Re: Swollen legs/B12/Candida --> HELP!

[Guest guest]

Jo,

I shall address just one aspect of your post - but welcome and I expect others

to jump in.

It appears that many doctors don't even do the Schilling test these days. If you

B12 is low, do something! In some ways, it doesn't matter why.

My feeling is that if your B12 levels are dropping it demonstrates a problem. I

would start taking 1000mcg B12 daily (many people suggest sublingual

methylcobalamin is absorbed better). Ideally, you talk to your doctor and say

what you are doing - and schedule a re-test somewhere into the future. In any

case, after taking it for a while you should be in a position to think about

whether taking it has helped any of your signs and symptoms.

(As always, this is based on what I have read and talked about. Others have

different views. I have no medical qualification - just another person. I

strongly recommend that you try to research and read up on the issues.)

BTW - What are you taking for your candida?

Rod

>

> Hi Guys,

> I am new to this group. I've been reading your emails last few weeks and must

say it gives a lot of information and help.

> My long story – short:

> I've been diagnosed with HASHIMOTO at the beginning of august 2008. However I

suspect now, from the symptoms I have had experienced, that the condition

started at least 4 years ago - but the doctors were deaf and blind when I was

complaining about at least 5 problems. Their answers (till today as well) was

always: you need more exercise!

> On the day of blood test I was >75 TSH --> the lab didn't have range for me(!)

– however at that particular day I felt horrible and probably wouldn't be able

to leave my bed next morning.

> Since then I do not listen to the doctors endlessly and must admit I do not

trust them like I did before. I listen to what people with similar condition to

mine say and take what's good and learn on their mistakes as well.

>

> If someone from this group could help and answer some of my questions (my Endo

just sits there and stares at me with no answer and GP is even worse) I will

really appreciate:

> 1. I have very badly swollen legs from knees including my feet – no way to

wear high hills but I have even problems with wearing wide, flat shoes --> where

the problem is, will it go away or am I going be like this till the rest of my

life ?

> 2. I did Shilling test, which came back negative – but my B12 level dropped

down from 420 to 372 (170-1100 lab range) during two months – doctor said she

doesn't know why and that I shouldn't worry but then said, that I should start

to worry when it drops to 300! I'm confused. What should I do? What can be the

problem -> I will add that I am carnivorous.

> 3. My face and particularly eyes are puffy and swollen

> 4. have very dry mouth and eyes after every night and even developed fungi

infection (Candida) in my mouth, which i have treatmen now for as well

> 5. can't loose weight still after my hormone levels are OK and I have visits

to my gym 6 days a week, 1.5 hour work out.

> 6. how often should I repeat TPO?

>

> Tests from 20/02/09 are as follows:

> T3 = 6.7 (3.1-6.8)

> T4 = 15 (10-22)

> TSH = 0.04 (0.30-5.50)

>

> TPO = 385 (0-100) done 17/11/08

>

> Sorry for such a long email – my hope only in you guys.

>

> Thanks Jo and I'm 35 this year.

>

[Guest guest]

Hi Rod,

Thank you for your answer.

For Candida I had:

Fluconazole 50mg for 4 weeks, then 1 week Nystatin, three weeks break and now I'm on Fluconazole 100mg for two weeks – hope this time i will get rid of this fungus definitely.

I must add, that to be diagnosed (do a swab) and be prescribed above medications I had to literally fight with my GP as she claimed there is no problem!

I have changed my surgery now.

Thanks again Jo

To: Thyroiditis Sent: Saturday, 7 March, 2009 11:15:36Subject: Re: Swollen legs/B12/Candida --> HELP!

