Re: Non-verbal - any suggestions?

[Guest guest]

>

> My 3.5 year old autistic son is completely non-verbal. We are on

the

> Valtrex/ Diflucan protocol, CLO, Zinc, Magnesium Sulfate, multi-

> vitamin, PhosChol, 2 different kinds of probiotics, and MB-12 with

> folinic nasal spray. While eye contact, appropriate play and

> imitation skills have definitely improved (we still have a ways to

> go), his speech is still missing. By the way, we never saw any

fevers

> or other symptoms that the Valtrex was " working " , just steady

> improvement in several areas. The only rashes we have seen were

very

> light " dotted-looking " rashes that still seems to come and go

around

> his groin. He jabbers incoherantly quite a bit, and has no

apparent

> oral motor problems. He receives speech, OT and PT as well as

several

> hours of individual ABA therapy each week. We tried the GF/CF

diet

> for 6 months, with little improvement, and we saw absolutely no

> regression of any kind when we took him off the diet. He has never

had

> any toubles with his bowels, before or after the diet. I feel like

> maybe our next step should be chelation? Is anyone else doing

> chelation along with Valtrex? Any other suggestions or advice

from

> anyone else who has had success with a non-verbal child? I really

> appreciate your input - Thanks!

>

my son is 3, but he is verbal, he was on valtrex and diflucan for

3 months, we saw some improvement, i cut valtrex because, chelation,

but still doing diflucan, i think that might be your next move too,

by the way are you doing high dose B6, and DMG, they are good for

speech.

[Guest guest]

I ordered the NCD natural cellular defense drops last spring and my 5 year old started talking.  He has a long way to go but he can say "I want juice.", etc.   3 drops twice daily.  KristyMy 3.5 year old autistic son is completely non-verbal. We are on the Valtrex/ Diflucan protocol, CLO, Zinc, Magnesium Sulfate, multi-vitamin, PhosChol, 2 different kinds of probiotics, and MB-12 with folinic nasal spray. While eye contact, appropriate play and imitation skills have definitely improved (we still have a ways to go), his speech is still missing. By the way, we never saw any fevers or other symptoms that the Valtrex was "working", just steady improvement in several areas. The only rashes we have seen were very light "dotted-looking" rashes that still seems to come and go around his groin. He jabbers incoherantly quite a bit, and has no apparent oral motor problems. He receives speech, OT and PT as well as several hours of individual ABA therapy each week. We tried the GF/CF diet for 6 months, with little improvement, and we saw absolutely no regression of any kind when we took him off the diet. He has never had any toubles with his bowels, before or after the diet. I feel like maybe our next step should be chelation? Is anyone else doing chelation along with Valtrex? Any other suggestions or advice from anyone else who has had success with a non-verbal child? I really appreciate your input - Thanks!

[Guest guest]

I assume you have a DAN doc. I think the doctor should guide you into what to do next and do some testing first if necessary.samsmom032003 wrote: My 3.5 year old autistic son is completely non-verbal. We are on the Valtrex/ Diflucan protocol, CLO, Zinc, Magnesium Sulfate, multi-vitamin, PhosChol, 2 different kinds of probiotics, and MB-12 with folinic nasal spray. While eye contact, appropriate play and imitation skills have definitely improved (we still have a ways to go), his

speech is still missing. By the way, we never saw any fevers or other symptoms that the Valtrex was "working", just steady improvement in several areas. The only rashes we have seen were very light "dotted-looking" rashes that still seems to come and go around his groin. He jabbers incoherantly quite a bit, and has no apparent oral motor problems. He receives speech, OT and PT as well as several hours of individual ABA therapy each week. We tried the GF/CF diet for 6 months, with little improvement, and we saw absolutely no regression of any kind when we took him off the diet. He has never had any toubles with his bowels, before or after the diet. I feel like maybe our next step should be chelation? Is anyone else doing chelation along with Valtrex? Any other suggestions or advice from anyone else who has had success with a non-verbal child? I really appreciate your input -

Thanks! __________________________________________________

[Guest guest]

Where can you order the NCD?

>

>Reply-To: mb12 valtrex

>To: mb12 valtrex

>Subject: Re: Non-verbal - any suggestions?

