, of course, but I just have to tell you about the chocolate cake I had at the retreat. <snip long description of yummy chocholate cake> I'm very spartan in my habits too, but I don't see what harm it can do to indulge oneself just once in a while (if one likes that sort of thing). > Inger, I am going to let you hold things together indefinitely if you don't mind. I don't mind. Take your time. > I will dip in and out to do a few things on the group, most of which you all won't notice. When I come back in earnest, I will make an official announcement of some sort, and then maybe Inger and I can have a talk about how long she wants to stay on as moderator. OK. > Please be patient as I progress through this time of recovery. In the meantime, please chat amongst yourselves, get to know each other better, and provide support for those who need it. We will. Hope you get a good rest whatever you do. And that you'll keep us posted and let us know how you are. Inger Quote Link to comment Share on other sites More sharing options...
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