Guest guest Posted November 10, 2009 Report Share Posted November 10, 2009 Hi , What a great idea!!! I am in the Sacramento area of California. Thanks, Chele > > > > > > From: Michele <myloanlady@> > > Subject: Wit's End Challenge Hypo/Hyper > > To: Thyroiditis <mailto:Thyroiditis%40yahoogroups.com> > > Date: Tuesday, November 10, 2009, 12:46 AM > > > > > >  > > > > > > > > > > Hi everyone, > > I am at my wits end and am in GREAT need of your help. I have been feeling > terrible and can't function, been to many dr.'s(insurance stopped paying) > and they all can't figure out what to do for me . I would sooooo greatly > appreciate any advice or help you can give. > > Here's a history: > > 2005: > > Had ovaries removed and tried many different HRT's, they all gave me a ton > of skipped heart beats, so we stopped with hrt's and haven't been on any > since. > > 2007: > > Was losing hair, gained about 15 pounds, dry skin, and slower than normal. > Diagnosed with Hashimoto's Thyroiditis and put on .25 generic levothyroxin > 1 x day, here are the Labs in 07: > > Cholesterol total      324  (125-200) range > > LDL                               240  > (0-129) range > > TPO/Anti TPO           401   (<35) range > > Thyroglobulin ABS      175   (<20) range > > TSH (3rd gen)           7.23   (.40-5.5) range > > 2007: > > TSH was tested again and at 3.5 and was told I am fine. Never felt any > improvements, but didn't feel worse either. > > 2008: > > Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25 > more 3x week. Again, not much change, but I was bad about remembering which > days to take the extra, so it most likely wasn't much of a change anway. > Gained more weight (25 all together). > > 2009 (May ¡Vpresent): > > Had a terrible panic attack while driving , first one ever. Then, had > another a few weeks later¡Kduring stressful times. Dr.'s told me (er docs > as well as regular doc) it was anxiety related to PTSD (end of '08 and '09 > personally heartbreaking and very hard for me). So I believed docs, it > made sense. They tested my TSH, and again it was 3.5. They put me on > Synthroid proper, and raised me to .50 1x day. Then air hunger started, > followed later by dizziness, high anxiety, constipation, weight loss, > insomnia, muscle pains, flashes in eyesight, rushing of pressure to my head. > I couldn't/ can't drive due to not being safe with fogginess, dizziness, > more anxiety attacks. Loss of appetite, depression, tinnitus, migraines > (never had before) cold hands and feet, hair loss, out of no where would > feel like I had been out of my body, then back in it in a flash (very > scary feeling). BP= 90/50, very very bad heart palps (skipped beats with > breathlessness) > > especially at nights. So far I have lost 35 pounds while trying not to I > look icky skinny now and am eating tons of calories to just try and > maintain. Bowel movements have basically stopped (1x month if lucky). > Doc's are stumped. Here are labs: > > > > JULY: > > TSH                 4.43 (.34-4.82) range > > AUGUST: > > LH                   31.8 (15.9-54) range > post-menopausal > > FSH                   82.7 (23-116) postmenopausal > range > > Estrodiol          16 (0-31) range untreated postmenopausal > > Magnesium serum  2.1 (1.6-2.6) range > > Cortisol           21.1 (4.3-22.4) A.M. range adult female > > Progesterone      .7 (0-.7) range postmenopausal > > ACTH, plasma      20 (6-48) range > > Estrogens, total  69 (<40) range postmenopausal untreated > > Cholesterol total 246 (100-199) range > > LDL                     175 (0-99) range > > Iron (TIBC)       246 (250-450) > > Iron UIBC         146 (150-375) range > > Iron serum        100 (35-155) range > > Iron Sat %          41 (15-55) range > > Ferritin          259 (10-250) range > > TSH              6.690 (.45-4.5) range > > T4 free            .94 (.93-1.71) range > > TPO AB            698 (0-35) > > Endo took me OFF of Synthroid saying I was showing more Hyper symptoms > than Hypo, and tests show Subclinical Hypo, so it was safe he said. > > SEPTEMBER : > > Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am > petite) with mild hepatocellular disease? > > Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling > that well either). > > All other liver testing was fine (blood, and hepatitis, etc.) > >   Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND, > 83-93 IND     IGG negative on all .  Doc says not lyme, that's a > false positive. > > OCTOBER : > > Feeling a bit better, worse on skipped beats, but not losing weight as > fast, dizziness better, and discovered xanax for anxiety symptoms which > helps some but just some. > > T4 free                 .95 (.93-1.71) range > > Thyroxine T4    7.5 (4.5-12) range > > TSH                       4.93 (.45-4.5) range > > Triiodothyronine T3  104 (83-200) range > > Ferritin, Serum   328 (10-290) range (raised a lot in short amount > of time) > > ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average > in size displays heterogeneous echotecture with increased vascularity > especially in its lower pole. No dominant nodule identified. Suspicious for > Hashimoto's thyroiditis. > > Doctor wants me back on synthroid, but he isn't sure what to do since my > TSH got lower OFF of meds and feel better than when on, and higher when we > raised meds. Neither PCP or Endo will order free t3, or saliva adrenal > testing. I really need to function, and so greatly miss having a life, I > have people who really need me, and I need to be there for them! Any advice > will help, and I promise future posts will NOT be this long ! > > Thank you so much, > > Chele > >  > > > >  > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 and others. Just started reading this thread. T4 med should be increased to bring it as close to 1 as possible. Mine is about .89; when I increased half a 25 mcg tablet it went to .35 and I felt bad, so 25 mcg is enough for me. You can do a phone consult with Dr Langer who wrote Solved; the riddle of illness - he is a thyroid and nutritional expert and very well respected. 20 minutes is $85 or used to be. Well worth it. Get your tests first, copy them and send them to him in advance of the phone appt. I could not find a doctor who could help me so i turned to Dr langer. He helped me and my 4 daughters who I then got tested and unfortunately, we all are challenged with this. I was so sick I could not take a tablet so he put me on a water solution I got from CA since it's hard to find compounding pharmacies who know how to make it to last a month. Dr Langer will put you on the right track. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Chele, I just read your post. Of course you had hyper symptoms - they sometimes go back and forth with thyroiditis. Look at the very high tsh in your case. (Mine was 1.26 perfect level but I had a large goiter full of nodules and high anti-thyroid antibodies so sometimes tsh doesn't mean much.) I lost 50 lbs and was skin and bones, wet skin, constant anxiety, etc etc. I can't tell you all the symptoms. that is the past and I've moved on. FIRST, everyone, see what the RIGHT amt of T4 will do for you, then work on the rest. Many symptoms, as Dr Langer told me, will fall off. He was right and even he was amazed. I responded right away to the t4 water solution he gave me. (What made me so bad off at the time were issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first.) You can google and find Dr langer's phone number in Berkeley Ca. You may have read Shomon write about him. good luck - the truth is out there and you can find it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Hi, you said: issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first- I have to disagree. Sorry, but I hardly had any good bacteria in my digestive system and it was imperative to deal with this issue as soon as possible. My panic attacks came from lack of nutrients, due to the problems with the digestive system. One can deal with both at the same time. And Activia yogurt will not do it. Usually I don't disagree with anybody here on the board, because I don't have the right and the combined knowledge is just wonderful. If I wouldn't have had you guys to draw knowledge from, I would have ended up as a crippled person. My endo told me to take cymbalta for fibro. Ha Ha . I rather listen to you; everyone has the best interest at heart for the fellow sufferer. And for that I will be always thankful. Owner of 's Breadhttp://wheatandsourdough.comhttp://lindasbread.blogspot.com/ To: Thyroiditis From: figure8000@...Date: Wed, 11 Nov 2009 06:37:16 -0800Subject: Re: Wit's End Challenge Hypo/Hyper Chele, I just read your post. Of course you had hyper symptoms - they sometimes go back and forth with thyroiditis. Look at the very high tsh in your case. (Mine was 1.26 perfect level but I had a large goiter full of nodules and high anti-thyroid antibodies so sometimes tsh doesn't mean much.) I lost 50 lbs and was skin and bones, wet skin, constant anxiety, etc etc. I can't tell you all the symptoms. that is the past and I've moved on. FIRST, everyone, see what the RIGHT amt of T4 will do for you, then work on the rest. Many symptoms, as Dr Langer told me, will fall off. He was right and even he was amazed. I responded right away to the t4 water solution he gave me. (What made me so bad off at the time were issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first.) You can google and find Dr langer's phone number in Berkeley Ca. You may have read Shomon write about him. good luck - the truth is out there and you can find it. Windows 7: Unclutter your desktop. Learn more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Dear LInda you are a member of this forum and you have right to tell us to wear tinfoil on our heads if you so choose (admittedly we probably won't listen to your instructions but still telling what You think or Experienced is NOT " Disagreeing " with other people!! IF it was? we wouldn't be learning any thing new about our situation . it would have just stoppe dwith " low cortiosl and free t3 our bodies are a LOT more complex than that and we only learn that by discussing the minutiae (sp) with others i always love hearing differnt people's experiences =and their theories on what exactly what