Jo,I shall address just one aspect of your post - but welcome and I expect others to jump in.It appears that many doctors don't even do the Schilling test these days. If you B12 is low, do something! In some ways, it doesn't matter why.My feeling is that if your B12 levels are dropping it demonstrates a problem. I would start taking 1000mcg B12 daily (many people suggest sublingual methylcobalamin is absorbed better). Ideally, you talk to your doctor and say what you are doing - and schedule a re-test somewhere into the future. In any case, after taking it for a while you should be in a position to think about whether taking it has helped any of your signs and symptoms.(As always, this is based on what I have read and talked about. Others have different views. I have no medical qualification - just another person. I strongly recommend that you try to research and read up on the issues.)BTW - What are you taking

for your candida?Rod>> Hi Guys,> I am new to this group. I've been reading your emails last few weeks and must say it gives a lot of information and help.> My long story – short:> I've been diagnosed with HASHIMOTO at the beginning of august 2008. However I suspect now, from the symptoms I have had experienced, that the condition started at least 4 years ago - but the doctors were deaf and blind when I was complaining about at least 5 problems. Their answers (till today as well) was always: you need more exercise!> On the day of blood test I was >75 TSH --> the lab didn't have range for me(!) – however at that particular day I felt horrible and probably wouldn't be able to leave my bed next

morning.> Since then I do not listen to the doctors endlessly and must admit I do not trust them like I did before. I listen to what people with similar condition to mine say and take what's good and learn on their mistakes as well.> > If someone from this group could help and answer some of my questions (my Endo just sits there and stares at me with no answer and GP is even worse) I will really appreciate:> 1. I have very badly swollen legs from knees including my feet – no way to wear high hills but I have even problems with wearing wide, flat shoes --> where the problem is, will it go away or am I going be like this till the rest of my life ?> 2. I did Shilling test, which came back negative – but my B12 level dropped down from 420 to 372 (170-1100 lab range) during two months – doctor said she doesn't know why and that I shouldn't worry but then said, that I should start to worry when it drops to 300! I'm

confused. What should I do? What can be the problem -> I will add that I am carnivorous.> 3. My face and particularly eyes are puffy and swollen> 4. have very dry mouth and eyes after every night and even developed fungi infection (Candida) in my mouth, which i have treatmen now for as well> 5. can't loose weight still after my hormone levels are OK and I have visits to my gym 6 days a week, 1.5 hour work out.> 6. how often should I repeat TPO?> > Tests from 20/02/09 are as follows:> T3 = 6.7 (3.1-6.8)> T4 = 15 (10-22)> TSH = 0.04 (0.30-5.50)> > TPO = 385 (0-100) done 17/11/08> > Sorry for such a long email – my hope only in you guys.> > Thanks Jo and I'm 35 this year.>

[Guest guest]

Jo,

My partner, who thinks she has gut yeast/fungal problems, has just suggested I

send you this link:

http://www.drmyhill.co.uk/article.cfm?id=298

Of course, you might already have seen this.

It does appear that UK doctors can't think of any yeast/fungal problems beyond

athlete's foot. :-(

All the best

Rod

>

> Hi Rod,

> Thank you for your answer.

> For Candida I had:

> Fluconazole 50mg for 4 weeks, then 1 week Nystatin, three weeks break and now

I'm on Fluconazole 100mg for two weeks †" hope this time i will get rid of

this fungus definitely.

>  

> I must add, that to be diagnosed (do a swab) and be prescribed above

medications I had to literally fight with my GP as she claimed there is no

problem!

> I have changed my surgery now.

>  

> Thanks again Jo

[Guest guest]

Hi Rod again,

Thanks for the info. I have checked the link you sent me à few information is new for me and so I’m going to use it.

If your partner thinks she has fungi in her gut, she should strongly insist on doctors to do throat swab.. I know how difficult is to live with this problem. I asked my doctor at least 5 times on a various visits to swab my tongue and when she refused again, I just said I will do it in a private clinic anyway.

So if your partner thinks - she probably has it. I don’t know, what is your partner’s preferable method of treating health (fungi) problems, but I am very strong believer in a conventional medicine, especially when it comes to a serious health problems. So I insisted on Fluconazole treatment and will continue with it as long as it takes. Plus of course with the help of unconventional medicine - but only.

