Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 Hello all, it has been a while since I have posted here. I guess the depression has really got a hold of me. After going to Stanford University and having a negative experience and being told that " Chiari is an infant diagnosis and does not apply to adults " I just wanted to give up. I went back to the local NS (That gave me a Miami J collar to wear whenever I am up) and he told me that doc has no idea what he is talking about. In any case, I did another Flexion and Extension xray series and he told me he does not see any gross instability however, there could be some at the cranio cervical junction that he cannot see. Given that I get emense relief just by wearing the collar, he believes that I would benefit from surgery. So, we are looking at doing a cranio-cervical fusion in June or July. I do not feel completely at ease with that desicion though. I just wish he could 'see' something and it would be clearly defined, rather than just saying 'well maybe' ya know? Oh well, I guess I will keep my accessory and hope for the best in the coming months. I am going to school for a couple hours each day in hopes of getting my Bachelor in Accounting in May - I will walk on May 24th !!!! Thank God they have services for those with disabilities, like high back chairs and big tables to work on. I am sooooo over this whole thing and just want to be back to 'Normal' whatever that is I really hope you are all doing as well as you can!! Thank you all for being here - without all of my online support, I am not sure if I would have been as OK as I have. God Bless you ALL, Terri Quote Link to comment Share on other sites More sharing options...
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