went wrong in which part of their " Workflow " as per your solution below,, i think you should also factor the STress system intor yoru equation because when we are stuck in Stress mode (with SNS dominance and the HPA Axis cranking out high amounts of ALL our stress hormones (CRH, AVP, POMC, MSH, BE, ACTH , Cortisol --and Adrenal androgens =these processes BURN UP a LOT of our Electrolytes, miernals, vitamins and amino acids = our Building blocks for all the chemical and enzymatic actions that take place in the body.. but why do WE get stuck in STress mode? OH and the Stress hormones that get us read to FIGHT or ruN??? they also affect the Cell receptors in our BRain ==causing us to feel Fight/Flight Emotions like: Panic, Anxiety, ANger, irriation, hopelessness(Freeze response!) or a number of other " negative " type emotions ... For Example: the HPA axis hormone called Vasopressin aka AVP Vasopressin (aka AVP) is being implicated in Grooming, socialization , aggression(fight for the water and territory), Charity/sharing, Memory => as well as AVPs " Main " job of Water handling, vasoconstriction And blood clotting + 100 other " tasks " via its 3 cell receptor types! Dr Teitelbaum and others are now implicating Vasopresin direclty in the " Postural Hypotension " problems so prevelant in hypot/AF, CFS, and FM patietns! plus the feelign many of us have all the time of Thirsty, carry water bottle with us . (many of our bodies are not " handling " water properly and we are Essentially *Dehydrated at the cellular level becasue we can't " absorb " the water due to Sodium wasting AND vasopressin issues...+ -Carol > > > > Hi, > > > > you said: issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first- > > > > I have to disagree. Sorry, but I hardly had any good bacteria in my digestive system and it was imperative to deal with this issue as soon as possible. My panic attacks came from lack of nutrients, due to the problems with the digestive system. > > One can deal with both at the same time. And Activia yogurt will not do it. > > Usually I don't disagree with anybody here on the board, because I don't have the right and the combined knowledge is just wonderful. If I wouldn't have had you guys to draw knowledge from, I would have ended up as a crippled person. My endo told me to take cymbalta for fibro. Ha Ha . > > I rather listen to you; everyone has the best interest at heart for the fellow sufferer. And for that I will be always thankful. > > > > > Owner of 's Bread > > http://wheatandsourdough.com > > http://lindasbread.blogspot.com/ > > > > > > > > > > > > > To: Thyroiditis > From: figure8000@... > Date: Wed, 11 Nov 2009 06:37:16 -0800 > Subject: Re: Wit's End Challenge Hypo/Hyper > > > > > > > > Chele, I just read your post. Of course you had hyper symptoms - they sometimes go back and forth with thyroiditis. Look at the very high tsh in your case. (Mine was 1.26 perfect level but I had a large goiter full of nodules and high anti-thyroid antibodies so sometimes tsh doesn't mean much.) I lost 50 lbs and was skin and bones, wet skin, constant anxiety, etc etc. I can't tell you all the symptoms. that is the past and I've moved on. > > FIRST, everyone, see what the RIGHT amt of T4 will do for you, then work on the rest. Many symptoms, as Dr Langer told me, will fall off. He was right and even he was amazed. I responded right away to the t4 water solution he gave me. (What made me so bad off at the time were issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first.) > > You can google and find Dr langer's phone number in Berkeley Ca. You may have read Shomon write about him. > > good luck - the truth is out there and you can find it. > > > > > > > > _________________________________________________________________ > Windows 7: Unclutter your desktop. > http://go.microsoft.com/?linkid=9690331 & ocid=PID24727::T:WLMTAGL:ON:WL:en-US:WWL\ _WIN_evergreen:112009 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 hi CHele i just wanted to assure you that i have experienced ALL of your symptoms =while being a Hypot " Treated " patient! YOur symptoms that i have had too: " Then air hunger started, followed later by dizziness, high anxiety, constipation, weight loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure to my head. I couldn't/ can't drive due to not being safe with fogginess, dizziness, more anxiety attacks. Loss of appetite, depression, tinnitus, migraines (never had before) cold hands and feet, hair loss, out of no where would feel like I had been out of my body, then back in it in a flash (very scary feeling " remember that " Adrenal Fatiuge " is really an upregualtion of our *entire Stress response and ALL the stress hormones. and i have done a LOT of reading about all the parts of the sns/HPA axis and i just want to assure you there is a logical (eg biologic reason WHY you have all the above symptoms... - read up on Adrenal Fatigue (adn DON " T be confused that most texts only mention the Adrenals and Low-Cortisol stages ) you do yourself a disservice to ignore the other parts (DRs sadly " simplified " the concept to the point they have obscured the true facts EG) The Big Pictur = Read Dr WIlson's Adrenal Fatigue book and follow his *lifestyle guidelines* or rules regarding eating , sleeping exercise, sterss management and Basic VIts/MIns and Water/ hydratino and salt guidelines. = Read DR Teitelbaum, the CFS/FM/AF/Hypot dr as many of Your systmpoms are related to " Vasopressin " another Stress hormone remember that the things we do Every Day (bad nutriton, bad glycemic control , and being HYpothryodi with Low Free T3!) causes a HUGE Stress load to the body.. correct the daily Load and we take a Lot of the Load off our Stress system,, thereby giving it a chance to Calm down, slow down and Heal itself!! That part does take time and CONSISTENCY remember its Not just about your Cortisol level in " Adrneal Fatigue " (silly name :0 you can do it! -Carol > > > > > > > > > Hi everyone, > > > I am at my wits end and am in GREAT need of your help. I have been > > > feeling terrible and can't function, been to many dr.'s(insurance > > > stopped paying) and they all can't figure out what to do for me . I > > > would sooooo greatly appreciate any advice or help you can give. > > > Here's a history: > > > > > > 2005: > > > Had ovaries removed and tried many different HRT's, they all gave me a > > > ton of skipped heart beats, so we stopped with hrt's and haven't been > > > on any since. > > > > > > 2007: > > > Was losing hair, gained about 15 pounds, dry skin, and slower than > > > normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic > > > levothyroxin 1 x day, here are the Labs in 07: > > > Cholesterol total 324 (125-200) range > > > LDL 240 (0-129) range > > > TPO/Anti TPO 401 (<35) range > > > Thyroglobulin ABS 175 (<20) range > > > TSH (3rd gen) 7.23 (.40-5.5) range > > > > > > 2007: > > > TSH was tested again and at 3.5 and was told I am fine. Never felt any > > > improvements, but didn't feel worse either. > > > > > > 2008: > > > Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25 > > > more 3x week. Again, not much change, but I was bad about remembering > > > which days to take the extra, so it most likely wasn't much of a change > > > anway. Gained more weight (25 all together). > > > > > > 2009 (May ¡Vpresent): > > > Had a terrible panic attack while driving , first one ever. Then, had > > > another a few weeks later¡Kduring stressful times. Dr.'s told me (er > > > docs as well as regular doc) it was anxiety related to PTSD (end of '08 > > > and '09 personally heartbreaking and very hard for me). So I believed > > > docs, it made sense. They tested my TSH, and again it was 3.5. They put > > > me on Synthroid proper, and raised me to .50 1x day. Then air hunger > > > started, followed later by dizziness, high anxiety, constipation, weight > > > loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure > > > to my head. I couldn't/ can't drive due to not being safe with > > > fogginess, dizziness, more anxiety attacks. Loss of appetite, > > > depression, tinnitus, migraines (never had before) cold hands and feet, > > > hair loss, out of no where would feel like I had been out of my body, > > > then back in it in a flash (very scary feeling). BP= 90/50, very very > > > bad heart palps (skipped beats with breathlessness) especially at > > > nights. So far I have lost 35 pounds while trying not to I look icky > > > skinny now and am eating tons of calories to just try and maintain. > > > Bowel movements have basically stopped (1x month if lucky). Doc's are > > > stumped. Here are labs: > > > > > > > > > JULY: > > > TSH 4.43 (.34-4.82) range > > > > > > AUGUST: > > > LH 31.8 (15.9-54) range post-menopausal > > > FSH 82.7 (23-116) postmenopausal range > > > Estrodiol 16 (0-31) range untreated postmenopausal > > > Magnesium serum 2.1 (1.6-2.6) range > > > Cortisol 21.1 (4.3-22.4) A.M. range adult female > > > Progesterone .7 (0-.7) range postmenopausal > > > ACTH, plasma 20 (6-48) range > > > Estrogens, total 69 (<40) range postmenopausal untreated > > > Cholesterol total 246 (100-199) range > > > LDL 175 (0-99) range > > > Iron (TIBC) 246 (250-450) > > > Iron UIBC 146 (150-375) range > > > Iron serum 100 (35-155) range > > > Iron Sat % 41 (15-55) range > > > Ferritin 259 (10-250) range > > > TSH 6.690 (.45-4.5) range > > > T4 free .94 (.93-1.71) range > > > TPO AB 698 (0-35) > > > Endo took me OFF of Synthroid saying I was showing more Hyper symptoms > > > than Hypo, and tests show Subclinical Hypo, so it was safe he said. > > > > > > SEPTEMBER : > > > Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am > > > petite) with mild hepatocellular disease? > > > Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling > > > that well either). > > > All other liver testing was fine (blood, and hepatitis, etc.) > > > Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND, > > > 83-93 IND IGG negative on all . Doc says not lyme, that's a false > > > positive. > > > > > > OCTOBER : > > > Feeling a bit better, worse on skipped beats, but not losing weight as > > > fast, dizziness better, and discovered xanax for anxiety symptoms which > > > helps some but just some. > > > T4 free .95 (.93-1.71) range > > > Thyroxine T4 7.5 (4.5-12) range > > > TSH 4.93 (.45-4.5) range > > > Triiodothyronine T3 104 (83-200) range > > > Ferritin, Serum 328 (10-290) range (raised a lot in short amount of > > > time) > > > ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average > > > in size displays heterogeneous echotecture with increased vascularity > > > especially in its lower pole. No dominant nodule identified. Suspicious > > > for Hashimoto's thyroiditis. > > > > > > Doctor wants me back on synthroid, but he isn't sure what to do since my > > > TSH got lower OFF of meds and feel better than when on, and higher when > > > we raised meds. Neither PCP or Endo will order free t3, or saliva > > > adrenal testing. I really need to function, and so greatly miss having a > > > life, I have people who really need me, and I need to be there for them! > > > Any advice will help, and I promise future posts will NOT be this long > > > [] ! > > > Thank you so much, > > > Chele > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Hi , Thank you very much for the advice. It stinks that you had to go through this too, but great to hear that is in the past. So many on here are basically saying how normal the hyper/hypo symptoms are and had to suffer this too, yet, why can't these doctors just reassure us that this is part of the process and know how to treat us? I will look into Dr. Langer, he sounds like he helped you a lot. Thanks again, Chele > > Chele, I just read your post. Of course you had hyper symptoms - they sometimes go back and forth with thyroiditis. Look at the very high tsh in your case. (Mine was 1.26 perfect level but I had a large goiter full of nodules and high anti-thyroid antibodies so sometimes tsh doesn't mean much.) I lost 50 lbs and was skin and bones, wet skin, constant anxiety, etc etc. I can't tell you all the symptoms. that is the past and I've moved on. > > FIRST, everyone, see what the RIGHT amt of T4 will do for you, then work on the rest. Many symptoms, as Dr Langer told me, will fall off. He was right and even he was amazed. I responded right away to the t4 water solution he gave me. (What made me so bad off at the time were issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first.) > > You can google and find Dr langer's phone number in Berkeley Ca. You may have read Shomon write about him. > > good luck - the truth is out there and you can find it. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 HI Carol, Thank you, I know what I am doing this weekend, LEARNING (I live right near a book store). I was so side tracked into learning about all these different diseases my doctors (numerous docs too) have been thinking I have, when all along I should just have looked to these areas! Geeesssshhhh! Well, at least I know now that I will feel better one day, I was feeling soooo hopeless, and you all have given me hope! Thank you, Chele > > > > > > > > > > > > Hi everyone, > > > > I am at my wits end and am in GREAT need of your help. I have been > > > > feeling terrible and can't function, been to many dr.'s(insurance > > > > stopped paying) and they all can't figure out what to do for me . I > > > > would sooooo greatly appreciate any advice or help you can give. > > > > Here's a history: > > > > > > > > 2005: > > > > Had ovaries removed and tried many different HRT's, they all gave me a > > > > ton of skipped heart beats, so we stopped with hrt's and haven't been > > > > on any since. > > > > > > > > 2007: > > > > Was losing hair, gained about 15 pounds, dry skin, and slower than > > > > normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic > > > > levothyroxin 1 x day, here are the Labs in 07: > > > > Cholesterol total 324 (125-200) range > > > > LDL 240 (0-129) range > > > > TPO/Anti TPO 401 (<35) range > > > > Thyroglobulin ABS 175 (<20) range > > > > TSH (3rd gen) 7.23 (.40-5.5) range > > > > > > > > 2007: > > > > TSH was tested again and at 3.5 and was told I am fine. Never felt any > > > > improvements, but didn't feel worse either. > > > > > > > > 2008: > > > > Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25 > > > > more 3x week. Again, not much change, but I was bad about remembering > > > > which days to take the extra, so it most likely wasn't much of a change > > > > anway. Gained more weight (25 all together). > > > > > > > > 2009 (May ¡Vpresent): > > > > Had a terrible panic attack while driving , first one ever. Then, had > > > > another a few weeks later¡Kduring stressful times. Dr.'s told me (er > > > > docs as well as regular doc) it was anxiety related to PTSD (end of '08 > > > > and '09 personally heartbreaking and very hard for me). So I believed > > > > docs, it made sense. They tested my TSH, and again it was 3.5. They put > > > > me on Synthroid proper, and raised me to .50 1x day. Then air hunger > > > > started, followed later by dizziness, high anxiety, constipation, weight > > > > loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure > > > > to my head. I couldn't/ can't drive due to not being safe with > > > > fogginess, dizziness, more anxiety attacks. Loss of appetite, > > > > depression, tinnitus, migraines (never had before) cold hands and feet, > > > > hair loss, out of no where would feel like I had been out of my body, > > > > then back in it in a flash (very scary feeling). BP= 90/50, very very > > > > bad heart palps (skipped beats with breathlessness) especially at > > > > nights. So far I have lost 35 pounds while trying not to I look icky > > > > skinny now and am eating tons of calories to just try and maintain. > > > > Bowel movements have basically stopped (1x month if lucky). Doc's are > > > > stumped. Here are labs: > > > > > > > > > > > > JULY: > > > > TSH 4.43 (.34-4.82) range > > > > > > > > AUGUST: > > > > LH 31.8 (15.9-54) range post-menopausal > > > > FSH 82.7 (23-116) postmenopausal range > > > > Estrodiol 16 (0-31) range untreated postmenopausal > > > > Magnesium serum 2.1 (1.6-2.6) range > > > > Cortisol 21.1 (4.3-22.4) A.M. range adult female > > > > Progesterone .7 (0-.7) range postmenopausal > > > > ACTH, plasma 20 (6-48) range > > > > Estrogens, total 69 (<40) range postmenopausal untreated > > > > Cholesterol total 246 (100-199) range > > > > LDL 175 (0-99) range > > > > Iron (TIBC) 246 (250-450) > > > > Iron UIBC 146 (150-375) range > > > > Iron serum 100 (35-155) range > > > > Iron Sat % 41 (15-55) range > > > > Ferritin 259 (10-250) range > > > > TSH 6.690 (.45-4.5) range > > > > T4 free .94 (.93-1.71) range > > > > TPO AB 698 (0-35) > > > > Endo took me OFF of Synthroid saying I was showing more Hyper symptoms > > > > than Hypo, and tests show Subclinical Hypo, so it was safe he said. > > > > > > > > SEPTEMBER : > > > > Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am > > > > petite) with mild hepatocellular disease? > > > > Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling > > > > that well either). > > > > All other liver testing was fine (blood, and hepatitis, etc.) > > > > Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND, > > > > 83-93 IND IGG negative on all . Doc says not lyme, that's a false > > > > positive. > > > > > > > > OCTOBER : > > > > Feeling a bit better, worse on skipped beats, but not losing weight as > > > > fast, dizziness better, and discovered xanax for anxiety symptoms which > > > > helps some but just some. > > > > T4 free .95 (.93-1.71) range > > > > Thyroxine T4 7.5 (4.5-12) range > > > > TSH 4.93 (.45-4.5) range > > > > Triiodothyronine T3 104 (83-200) range > > > > Ferritin, Serum 328 (10-290) range (raised a lot in short amount of > > > > time) > > > > ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average > > > > in size displays heterogeneous echotecture with increased vascularity > > > > especially in its lower pole. No dominant nodule identified. Suspicious > > > > for Hashimoto's thyroiditis. > > > > > > > > Doctor wants me back on synthroid, but he isn't sure what to do since my > > > > TSH got lower OFF of meds and feel better than when on, and higher when > > > > we raised meds. Neither PCP or Endo will order free t3, or saliva > > > > adrenal testing. I really need to function, and so greatly miss having a > > > > life, I have people who really need me, and I need to be there for them! > > > > Any advice will help, and I promise future posts will NOT be this long > > > > [] ! > > > > Thank you so much, > > > > Chele > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Hi , You mentioned Activia won't do it, is there something else I should be using? I can see that digestion seems to be such a common thread for all of us, and I had no idea that it could cause anxiety as well, wow! My family had been scared that I might have colorectal cancer or something from my symptoms (which the dr. just now is thinking he might want to test for due to my high Ferritin). Last night I went over my bills that insurance has not paid, I owe $12k in medical bills without any of those docs being anywhere near as helpful for that $ that you all have been on here in just 2 days time. Argghh, I would have rather send it to you all :-) Thanks, Chele > > > > Hi, > > > > you said: issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first- > > > > I have to disagree. Sorry, but I hardly had any good bacteria in my digestive system and it was imperative to deal with this issue as soon as possible. My panic attacks came from lack of nutrients, due to the problems with the digestive system. > > One can deal with both at the same time. And Activia yogurt will not do it. > > Usually I don't disagree with anybody here on the board, because I don't have the right and the combined knowledge is just wonderful. If I wouldn't have had you guys to draw knowledge from, I would have ended up as a crippled person. My endo told me to take cymbalta for fibro. Ha Ha . > > I rather listen to you; everyone has the best interest at heart for the fellow sufferer. And for that I will be always thankful. > > > > > Owner of 's Bread > > http://wheatandsourdough.com > > http://lindasbread.blogspot.com/ > > > > > > > > > > > > > To: Thyroiditis > From: figure8000@... > Date: Wed, 11 Nov 2009 06:37:16 -0800 > Subject: Re: Wit's End Challenge Hypo/Hyper > > > > > > > > Chele, I just read your post. Of course