My symptoms of fungi in my guts were (some still are):

1. a lot and constant very smelly winds à even my ex was shocked (that’s not the reason we split up LOL)

2. getting bloated immediately after any meal

3. belching

4. smelly diarrhea

5. close to the throat area - green coated tongue and smell from it,

6. chocolate craving like mad à generally I like chocolate but before Candida, It was enough for me to have one bar of a chocolate once a year – not anymore

7. athlete’s feet - no cream can help

8 . headaches – to name just few the most disturbing

After reading some of the articles about Candida, I do additionally take now odor free garlic tablets 2x a day and I take Lactobacillus x2 tablets, available from Holland & Barrett which is called Acidophilus. But Fluconazole is my main drug to treat fungus problem.

Hope we can help each other this was.

Good luck for your partner and thanks for your answers – all really appreciated

Jo

To: Thyroiditis Sent: Saturday, 7 March, 2009 12:29:08Subject: Re: Swollen legs/B12/Candida --> HELP!

Jo,My partner, who thinks she has gut yeast/fungal problems, has just suggested I send you this link:http://www.drmyhill .co.uk/article. cfm?id=298Of course, you might already have seen this.It does appear that UK doctors can't think of any yeast/fungal problems beyond athlete's foot. :-(All the bestRod>> Hi Rod,> Thank you for your answer.> For Candida I had:> Fluconazole 50mg for 4 weeks, then 1 week Nystatin, three weeks break and now I'm on Fluconazole 100mg for two weeks â€" hope this time i will get rid of this fungus definitely.>  > I must add,

that to be diagnosed (do a swab) and be prescribed above medications I had to literally fight with my GP as she claimed there is no problem!> I have changed my surgery now.>  > Thanks again Jo

[Guest guest]

Jo,

Some of those symptoms are hits - some not. Definitely bloating after any food.

Difficulty in working with GP (and other medical problems - such as

Erythromelalgia) have resulted in her buying Fluconazole herself (from the US) -

awaiting delivery right now!

Partner finds St Helens Goat Yoghurt to be about the best source of bacteria.

Tastes very nice. (If needed, she does add some fruit sometimes.) And we have

changed over to their full fat goats milk for all our milk usage (tea, coffee,

cereals and cooking).

All the best

Rod

>

> Hi Rod again,

> Thanks for the info. I have checked the link you sent me àfew information is

new for me and so I’m going to use it.

> If your partner thinks she has fungi in her gut, she should strongly insist on

doctors to do throat swab. I know how difficult is to live with this problem. I

asked my doctor at least 5 times on a various visits to swab my tongue and when

she refused again, I just said I will do it in a private clinic anyway.

> So if your partner thinks - she probably has it. I don’t know, what is your

partner’s preferable method of treating health (fungi) problems, but I am very

strong believer in a conventional medicine, especially when it comes to a

serious health problems. So I insisted on Fluconazole treatment and will

continue with it as long as it takes. Plus of course with the help of

unconventional medicine - but only.

>  

> My symptoms of fungi in my guts were (some still are):

> 1. a lot and constant very smelly winds àeven my ex was shocked (that’s not

the reason we split up LOL)

> 2. getting bloated immediately after any meal

> 3.. belching

> 4. smelly diarrhea

> 5. close to the throat area - green coated tongue and smell from it,

> 6. chocolate craving like mad àgenerally I like chocolate but before Candida,

It was enough for me to have one bar of a chocolate once a year †" not anymore

> 7. athlete’s feet - no cream can help

> 8 . headaches †" to name just few the most disturbing

>  

> After reading some of the articles about Candida, I do additionally take now

odor free garlic tablets 2x a day and I take Lactobacillus x2 tablets, available

from Holland & Barrett which is called Acidophilus. But Fluconazole is my main

drug to treat fungus problem.

>  

> Hope we can help each other this was.

