7 Yrs ago..............NCC

[Guest guest]

It was 7 years ago today that We pulled into Dc for my kids decompressions to

meet with their surgical staff and to find out any and everything there was to

know about Chiari. As a parent I still look back and say " how did I handle all

of that? " It has been almost 7 yrs since Ty and Graces decompression and alot

has changed. I am certain that Walter now does more Chiari Decompressions

than just 4 a year. Ty and Graces surgeon is now the chief of neurosurgery and

has told us that if they ever need a decompression again he would gladly do it.

I still find myself to be a little shakey but then I hope and pray that things

will continue to be better in the future. I have changed just about every

aspect in my life since the decompression. I found God and I never take

anything for granted when my kids talk to me...even when they Ty to drive me

nuts. Ty, my 10 yr old still insists that the guy with the long hair, make up

and long tongue plays for the Beetles...not Gene

from Kiss. So for the parents and families that are going through

this...things will get better...and if they are any like mine.. the older they

get the funnier they are. Yes they might be limited on what they can do...but

my kids always keep me laughing. Enjoy them and yet hold them.

Heidi

May you be continually blessed as I am.

Heidi........37...ACM Borderline

Cody.........12.....ACM Free

Ty...............10..Decompressed 2/01, Sm.

Grace.........9...Decompressed 2/01, SM,Closed back bifada,EDS and possible

tethered Cord.

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