you had hyper symptoms - they sometimes go back and forth with thyroiditis. Look at the very high tsh in your case. (Mine was 1.26 perfect level but I had a large goiter full of nodules and high anti-thyroid antibodies so sometimes tsh doesn't mean much.) I lost 50 lbs and was skin and bones, wet skin, constant anxiety, etc etc. I can't tell you all the symptoms. that is the past and I've moved on. > > FIRST, everyone, see what the RIGHT amt of T4 will do for you, then work on the rest. Many symptoms, as Dr Langer told me, will fall off. He was right and even he was amazed. I responded right away to the t4 water solution he gave me. (What made me so bad off at the time were issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first.) > > You can google and find Dr langer's phone number in Berkeley Ca. You may have read Shomon write about him. > > good luck - the truth is out there and you can find it. > > > > > > > > _________________________________________________________________ > Windows 7: Unclutter your desktop. > http://go.microsoft.com/?linkid=9690331 & ocid=PID24727::T:WLMTAGL:ON:WL:en-US:WWL\ _WIN_evergreen:112009 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Hi Chele, here is what I took: Rejuvi-Flora, four-step system for microflora rejuvenation. Featuring: Hyper-Implante, Repleniss, Fortefy, Flora-Elite, Eco-Flora Do your research online to keep cost down. It cost me about 120 $ all together, but it lasts for 1/2 year. good luck, keep us up to date, Owner of 's Breadhttp://wheatandsourdough.comhttp://lindasbread.blogspot.com/ To: Thyroiditis From: myloanlady@...Date: Wed, 11 Nov 2009 19:12:43 +0000Subject: Re: Wit's End Challenge Hypo/Hyper Hi ,You mentioned Activia won't do it, is there something else I should be using? I can see that digestion seems to be such a common thread for all of us, and I had no idea that it could cause anxiety as well, wow! My family had been scared that I might have colorectal cancer or something from my symptoms (which the dr. just now is thinking he might want to test for due to my high Ferritin). Last night I went over my bills that insurance has not paid, I owe $12k in medical bills without any of those docs being anywhere near as helpful for that $ that you all have been on here in just 2 days time. Argghh, I would have rather send it to you all :-)Thanks,Chele>> > > Hi,> > > > you said: issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first-> > > > I have to disagree. Sorry, but I hardly had any good bacteria in my digestive system and it was imperative to deal with this issue as soon as possible. My panic attacks came from lack of nutrients, due to the problems with the digestive system.> > One can deal with both at the same time. And Activia yogurt will not do it. > > Usually I don't disagree with anybody here on the board, because I don't have the right and the combined knowledge is just wonderful. If I wouldn't have had you guys to draw knowledge from, I would have ended up as a crippled person. My endo told me to take cymbalta for fibro. Ha Ha .> > I rather listen to you; everyone has the best interest at heart for the fellow sufferer. And for that I will be always thankful.> > > > > Owner of 's Bread> > http://wheatandsourdough.com> > http://lindasbread.blogspot.com/> > > > > > > > > > > > > To: Thyroiditis > Date: Wed, 11 Nov 2009 06:37:16 -0800> Subject: Re: Wit's End Challenge Hypo/Hyper> > > > > > > > Chele, I just read your post. Of course you had hyper symptoms - they sometimes go back and forth with thyroiditis. Look at the very high tsh in your case. (Mine was 1.26 perfect level but I had a large goiter full of nodules and high anti-thyroid antibodies so sometimes tsh doesn't mean much.) I lost 50 lbs and was skin and bones, wet skin, constant anxiety, etc etc. I can't tell you all the symptoms. that is the past and I've moved on.> > FIRST, everyone, see what the RIGHT amt of T4 will do for you, then work on the rest. Many symptoms, as Dr Langer told me, will fall off. He was right and even he was amazed. I responded right away to the t4 water solution he gave me. (What made me so bad off at the time were issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first.)> > You can google and find Dr langer's phone number in Berkeley Ca. You may have read Shomon write about him.> > good luck - the truth is out there and you can find it.> > > > > > > > __________________________________________________________> Windows 7: Unclutter your desktop.> http://go.microsoft.com/?linkid=9690331 & ocid=PID24727::T:WLMTAGL:ON:WL:en-US:WWL_WIN_evergreen:112009> Hotmail: Powerful Free email with security by Microsoft. Get it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 yeah its great to have gone to reuglar drs - to rule out their " Regular " health diseases:) but whne we are left with NO idea what we have,, that is when you realize how amazing the holistic/Alternative DRs and community is, because they started looking at the Big picture and they did not " dismiss " a lot of our symptoms and think they were not important. ya know that feeling you have had ? where you said " out of no where would feel like I had been out of my body, then back in it in a flash (very scary feeling " I think that is the same feeling that --an antelope will feel as they are caught by a Lion and being " brought down..!! Great way to feel as you run , and then feel the jaws of a lion NOT a great way to feel when you are driving in your car the Stress Hormones -including Beta-endorphin hormone - which is our body's own natural Opioid!- cause Brain and neurologic symtposm because we have Stress hormone " cell receptors " in our brain and nervous system and our immune system etc.. Stress hormones just don't affect muscles and heart so that we can Fight Of Flight(run they also affect our brain which then ofcourse affeccts our senses, perceptions, Moods, behavior and etc -Carol > > > > > > > > > > > > > > > Hi everyone, > > > > > I am at my wits end and am in GREAT need of your help. I have been > > > > > feeling terrible and can't function, been to many dr.'s(insurance > > > > > stopped paying) and they all can't figure out what to do for me . I > > > > > would sooooo greatly appreciate any advice or help you can give. > > > > > Here's a history: > > > > > > > > > > 2005: > > > > > Had ovaries removed and tried many different HRT's, they all gave me a > > > > > ton of skipped heart beats, so we stopped with hrt's and haven't been > > > > > on any since. > > > > > > > > > > 2007: > > > > > Was losing hair, gained about 15 pounds, dry skin, and slower than > > > > > normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic > > > > > levothyroxin 1 x day, here are the Labs in 07: > > > > > Cholesterol total 324 (125-200) range > > > > > LDL 240 (0-129) range > > > > > TPO/Anti TPO 401 (<35) range > > > > > Thyroglobulin ABS 175 (<20) range > > > > > TSH (3rd gen) 7.23 (.40-5.5) range > > > > > > > > > > 2007: > > > > > TSH was tested again and at 3.5 and was told I am fine. Never felt any > > > > > improvements, but didn't feel worse either. > > > > > > > > > > 2008: > > > > > Dr. upped my levo a lil bit to taking .25 levo all days, but adding ..25 > > > > > more 3x week. Again, not much change, but I was bad about remembering > > > > > which days to take the extra, so it most likely wasn't much of a change > > > > > anway. Gained more weight (25 all together). > > > > > > > > > > 2009 (May ¡Vpresent): > > > > > Had a terrible panic attack while driving , first one ever. Then, had > > > > > another a few weeks later¡Kduring stressful times. Dr.'s told me (er > > > > > docs as well as regular doc) it was anxiety related to PTSD (end of '08 > > > > > and '09 personally heartbreaking and very hard for me). So I believed > > > > > docs, it made sense. They tested my TSH, and again it was 3.5. They put > > > > > me on Synthroid proper, and raised me to .50 1x day. Then air hunger > > > > > started, followed later by dizziness, high anxiety, constipation, weight > > > > > loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure > > > > > to my head. I couldn't/ can't drive due to not being safe with > > > > > fogginess, dizziness, more anxiety attacks. Loss of appetite, > > > > > depression, tinnitus, migraines (never had before) cold hands and feet, > > > > > hair loss, out of no where would feel like I had been out of my body, > > > > > then back in it in a flash (very scary feeling). BP= 90/50, very very > > > > > bad heart palps (skipped beats with breathlessness) especially at > > > > > nights. So far I have lost 35 pounds while trying not to I look icky > > > > > skinny now and am eating tons of calories to just try and maintain. > > > > > Bowel movements have basically stopped (1x month if lucky). Doc's are > > > > > stumped. Here are labs: > > > > > > > > > > > > > > > JULY: > > > > > TSH 4.43 (.34-4.82) range > > > > > > > > > > AUGUST: > > > > > LH 31.8 (15.9-54) range post-menopausal > > > > > FSH 82.7 (23-116) postmenopausal range > > > > > Estrodiol 16 (0-31) range untreated postmenopausal > > > > > Magnesium serum 2.1 (1.6-2.6) range > > > > > Cortisol 21.1 (4.3-22.4) A.M. range adult female > > > > > Progesterone .7 (0-.7) range postmenopausal > > > > > ACTH, plasma 20 (6-48) range > > > > > Estrogens, total 69 (<40) range postmenopausal untreated > > > > > Cholesterol total 246 (100-199) range > > > > > LDL 175 (0-99) range > > > > > Iron (TIBC) 246 (250-450) > > > > > Iron UIBC 146 (150-375) range > > > > > Iron serum 100 (35-155) range > > > > > Iron Sat % 41 (15-55) range > > > > > Ferritin 259 (10-250) range > > > > > TSH 6.690 (.45-4.5) range > > > > > T4 free .94 (.93-1.71) range > > > > > TPO AB 698 (0-35) > > > > > Endo took me OFF of Synthroid saying I was showing more Hyper symptoms > > > > > than Hypo, and tests show Subclinical Hypo, so it was safe he said. > > > > > > > > > > SEPTEMBER : > > > > > Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am > > > > > petite) with mild hepatocellular disease? > > > > > Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling > > > > > that well either). > > > > > All other liver testing was fine (blood, and hepatitis, etc.) > > > > > Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND, > > > > > 83-93 