> Good luck for your partner and thanks for your answers †" all really

appreciated

> Jo

[Guest guest]

My doctor has recommended "C Flushes" for yeast and for overall health. I don't feel it has completely gotten rid of the yeast. I can get fluconazole on my own--I am just wondering if there are any dangers with self-medicating-- any advice?Sent from my Verizon Wireless BlackBerryFrom: "Rod" Date: Sat, 07 Mar 2009 15:19:00 -0000To: <Thyroiditis >Subject: Re: Swollen legs/B12/Candida --> HELP! Jo, Some of those symptoms are hits - some not. Definitely bloating after any food. Difficulty in working with GP (and other medical problems - such as Erythromelalgia) have resulted in her buying Fluconazole herself (from the US) - awaiting delivery right now! Partner finds St Helens Goat Yoghurt to be about the best source of bacteria. Tastes very nice. (If needed, she does add some fruit sometimes.) And we have changed over to their full fat goats milk for all our milk usage (tea, coffee, cereals and cooking). All the best Rod > > Hi Rod again, > Thanks for the info. I have checked the link you sent me àfew information is new for me and so I’m going to use it. > If your partner thinks she has fungi in her gut, she should strongly insist on doctors to do throat swab. I know how difficult is to live with this problem. I asked my doctor at least 5 times on a various visits to swab my tongue and when she refused again, I just said I will do it in a private clinic anyway. > So if your partner thinks - she probably has it. I don’t know, what is your partner’s preferable method of treating health (fungi) problems, but I am very strong believer in a conventional medicine, especially when it comes to a serious health problems. So I insisted on Fluconazole treatment and will continue with it as long as it takes. Plus of course with the help of unconventional medicine - but only. >   > My symptoms of fungi in my guts were (some still are): > 1. a lot and constant very smelly winds àeven my ex was shocked (that’s not the reason we split up LOL) > 2. getting bloated immediately after any meal > 3.. belching > 4. smelly diarrhea > 5. close to the throat area - green coated tongue and smell from it, > 6. chocolate craving like mad àgenerally I like chocolate but before Candida, It was enough for me to have one bar of a chocolate once a year †" not anymore > 7. athlete’s feet - no cream can help > 8 . headaches †" to name just few the most disturbing >   > After reading some of the articles about Candida, I do additionally take now odor free garlic tablets 2x a day and I take Lactobacillus x2 tablets, available from Holland & Barrett which is called Acidophilus. But Fluconazole is my main drug to treat fungus problem. >   > Hope we can help each other this was. > Good luck for your partner and thanks for your answers †" all really appreciated > Jo

[Guest guest]

,

There are big issues with self-medicating. It is very important that people do

not take Fluconazole for long periods as there can be liver problems. (I think

the usual protocols call for four weeks of Fluconazole followed by switching to

something else such as Nystatin.)

Of course, if self-medicating there will obviously be problems if it a) works

(how do you explain that); causes problems (how do you explain that); c)

doesn't work (how do you move on). Entirely understandable why people decide to

do so but it is not a good path.

What exactly do you mean by " C Flushes " ? (I have found some information but am

interested in what you are expected to do.)

Rod

>

> My doctor has recommended " C Flushes " for yeast and for overall health. I

don't feel it has completely gotten rid of the yeast. I can get fluconazole on

my own--I am just wondering if there are any dangers with self-medicating-- any

advice?

>

[Guest guest]

Hi Rod—

My doctor is very receptive to ideas but definitely chooses a

more natural route when possible—hence the C flushes. What you do

is you take a teaspoon of powdered buffered Vitamin C and mix it with 2 ounces

of water. After it has settled you drink it. You do this every half

hour until you have a flush—with means that basically instead of having a

standard bowel movement you will have a “flush” of water. If

you initially feel sick to your stomach—I didn’t but know others

that did—that means you are very deficient in Vit C and you should slowly

build up by taking capsules before doing a flush. After the flush—if

it took you five teaspoons total you would then do a daily Vitamin C “drink”

of just four teaspoons(or 75% I think ) of VIt C in 8 ozs. of water. I

have found this protocol one of the most valuable parts of my health

care. If you try it for a couple weeks you notice a dramatic difference in

your overall health.

