troubles with doctors

[Guest guest]

I am going to vent and maybe someone can help me. I went to my

children's doctor to let them know what TCI has told me about what

they found on their MRI's. The doctor wanted me to get a

neurosurgeon to see about additional testing. I got my kids immune

difficancy doctor to get them into neuro at children's hospital. I

figure that would be the best place for them to go. I talked to the

people in the department personally getting them the information and

the symptoms of the kids. They had the gull to tell me that it is

not a ACM with a 5mm herniation and if it doesn't show up on and MRI

then your son doesn't have tethered cord. They now said that with

all of the symptoms my girls have and all the problems my son has

they will not see them. They said that it is something else that is

going on and it wouldn't be in their department. Now what do I do?

I need some help on who I can contact for additional MRI's for my

children so that I can get them to TCI. I thought that numbness down

the arms, migraines, sever pain in the back of the neck and upper

back, and difficulty swallowing were all symptoms of Chiari. Am I

wrong? My son walks on his toes, has sever pain down his legs and in

his lower back and also has bowel and urinary incontinence. Tethered

Cord right? I only had a 7mm herniation and now look at me. I can't

believe that doctor's not only are willing to put adults at risk for

not testing them but children. I am so mad I just want to go there

and pull on someone's brain and let them know what it feels like.

Any help would be greatly appreciated.

Ryea