IND IGG negative on all . Doc says not lyme, that's a false > > > > > positive. > > > > > > > > > > OCTOBER : > > > > > Feeling a bit better, worse on skipped beats, but not losing weight as > > > > > fast, dizziness better, and discovered xanax for anxiety symptoms which > > > > > helps some but just some. > > > > > T4 free .95 (.93-1.71) range > > > > > Thyroxine T4 7.5 (4.5-12) range > > > > > TSH 4.93 (.45-4.5) range > > > > > Triiodothyronine T3 104 (83-200) range > > > > > Ferritin, Serum 328 (10-290) range (raised a lot in short amount of > > > > > time) > > > > > ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average > > > > > in size displays heterogeneous echotecture with increased vascularity > > > > > especially in its lower pole. No dominant nodule identified. Suspicious > > > > > for Hashimoto's thyroiditis. > > > > > > > > > > Doctor wants me back on synthroid, but he isn't sure what to do since my > > > > > TSH got lower OFF of meds and feel better than when on, and higher when > > > > > we raised meds. Neither PCP or Endo will order free t3, or saliva > > > > > adrenal testing. I really need to function, and so greatly miss having a > > > > > life, I have people who really need me, and I need to be there for them! > > > > > Any advice will help, and I promise future posts will NOT be this long > > > > > [] ! > > > > > Thank you so much, > > > > > Chele > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Hi Chele, All of your medical providers seem to be overlooking a very important part of your complex puzzle; iron-overload. Excess iron lowers the immune system. Many diseases will show a poor outcome unless any excess iron is removed. You need to get rid of the excess ferritin like yesterday. It appears you and your daughter may be dealing with Hereditary Hemochromatosis. When iron levels test low, and/or ferritin levels test high the cause must be found. These tests can be a valuable clue that other disease may exist like an ulcer or infection to name a couple. As far as I have heard IGENEX testing is quite accurate. Therefore, if I were you I'd research the Lyme's intensely while lowering the dangerous ferritin level. You must test and keep seeking the reason for any deficiency. A hematologist may be beneficial to your health. Since both you and your daughter have iron-overload bloodletting or therapeutic phlebotomies should be aggressively preformed at the minimum of once weekly until the ferritin goes and stays below 10. Discovering excess iron without vital treatment is worthless. Without aggressive treatment you can likely develop other worse diseases. Excess iron is very dangerous for the heart. You need to drop storage iron as fast as possible. Supplementing with B vitamins, especially B12, B6 and folic acid may be helpful. What are your levels on a CBC? Remember, hemoglobin and iron are NOT the same, many doctors give their patients iron when hemoglobin is low, but that's dangerous as a patient can have low iron levels and anemia but are dying of iron overload by consuming iron pills. You really need a knowledgeable hematologist. More iron info... http://www.irondisorders.org/ http://www.ironoverload.org/ ~~~ The high cholesterol, estrogen, progesterone, cortisol are screaming Adrenal Exhaustion. Thyroid labs: T4 is 40% (in range) T3 is 18% and FT4 is 3%. Essentially you probably feel better off Synthroid because, just quessing here, your T4 is converting to Reverse T3 and not T3. Without proper testing of FT3, my best guess is that your FT3 is at bottom range or lower and your docs need to seek out why. Also, T3/4 is not looking at the same thing as FT3/4. The Free T tests are always much lower than the T3/4 tests, which were replaced with the more accurate FT tests in the early 1980s. T3/4 tests show the total hormones in the blood and the FreeT3/4 tests show only the unbound hormone that is available to the body for use. So always test Free T3 and Free T4 for accuracy in thyroid levels. Many patients feel better around mid-range, but this is highly individualized. I feel best when both my Free T3 and FreeT4 are around 60% in each range. Since you feel better off the Synthroid you may be experiencing what many of us have – that our bodies can't metabolize and effectively utilize synthetic levothyroxine sodium very well. I developed CFS, Fibromyalgia and became bedridden within two years of on the various forms of T4. I can clearly remember how " ar wits end " I felt, probably much like you do now. I formed new diseases on T4 only meds and frankly can't live long without natural desiccated thyroid. Of the 10 million patients on thyroid replacements drugs in the USA, approximately 3 million of us don't tolerate T4 effectively. One last thing, many Hashis don't do well eating gluten and dairy. As you may already know soy is bad for thyroid disease, actually all thyroids. Many of us develop vitamin and mineral deficiencies due to slow digestion and absorption etc. Cleaning up my diet helped immeasurably. There are many toxins in refined foods. Good luck! Best, ~Bj > > > Hi everyone, > I am at my wits end and am in GREAT need of your help. I have been > feeling terrible and can't function, been to many dr.'s(insurance > stopped paying) and they all can't figure out what to do for me . I > would sooooo greatly appreciate any advice or help you can give. > Here's a history: > > 2005: > Had ovaries removed and tried many different HRT's, they all gave me a > ton of skipped heart beats, so we stopped with hrt's and haven't been > on any since. > > 2007: > Was losing hair, gained about 15 pounds, dry skin, and slower than > normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic > levothyroxin 1 x day, here are the Labs in 07: > Cholesterol total 324 (125-200) range > LDL 240 (0-129) range > TPO/Anti TPO 401 (<35) range > Thyroglobulin ABS 175 (<20) range > TSH (3rd gen) 7.23 (.40-5.5) range > > 2007: > TSH was tested again and at 3.5 and was told I am fine. Never felt any > improvements, but didn't feel worse either. > > 2008: > Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25 > more 3x week. Again, not much change, but I was bad about remembering > which days to take the extra, so it most likely wasn't much of a change > anway. Gained more weight (25 all together). > > 2009 (May ¡Vpresent): > Had a terrible panic attack while driving , first one ever. Then, had > another a few weeks later¡Kduring stressful times. Dr.'s told me (er > docs as well as regular doc) it was anxiety related to PTSD (end of '08 > and '09 personally heartbreaking and very hard for me). So I believed > docs, it made sense. They tested my TSH, and again it was 3.5. They put > me on Synthroid proper, and raised me to .50 1x day. Then air hunger > started, followed later by dizziness, high anxiety, constipation, weight > loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure > to my head. I couldn't/ can't drive due to not being safe with > fogginess, dizziness, more anxiety attacks. Loss of appetite, > depression, tinnitus, migraines (never had before) cold hands and feet, > hair loss, out of no where would feel like I had been out of my body, > then back in it in a flash (very scary feeling). BP= 90/50, very very > bad heart palps (skipped beats with breathlessness) especially at > nights. So far I have lost 35 pounds while trying not to I look icky > skinny now and am eating tons of calories to just try and maintain. > Bowel movements have basically stopped (1x month if lucky). Doc's are > stumped. Here are labs: > > > JULY: > TSH 4.43 (.34-4.82) range > > AUGUST: > LH 31.8 (15.9-54) range post-menopausal > FSH 82.7 (23-116) postmenopausal range > Estrodiol 16 (0-31) range untreated postmenopausal > Magnesium serum 2.1 (1.6-2.6) range > Cortisol 21.1 (4.3-22.4) A.M. range adult female > Progesterone .7 (0-.7) range postmenopausal > ACTH, plasma 20 (6-48) range > Estrogens, total 69 (<40) range postmenopausal untreated > Cholesterol total 246 (100-199) range > LDL 175 (0-99) range > Iron (TIBC) 246 (250-450) > Iron UIBC 146 (150-375) range > Iron serum 100 (35-155) range > Iron Sat % 41 (15-55) range > Ferritin 259 (10-250) range > TSH 6.690 (.45-4.5) range > T4 free .94 (.93-1.71) range > TPO AB 698 (0-35) > Endo took me OFF of Synthroid saying I was showing more Hyper symptoms > than Hypo, and tests show Subclinical Hypo, so it was safe he said. > > SEPTEMBER : > Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am > petite) with mild hepatocellular disease? > Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling > that well either). > All other liver testing was fine (blood, and hepatitis, etc.) > Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND, > 83-93 IND IGG negative on all . Doc says not lyme, that's a false > positive. > > OCTOBER : > Feeling a bit better, worse on skipped beats, but not losing weight as > fast, dizziness better, and discovered xanax for anxiety symptoms which > helps some but just some. > T4 free .95 (.93-1.71) range > Thyroxine T4 7.5 (4.5-12) range > TSH 4.93 (.45-4.5) range > Triiodothyronine T3 104 (83-200) range > Ferritin, Serum 328 (10-290) range (raised a lot in short amount of > time) > ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average > in size displays heterogeneous echotecture with increased vascularity > especially in its lower pole. No dominant nodule identified. Suspicious > for Hashimoto's thyroiditis. > > Doctor wants me back on synthroid, but he isn't sure what to do since my > TSH got lower OFF of meds and feel better than when on, and higher when > we raised meds. Neither PCP or Endo will order free t3, or saliva > adrenal testing. I really need to function, and so greatly miss having a > life, I have people who really need me, and I need to be there for them! > Any advice will help, and I promise future posts will NOT be this long > [] ! > Thank you so much, > Chele > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Hi , Sorry to hear you and your four daughter have thyroid disease. I have Hashis and so do all of my children except my youngest daughter who also has Graves' to deal with on top of Hashimoto's Thyroiditis. I assume you are talking about bringing down TSH to around one and that yours is currently at .89. And you talk about increasing your T4 med by 12.5 mcg and then go on to say you felt bad so an increase of 25 mcg is enough. This just does NOT make sense to me. Why are you taking T4? Dr. Langer in Berkley CA advocates that patients with hypothyroidism use natural thyroid or at the very least use a T4/T3 combo. Do you have something very different going on with your thyroid? Best, ~Bj > > and others. Just started reading this thread. T4 med should be increased to bring it as close to 1 as possible. Mine is about .89; when I increased half a 25 mcg tablet it went to .35 and I felt bad, so 25 mcg is enough for me. > > You can do a phone consult with Dr Langer who wrote Solved; the riddle of illness - he is a thyroid and nutritional expert and very well respected. 