>Date: Wed, 20 Dec 2006 18:16:00 -0600

>

>I ordered the NCD natural cellular defense drops last spring and my 5 year

>old started talking. He has a long way to go but he can say " I want

>juice. " , etc. 3 drops twice daily. Kristy

>

>

>>My 3.5 year old autistic son is completely non-verbal. We are on the

>>Valtrex/ Diflucan protocol, CLO, Zinc, Magnesium Sulfate, multi-

>>vitamin, PhosChol, 2 different kinds of probiotics, and MB-12 with

>>folinic nasal spray. While eye contact, appropriate play and

>>imitation skills have definitely improved (we still have a ways to

>>go), his speech is still missing. By the way, we never saw any fevers

>>or other symptoms that the Valtrex was " working " , just steady

>>improvement in several areas. The only rashes we have seen were very

>>light " dotted-looking " rashes that still seems to come and go around

>>his groin. He jabbers incoherantly quite a bit, and has no apparent

>>oral motor problems. He receives speech, OT and PT as well as several

>>hours of individual ABA therapy each week. We tried the GF/CF diet

>>for 6 months, with little improvement, and we saw absolutely no

>>regression of any kind when we took him off the diet. He has never had

>>any toubles with his bowels, before or after the diet. I feel like

>>maybe our next step should be chelation? Is anyone else doing

>>chelation along with Valtrex? Any other suggestions or advice from

>>anyone else who has had success with a non-verbal child? I really

>>appreciate your input - Thanks!

>>

>>

>>

>

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[Guest guest]

I think www.waiora.comGoogle Natural cellular defense by Waiora and see what you get.  KristyWhere can you order the NCD?>From: Kristy <Kjam (DOT) rr.com>>Reply-To: mb12 valtrex >To: mb12 valtrex >Subject: Re: Non-verbal - any suggestions?>Date: Wed, 20 Dec 2006 18:16:00 -0600>>I ordered the NCD natural cellular defense drops last spring and my 5 year >old started talking. He has a long way to go but he can say "I want >juice.", etc. 3 drops twice daily. Kristy>>>>My 3.5 year old autistic son is completely non-verbal. We are on the>>Valtrex/ Diflucan protocol, CLO, Zinc, Magnesium Sulfate, multi->>vitamin, PhosChol, 2 different kinds of probiotics, and MB-12 with>>folinic nasal spray. While eye contact, appropriate play and>>imitation skills have definitely improved (we still have a ways to>>go), his speech is still missing. By the way, we never saw any fevers>>or other symptoms that the Valtrex was "working", just steady>>improvement in several areas. The only rashes we have seen were very>>light "dotted-looking" rashes that still seems to come and go around>>his groin. He jabbers incoherantly quite a bit, and has no apparent>>oral motor problems. He receives speech, OT and PT as well as several>>hours of individual ABA therapy each week. We tried the GF/CF diet>>for 6 months, with little improvement, and we saw absolutely no>>regression of any kind when we took him off the diet. He has never had>>any toubles with his bowels, before or after the diet. I feel like>>maybe our next step should be chelation? Is anyone else doing>>chelation along with Valtrex? Any other suggestions or advice from>>anyone else who has had success with a non-verbal child? I really>>appreciate your input - Thanks!>>>>>>>__________________________________________________________Get live scores and news about your team: Add the Live.com Football Page www.live.com/?addtemplate=football & icid=T001MSN30A0701

[Guest guest]

Brainchild Nutritionals sells single bottles (instead of the 4 pack).

http://www.brainchildnutritionals.com/Zeolitex.html

Colleen

> >

> >>My 3.5 year old autistic son is completely non-verbal. We are on

the

> >>Valtrex/ Diflucan protocol, CLO, Zinc, Magnesium Sulfate, multi-

> >>vitamin, PhosChol, 2 different kinds of probiotics, and MB-12 with

> >>folinic nasal spray. While eye contact, appropriate play and

> >>imitation skills have definitely improved (we still have a ways to

> >>go), his speech is still missing. By the way, we never saw any

fevers

> >>or other symptoms that the Valtrex was " working " , just steady

> >>improvement in several areas. The only rashes we have seen were

very

> >>light " dotted-looking " rashes that still seems to come and go

around

> >>his groin. He jabbers incoherantly quite a bit, and has no

apparent

> >>oral motor problems. He receives speech, OT and PT as well as

several

> >>hours of individual ABA therapy each week. We tried the GF/CF diet

> >>for 6 months, with little improvement, and we saw absolutely no

> >>regression of any kind when we took him off the diet. He has

never had

> >>any toubles with his bowels, before or after the diet. I feel like

> >>maybe our next step should be chelation? Is anyone else doing

> >>chelation along with Valtrex? Any other suggestions or advice from

> >>anyone else who has had success with a non-verbal child? I really

> >>appreciate your input - Thanks!