Having said all that I was doing great with it until I got bronchitis

in December and had to go on antibiotics. All of my old symptoms have

come back. I go to another Chinese herb and other herbs kind of

person. There are products, “pleo forte”, “pleo alb,”

etc that she has me use. They definitely help with the yeast but I never

feel as though it is just gone.

I guess I will just wait until my next appt. to discuss it with

her. I would definitely recommend this Vitamin C plan to everyone—I

have found that some buffered C’s are not as good as others. Bevko brand

has been the best one for me.

From:

Thyroiditis [mailto:Thyroiditis ] On Behalf

Of Rod

Sent: Saturday, March 07, 2009 2:37 PM

To: Thyroiditis

Subject: Re: Swollen legs/B12/Candida --> HELP!

,

There are big issues with self-medicating. It is very important that people do

not take Fluconazole for long periods as there can be liver problems. (I think

the usual protocols call for four weeks of Fluconazole followed by switching to

something else such as Nystatin.)

Of course, if self-medicating there will obviously be problems if it a) works

(how do you explain that); causes problems (how do you explain that); c)

doesn't work (how do you move on). Entirely understandable why people decide to

do so but it is not a good path.

What exactly do you mean by " C Flushes " ? (I have found some

information but am interested in what you are expected to do.)

Rod

>

> My doctor has recommended " C Flushes " for yeast and for overall

health. I don't feel it has completely gotten rid of the yeast. I can get

fluconazole on my own--I am just wondering if there are any dangers with

self-medicating-- any advice?

>

[Guest guest]

Rod,

You know I am very surprised at my B 12 level since I take sublingual

supplement of B 12.

At first I was at 246 of Serum Vit B 12 before any supplement. Then I

take 2000 mcg of B12 per day, the level was elevated up to 1500+. The

last time I was tested at 300+ when I still take 2000 mcg of B 12 ( some

days just 1000 mcg ). I also take 250% untransformed Complex B per day.

So in your opinion, my B 12 is dropping even when I take Methy-formed of

B12? I have increased the dose up to 3000 mcg of B 12. If I have PA, how

could I live without B 12 supplement before? Or I am just deficient in

B 12, not lack of it completely?

And I know that if some one has problem of B 12 when he/she was born,

he/she will have MMA in urine/blood, and will die very soon if without

any treatment of B 12. I am very confused at the difference bt the PA

and the syndrome of urine MMA.

Fragrance

> >

> > Hi Guys,

> > I am new to this group. I've been reading your emails last few weeks

and must say it gives a lot of information and help.

> > My long story ?short:

> > I've been diagnosed with HASHIMOTO at the beginning of august 2008.

However I suspect now, from the symptoms I have had experienced, that

the condition started at least 4 years ago - but the doctors were deaf

and blind when I was complaining about at least 5 problems. Their

answers (till today as well) was always: you need more exercise!

> > On the day of blood test I was >75 TSH --> the lab didn't have range

for me(!) ?however at that particular day I felt horrible and probably

wouldn't be able to leave my bed next morning.

> > Since then I do not listen to the doctors endlessly and must admit I

do not trust them like I did before. I listen to what people with

similar condition to mine say and take what's good and learn on their

mistakes as well.

> >

> > If someone from this group could help and answer some of my

questions (my Endo just sits there and stares at me with no answer and

GP is even worse) I will really appreciate:

> > 1. I have very badly swollen legs from knees including my feet ?no

way to wear high hills but I have even problems with wearing wide, flat

shoes --> where the problem is, will it go away or am I going be like

this till the rest of my life ?

> > 2. I did Shilling test, which came back negative ?but my B12 level

dropped down from 420 to 372 (170-1100 lab range) during two months

?doctor said she doesn't know why and that I shouldn't worry but then

said, that I should start to worry when it drops to 300! I'm confused.

What should I do? What can be the problem -> I will add that I am

carnivorous.