20 minutes is $85 or used to be. Well worth it. Get your tests first, copy them and send them to him in advance of the phone appt. > > I could not find a doctor who could help me so i turned to Dr langer. He helped me and my 4 daughters who I then got tested and unfortunately, we all are challenged with this. I was so sick I could not take a tablet so he put me on a water solution I got from CA since it's hard to find compounding pharmacies who know how to make it to last a month. > > Dr Langer will put you on the right track. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Hi , Now I am even more curious as to what you are referring to... <<<< FIRST, everyone, see what the RIGHT amt of T4 will do for you, then work on the rest. Many symptoms, as Dr Langer told me, will fall off. >>>> I never found out what my right amount of T4 was until I took natural thyroid. On T4 I developed new symptoms and diseases to the point of thinking I was dying. I thought I had Alzheimers in my thirties along with CFS and Fibromyalgia. Best, ~Bj > > Chele, I just read your post. Of course you had hyper symptoms - they sometimes go back and forth with thyroiditis. Look at the very high tsh in your case. (Mine was 1.26 perfect level but I had a large goiter full of nodules and high anti-thyroid antibodies so sometimes tsh doesn't mean much.) I lost 50 lbs and was skin and bones, wet skin, constant anxiety, etc etc. I can't tell you all the symptoms. that is the past and I've moved on. > > FIRST, everyone, see what the RIGHT amt of T4 will do for you, then work on the rest. Many symptoms, as Dr Langer told me, will fall off. He was right and even he was amazed. I responded right away to the t4 water solution he gave me. (What made me so bad off at the time were issues related to digestion etc - you'll find anxiety and many problems come from that; however, get the right t4 level first.) > > You can google and find Dr langer's phone number in Berkeley Ca. You may have read Shomon write about him. > > good luck - the truth is out there and you can find it. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Chele- Are you STILL having flashes in your eyesight, dizziness and/or migraines? These are very serious symptoms. Have you been to a neurologist? Miaja** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Wow Carol what a great way to put that feeling! What great insight! You must have had this feeling before? I had such a tough time expressing what I go through too :-) I have someone taking me to the book store tomorrow to get your recommended reading as well as others that have been suggested. Since I can't really function properly out in the real world right now, you all gave me information that I have time to learn and will then allow me to be able to be back out there again! I miss it! -Chele > > > > > > > > > > > > > > > > > > Hi everyone, > > > > > > I am at my wits end and am in GREAT need of your help. I have been > > > > > > feeling terrible and can't function, been to many dr.'s(insurance > > > > > > stopped paying) and they all can't figure out what to do for me . I > > > > > > would sooooo greatly appreciate any advice or help you can give. > > > > > > Here's a history: > > > > > > > > > > > > 2005: > > > > > > Had ovaries removed and tried many different HRT's, they all gave me a > > > > > > ton of skipped heart beats, so we stopped with hrt's and haven't been > > > > > > on any since. > > > > > > > > > > > > 2007: > > > > > > Was losing hair, gained about 15 pounds, dry skin, and slower than > > > > > > normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic > > > > > > levothyroxin 1 x day, here are the Labs in 07: > > > > > > Cholesterol total 324 (125-200) range > > > > > > LDL 240 (0-129) range > > > > > > TPO/Anti TPO 401 (<35) range > > > > > > Thyroglobulin ABS 175 (<20) range > > > > > > TSH (3rd gen) 7.23 (.40-5.5) range > > > > > > > > > > > > 2007: > > > > > > TSH was tested again and at 3.5 and was told I am fine. Never felt any > > > > > > improvements, but didn't feel worse either. > > > > > > > > > > > > 2008: > > > > > > Dr. upped my levo a lil bit to taking .25 levo all days, but adding ..25 > > > > > > more 3x week. Again, not much change, but I was bad about remembering > > > > > > which days to take the extra, so it most likely wasn't much of a change > > > > > > anway. Gained more weight (25 all together). > > > > > > > > > > > > 2009 (May ¡Vpresent): > > > > > > Had a terrible panic attack while driving , first one ever. Then, had > > > > > > another a few weeks later¡Kduring stressful times. Dr.'s told me (er > > > > > > docs as well as regular doc) it was anxiety related to PTSD (end of '08 > > > > > > and '09 personally heartbreaking and very hard for me). So I believed > > > > > > docs, it made sense. They tested my TSH, and again it was 3.5. They put > > > > > > me on Synthroid proper, and raised me to .50 1x day. Then air hunger > > > > > > started, followed later by dizziness, high anxiety, constipation, weight > > > > > > loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure > > > > > > to my head. I couldn't/ can't drive due to not being safe with > > > > > > fogginess, dizziness, more anxiety attacks. Loss of appetite, > > > > > > depression, tinnitus, migraines (never had before) cold hands and feet, > > > > > > hair loss, out of no where would feel like I had been out of my body, > > > > > > then back in it in a flash (very scary feeling). BP= 90/50, very very > > > > > > bad heart palps (skipped beats with breathlessness) especially at > > > > > > nights. So far I have lost 35 pounds while trying not to I look icky > > > > > > skinny now and am eating tons of calories to just try and maintain. > > > > > > Bowel movements have basically stopped (1x month if lucky). Doc's are > > > > > > stumped. Here are labs: > > > > > > > > > > > > > > > > > > JULY: > > > > > > TSH 4.43 (.34-4.82) range > > > > > > > > > > > > AUGUST: > > > > > > LH 31.8 (15.9-54) range post-menopausal > > > > > > FSH 82.7 (23-116) postmenopausal range > > > > > > Estrodiol 16 (0-31) range untreated postmenopausal > > > > > > Magnesium serum 2.1 (1.6-2.6) range > > > > > > Cortisol 21.1 (4.3-22.4) A.M. range adult female > > > > > > Progesterone .7 (0-.7) range postmenopausal > > > > > > ACTH, plasma 20 (6-48) range > > > > > > Estrogens, total 69 (<40) range postmenopausal untreated > > > > > > Cholesterol total 246 (100-199) range > > > > > > LDL 175 (0-99) range > > > > > > Iron (TIBC) 246 (250-450) > > > > > > Iron UIBC 146 (150-375) range > > > > > > Iron serum 100 (35-155) range > > > > > > Iron Sat % 41 (15-55) range > > > > > > Ferritin 259 (10-250) range > > > > > > TSH 6.690 (.45-4.5) range > > > > > > T4 free .94 (.93-1.71) range > > > > > > TPO AB 698 (0-35) > > > > > > Endo took me OFF of Synthroid saying I was showing more Hyper symptoms > > > > > > than Hypo, and tests show Subclinical Hypo, so it was safe he said. > > > > > > > > > > > > SEPTEMBER : > > > > > > Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am > > > > > > petite) with mild hepatocellular disease? > > > > > > Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling > > > > > > that well either). > > > > > > All other liver testing was fine (blood, and hepatitis, etc.) > > > > > > Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND, > > > > > > 83-93 IND IGG negative on all . Doc says not lyme, that's a false > > > > > > positive. > > > > > > > > > > > > OCTOBER : > > > > > > Feeling a bit better, worse on skipped beats, but not losing weight as > > > > > > fast, dizziness better, and discovered xanax for anxiety symptoms which > > > > > > helps some but just some. > > > > > > T4 free .95 (.93-1.71) range > > > > > > Thyroxine T4 7.5 (4.5-12) range > > > > > > TSH 4.93 (.45-4.5) range > > > > > > Triiodothyronine T3 104 (83-200) range > > > > > > Ferritin, Serum 328 (10-290) range (raised a lot in short amount of > > > > > > time) > > > > > > ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average > > > > > > in size displays heterogeneous echotecture with increased vascularity > > > > > > especially in its lower pole. No dominant nodule identified. Suspicious > > > > > > for Hashimoto's thyroiditis. > > > > > > > > > > > > Doctor wants me back on synthroid, but he isn't sure what to do since my > > > > > > TSH got lower OFF of meds and feel better than when on, and higher when > > > > > > we raised meds. Neither PCP or Endo will order free t3, or saliva > > > > > > adrenal testing. I really need to function, and so greatly miss having a > > > > > > life, I have people who really need me, and I need to be there for them! > > > > > > Any advice will help, and I promise future posts will NOT be this long > > > > > > [] ! > > > > > > Thank you so much, > > > > > > Chele > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Hi Bj, Wow, you brought up all that I have been thinking. I even asked my pcp at my last visit about my ferritin and he said my iron was fine, and that the raise in ferritin could just be the inflamation of the Hashimoto's thyroiditis or maybe cancer (I have a history of that) but didn't think it was due to hemochromatosis.Since my daughter was diagnosed I cut out as much iron from our diets as possible since my ferritin was higher than hers on my first test and her saturation was much higher than mine, then my doc just told me after my big raise in it that I can go ahead and eat steak and potatoes if I want. That didn't sit right with me. My daughter