> >>

> >>

> >>

> >

>

> _________________________________________________________________

> Get live scores and news about your team: Add the Live.com Football

Page

> www.live.com/?addtemplate=football & icid=T001MSN30A0701

>

[Guest guest]

We have been doing Valtrex + DMPS chelation for almost 10 months (chelation for 12 months). is thriving and chelation has really helped his fine motor skills. Vera"S.Putcha" wrote: Kristy, I amight get this for our 5 yr old non-verbal son too. The website says you need the advice of a physician to give to kids. Is that what you did? How did you determine the 3 drops/day dosage Any side effecets ? How long before

your son started talking? Thanks Kristy <Kjam (DOT) rr.com> wrote: I think www.waiora.com Google Natural cellular defense by Waiora and see what you get. Kristy Where can you order the NCD?>From: Kristy <Kjam (DOT) rr.com>>Reply-To: mb12 valtrex >To: mb12 valtrex >Subject: Re: Non-verbal - any suggestions?>Date: Wed, 20 Dec 2006 18:16:00 -0600>>I ordered the NCD natural cellular defense drops last spring and my 5 year >old started talking. He has a long way to go but he can say "I want >juice.", etc. 3 drops twice daily. Kristy>>>>My 3.5 year old autistic son is completely non-verbal. We are on the>>Valtrex/ Diflucan protocol, CLO, Zinc, Magnesium Sulfate,

multi->>vitamin, PhosChol, 2 different kinds of probiotics, and MB-12 with>>folinic nasal spray. While eye contact, appropriate play and>>imitation skills have definitely improved (we still have a ways to>>go), his speech is still missing. By the way, we never saw any fevers>>or other symptoms

that the Valtrex was "working", just steady>>improvement in several areas. The only rashes we have seen were very>>light "dotted-looking" rashes that still seems to come and go around>>his groin. He jabbers incoherantly quite a bit, and has no apparent>>oral motor problems. He receives speech, OT and PT as well as several>>hours of individual ABA therapy each week. We tried the GF/CF diet>>for 6 months, with little improvement, and we saw absolutely no>>regression of any kind when we took him off the diet. He has never had>>any toubles with his bowels, before or after the diet. I feel like>>maybe our next step should be chelation? Is anyone else doing>>chelation along with Valtrex? Any other suggestions or advice from>>anyone else who has had success with a non-verbal child? I really>>appreciate your input - Thanks!>>>>>>>__________________________________________________________Get live scores and news about your team: Add the Live.com Football Page www.live.com/?addtemplate=football & icid=T001MSN30A0701 __________________________________________________

[Guest guest]

No I did it on my own.  It has a recommended dosage but you have to play around.  Some kids do well on one drop twice daily.  Too late in the day and it kept him up.  Also, too much and he was hyper.  At the right dose for him he was in a great mood.  I saw changes in language within 2 weeks.  KristyKristy,I amight get this for our 5 yr old non-verbal son too.The website says you need the advice of a physician to give to kids. Is that what you did? How did you determine the 3 drops/day dosageAny side effecets ? How long before your son started talking?ThanksKristy <Kjam (DOT) rr.com> wrote:I think www.waiora.comGoogle Natural cellular defense by Waiora and see what you get.  KristyWhere can you order the NCD?>From: Kristy <Kjam (DOT) rr.com>>Reply-To: mb12 valtrex >To: mb12 valtrex >Subject: Re: Non-verbal - any suggestions?>>>My 3.5 year old autistic son is completely non-verbal. We are on the>>Valtrex/ Diflucan protocol, CLO, Zinc, Magnesium Sulfate, multi->>vitamin, PhosChol, 2 different kinds of probiotics, and MB-12 with>>folinic nasal spray. While eye contact, appropriate play and>>imitation skills have definitely improved (we still have a ways to>>go), his speech is still missing. By the way, we never saw any fevers>>or other symptoms that the Valtrex was "working", just steady>>improvement in several areas. The only rashes we have seen were very>>light "dotted-looking" rashes that still seems to come and go around>>his groin. He jabbers incoherantly quite a bit, and has no apparent>>oral motor problems. He receives speech, OT and PT as well as several>>hours of individual ABA therapy each week. We tried the GF/CF diet>>for 6 months, with little improvement, and we saw absolutely nowww.live.com/?addtemplate=football & icid=T001MSN30A0701