> > 3. My face and particularly eyes are puffy and swollen

> > 4. have very dry mouth and eyes after every night and even developed

fungi infection (Candida) in my mouth, which i have treatmen now for as

well

> > 5. can't loose weight still after my hormone levels are OK and I

have visits to my gym 6 days a week, 1.5 hour work out.

> > 6. how often should I repeat TPO?

> >

> > Tests from 20/02/09 are as follows:

> > T3 = 6.7 (3.1-6.8)

> > T4 = 15 (10-22)

> > TSH = 0.04 (0.30-5.50)

> >

> > TPO = 385 (0-100) done 17/11/08

> >

> > Sorry for such a long email ?my hope only in you guys.

> >

> > Thanks Jo and I'm 35 this year.

> >

>

[Guest guest]

Fragrance,

I wish I could answer your question properly.

I think you need to be tested for PA. If you search for PA sufferers on various

newsgroups and forums, you will find that some take huge doses. But I would

absolutely want to be diagnosed before going up to those levels.

The fact that your B12 went up as expected and only later fell points to

something having changed.

Is it possible that the B12 you are taking isn't in perfect condition or wasn't

made to the claimed strength? Have you changed brand or even just opened a new

bottle?

Is it possible that your B12 tests are wrong for some reason - such as

interference from your diet? The urine MMA test is supposed to get round that

sort of interference. (Apparently serum B12 tests can be a bit unreliable.)

If those are not the answers, then something about you must have changed. And I

do not know what.

Rod

>

>

> Rod,

>

> You know I am very surprised at my B 12 level since I take sublingual

> supplement of B 12.

>

> At first I was at 246 of Serum Vit B 12 before any supplement. Then I

> take 2000 mcg of B12 per day, the level was elevated up to 1500+. The

> last time I was tested at 300+ when I still take 2000 mcg of B 12 ( some

> days just 1000 mcg ). I also take 250% untransformed Complex B per day.

>

> So in your opinion, my B 12 is dropping even when I take Methy-formed of

> B12? I have increased the dose up to 3000 mcg of B 12. If I have PA, how

> could I live without B 12 supplement before? Or I am just deficient in

> B 12, not lack of it completely?

>

> And I know that if some one has problem of B 12 when he/she was born,

> he/she will have MMA in urine/blood, and will die very soon if without

> any treatment of B 12. I am very confused at the difference bt the PA

> and the syndrome of urine MMA.

>

> Fragrance

[Guest guest]

hi

have you tried Celtic Sea Salt?

its real sea salt that hasn't been refined (it comes in light grey

part of your problem may be related to hashimoto's=>adrenal fatigue=>

salt wasting=>aldosterone and cortisol issues.

the body will actually swell and retaine water, and get edema, including pitting

edema, when it is Low in salt. and its typically extracellular.

hypot/adrenal fatigue folks have issues not just with low or high minerals, but

Where (intracellulary vs extracellularly) those minerals are located,, and also

not just Levels of each mineral but the Ratios to their " sister " minerals ...

salt and potassium,,, calcium and magnesium , and so on.

do you have any old blood tests from yearly physicals, where they usually do a

basic Metabolic panel that typically includes glocose, sodium, potassium and

calcium?

what are those results?

(you are looking for lower-Normal sodium , potassium or below normal.. whatever

post em

-Carol

>

> Hi Guys,

> I am new to this group. I've been reading your emails last few weeks and must

say it gives a lot of information and help.

> My long story – short:

> I've been diagnosed with HASHIMOTO at the beginning of august 2008. However I

suspect now, from the symptoms I have had experienced, that the condition

started at least 4 years ago - but the doctors were deaf and blind when I was

complaining about at least 5 problems. Their answers (till today as well) was

always: you need more exercise!

> On the day of blood test I was >75 TSH --> the lab didn't have range for me(!)

– however at that particular day I felt horrible and probably wouldn't be able

to leave my bed next morning.

> Since then I do not listen to the doctors endlessly and must admit I do not

trust them like I did before. I listen to what people with similar condition to

mine say and take what's good and learn on their mistakes as well.