just went to the ped hematologist and luckily at the moment she does not need phlebs right now, she was happy about that one. My doc hasn't even tested me to see if I have both genes like my daughter and my mom, or just the one gene that I gave to my daughter. I have been through so many darn docs and am in sooooo much medical debt now, but you have motivated me to go to a hematologist, that's what I was suspecting, but I guess I keep hoping I am just dealing with 1 thing wrong instead of so many. My last CBC a few months ago came out fine, only my lymphs were a little high but barely. Thank you so much for taking the time to go over my very long message, and caring enough to help! Thank you for teaching me about where my (roughly) my levels should be. I have soooo much to learn and I am sooooooo grateful to you and everyone else here that is so supportive and caring. I am so sorry you have had to go through so much, you sound very strong! Does your message mean that you are feeling much better now? Do you also have HH? Thank you so much again, Chele > > > > > > Hi everyone, > > I am at my wits end and am in GREAT need of your help. I have been > > feeling terrible and can't function, been to many dr.'s(insurance > > stopped paying) and they all can't figure out what to do for me . I > > would sooooo greatly appreciate any advice or help you can give. > > Here's a history: > > > > 2005: > > Had ovaries removed and tried many different HRT's, they all gave me a > > ton of skipped heart beats, so we stopped with hrt's and haven't been > > on any since. > > > > 2007: > > Was losing hair, gained about 15 pounds, dry skin, and slower than > > normal. Diagnosed with Hashimoto's Thyroiditis and put on .25 generic > > levothyroxin 1 x day, here are the Labs in 07: > > Cholesterol total 324 (125-200) range > > LDL 240 (0-129) range > > TPO/Anti TPO 401 (<35) range > > Thyroglobulin ABS 175 (<20) range > > TSH (3rd gen) 7.23 (.40-5.5) range > > > > 2007: > > TSH was tested again and at 3.5 and was told I am fine. Never felt any > > improvements, but didn't feel worse either. > > > > 2008: > > Dr. upped my levo a lil bit to taking .25 levo all days, but adding .25 > > more 3x week. Again, not much change, but I was bad about remembering > > which days to take the extra, so it most likely wasn't much of a change > > anway. Gained more weight (25 all together). > > > > 2009 (May ¡Vpresent): > > Had a terrible panic attack while driving , first one ever. Then, had > > another a few weeks later¡Kduring stressful times. Dr.'s told me (er > > docs as well as regular doc) it was anxiety related to PTSD (end of '08 > > and '09 personally heartbreaking and very hard for me). So I believed > > docs, it made sense. They tested my TSH, and again it was 3.5. They put > > me on Synthroid proper, and raised me to .50 1x day. Then air hunger > > started, followed later by dizziness, high anxiety, constipation, weight > > loss, insomnia, muscle pains, flashes in eyesight, rushing of pressure > > to my head. I couldn't/ can't drive due to not being safe with > > fogginess, dizziness, more anxiety attacks. Loss of appetite, > > depression, tinnitus, migraines (never had before) cold hands and feet, > > hair loss, out of no where would feel like I had been out of my body, > > then back in it in a flash (very scary feeling). BP= 90/50, very very > > bad heart palps (skipped beats with breathlessness) especially at > > nights. So far I have lost 35 pounds while trying not to I look icky > > skinny now and am eating tons of calories to just try and maintain. > > Bowel movements have basically stopped (1x month if lucky). Doc's are > > stumped. Here are labs: > > > > > > JULY: > > TSH 4.43 (.34-4.82) range > > > > AUGUST: > > LH 31.8 (15.9-54) range post-menopausal > > FSH 82.7 (23-116) postmenopausal range > > Estrodiol 16 (0-31) range untreated postmenopausal > > Magnesium serum 2.1 (1.6-2.6) range > > Cortisol 21.1 (4.3-22.4) A.M. range adult female > > Progesterone .7 (0-.7) range postmenopausal > > ACTH, plasma 20 (6-48) range > > Estrogens, total 69 (<40) range postmenopausal untreated > > Cholesterol total 246 (100-199) range > > LDL 175 (0-99) range > > Iron (TIBC) 246 (250-450) > > Iron UIBC 146 (150-375) range > > Iron serum 100 (35-155) range > > Iron Sat % 41 (15-55) range > > Ferritin 259 (10-250) range > > TSH 6.690 (.45-4.5) range > > T4 free .94 (.93-1.71) range > > TPO AB 698 (0-35) > > Endo took me OFF of Synthroid saying I was showing more Hyper symptoms > > than Hypo, and tests show Subclinical Hypo, so it was safe he said. > > > > SEPTEMBER : > > Liver ultrasound, (have spider angiomas) showed mild fatty liver (I am > > petite) with mild hepatocellular disease? > > Daughter was diagnosed with Hemochromatosis (she hasn¡¦t been feeling > > that well either). > > All other liver testing was fine (blood, and hepatitis, etc.) > > Lyme Testing (IGENEX) Positive on IGM bands 31, 34, 41, 39 IND, > > 83-93 IND IGG negative on all . Doc says not lyme, that's a false > > positive. > > > > OCTOBER : > > Feeling a bit better, worse on skipped beats, but not losing weight as > > fast, dizziness better, and discovered xanax for anxiety symptoms which > > helps some but just some. > > T4 free .95 (.93-1.71) range > > Thyroxine T4 7.5 (4.5-12) range > > TSH 4.93 (.45-4.5) range > > Triiodothyronine T3 104 (83-200) range > > Ferritin, Serum 328 (10-290) range (raised a lot in short amount of > > time) > > ULTRASOUND=Left lobe atrophic or congenitally absent. Right lobe average > > in size displays heterogeneous echotecture with increased vascularity > > especially in its lower pole. No dominant nodule identified. Suspicious > > for Hashimoto's thyroiditis. > > > > Doctor wants me back on synthroid, but he isn't sure what to do since my > > TSH got lower OFF of meds and feel better than when on, and higher when > > we raised meds. Neither PCP or Endo will order free t3, or saliva > > adrenal testing. I really need to function, and so greatly miss having a > > life, I have people who really need me, and I need to be there for them! > > Any advice will help, and I promise future posts will NOT be this long > > [] ! > > Thank you so much, > > Chele > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Hi Miaja, Yes I am still experiencing them, mainly on and off dizzy, tons of floaters, and random flashes of blue or white dots. I have been to a neurologist and had a clear MRI and CT scan as well as clear EEG. I also went to a wacky optometrist and he said eye looked fine, but he thinks perhaps it's a neurological problem. Last time I ended up in the ER was with right side of my body numb, I totally thought I was having a stroke down to slurred speech, but the er doc said I was having a migraine (I had seen this pretty pattern in eye before I lost feeling on right side). Are eye problems not a common symptom for Hashimoto's thyroiditis? Thanks, Chele > > Chele- > > Are you STILL having flashes in your eyesight, dizziness and/or migraines? These are very serious symptoms. Have you been to a neurologist? > > Miaja** > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2009 Report Share Posted November 18, 2009 Hi Miaja, If you have low thyroid function you have or have had Adrenal Fatigue to some degree with or without noticeable symptoms. When someone's adrenals are down then they become hyothyroid that is automatic and simple biochemistry. Adrenals down = thyroid down! Physiology texts say thyroid output goes down when the adrenals are stressed. Like other autoimmune conditions, autoimmune thyroiditis can develop when the adrenal glands are stressed, for example, following pregnancy or at menopause. If my memory is correct, (or I could have you mixed up with someone else here) I believe you mentioned having been on antidepressants, having Asthma and/or allergies, heart palpations, and gut issues; all of which are common in Adrenal Fatigue. Cortisol imbalance is not the only thing affected. Changes occur in your carbohydrate, protein and fat metabolism, fluid and electrolyte balance, lungs, heart and cardiovascular system, and even sex drive. Many other alterations take place at the biochemical and cellular levels in response to stress. In the book: Safe Uses of Cortisol, Jefferies, M.D., outlined the role of the adrenal glands in the body's response to stress and documented the connection between adrenal insufficiency and menstrual problems, infertility, allergies, asthma, rheumatoid arthritis, viral infections, chronic fatigue, indigestion, mood disorders, hypothyroidism, and other ailments. Throughout the book, Dr. Jefferies presented compelling case histories from his fifty years of experience. Also, as documented in Dr. Jefferies' book, natural cortisol actually reduces levels of thyroid antibodies, enhancing the effectiveness of thyroid hormone. Unfortunately, today doctors don't really know about adrenal fatigue. They only know when it is so bad that the adrenals are practically shut down, or when it is excessive; but anything in between isn't taught in med school nor recognized by conventional medicine as a distinct syndrome even though millions of people experience it each year. I like the example of the horse… You're driving a horse pulling a heavy load and you come to a hill with railroad tracks halfway to the top. You get the horse to the railroad tracks and he collapses right on the track, and there's a train coming. That's the state many people's adrenals get in — a big train wreck about to happen. What you have to do first is get the horse off the tracks, and the only way to do that is to whip him. That's what the adrenal cortex does, whip the adrenals in emergencies. Now that you've avoided getting hit by the train you no longer have to whip the horse. What the adrenals need now is rest and support. Supporting herbs and supplements may be what's needed next along with eliminating ALL stressors, eating a healthy diet with regular meals, exercising daily and plenty of restful sleep. Best, ~Bj > > > > hi Miaji > > > > do you have any HIgh cortisol test results from a *24hr cortisol saliva test*? (Eg Adrenal Fatigue " ?? > > > > my floaters went away when i was taking PS/Rhodiola to help my (slightlY) high cortisol.. i Know that that