[Guest guest]

Is the Natural Cellular Defense chelation? Is it safe give to our child ourselves, without consulting a doctor? Vera wrote: We have been doing Valtrex + DMPS chelation for almost 10 months (chelation for 12 months). is thriving and chelation has really helped his fine motor skills. Vera"S.Putcha" <sputcha> wrote: Kristy, I amight get this for our 5 yr old non-verbal son too. The website says you need the advice of a physician to give to kids. Is that what you did? How did you determine the 3 drops/day dosage Any side effecets ? How long before your son started talking? Thanks Kristy <Kjam (DOT) rr.com> wrote: I think www.waiora.com Google Natural cellular defense by Waiora and see what you get. Kristy Where can you order the NCD?>From: Kristy <Kjam (DOT) rr.com>>Reply-To: mb12 valtrex >To: mb12 valtrex >Subject: Re: Non-verbal - any suggestions?>Date: Wed, 20 Dec 2006 18:16:00 -0600>>I ordered the NCD natural cellular defense drops last spring and my 5 year >old started talking. He has a long way to go but he can say "I want >juice.", etc. 3 drops twice daily. Kristy>>>>My 3.5 year old autistic son is completely non-verbal. We are on the>>Valtrex/ Diflucan protocol, CLO, Zinc, Magnesium Sulfate, multi->>vitamin, PhosChol, 2 different kinds of probiotics, and MB-12 with>>folinic nasal spray. While eye contact, appropriate play and>>imitation skills have definitely

improved (we still have a ways to>>go), his speech is still missing. By the way, we never saw any fevers>>or other symptoms that the Valtrex was "working", just steady>>improvement in several areas. The only rashes we have seen were very>>light "dotted-looking" rashes that still seems to come and go around>>his groin. He jabbers incoherantly quite a bit, and has no apparent>>oral motor problems. He receives speech, OT and PT as well as several>>hours of individual ABA therapy each week. We tried the GF/CF diet>>for 6 months, with little improvement, and we saw absolutely no>>regression of any kind when we took him off the diet. He has never had>>any toubles with his bowels, before or after the diet. I feel like>>maybe our next step should be chelation? Is anyone else doing>>chelation along with Valtrex? Any other suggestions or advice from>>anyone else who has had success with a non-verbal child? I really>>appreciate your input - Thanks!>>>>>>>__________________________________________________________Get live scores and news about your team: Add the Live.com Football Page www.live.com/?addtemplate=football & icid=T001MSN30A0701 __________________________________________________

[Guest guest]

We've started using this w/my youngest (age 3). He is also non-verbal. While

he is not talking, he is making sounds that he never made before like " sss " and

occasional words like " hi " " bye " " gaga " (for Dada) have been popping out here

and there. We are only at 2x/day but we are working our way up to 3.

My oldest (age 5) is also non-verbal. Last year, he did cranial sacral therapy

for about 6 weeks. During that time, actual words came out of his mouth and he

read single words from books. Long story short, we had to stop and the words

stopped also. I am trying to locate another therapist in my area so we can

start up again. I have read on other boards other people who have also had luck

w/cranial sacral and their children becoming verbal.

DR

--------- Re: Non-verbal - any suggestions?>>>My 3.5 year old autistic son is completely non-verbal. We are on the>>Valtrex/ Diflucan protocol, CLO, Zinc, Magnesium Sulfate, multi->>vitamin, PhosChol, 2 different kinds of probiotics, and MB-12 with>>folinic nasal spray. While eye contact, appropriate play and>>imitation skills have definitely improved (we still have a ways to>>go), his speech is still missing. By the way, we never saw any fevers>>or other symptoms that the Valtrex was "working", just steady>>improvement in several areas. The only rashes we have seen were very>>light "dotted-looking" rashes that still seems to come and go around>>his groin. He jabbers incoherantly quite a bit, and has no apparent>>oral motor problems. He receives speech, OT and PT as well as several>>hours of individual ABA therapy each week. We tried the GF/CF diet>>for 6 months, with little improvement, and we saw absolutely nowww.live.com/?addtemplate=football & icid=T001MSN30A0701

[Guest guest]

Hi Kristy,

Have you added dmg or tmg? I know alot of non- verbal kids who responded to dmg BIGTIME! Also, just a thought passed that the nasal spray could have thimerosol in it?I have no idea but was thinking of inhalers having it.Yasko's test will tell you what pathways are blocked and how to get around those.

R