>

> If someone from this group could help and answer some of my questions (my Endo

just sits there and stares at me with no answer and GP is even worse) I will

really appreciate:

> 1. I have very badly swollen legs from knees including my feet – no way to

wear high hills but I have even problems with wearing wide, flat shoes --> where

the problem is, will it go away or am I going be like this till the rest of my

life ?

> 2. I did Shilling test, which came back negative – but my B12 level dropped

down from 420 to 372 (170-1100 lab range) during two months – doctor said she

doesn't know why and that I shouldn't worry but then said, that I should start

to worry when it drops to 300! I'm confused. What should I do? What can be the

problem -> I will add that I am carnivorous.

> 3. My face and particularly eyes are puffy and swollen

> 4. have very dry mouth and eyes after every night and even developed fungi

infection (Candida) in my mouth, which i have treatmen now for as well

> 5. can't loose weight still after my hormone levels are OK and I have visits

to my gym 6 days a week, 1.5 hour work out.

> 6. how often should I repeat TPO?

>

> Tests from 20/02/09 are as follows:

> T3 = 6.7 (3.1-6.8)

> T4 = 15 (10-22)

> TSH = 0.04 (0.30-5.50)

>

> TPO = 385 (0-100) done 17/11/08

>

> Sorry for such a long email – my hope only in you guys.

>

> Thanks Jo and I'm 35 this year.

>

[Guest guest]

pernicious anemia vs Primary Aldosteronism? :)which also causes swelling

> >

> >

> > Rod,

> >

> > You know I am very surprised at my B 12 level since I take sublingual

> > supplement of B 12.

> >

> > At first I was at 246 of Serum Vit B 12 before any supplement. Then I

> > take 2000 mcg of B12 per day, the level was elevated up to 1500+. The

> > last time I was tested at 300+ when I still take 2000 mcg of B 12 ( some

> > days just 1000 mcg ). I also take 250% untransformed Complex B per day.

> >

> > So in your opinion, my B 12 is dropping even when I take Methy-formed of

> > B12? I have increased the dose up to 3000 mcg of B 12. If I have PA, how

> > could I live without B 12 supplement before? Or I am just deficient in

> > B 12, not lack of it completely?

> >

> > And I know that if some one has problem of B 12 when he/she was born,

> > he/she will have MMA in urine/blood, and will die very soon if without

> > any treatment of B 12. I am very confused at the difference bt the PA

> > and the syndrome of urine MMA.

> >

> > Fragrance

>

[Guest guest]

forgot to say, Dr Teitelbaum talks about the " autoimmune triad " in his From

Fatigued to Fantastic book (about FM/CFS)

and the triad consists of, thyrodi , adrenal and B12!

he might have written why this is on his website,, as i recall he doesn't go

into great detail on what happens with b12 leves in the book

-Carol

>

> Fragrance,

>

> I wish I could answer your question properly.

>

> I think you need to be tested for PA. If you search for PA sufferers on

various newsgroups and forums, you will find that some take huge doses. But I

would absolutely want to be diagnosed before going up to those levels.

>

> The fact that your B12 went up as expected and only later fell points to

something having changed.

[Guest guest]

Yebbut...

I said I was restricting my answer to the B12 issue only. :-)

Rod

>

> pernicious anemia vs Primary Aldosteronism? :)which also causes swelling

[Guest guest]

hi Rod shows ya what perspective + brain fog can do with an acronym

*I have tested as high aldosteorne and so had joined the PA (aldo site awhile

back . i still go on to read it cuz i am fascinated by how many of those folks

also have hypothyroid ,,

and also mood/behaviroal issues just like af/hypot folks

(Medicine now says that Ald. causes anxiety!)

as for b12, i always forget that P-Anemia is caused by low b12!

for some reason (My brain fog no doubt) i always think of IRON when i hear

anemia

-Carol

> >

> > pernicious anemia vs Primary Aldosteronism? :)which also causes swelling

>