supplement helped calm my brain (i could tell that i didn't react as strongly to Life/emotional occurences) > > > > but i also woke up startled Every mornign i took that Supp -for 6 months. > > > > i do have vision issues again (betw4en hypot and AF/HPA Axis/SNS) my eyes were affected since a kid (coke bottles in grade school 8-o > > > > Have you found any thing that helps your floaters? > > and have you persued the 'Adrenal fatigue " cortisol connection at all? > > > > (I know that Cushings patients also get floaters and also CSR== that is where i read about the light " Dimmer " symptom that I have!) > > > > --Carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2009 Report Share Posted November 19, 2009 Bj, This is interesting reading. I am a 38 year old male and for the past year have been searching to find the answers to my sudden health issues. Could it be that stress, job, new baby, lack of sleep, could has taxed my adrenals to a point where it triggered thyroiditis? I am on thyroid hormone replacement now, but I am begining to think that all I really needed was some adrenal support? Would this have straightened out my throid issues? Is it too late to go backward and stop thyroid meds and address the adrenals? > > > > > > hi Miaji > > > > > > do you have any HIgh cortisol test results from a *24hr cortisol saliva test*? (Eg Adrenal Fatigue " ?? > > > > > > my floaters went away when i was taking PS/Rhodiola to help my (slightlY) high cortisol.. i Know that that supplement helped calm my brain (i could tell that i didn't react as strongly to Life/emotional occurences) > > > > > > but i also woke up startled Every mornign i took that Supp -for 6 months. > > > > > > i do have vision issues again (betw4en hypot and AF/HPA Axis/SNS) my eyes were affected since a kid (coke bottles in grade school 8-o > > > > > > Have you found any thing that helps your floaters? > > > and have you persued the 'Adrenal fatigue " cortisol connection at all? > > > > > > (I know that Cushings patients also get floaters and also CSR== that is where i read about the light " Dimmer " symptom that I have!) > > > > > > --Carol > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2009 Report Share Posted November 19, 2009 , Do you have a family history of thyroid disease? Thyroid disease is often presented by the heredity factor. I do have a family history, so it's unlikely I will ever be cured of Hashis, which I traced my family history with some sort of thyroid problems back to the early 1700s - both hyper and hypo. How ironic - BTW - it's my ancestors with the same surname as you, Dykes, which is my maiden name. Perhaps we're cousins! Wouldn't that be a hoot? If you have ancestors from Hawkins County Tennessee in 1700s we just may be related, i.e. Dykes and nah Lankford. If curious, e-mail me. IMHO, it's never too late to heal the Adrenals. The first step is rest. Getting rid of all humanly possible emotional and physical stressors, (Some things we just can't get rid of though, so we need to live joyfully and peacefully with those for best results.) eat unrefined foods often and regularly, exercise daily, get plenty of restful sleep and support the Adrenals with herbs and supplements. Not easy by any means but it is doable with patience and determination. My Adrenals were so impaired that I needed to take Cortef for three years. And so glad I did, but I don't think I would have made it without knowledgeable guidance. At the same time I decided to fix the stressors, eat healthy, get to bed/sleep by 10 pm, and exercise everyday even if all I could do was walk for 10 minutes at a time. This has been an on-going process for me with getting my vitamins and minerals replenished along with finding soy, dairy and especially wheat/gluten as substances that keep me sick and eliminating them. Forgetting everything I knew about food and re-training my mindset. I am still healing my gut. Gut problems are vital to fix. If you don't fix the GI tract nothing else will heal efficiently. I hope this is helpful, ~Bj > > > > > > > > hi Miaji > > > > > > > > do you have any HIgh cortisol test results from a *24hr cortisol saliva test*? (Eg Adrenal Fatigue " ?? > > > > > > > > my floaters went away when i was taking PS/Rhodiola to help my (slightlY) high cortisol.. i Know that that supplement helped calm my brain (i could tell that i didn't react as strongly to Life/emotional occurences) > > > > > > > > but i also woke up startled Every mornign i took that Supp -for 6 months. > > > > > > > > i do have vision issues again (betw4en hypot and AF/HPA Axis/SNS) my eyes were affected since a kid (coke bottles in grade school 8-o > > > > > > > > Have you found any thing that helps your floaters? > > > > and have you persued the 'Adrenal fatigue " cortisol connection at all? > > > > > > > > (I know that Cushings patients also get floaters and also CSR== that is where i read about the light " Dimmer " symptom that I have!) > > > > > > > > --Carol > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2009 Report Share Posted November 20, 2009 Becky- While I appreciate your long and thoughtful response, you do have me mixed up with someone else. AND my point was not an argument on whether or not adrenal fatigue goes hand in hand with thyroid (I know it does), but that FLOATERS in the eyes do not equal adrenal fatigue. Miaja** > > > > > > hi Miaji > > > > > > do you have any HIgh cortisol test results from a *24hr cortisol saliva test*? (Eg Adrenal Fatigue " ?? > > > > > > my floaters went away when i was taking PS/Rhodiola to help my (slightlY) high cortisol.. i Know that that supplement helped calm my brain (i could tell that i didn't react as strongly to Life/emotional occurences) > > > > > > but i also woke up startled Every mornign i took that Supp -for 6 months. > > > > > > i do have vision issues again (betw4en hypot and AF/HPA Axis/SNS) my eyes were affected since a kid (coke bottles in grade school 8-o > > > > > > Have you found any thing that helps your floaters? > > > and have you persued the 'Adrenal fatigue " cortisol connection at all? > > > > > > (I know that Cushings patients also get floaters and also CSR== that is where i read about the light " Dimmer " symptom that I have!) > > > > > > --Carol > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2009 Report Share Posted November 20, 2009 Bj- I'm not sure I agree with you here regarding: " If you have low thyroid function you have or have had Adrenal Fatigue to some degree with or without noticeable symptoms " . While I know that low adrenals leads to thyroid problems, I am almost certain that you can have thyroid problems without having had adrenal problems. You can have thyroid problems alone without anything else. Miaja** > > Hi Miaja, > > If you have low thyroid function you have or have had Adrenal Fatigue to some degree with or without noticeable symptoms. When someone's adrenals are down then they become hyothyroid that is automatic and simple biochemistry. Adrenals down = thyroid down! Physiology texts say thyroid output goes down when the adrenals are stressed. Like other autoimmune conditions, autoimmune thyroiditis can develop when the adrenal glands are stressed, for example, following pregnancy or at menopause. > > Best, > ~Bj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2009 Report Share Posted November 20, 2009 in a nutshell, conventional research has now discovered and proved how directly the hypothalamus and limbic system , endocrine , and nervous system affect the Immune system includng auotimmune and cancer and heart disease..etc and our entire stress system (= brain, SNS and HPA Axis (Where A = Adrenal glands is being implicated! stress does kill! it causes inflammmation and cardiovasuclar disease, it causes auotimmuen disease to 'activate' and it causes cancer.. (both autoimmune disease and cancer are caused by our Immune Systems failing to do their jobs properly (all people make cancer cells, but healthy peopel's immune system gets rid of them /) lots of connections and examples.. but do some Googling check out the field of research called neuroimmunoendocrinology and psychoneuroendocrinology (where psycho = our Limbic system (another thing the hyptohalamus " heads " up they really should bite the bullet and just put all 4 systems the hypohtalamus presides over ,,, into 1 long word psychoneuroimmmunoendocrinology ======= one great example is the wheat/celiac and ATD connection being made by *conventional medical research institutions like UCLA and UCSD.. they now say on their websites that Autoimmune thyroid disease are a *Symptom of Celiac Disease!! imagine that they are starting to think like the great alternative DRs who have long known how 'connected' are the different systems and parts of the body -Carol (there are a few genetic causes of some folks having Cell receptor Resistnace or enzyme production problems =but those cases are far fewer as compared to the big 3 causes of hypot > > > > Hi Miaja, > > > > If you have low thyroid function you have or have had Adrenal Fatigue to some degree with or without noticeable symptoms. When someone's adrenals are down then they become hyothyroid that is automatic and simple biochemistry. Adrenals down = thyroid down! Physiology texts say thyroid output goes down when the adrenals are stressed. Like other autoimmune conditions, autoimmune thyroiditis can develop when the adrenal glands are stressed, for example, following pregnancy or at menopause. > > > > > > > Best, > > ~Bj > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2009 Report Share Posted November 23, 2009 Eye floaters may or may NOT be nothing! Floaters that don't go away or lessen significantly after a short can be an indication of liver congestion, vitamin C depletion and zinc deficiency -- the retina has the highest amount of zinc. Best, ~Bj > > No, never had testing because I don't have any symptoms of adrenal fatigue. LOTS and lots of people have floaters that are nothing. In fact, I am in school right now and everyone at my lab table has them when we look through the microscope. I'm sure the whole table doesn't have cortisol problems! Quote Link to comment Share on other sites More sharing options...
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